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X-WR-CALDESC:Events for CCI Europe
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DTSTART;TZID=Europe/Vienna:20250923T170000
DTEND;TZID=Europe/Vienna:20250923T190000
DTSTAMP:20260419T005906
CREATED:20250725T151638Z
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UID:7207-1758646800-1758654000@ccieurope.eu
SUMMARY:Gold September - Childhood Cancer Awareness Month Event 2025
DESCRIPTION:CCI-E and SIOPE\, representing childhood cancer patients\, parents\, survivors and healthcare professionals\, will once again mark the Gold September – Childhood Cancer Awareness Month campaign through the annual flagship policy event.\n\nThis year’s event\, titled “No Child Left Behind: Prioritising Childhood Cancer in the Next EU Budget”\, will take place on Tuesday\, 23 September 2025\, from 17:00-19:00 CEST at the European Parliament (SPAAK 7C50) in Brussels. Co-hosted by MEPs Vlad Voiculescu (Renew\, Romania) and Romana Jerković (S&D\, Croatia)\, this flagship event will shine a spotlight on paediatric cancers and the urgent need to prioritise them in the next Multiannual Financial Framework (MFF) 2028-2034\, the EU’s long-term budget that sets expenditure priorities for the upcoming seven-year period.\n\n\nThe current MFF (2021 – 2027) has been instrumental in driving progress in care\, research\, and innovation\, through EU4Health and Horizon Europe programmes\, and other initiatives like Europe’s Beating Cancer Plan and the EU Cancer Mission. However\, challenges in implementation remain. As we approach a new budget cycle\, it’s critical to ensure sustained and increased EU investment to close these gaps and support children living with and beyond cancer.\n\nThe event will:\n\nReflect on achievements and shortfalls of EU cancer initiatives\nAdvocate for targeted funding for childhood cancer in the next MFF\nBring together policymakers\, researchers\, advocates\, and survivors\n\nLet’s make sure no child is left behind in the EU’s future fight against cancer.\n  \nJoin us in Brussels to help shape a healthier\, more equitable future for all children across Europe. \n\n\n\n\nRegister HereCheck the agenda
URL:https://ccieurope.eu/event/gold-september-childhood-cancer-awareness-month-event-2025/
LOCATION:European Parliament\, Brussels
CATEGORIES:EU Affairs,Event
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2025/08/Gold-September-Policy-Event.png
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DTSTART;TZID=Europe/Vienna:20250929T170000
DTEND;TZID=Europe/Vienna:20250929T183000
DTSTAMP:20260419T005906
CREATED:20250828T100119Z
LAST-MODIFIED:20250916T145744Z
UID:7356-1759165200-1759170600@ccieurope.eu
SUMMARY:Know the Basics: Building bridges - How does Palliative Care complete paediatric cancer care?
DESCRIPTION:register hereAbout the webinar: \nThis webinar aims to dispel any misconceptions surrounding paediatric palliative care and better clarify its role and how it can better support children with cancer and their families. Through a multi-disciplinary approach and presentation\, and enough time for discussion with the participants\, we aim to raise more awareness on what palliative care is and what benefits it can bring. \nWe will start with a short introduction and presentations on the topic\, from the various experts\, and will close with a panel discussion\, and Q&A from the audience. \nOur Speakers: \n\nGeorgia Kokkinou\nBereaved mother\, CCI Europe Committee Member\, and Vice president of Floga \nGeorgia is a bereaved mother and the Vice President of Floga\, the largest parents’ association of children with cancer in Greece. Through Floga\, she has gained significant experience in raising awareness for childhood cancer\, collaborating with healthcare professionals to promote better care and treatment for children with cancer and advocating based on first-hand knowledge of the patients’ actual needs. In October 2023\, she was elected as new European Member to the CCI Board. Within CCI Europe\, Georgia participates in various projects under the Diagnosis\, Treatment and Care Pillar. \n\nNathalie Hofer\nBereaved mother and founder of Ophelia’s Legacy \nNathalie Hofer is a curious soul who loves asking questions and reflecting deeply. A happy wife to Lukas and mom of three daughters—one of whom they lost to an ATRT brain tumor—she finds joy in baking\, decorating their home\, and embracing growth through self-reflection. For over 11 years\, she has worked as an organizational transformation consultant in the professional services industry. \n\nEva Maria Tinner\nSenior physician Pediatric Palliative Care University Children‘s Hospital Zurich\, member of SIOPE Palliative Care Steering Committee and PanCare Board \nDr. Eva Maria Tinner is a paediatric oncologist and hematologist with extensive expertise in paediatric palliative care. Her commitment began during her fellowship in the UK in 2009 and was strengthened through specialized training in Switzerland. Since 2018 she has focused her clinical work on PPC\, and since 2023 she has dedicated 50% of her time to the PPC team at University Children‘s Hospital Zurich. She is an active member of PPCN CH and serves on the Steering Committee of the SIOPE Palliative Care Working Group\, helping to advance PPC at both national and international levels. \nAna Lacerda\nSenior oncologist\, Portuguese Institute of Oncology\, Chair of SIOPE Pediatric Palliative Care Working Group \nDr Lacerda is a pediatric oncologist working in Lisbon\, Portugal\, with a very special interest in the implementation and development of pediatric palliative care (PPC). \nIn 2005 she founded the first in-hospital PPC team in Portugal\, at the Department of Paediatrics of the Portuguese Institute of Oncology Lisbon Centre / IPOLFG (which she chairs since June 2023). In 2013 she founded the PPC Taskforces at the Portuguese Association of Palliative Care and the Portuguese Pediatric Society. She is also a founding member of the Portuguese Observatory of Palliative Care\, and has been working closely with the Portuguese Ministry of Health. She is also a member of the EAPC Children and Young People Reference Group\, which she co-chaired 2019-21 and chaired 2022-23\, and currently serves on the EAPC Board (2023-27). \n\nUlrike Leiss\nClinical Psychologist at the Medical University of Vienna \nDr. Ulrike Leiss is a Clinical Psychologist\, specialised in the field of paediatric psycho-oncology and paediatric neuropsychology. She has been working at the Pediatric Neuro-Oncology Unit of the Comprehensive Center for Paediatrics of the Medical University of Vienna since 2001\, both in the field of inpatient psychosocial care and in (long-term) follow-up care. She has established an interdisciplinary psychosocial team there\, which is active both clinically and scientifically as COPEgroup. In the context of international collaboration\, she has been increasingly involved in the development and implementation of guidelines in recent years. Moreover\, her research focus is in (long-term) follow-up care\, interdisciplinary communication\, neuropsychological outcome and treatment. \nMaría Avilés\nNurse at Comprehensive Pediatric Palliative Care Unit at Hospital Universitario Niño Jesús Madrid \nMaría Avilés is a nurse from Spain and a member of the SIOPE Nursing Group. Since completing her nursing studies\, she has worked in various units in Spain and England. \nIn 2019\, she joined the Comprehensive Pediatric Palliative Care Unit at Hospital Universitario Niño Jesús in Madrid\, where she currently works as part of the homecare palliative care team. \nShe holds a Master of Science in Perinatal and Childhood Care and a PhD. In addition to her clinical practice\, María is actively involved in research and teaching on pediatric palliative care. She is also an associate lecturer in the Nursing Department at Universidad Autónoma of Madrid. \nregister here
URL:https://ccieurope.eu/event/know-the-basics-building-bridges-how-does-palliative-care-complete-paediatric-cancer-care/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars
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