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DTSTART;TZID=Europe/Vienna:20240603T090000
DTEND;TZID=Europe/Vienna:20240612T170000
DTSTAMP:20260418T192314
CREATED:20240503T115511Z
LAST-MODIFIED:20240503T115511Z
UID:6003-1717405200-1718211600@ccieurope.eu
SUMMARY:Equity\, Diversity and Inclusion (EDI) principles in Cancer Care: Training event for researchers\, healthcare providers and patient communities
DESCRIPTION:What is “Equity\, Diversity and Inclusion in Cancer Care” training about?  \nDiscover and develop key skills in our engaging training program: \n\nCultural awareness\nRecognizing inequality\nInclusive communication\nCreating a safe environment\nSupporting families and empowering patients\nAddressing discrimination\nComprehensive needs assessment\nInclusive research techniques\nEffective advocacy\, and more!\n\nThe training event and toolkit launch for equitable\, inclusive\, and diverse cancer care\, organized by Youth Cancer Europe and Inclusive Employers Ltd. as part of the EU co-funded EU-CAYAS-NET project\, will take place in Cluj-Napoca\, Romania from June 3 to June 12\, 2024. Successful applicants will enjoy full expense coverage of travel\, accommodation\, and on-site meals. \nThe face-to-face training targets three distinct audiences and will feature the following sessions: \n\n3 – 6 June \n6 – 9 June \n9 – 12 June \n\nInterested participants are invited to complete the Expression of Interest form below. If the form doesn’t work please use this link: https://forms.gle/emSjoeeVn1hbDn9EA \nFor more information please contact Victor Gîrbu at victor@youthcancereurope.org \n\n\nInterested participants are invited to complete the Expression of Interest form below by May 5\, 2024.\n\n\n\nregister here
URL:https://ccieurope.eu/event/equity-diversity-and-inclusion-edi-principles-in-cancer-care-training-event-for-researchers-healthcare-providers-and-patient-communities/
LOCATION:Cluj Napoca\, Romania
CATEGORIES:Event,Projects
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2024/05/eucayasnet-dei-training-ccieurope.png
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DTSTART;TZID=Europe/Vienna:20240603T170000
DTEND;TZID=Europe/Vienna:20240603T183000
DTSTAMP:20260418T192314
CREATED:20240412T083437Z
LAST-MODIFIED:20241211T004822Z
UID:5875-1717434000-1717439400@ccieurope.eu
SUMMARY:Advance Your Knowledge: Drug Regulations - What is new for the childhood cancer community?
DESCRIPTION:In this webinar\, the participants will learn from our experts about any new developments in the Pharmaceutical Package. The European Parliament is set to adopt its formal position on the revision of the orphan and paediatric regulations this April and the Council has already started its internal discussions. Teresa and Marine will give us an update and let us know about any new developments on the file\, as well as our priorities and achievements in our continuous advocacy efforts to meet with members of the European Parliament and Council representatives. \n\nAbout the Speakers: \nTeresa Pais\nTeresa Pais is an EU public affairs specialist; she worked as parliamentary assistant to a member of the European Parliament\, in a trade association and consultancies in the healthcare sector. She graduated in Law and has a Master’s degree in European affairs. \n\nMarine Gouders\nMarine Gouders\, member of the CCI Europe Office\, studied law and specialised in European law. After graduating\, she did an internship at the European Parliament\, where she discovered the workings of the European institutions. For the past year\, she has been working in the European Affairs Pillar. \n\n\n\nDelphine Heenen\nDelphine Heenen is a CCI Europe board member and the founder\, director and day-to-day manager of KickCancer in Belgium. Delphine was successively a lawyer\, a strategy consultant and active in the investment world of renewable energy. Currently\, she is the leader of the EU affairs pillar and a member of the R&I Pillar. \n\n\n\nregister here
URL:https://ccieurope.eu/event/drug-regulations-childhood-whats-new-for-the-cancer-community/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2024/04/Gold_Webinar_EU_Affairs.png
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BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20240620T160000
DTEND;TZID=Europe/Vienna:20240620T173000
DTSTAMP:20260418T192314
CREATED:20240606T090213Z
LAST-MODIFIED:20240606T090536Z
UID:6211-1718899200-1718904600@ccieurope.eu
SUMMARY:Specialist Adolescent and Young Adults Units Minimum Standards
DESCRIPTION:What to Expect: \n\nExpert Speakers: Hear from leading experts in the field who will share their knowledge and experiences.\nPanel discussion: Hear diverse perspectives from healthcare professionals\, patient representatives\, and young cancer survivors.\nResources and Support: Gain access to the position paper and implementation guidelines that support adolescents and young adults.\n\n  \nAgenda: \n\nOverview of the Project’s Work Package 4 AYA Care: Learn more about the EU-CAYAS-NET cofounded project\nPatient perspective: Patient talking about what practices already exist and what still needs to be changed.\nFocus on Recommendations: Discuss the “Specialist AYA Units Minimum Standards” position paper.\nImplementation: Healthcare professionals talking about what standards already exist and what still needs to be implemented.\n\n  \nWhy Attend? \n\nLatest Research and Trends: Learn about the latest research and trends affecting young adults.\nCommunity Connection: Connect with a community of individuals who share your interests and concerns.\n\nWhether you are a young adult\, a caregiver\, or a professional working with this age group\, this webinar will provide valuable insights and resources. \n  \n\nregister here
URL:https://ccieurope.eu/event/equity-diversity-and-inclusion-edi-principles-in-cancer-care-training-event-for-researchers-healthcare-providers-and-patient-communities-2/
LOCATION:Online Webinar
CATEGORIES:Event,Survivorship
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2024/06/eucayasnet_cci_europe_childhood_cancer_survivors.png
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BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20240627T123000
DTEND;TZID=Europe/Vienna:20240628T170000
DTSTAMP:20260418T192314
CREATED:20240625T150100Z
LAST-MODIFIED:20240625T150100Z
UID:6297-1719491400-1719594000@ccieurope.eu
SUMMARY:Surviving Survival – Symposium on mental health of Youth Cancer Survivors
DESCRIPTION:EN 📣 Surviving Survival – Symposium on mental health of Youth Cancer Survivors \nOn 27 June\, a health policy symposium (in German) on “Surviving Survival: How can we improve psychosocial health after childhood\, adolescent and young adult cancer?” will take place in Vienna\, organized by CCI Europe as part of the EU-CAYAS-NET project. \n🗨️ For the first time in German speaking countries\, we will present relevant EU-CAYAS-NET project results to health policy makers\, stakeholders and media representatives\, draw attention to the needs of young survivors 🎗️ and discuss what types of psychological\, social and educational support are missing after cancer in childhood\, adolescence and young adulthood in Austria! 🙌🏻 \nThis will be followed by an interactive patient advocacy training for German-speaking survivors and/or their family members from all over Europe on June 28th! 💪🏻 \nAre you a German speaking survivor/family member\, interested in targeted patient advocacy training and want to learn how to best implement our goals? \nThen register with the button below\, we look forward to seeing you! If you have any questions\, please contact Hannah at h.gsell@ccieurope.eu. \n—– \n🇩🇪 📣 Surviving Survival – Symposium zur mentalen Gesundheit nach Kindekrebs \nAm 27. Juni findet in Wien ein deutschsprachiges gesundheitspolitisches Symposium statt zum Thema “Surviving Survival: Wie können wir die psychosoziale Gesundheit nach Krebs im Kindes-\, Jugend- und jungen Erwachsenenalter verbessern?”\, veranstaltet von CCI Europe im Rahmen des EU-CAYAS-NET Projekts. \n🗨️ Wir präsentieren erstmals im Deutschsprachigen Raum gesundheitspolitischen Entscheidungsträger:innen\, Interessensvertreter:innen und Medienvertreter:innen relevante EU-CAYAS-NET Projektergebnisse\, machen auf die Bedürfnisse junger Survivors 🎗️aufmerksam und diskutieren\, welche Arten von dringend notwendiger psychologischer\, sozialer und edukativer Unterstützung nach einer Krebserkrankung im Kindes-\, Jugend- und jungen Erwachsenenalter in Österreich fehlen! 🙌🏻 \nIm Anschluss daran findet am 28. Juni eine interaktive Advocacy-Schulung für deutschsprachige Survivors und deren Familien aus ganz Europa statt! 💪🏻 \nDu bist ein deutschsprachiger Survivor/Familienmitglied\, interessierst dich für gezieltes Advocacy Training und möchtest lernen\, wie unsere Ziele bestmöglich umgesetzt werden können? \nWir freuen uns auf dich! Bei Fragen wende dich gerne an Hannah unter h.gsell@ccieurope.eu. \nregister here
URL:https://ccieurope.eu/event/surviving-survival-symposium-on-mental-health-of-youth-cancer-survivors/
LOCATION:Vienna\, Austria
CATEGORIES:Event,Survivorship
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2024/06/EU-CAYAS-NET_event-visuals_OSymposium_Banner.png
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BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20240629T160000
DTEND;TZID=Europe/Vienna:20240629T180000
DTSTAMP:20260418T192314
CREATED:20240617T134233Z
LAST-MODIFIED:20240617T140140Z
UID:6272-1719676800-1719684000@ccieurope.eu
SUMMARY:Survivor's Week Webinar: Childhood Cancer - Stigma and Communication
DESCRIPTION:Childhood cancer survival rates have been improving globally over recent decades. Researchers in this area highlight\, “Ongoing improvements in survival rates across high-income\, middle-income and low-income countries will result in a rapidly expanding population of survivors with unique health-care needs\, emphasizing the increasing relevance of issues relating to childhood cancer survivors globally.” (Ehrhardt et al. 2023). Young people who have survived cancer are a medically vulnerable population at higher risk for health and psychosocial issues throughout their lifetimes including\, for example\, challenges in mental health\, physical health\, education\, work\, or social integration in their communities. However\, many young people who have survived childhood cancer have meaningful and productive lives with support from family\, community\, and peers. CCI and SIOP offer an annual 2-hour webinar on Childhood Cancer Survivorship to bring together professionals and young people who have been treated for cancer to highlight challenges and successes in this global topic. This year’s theme is Childhood Cancer Stigma and Communication (the language and words we use when speaking about childhood cancer). Join us on June 29\, 2024\, to celebrate cancer survival month (June) and all who have completed treatment worldwide. \nAbout the Speakers: \nYamini Krishnan \nPediatric oncologist\, Head of Paediatric Hematology Oncology and BMT unit at MVR Cancer Centre and Research Institute\, Kerala·MVR Cancer Centre and Research Institute\, Calicut\, Kerala\, India \n\nHead\, Paediatric Haematology Oncology and BMT unit at the MVR Cancer Centre and Research Institute\, Calicut\, Kerala\, India . Chair\, Neuroblastoma subcommittee of INPHOG; the research organisation of the Paediatric haematology oncology chapter of the Indian Academy of Paediatrics. Co Chair of the Protocols and Clinical Trials sub committee of the Indian childhood cancer Initiative(ICCi)\, working for the improvement of the care of children with cancer in India. Involved in the advisory committee of various Non governmental organisations. Though my clinical interests lie in the field of paediatric oncology \, I am very much interested in studying the social aspects in the lives of children affected with cancer and mitigating the barriers associated with the reintegration process of our children into the society. \n\n\nMara Ayala \nIMAGINA Pediatric Psycho-Oncology\, Mexico \n\nMara Ayala\, PhD is the founder and director of IMAGINA Pediatric Psycho-Oncology\, a nonprofit in Aguascalientes\, Mexico\, tending to the psychosocial needs of patients and their families. She also created the Integrative Extra- and Intra-Hospital Psycho-Oncological Intervention Model (MIPPEIH)\, now integral to the institution’s operations. \nAnna Sonkin \nPhysician·St. Jude Children’s Research Hospital \n\nAnna Sonkin\, MD\, is a parent of a pediatric cancer survivor and a pediatrician and palliative care physician currently working at St. Jude Children’s Research Hospital. She also specializes in clinical communication skills education. Until 2022\, she lived and worked in Russia and now lives in New York \nCriss Koba Mjumbe \nProfessor·University of Lubumbashi \n\nHe is a public health expert and associate professor at the University of Lubumbashi. Specialized in studies of QALYs (Quality-Adjusted Life Year) and DALYs (Disability-Adjusted Life Year) and Cancer Costs in Africa. Of Congolese origin\, he studied medicine in Lubumbashi. Member of the GFAOP and SIOP international \n\nManar El Mountaqi \n\nMy name is Manar\, and I am a 24-year-old medical student living in Rabat\, Morocco’s capital\, it’s a very beautiful city\, it’s a blend of historic charm and modern elegance\, featuring stunning coastal views . My journey into the field of medicine has been deeply personal. At the age of 10\, I was diagnosed with Hodgkin lymphoma. Inspired by the care and dedication of the medical professionals who treated me\, I decided to pursue a career in medicine. Now\, as a medical student\, I am committed to making a difference in the lives of my future patients\, and to support and heal those in need. \n\nRacha Hajjar \n\nMy name is Racha Hajjar (29 years old) and I work as a volunteer coordinator at the Cedars Cancer Center in Montreal. I have a bachelor’s degree in interior architecture as well as a master’s degree in social work. When I was 9 years old\, I was diagnosed with leukemia. I was treated at the Children’s Cancer Center of Lebanon (CCCL) for four long years. My cancer journey has made me the strong person I am today. \n\n\n\n\n\n\n\nregister here
URL:https://ccieurope.eu/event/survivors-week-webinar-childhood-cancer-stigma-and-communication/
LOCATION:Online Webinar
CATEGORIES:Event,Survivorship
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2024/06/childhood_cancer_survivors_week_stigma_communication.png
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