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CREATED:20250102T100940Z
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UID:6811-1738684800-1738692000@ccieurope.eu
SUMMARY:International Childhood Cancer Day (ICCD) 2025 - Policy event
DESCRIPTION:MEP András Kulja (EPP\, Hungary) will host and organize a policy event in anticipation of International Childhood Cancer Day (ICCD) with the participation of SIOP Europe and CCI Europe . \nThe ICCD is commemorated on 15 February each year. The date of the ICCD event at the European Parliament coincides with World Cancer Day (4 February)\, emphasizing the place of childhood cancer at the heart of cancer policies. \nThe meeting will put the spotlight on the current challenges in cross-border care and research in pediatric oncology\, with a focus on advancing multi-stakeholder collaboration to address systemic inequalities. \nJoin this important discussion on Tuesday\, 4 February\, from 16:00 to 18:00 CET\, at the European Parliament in Brussels . The event will be followed by an exclusive networking reception. \n\n\nRegister Here\nThe event will feature two engaging panel discussions: \nCross-Border Access to Care and Training: \nExplore the barriers children face in accessing specialized oncology care under the Cross-Border Healthcare Directive and discuss practical solutions to bridge these gaps. Learn about the role of EU training initiatives and twinning programs in empowering healthcare professionals and building capacity across Member States. \nCross-Border Access to Research: \nUnderstand the regulatory and logistical obstacles to European clinical trials and innovative treatments\, including CAR T-cell therapy. The discussion will highlight how harmonized frameworks can strengthen collaboration\, reduce disparities\, and advance innovation in pediatric oncology research. \nWhy attend?  \nThis is a unique opportunity to engage and network with EU policymakers\, healthcare professionals\, researchers\, and patient advocates and contribute to meaningful dialogue on how EU’s initiatives\, such as the Cross-Border Healthcare Directive and Beating Cancer Plan\, can ensure equitable access to care and research for children with cancer. \nBackground \nDespite all the advancements in the field\, disparities in access to care and research still exist across Europe\, unjustly affecting young patients’ survival and quality of life. Innovative therapies\, such as CAR T-cell therapy\, remain out of reach for many due to logistical and financial barriers. \nThis event will explore how EU policymakers and healthcare professionals can work together to overcome these challenges and build a future where all children with cancer can access the care and research they need\, regardless of where they live. \nFor queries or further information\, please send an email to: andras.kulja@europarl.europa.eu \, danai.spentzou@europarl.europa.eu \,  sonja.ladenstein@siope.eu \, and rachele.vedovelli@siope.eu . \n\nCheck the Provisional Programme Here
URL:https://ccieurope.eu/event/international-childhood-cancer-day-iccd-2025-policy-event/
LOCATION:European Parliament\, Brussels
CATEGORIES:EU Affairs,Event
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2024/12/iccd-2025-banner.png
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DTSTART;TZID=Europe/Vienna:20250224T170000
DTEND;TZID=Europe/Vienna:20250224T183000
DTSTAMP:20260418T181458
CREATED:20241206T134742Z
LAST-MODIFIED:20250123T124252Z
UID:6791-1740416400-1740421800@ccieurope.eu
SUMMARY:Advance Your Knowledge: Around the ERN-PaedCan Virtual Tumor Board 2.0 in 80 Minutes
DESCRIPTION:What if:\n1) Your oncologist is at a crossroads regarding therapy?\n2) The local tumor board cannot make a definite decision and\n3) You urgently need a second opinion from international experts? \nIn this webinar\, we want to strengthen patient organizations in their role as intermediaries for access to the new ERN-PaedCan Virtual Tumor Board 2.0 (= CPMS\, Clinical Patient Management System): We explain how patients/families can use the CPMS in collaboration with their oncologists and what role national patient representatives play in this cycle. \n\n\n\n\n\n\nregister here
URL:https://ccieurope.eu/event/advance-your-knowledge-around-the-ern-paedcan-virtual-tumor-board-2-0-in-80-minutes/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars
ATTACH;FMTTYPE=image/jpeg:https://ccieurope.eu/wp-content/uploads/2024/12/Gold-webinar-final-banner-1-1-scaled.jpg
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