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BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20251124T170000
DTEND;TZID=Europe/Vienna:20251124T183000
DTSTAMP:20260421T203303
CREATED:20251023T114751Z
LAST-MODIFIED:20251023T115622Z
UID:7577-1764003600-1764009000@ccieurope.eu
SUMMARY:Know the Basics: From Brussels to the lab: How will the shift in the EU's policy agenda impact Research & Innovation?
DESCRIPTION:register hereAbout the webinar: \nThis webinar explores how the European Union (EU)’s emerging priorities will be influencing the direction and funding of research and innovation (R&I) policies across the region. As the EU responds to global challenges – from green and digital transitions to geopolitical shifts and economic resilience – its policy focus is also changing. A growing emphasis is being placed on building a robust R&I ecosystem that not only supports scientific advancement but also aims at accelerating the development of new treatments and ensuring that health innovations reach patients faster. \nSpeakers: \nCOMING SOON \nregister here
URL:https://ccieurope.eu/event/know-the-basics-from-brussels-to-the-lab-how-will-the-shift-in-the-eus-policy-agenda-impact-research-innovation/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2025/10/Gold-webinar-Nov-scaled.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20251027T170000
DTEND;TZID=Europe/Vienna:20251027T183000
DTSTAMP:20260421T203303
CREATED:20250917T124215Z
LAST-MODIFIED:20251015T141329Z
UID:7492-1761584400-1761589800@ccieurope.eu
SUMMARY:Know the Basics: What Are PROs and PROMs\, and Why Do They Matter?
DESCRIPTION:register hereAbout the webinar: \nThis webinar explores the role of Patient-Reported Outcomes (PROs) and Patient-Reported Outcome Measures (PROMs) in clinical research and healthcare. Participants will gain insights into the scientific foundations of PROs/PROMs\, their impact on clinical trials\, and their relevance for improving patient care and quality of life. The session also highlights the importance of involving patient advocates in shaping meaningful healthcare outcomes. \nSpeakers: \nHannah Gsell\nChildhood Cancer Survivor\, CCI Europe\, Chairwoman of Survivors Austria \nHannah is a psychologist\, ALL-survivor\, and currently the Chairwoman of the Austrian Childhood Cancer Survivors Organisation.Hannah works at CCI Europe as project manager and patient expert and as such is involved in several EU funded projects. She is also part of the psychosocial pillar of CCI Europe. \n \nAnna Zettl\nChildhood Cancer Survivor\, CCI Europe \nAnna is an evolutionary anthropologist by training and currently pursuing a degree in psychology. She is a survivor of Hodgkin’s Lymphoma and serves as a board member of the Austrian Childhood Cancer Survivors Organisation.At CCI-E\, she works as a project coordinator and patient expert\, contributing to various research activities\, particularly in survivorship projects. \n \nMarita Partanen\nPediatric neuropsychologist and research group leader at the Princess Máxima Center \nMarita Partanen is a pediatric neuropsychologist and research group leader at the Princess Máxima Center in the Netherlands. The focus of her research is on the early identification and intervention of neuropsychological problems\, using a combination of behavioral\, therapeutic\, and neuroimaging (MRI) techniques. She also serves as co-chair of the SIOP-Europe Quality of Survival group\, where she leads a working group focused on aligning assessment methods in pediatric brain tumor trials. \nMartha Grootenhuis\, Prof.Dr.\nLead of the Psycho-Oncology Research Program at the Princess Máxima Center \nProf. Dr. Martha Grootenhuis is a leading expert in pediatric psycho-oncology with over three decades of experience. She currently leads the Psycho-Oncology Research Program at the Princess Máxima Center for Pediatric Oncology. She is internationally recognized for her pioneering work in developing and implementing Patient-Reported Outcome Measures (PROMs) in pediatric oncology in care. As the creator of the KLIK PROM portal and director of the PROM Core Facility\, she has advanced the integration of PROMs into daily care and promoted their use in clinical trials to enhance patient-centered outcome assessment. Her methodological research addresses the reliability\, interpretability\, and clinical utility of PROMs. \nregister here
URL:https://ccieurope.eu/event/know-the-basics-what-are-pros-and-proms-and-why-do-they-matter/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20250929T170000
DTEND;TZID=Europe/Vienna:20250929T183000
DTSTAMP:20260421T203303
CREATED:20250828T100119Z
LAST-MODIFIED:20250916T145744Z
UID:7356-1759165200-1759170600@ccieurope.eu
SUMMARY:Know the Basics: Building bridges - How does Palliative Care complete paediatric cancer care?
DESCRIPTION:register hereAbout the webinar: \nThis webinar aims to dispel any misconceptions surrounding paediatric palliative care and better clarify its role and how it can better support children with cancer and their families. Through a multi-disciplinary approach and presentation\, and enough time for discussion with the participants\, we aim to raise more awareness on what palliative care is and what benefits it can bring. \nWe will start with a short introduction and presentations on the topic\, from the various experts\, and will close with a panel discussion\, and Q&A from the audience. \nOur Speakers: \n\nGeorgia Kokkinou\nBereaved mother\, CCI Europe Committee Member\, and Vice president of Floga \nGeorgia is a bereaved mother and the Vice President of Floga\, the largest parents’ association of children with cancer in Greece. Through Floga\, she has gained significant experience in raising awareness for childhood cancer\, collaborating with healthcare professionals to promote better care and treatment for children with cancer and advocating based on first-hand knowledge of the patients’ actual needs. In October 2023\, she was elected as new European Member to the CCI Board. Within CCI Europe\, Georgia participates in various projects under the Diagnosis\, Treatment and Care Pillar. \n\nNathalie Hofer\nBereaved mother and founder of Ophelia’s Legacy \nNathalie Hofer is a curious soul who loves asking questions and reflecting deeply. A happy wife to Lukas and mom of three daughters—one of whom they lost to an ATRT brain tumor—she finds joy in baking\, decorating their home\, and embracing growth through self-reflection. For over 11 years\, she has worked as an organizational transformation consultant in the professional services industry. \n\nEva Maria Tinner\nSenior physician Pediatric Palliative Care University Children‘s Hospital Zurich\, member of SIOPE Palliative Care Steering Committee and PanCare Board \nDr. Eva Maria Tinner is a paediatric oncologist and hematologist with extensive expertise in paediatric palliative care. Her commitment began during her fellowship in the UK in 2009 and was strengthened through specialized training in Switzerland. Since 2018 she has focused her clinical work on PPC\, and since 2023 she has dedicated 50% of her time to the PPC team at University Children‘s Hospital Zurich. She is an active member of PPCN CH and serves on the Steering Committee of the SIOPE Palliative Care Working Group\, helping to advance PPC at both national and international levels. \nAna Lacerda\nSenior oncologist\, Portuguese Institute of Oncology\, Chair of SIOPE Pediatric Palliative Care Working Group \nDr Lacerda is a pediatric oncologist working in Lisbon\, Portugal\, with a very special interest in the implementation and development of pediatric palliative care (PPC). \nIn 2005 she founded the first in-hospital PPC team in Portugal\, at the Department of Paediatrics of the Portuguese Institute of Oncology Lisbon Centre / IPOLFG (which she chairs since June 2023). In 2013 she founded the PPC Taskforces at the Portuguese Association of Palliative Care and the Portuguese Pediatric Society. She is also a founding member of the Portuguese Observatory of Palliative Care\, and has been working closely with the Portuguese Ministry of Health. She is also a member of the EAPC Children and Young People Reference Group\, which she co-chaired 2019-21 and chaired 2022-23\, and currently serves on the EAPC Board (2023-27). \n\nUlrike Leiss\nClinical Psychologist at the Medical University of Vienna \nDr. Ulrike Leiss is a Clinical Psychologist\, specialised in the field of paediatric psycho-oncology and paediatric neuropsychology. She has been working at the Pediatric Neuro-Oncology Unit of the Comprehensive Center for Paediatrics of the Medical University of Vienna since 2001\, both in the field of inpatient psychosocial care and in (long-term) follow-up care. She has established an interdisciplinary psychosocial team there\, which is active both clinically and scientifically as COPEgroup. In the context of international collaboration\, she has been increasingly involved in the development and implementation of guidelines in recent years. Moreover\, her research focus is in (long-term) follow-up care\, interdisciplinary communication\, neuropsychological outcome and treatment. \nMaría Avilés\nNurse at Comprehensive Pediatric Palliative Care Unit at Hospital Universitario Niño Jesús Madrid \nMaría Avilés is a nurse from Spain and a member of the SIOPE Nursing Group. Since completing her nursing studies\, she has worked in various units in Spain and England. \nIn 2019\, she joined the Comprehensive Pediatric Palliative Care Unit at Hospital Universitario Niño Jesús in Madrid\, where she currently works as part of the homecare palliative care team. \nShe holds a Master of Science in Perinatal and Childhood Care and a PhD. In addition to her clinical practice\, María is actively involved in research and teaching on pediatric palliative care. She is also an associate lecturer in the Nursing Department at Universidad Autónoma of Madrid. \nregister here
URL:https://ccieurope.eu/event/know-the-basics-building-bridges-how-does-palliative-care-complete-paediatric-cancer-care/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2025/08/Gold-webinar-final-banner-11-scaled.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20250428T170000
DTEND;TZID=Europe/Vienna:20250428T183000
DTSTAMP:20260421T203303
CREATED:20250328T102456Z
LAST-MODIFIED:20250416T063843Z
UID:7081-1745859600-1745865000@ccieurope.eu
SUMMARY:Know the Basics: Peer Support in the spotlight - What can we learn from peer support programmes around Europe?
DESCRIPTION:About the webinar: \nDuring this webinar\, we will explore different models of peer support within our community. We’re not limiting ourselves to just one target group—we want to showcase the many ways peers can support not only patients but also survivors and parents\, guiding them through the various stages of the treatment pathway with their lived experiences. \nOur goal is to inspire anyone who is currently developing a peer support program or considering starting one. Take this opportunity to pick the best ideas for your own approach\, get inspired\, ask questions\, and exchange experiences! \nJoin us and discover how peer support can make a real difference! \n\n\n\n\n\nregister hereOur Speakers: \n\nJelena Češljar\nKrijesnica – Croatia \nSocial worker and volunteer coordinator at Krijesnica\, previously a long-time volunteer at Krijesnica in activities with children undergoing treatment for malignant diseases. Educator of psychotherapy in the field of transactional analysis and student of specialist supervision studies. \n\nMihael Severinac\nKrijesnica – Croatia \nAn ardent patient advocate who uses his childhood cancer experience to advocate and change things around for childhood cancer patients and survivors. Associate in the implementation of projects and activities in Croatia and a leader of the Croatian survivors group. \n\nJohanna Kero\nSYLVA – Finland \nJohanna Kero is a mother of a young cancer survivor and serves on the board of the Finnish children’s cancer organization SYLVA\, as well as the Finnish nursing guidelines working group on Psychosocial support for patients with cancer. She is also a nurse and senior nursing lecturer with expertise in the care of patients with cancer\, palliative care and end-of-life care. \n\nVanessa Karaivanova\nFoundation Gold – Bulgaria \nVanessa Karaivanova is a childhood cancer survivor\, patient advocate\, and a student in Child and Adolescent Psychology. For several years\, she has been volunteering at the paediatric oncology clinic in Sofia\, Bulgaria supporting children throughout their treatment journey. As a member of the Survivorship Pillar of CCI Europe\, she is dedicated to improving the quality of life for young survivors and advocating for comprehensive\, long-term care. \n\nTiago Costa\nAcreditar – Portugal \nregister here
URL:https://ccieurope.eu/event/know-the-basics-peer-support-in-the-spotlight-what-can-we-learn-from-peer-support-programmes-around-europe/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20250224T170000
DTEND;TZID=Europe/Vienna:20250224T183000
DTSTAMP:20260421T203303
CREATED:20241206T134742Z
LAST-MODIFIED:20250123T124252Z
UID:6791-1740416400-1740421800@ccieurope.eu
SUMMARY:Advance Your Knowledge: Around the ERN-PaedCan Virtual Tumor Board 2.0 in 80 Minutes
DESCRIPTION:What if:\n1) Your oncologist is at a crossroads regarding therapy?\n2) The local tumor board cannot make a definite decision and\n3) You urgently need a second opinion from international experts? \nIn this webinar\, we want to strengthen patient organizations in their role as intermediaries for access to the new ERN-PaedCan Virtual Tumor Board 2.0 (= CPMS\, Clinical Patient Management System): We explain how patients/families can use the CPMS in collaboration with their oncologists and what role national patient representatives play in this cycle. \n\n\n\n\n\n\nregister here
URL:https://ccieurope.eu/event/advance-your-knowledge-around-the-ern-paedcan-virtual-tumor-board-2-0-in-80-minutes/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20241216T170000
DTEND;TZID=Europe/Vienna:20241216T183000
DTSTAMP:20260421T203303
CREATED:20241114T080944Z
LAST-MODIFIED:20241203T133310Z
UID:6735-1734368400-1734373800@ccieurope.eu
SUMMARY:Advance Your Knowledge: How can patients benefit from ESCPs?
DESCRIPTION:The European Standard of Clinical Practice (ESCP) Project is an on-going collaboration between ERN PaedCan and SIOP Europe’s Clinical Trial Groups (ECTG)\, aiming to develop approved clinical recommendations that reflect current best practices for each common childhood cancer type. The ESCPs are reviewed by CCI-E members. The goal is to improve outcomes and increase childhood cancer survival\, and quality of life by providing these benchmarks for best practice. In this Gold Webinar\, we discuss with responsible clinicians how patient representatives can best use these ESCPs so that patients can benefit directly.\n \nPanelists \nHarun Šabić\, CCI Europe Committee MemberLidiya Vitanova\, CCI Europe DT&C pillar MemberEwa Majewska\, CCI Europe DT&C Pillar MemberRuth Ladenstein\, ERN-PaedCan Coordinator & Head of the Clinical Trials Unit S²IRP at St. Anna CCRIJelena Rascon – Head of the Cancer Coordination Centre at Santaros ClinicsModerator: Barbara Brunmair\, CCI Europe Projects & Pillar Coordinator \n\n\n\n\n\nregister here
URL:https://ccieurope.eu/event/how-can-patients-benefit-from-escps/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20241118T170000
DTEND;TZID=Europe/Vienna:20241118T183000
DTSTAMP:20260421T203303
CREATED:20241017T074513Z
LAST-MODIFIED:20241022T123908Z
UID:6694-1731949200-1731954600@ccieurope.eu
SUMMARY:Advance Your Knowledge: How to develop and translate a multidisciplinary Psycho-Oncology Model of Care into real action?
DESCRIPTION:Advance your knowledge! Psychosocial care in paediatric oncology still needs to be advanced in wide parts of Europe. In this webinar we will learn from experts in Ireland that managed to establish a National Model of Care for Psycho-Oncology services for Children\, Adolescents and Young Adults (CAYA) with Cancer and their families in order to provide a framework to support the way that psychosocial care is delivered to this cohort and their families. We are happy to have the experts from Ireland with us that will present the model of care and tell us about the process that they have been conducting from professional but also from patient organization side. \n\nAbout the Speakers: \nDr Helen Greally \nClinical Lead in Psycho-Oncology at the NCCP and Cancer Care West \nDr Chiara Besani \nPaediatric principal clinical psycho-oncologist \nLaura Cullinan \nCEO at Childhood Cancer Ireland and Parent of a Survivor \n\n\n\n\nregister here
URL:https://ccieurope.eu/event/advance-your-knowledge-how-to-develop-and-translate-a-multidisciplinary-psycho-oncology-model-of-care-into-real-action/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars,Survivorship
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20241014T170000
DTEND;TZID=Europe/Vienna:20241014T183000
DTSTAMP:20260421T203303
CREATED:20240603T150325Z
LAST-MODIFIED:20241002T133127Z
UID:6199-1728925200-1728930600@ccieurope.eu
SUMMARY:Advance Your Knowledge: What could be the impact of Big Data and AI application in paediatric oncology?
DESCRIPTION:In this webinar\, we will delve into the transformative potential of Big Data and Artificial Intelligence (AI) in paediatric oncology\, exploring how these innovative approaches can help cancer research and reshape diagnostics\, treatment strategies\, and outcomes for children with cancer. Join us to delve into the implications\, opportunities\, and ethical considerations surrounding the integration of Big Data and AI in pediatric oncology. \n\nAbout the Speakers: \nPamela Kearns  \nDirector of Institute of Cancer and Genomic Sciences\, University of Birmingham \nPatrick Kemmeren  \nHead of the Big Data Core and Genomics department\, Princess Maxima Center \nFranck Devaux \nEthicist at the Hôpital Universitaire Des Enfants Reine Fabiola \n\n\n\n\nregister here
URL:https://ccieurope.eu/event/advance-your-knowledge-what-could-be-the-impact-of-big-data-and-ai-application-in-paediatric-oncology/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars,R&I
ATTACH;FMTTYPE=image/jpeg:https://ccieurope.eu/wp-content/uploads/2024/06/Gold-webinar-october-2024-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20240923T170000
DTEND;TZID=Europe/Vienna:20240923T183000
DTSTAMP:20260421T203303
CREATED:20240625T122428Z
LAST-MODIFIED:20240625T122428Z
UID:6287-1727110800-1727116200@ccieurope.eu
SUMMARY:Know the basics: How to advance childhood cancer priorities in the aftermath of the EU elections?
DESCRIPTION:In the aftermath of the EU elections\, the CCI Europe policy team will present the composition of the new elected Parliament and discuss the possible implications for our childhood cancer advocacy priorities. \nDuring this webinar\, we will talk about the impact of those elections on the nomination of the new Commission leaders\, namely for health matters. \nJoin us! An easy way to get informed on what to expect from the EU in the next 5 years. \n\nAbout the Speakers: \nTeresa Pais\nTeresa Pais is an EU public affairs specialist; she worked as parliamentary assistant to a member of the European Parliament\, in a trade association and consultancies in the healthcare sector. She graduated in Law and has a Master’s degree in European affairs. \n\nMarine Gouders\nMarine Gouders\, member of the CCI Europe Office\, studied law and specialised in European law. After graduating\, she did an internship at the European Parliament\, where she discovered the workings of the European institutions. For the past year\, she has been working in the European Affairs Pillar. \n\n\n\n\nregister here
URL:https://ccieurope.eu/event/know-the-basics-how-to-advance-childhood-cancer-priorities-in-the-aftermath-of-the-eu-elections/
LOCATION:Online Webinar
CATEGORIES:EU Affairs,Event,Gold Webinars
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20240603T170000
DTEND;TZID=Europe/Vienna:20240603T183000
DTSTAMP:20260421T203303
CREATED:20240412T083437Z
LAST-MODIFIED:20241211T004822Z
UID:5875-1717434000-1717439400@ccieurope.eu
SUMMARY:Advance Your Knowledge: Drug Regulations - What is new for the childhood cancer community?
DESCRIPTION:In this webinar\, the participants will learn from our experts about any new developments in the Pharmaceutical Package. The European Parliament is set to adopt its formal position on the revision of the orphan and paediatric regulations this April and the Council has already started its internal discussions. Teresa and Marine will give us an update and let us know about any new developments on the file\, as well as our priorities and achievements in our continuous advocacy efforts to meet with members of the European Parliament and Council representatives. \n\nAbout the Speakers: \nTeresa Pais\nTeresa Pais is an EU public affairs specialist; she worked as parliamentary assistant to a member of the European Parliament\, in a trade association and consultancies in the healthcare sector. She graduated in Law and has a Master’s degree in European affairs. \n\nMarine Gouders\nMarine Gouders\, member of the CCI Europe Office\, studied law and specialised in European law. After graduating\, she did an internship at the European Parliament\, where she discovered the workings of the European institutions. For the past year\, she has been working in the European Affairs Pillar. \n\n\n\nDelphine Heenen\nDelphine Heenen is a CCI Europe board member and the founder\, director and day-to-day manager of KickCancer in Belgium. Delphine was successively a lawyer\, a strategy consultant and active in the investment world of renewable energy. Currently\, she is the leader of the EU affairs pillar and a member of the R&I Pillar. \n\n\n\nregister here
URL:https://ccieurope.eu/event/drug-regulations-childhood-whats-new-for-the-cancer-community/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2024/04/Gold_Webinar_EU_Affairs.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20240422T170000
DTEND;TZID=Europe/Vienna:20240422T183000
DTSTAMP:20260421T203303
CREATED:20240411T113308Z
LAST-MODIFIED:20240422T124516Z
UID:5837-1713805200-1713810600@ccieurope.eu
SUMMARY:Know the Basics: How can I level up my patient advocacy?
DESCRIPTION:In this webinar\, the participants will learn about existing patient advocate trainings\, how they were developed\, how they were conducted and what they entail. \nWe will present ongoing and upcoming training opportunities for patient advocates hosted by organisations such as WECAN\, EUPATI\, KickCancer\, EURORDIS and CCI! \nParticipants are invited to use the Q&A session to present efforts from their countries or organisations. \n\nAbout the Speakers: \nLaia Bisbal Arnal\nLaia is the Open Classroom Coordinator of The European Patients’ Academy (EUPATI). EUPATI is a public-private and multi-stakeholder partnership that provides education and training to increase the capacity and capability of patients and patient representatives to understand and meaningfully contribute to medicines research and development (R&D). Laia has been working at EUPATI since 2022 in the coordination and development of the EUPATI Open Classroom\, the online training platform. She is also part of the Training Committee of the Patient Expert Training Programme\, a training programme that covers the entire life cycle of medicines R&D. Laia has a degree in Economics and a master’s degree in international cooperation\, human rights\, and social inclusion. Her professional background includes training design and facilitation\, consulting\, and project coordination in partnership with governmental and non-profit organizations.  \n\nRachel Butcher\nRachel rejoined EURORDIS in September 2022 as the Training Manager for the Open Academy programme\, which empowers patient advocates with knowledge and skills to take part in patient engagement roles side-by-side with all stakeholders and to advocate for rare diseases on a European and national level. She is responsible for the end-to-end organisation of training activities\, ensuring high-quality organisation and delivery of the various programmes proposed by the Open Academy. She has previously worked with EURORDIS in both the Events team\, mainly helping to organise ECRD 2018\, as well as with the Open Academy team as an assistant. Prior to rejoining EURORDIS as the Open Academy Training Manager\, she coordinated grassroot organisations helping refugees in Northern France. Rachel has an undergraduate degree in French and Psychology from Newcastle University in the UK and completed a Master in European Studies\, studying at King’s College London and Sciences Po Paris. She speaks English and French (and is learning Spanish!).  \nSara Dederichs\nSara draws from over 25 years of rich experience in leading\, training as well as mentoring diverse and multicultural teams towards defined joint goals. With a background in social psychology and new leadership methodologies\, Sara brings a unique perspective to her role as coordinator of the EPAI team and navigator of the EPAI project portfolio. Beyond her project management responsibilities\, Sara serves as the driving force behind the WECAN Secretariat and is a member of the WECAN Coordination team. She leverages her expertise in leadership and understanding of team dynamics to ensure the optimal use of team resources and foster collaboration\, leading to innovation and succesfull team outcomes. Sara is based in Germany\, was raised in Spain and is fluent in German\, English\, Spanish and has a basic level of understanding Catalan\, Portuguese and Italian. She has two adolescent daughters. \n\nAlice Gerbaux\nAlice has a diploma in economics. She started her career in sales for BIC and Nestlé and later became in charge of marketing and communication for a NGO active in the field of sustainable forests. In her day-to-day life at  KickCancer Alice is in charge of the defence of young patients with cancer\, and more specifically so by supervising a training that will help them become expert patient and by coordinating their participation in international and KickCancer’s internal projects. The final aim of Alice’s role at KickCancer is to ensure that research and the legal framework meet the needs of sick children and lead to more efficacious and less toxic treatments. \n\nRaluca Popa\nRaluca is the Global Programme Manager\, joining Childhood Cancer International at the beginning of this year. Prior to this\, Raluca was in charge of the programme coordination of the emergency response for Ukraine on behalf of the World Organisation of the Scout Movement. She has experience in coordinating international volunteering projects and capacity building programmes for NGOs. With a strong interest for education and lifelong learning\, she is a certified trainer focused on experiential learning and human rights. Raluca is a passionate person with a special heart for children.  \nregister here
URL:https://ccieurope.eu/event/know-the-basics-how-can-i-level-up-my-patient-advocacy/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2024/04/Gold_webinar_cci_europe_patient_advocacy_banner.png
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BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20240205T170000
DTEND;TZID=Europe/Vienna:20240205T183000
DTSTAMP:20260421T203303
CREATED:20240123T152214Z
LAST-MODIFIED:20240123T152517Z
UID:5357-1707152400-1707157800@ccieurope.eu
SUMMARY:Know the basics: ICCD Campaign 2024 - Kick Off!
DESCRIPTION:In this webinar\, CCI Europe will present to the participants the upcoming 3-years global ICCD Campaign “Equal Access To Care” and will focus on how member organisations can actively contribute to year 1 of the campaign with the motto: “Unveiling Challenges”. \nThe Campaign Toolkit will be presented so that member organisations can share and promote the campaign in their countries. In year 1\, everyone affected by childhood cancer is invited to go to the ICCD-platform and submit a digital postcard with the challenges and inequalities they face in their country related to childhood cancer. The postcard will then show up on an interactive\, virtual world map. The objective for year 1 is to raise awareness about the global challenges and inequalities. \nThe aim of this Gold Webinar is to mobilize CCI Europe member organisations for broad and active participation in the campaign. \n\n\nAbout the Speakers: \n\nAnne Goeres\nAnne is managing director at the Fondatioun Kriibskrank Kanner\, national foundation for children with cancer in Luxembourg for 15 years and Committee member of CCI Europe. Anne holds a master’s degree in communications\, more specifically in political and financial communications\, as is therefore the lead of CCI Europe’s Communication Pillar. Anne is a founding board member of Don en Confiance Luxembourg (transparency donations)\, of Ile aux clowns (hospital clowns) and of the National Cancer Institute in Luxembourg representing young cancer patients. Together with two other organisations\, she created Fight Kids Cancer\, an innovative annual call for paediatric cancer research projects. \n\nCarina Schneider\nCarina was diagnosed with Ewing’s Sarcoma at the age of 17 and she’s today a passionate patient advocate\, . Experiencing the lack of adequate long-term follow-up care\, she became active in patient advocacy in 2009. In 2017\, she was part of the group of survivor-representatives from across Europe who launched the survivors-network within CCI Europe. Later that year\, she joined the CCI Europe Committee.\nCarina is a psychology graduate and has worked in paediatric oncology since 2013\, first in the Austrian Childhood Cancer Organisation as project manager and later at the Medical University of Vienna as research coordinator in the psychosocial team of the Paediatric Neurooncology Department. In January 2022\, she became CCI Europe’s Managing Director and works\, together with a committed team\, dedicated Committee Members and patient advocates from all over Europe for a better future for children\, adolescents and young adults\, as well as their families\, who are affected by cancer. \n\nregister here
URL:https://ccieurope.eu/event/know-the-basics-iccd-campaign-kick-off/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars
ATTACH;FMTTYPE=image/jpeg:https://ccieurope.eu/wp-content/uploads/2024/01/goldWebinarICCD2024.jpg
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BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20231113T170000
DTEND;TZID=Europe/Vienna:20231113T183000
DTSTAMP:20260421T203303
CREATED:20230925T114717Z
LAST-MODIFIED:20230925T144917Z
UID:4803-1699894800-1699900200@ccieurope.eu
SUMMARY:Know the basics: How does policy work at the European level?
DESCRIPTION:In this webinar\, the participants will learn about the role of the different EU institutions\, and how policymaking works on the EU level. It will also address how patient organisations can effectively advocate and interact with MEPs in favour of their cause. \nThe webinar will be delivered by Teresa Pais and Marine Gouders. \n\n  \n\nAbout the Speakers:  \n\nTeresa Pais \nTeresa Pais is an EU public affairs specialist; she worked as parliamentary assistant to a member of the European Parliament\, in a trade association and consultancies in the healthcare sector. She graduated in Law and has a Master’s degree in European affairs.  \n\nMarine Gouders \nMarine Gouders\, member of the CCI Europe Office\, studied law and specialised in European law. After graduating\, she did an internship at the European Parliament\, where she discovered the workings of the European institutions. For the past year\, she has been working in the European Affairs Pillar.\n\nregister here
URL:https://ccieurope.eu/event/know-the-basics-know-the-basics-how-does-policy-work-at-the-european-level/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars
ATTACH;FMTTYPE=image/jpeg:https://ccieurope.eu/wp-content/uploads/2023/09/goldWeb1311.jpg
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BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20230828T170000
DTEND;TZID=Europe/Vienna:20230828T183000
DTSTAMP:20260421T203303
CREATED:20230418T142258Z
LAST-MODIFIED:20240220T183215Z
UID:4455-1693242000-1693247400@ccieurope.eu
SUMMARY:Know the basics: What are the Models of Care in Paediatric Oncology?
DESCRIPTION:The aim of shared care is to cure every child with cancer\, with optimal quality of life. \nThe principle of shared care is close cooperation between a central paediatric oncology expertise centre and local shared care centres\, so that the young patient can avoid long distance travels for standard clinical examinations and treatments. it is important that the shared care centres meet certain quality criteria and connect closely with the central expertise centre\, so that the best possible care for the child is guaranteed. \nIn this Gold Webinar on the 28th August at 5pm CET\, we will present various shared care models in Europe\, critically examine whether they deliver what they promise and whether they can serve as best practice models for other countries. \n  \nregister here
URL:https://ccieurope.eu/event/what-are-the-models-of-care-in-paediatric-oncology/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars
ATTACH;FMTTYPE=image/jpeg:https://ccieurope.eu/wp-content/uploads/2023/04/Screenshot-2024-02-20-174634.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20230703T170000
DTEND;TZID=Europe/Vienna:20230703T183000
DTSTAMP:20260421T203303
CREATED:20230418T141328Z
LAST-MODIFIED:20240220T171332Z
UID:4448-1688403600-1688409000@ccieurope.eu
SUMMARY:Know the basics: What are essential medicines?
DESCRIPTION:In this webinar\, the participants will learn about essential medicines\, what they are\, why they are important and which challenges Paediatric Oncology faces in this regard. Moreover\, it will address the outcomes of the Essential Medicines Project. \n  \nregister here
URL:https://ccieurope.eu/event/know-the-basics-what-are-essential-medicines/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars
ATTACH;FMTTYPE=image/jpeg:https://ccieurope.eu/wp-content/uploads/2023/04/Screenshot-2024-02-20-174655.jpg
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BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20230515T170000
DTEND;TZID=Europe/Vienna:20230515T183000
DTSTAMP:20260421T203303
CREATED:20230331T085959Z
LAST-MODIFIED:20230331T130035Z
UID:4369-1684170000-1684175400@ccieurope.eu
SUMMARY:Advance your knowledge: What are ESCPs?
DESCRIPTION:In this webinar\, participants will learn what an ESCP is\, which ESCP currently exist\, why they where developed and how they should be used. Moreover\, the webinar will highlight the importance of using standardized treatment protocols\, and of sharing expertise and resources between countries. Also\, ways will be addressed on how patient organisations can effectively lobby for the implementation of ESCPs in their countries. \n  \nregister here
URL:https://ccieurope.eu/event/gold-webinar-advance-your-knowledge-what-are-escps/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2023/03/Screenshot-2023-03-31-at-15.00.13.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20230403T170000
DTEND;TZID=Europe/Vienna:20230403T183000
DTSTAMP:20260421T203303
CREATED:20230120T140921Z
LAST-MODIFIED:20230403T121416Z
UID:4169-1680541200-1680546600@ccieurope.eu
SUMMARY:Know the basics: What is ERN PaedCan?
DESCRIPTION:In this webinar\, participants will learn why ERNs exist\, what ERN PaedCan is\, how it operates\, whom it should serve and which cases are eligible. It will explain the CPMS and how it works. Furthermore\, it will explain how patient organisations can in touch with the ERN PaedCan and be the link between ERN and patients/families and support implementation on the national levels.\n \n\n\n\n\n\n \n\n\nAbout the Speakers: \nAnne Goeres \nAnne is managing director at the Fondatioun Kriibskrank Kanner\, national foundation for children with cancer in Luxembourg for 15 years and Committee member of CCI Europe. Anne holds a master’s degree in communications\, more specifically in political and financial communications\, as is therefore the lead of CCI Europe’s Communication Pillar. Anne is a founding board member of Don en Confiance Luxembourg (transparency donations)\, of Ile aux clowns (hospital clowns) and of the National Cancer Institute in Luxembourg representing young cancer patients. Together with two other organisations\, she created Fight Kids Cancer\, an innovative annual call for paediatric cancer research projects.  \n \n \nProf. Ruth Ladenstein\, MD\, MBA\, cPM  \nRuth Ladenstein is Professor in Paediatrics and Senior Consultant for Paediatric Haematology and Oncology at the St. Anna Children´s Hospital . She is Head of the Clinical Trials Unit S2IRP (Studies & Statistics for Integrated Research and Projects) at the Children’s Cancer Research Institute (CCRI) of the St. Kinderkrebsforschung GmbH (http://science.ccri.at/).  \nMartin Schalling  \nMartin Schalling is a project manager in the Research Management Office of the Children’s Cancer Research Institute (CCRI). He studied Pharmaceutical and Medical Biotechnology and worked as a Researcher at the Medical University of Vienna. He is mainly responsible for the Clinical Patient Management System CPMS. \n\nregister here
URL:https://ccieurope.eu/event/know-the-basics-what-is-ern-paedcan/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars
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BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20230306T170000
DTEND;TZID=Europe/Vienna:20230306T183000
DTSTAMP:20260421T203303
CREATED:20230116T145714Z
LAST-MODIFIED:20230227T110334Z
UID:4054-1678122000-1678127400@ccieurope.eu
SUMMARY:Know the basics: What is Cross Border Health Care?
DESCRIPTION:In this webinar\, participants will learn what cross border health care means\, why it is important and necessary in the context of Paediatric Oncology and highlight challenges. Moreover\, it will address existing inequalities in access to diagnosis\, treatment and care across Europe. It will give an outlook on the follow-up webinar about ERN PaedCan. \n\n\n\n\n\n\n\n\n\n\n\n \nAbout the Speakers: \nAnne Goeres \n\nAnne is managing director at the Fondatioun Kriibskrank Kanner\, national foundation for children with cancer in Luxembourg for 15 years and Committee member of CCI Europe. Anne holds a master’s degree in communications\, more specifically in political and financial communications\, as is therefore the lead of CCI Europe’s Communication Pillar. Anne is a founding board member of Don en Confiance Luxembourg (transparency donations)\, of Ile aux clowns (hospital clowns) and of the National Cancer Institute in Luxembourg representing young cancer patients. Together with two other organisations\, she created Fight Kids Cancer\, an innovative annual call for paediatric cancer research projects.  \n\n \nHarun Sabic \nHarun is a survivor who had osteosarcoma when he was 15. He has finished law school and is currently working in the Association “Heart for kids with cancer” in Bosnia and Herzegovina. Harun is a member of CCI Europe’s Committee and an active participant in the Survivorship and Diagnosis\, Treatment & Care Pillars.  \n \n \nMarko Ocokoljić \nMarko is a pharmacist with gained experience in healthcare research\, specifically the oncology. He is knowledgeable in health policy\, which scopes research briefings on childhood cancer\, producing high-level oncopolicy briefings\, monitoring of scientific research and key paediatric oncology policy developments at the EU level\, and engaging with external entities. \n \n\n\n\nMake sure to register on the button and you will automatically be sent a link to join the webinar!register here
URL:https://ccieurope.eu/event/know-the-basics-what-is-cross-border-health-care/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2023/01/Screenshot-2023-02-22-at-14.34.53.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20221212T170000
DTEND;TZID=Europe/Vienna:20221212T180000
DTSTAMP:20260421T203303
CREATED:20230221T164528Z
LAST-MODIFIED:20230222T131335Z
UID:4266-1670864400-1670868000@ccieurope.eu
SUMMARY:Advance your Knowldege: Understanding the EU Paediatric and Orphan Regulations
DESCRIPTION:The CCI Europe European Affairs Pillar Committee has hosted this educational webinar to help the European childhood cancer community in better understanding the EU Paediatric and Orphan Regulations – indeed\, this is what children with cancer need to get access to better care! \nThe EU Paediatric and Orphan Regulations are about to be reviewed by the European Parliament. This Education Policy Webinar explained the loopholes of those two regulations that have the potential to improve a timely access to innovative\, high-quality and safe medicines for young cancer patients. It also highlighted the proposed measures put forward by the members of the European Pillar to ensure more efficient and kinder treatments for them. \nThe presentation was followed by an interactive Q&A session with the members of the audience. \nSpeakers: Delphine Heenen\, CCI Europe Committee Member & Lead of European Affairs Pillar and Dr. Teresa de Rojas\, MD-PhD\, ACCELERATE Scientific Coordinator
URL:https://ccieurope.eu/event/advance-your-knowldege-understanding-the-eu-paediatric-and-orphan-regulations/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2023/02/delphine-webinar.png
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