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DTSTART;TZID=Europe/Vienna:20240620T160000
DTEND;TZID=Europe/Vienna:20240620T173000
DTSTAMP:20260419T062311
CREATED:20240606T090213Z
LAST-MODIFIED:20240606T090536Z
UID:6211-1718899200-1718904600@ccieurope.eu
SUMMARY:Specialist Adolescent and Young Adults Units Minimum Standards
DESCRIPTION:What to Expect: \n\nExpert Speakers: Hear from leading experts in the field who will share their knowledge and experiences.\nPanel discussion: Hear diverse perspectives from healthcare professionals\, patient representatives\, and young cancer survivors.\nResources and Support: Gain access to the position paper and implementation guidelines that support adolescents and young adults.\n\n  \nAgenda: \n\nOverview of the Project’s Work Package 4 AYA Care: Learn more about the EU-CAYAS-NET cofounded project\nPatient perspective: Patient talking about what practices already exist and what still needs to be changed.\nFocus on Recommendations: Discuss the “Specialist AYA Units Minimum Standards” position paper.\nImplementation: Healthcare professionals talking about what standards already exist and what still needs to be implemented.\n\n  \nWhy Attend? \n\nLatest Research and Trends: Learn about the latest research and trends affecting young adults.\nCommunity Connection: Connect with a community of individuals who share your interests and concerns.\n\nWhether you are a young adult\, a caregiver\, or a professional working with this age group\, this webinar will provide valuable insights and resources. \n  \n\nregister here
URL:https://ccieurope.eu/event/equity-diversity-and-inclusion-edi-principles-in-cancer-care-training-event-for-researchers-healthcare-providers-and-patient-communities-2/
LOCATION:Online Webinar
CATEGORIES:Event,Survivorship
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2024/06/eucayasnet_cci_europe_childhood_cancer_survivors.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20240627T123000
DTEND;TZID=Europe/Vienna:20240628T170000
DTSTAMP:20260419T062311
CREATED:20240625T150100Z
LAST-MODIFIED:20240625T150100Z
UID:6297-1719491400-1719594000@ccieurope.eu
SUMMARY:Surviving Survival – Symposium on mental health of Youth Cancer Survivors
DESCRIPTION:EN 📣 Surviving Survival – Symposium on mental health of Youth Cancer Survivors \nOn 27 June\, a health policy symposium (in German) on “Surviving Survival: How can we improve psychosocial health after childhood\, adolescent and young adult cancer?” will take place in Vienna\, organized by CCI Europe as part of the EU-CAYAS-NET project. \n🗨️ For the first time in German speaking countries\, we will present relevant EU-CAYAS-NET project results to health policy makers\, stakeholders and media representatives\, draw attention to the needs of young survivors 🎗️ and discuss what types of psychological\, social and educational support are missing after cancer in childhood\, adolescence and young adulthood in Austria! 🙌🏻 \nThis will be followed by an interactive patient advocacy training for German-speaking survivors and/or their family members from all over Europe on June 28th! 💪🏻 \nAre you a German speaking survivor/family member\, interested in targeted patient advocacy training and want to learn how to best implement our goals? \nThen register with the button below\, we look forward to seeing you! If you have any questions\, please contact Hannah at h.gsell@ccieurope.eu. \n—– \n🇩🇪 📣 Surviving Survival – Symposium zur mentalen Gesundheit nach Kindekrebs \nAm 27. Juni findet in Wien ein deutschsprachiges gesundheitspolitisches Symposium statt zum Thema “Surviving Survival: Wie können wir die psychosoziale Gesundheit nach Krebs im Kindes-\, Jugend- und jungen Erwachsenenalter verbessern?”\, veranstaltet von CCI Europe im Rahmen des EU-CAYAS-NET Projekts. \n🗨️ Wir präsentieren erstmals im Deutschsprachigen Raum gesundheitspolitischen Entscheidungsträger:innen\, Interessensvertreter:innen und Medienvertreter:innen relevante EU-CAYAS-NET Projektergebnisse\, machen auf die Bedürfnisse junger Survivors 🎗️aufmerksam und diskutieren\, welche Arten von dringend notwendiger psychologischer\, sozialer und edukativer Unterstützung nach einer Krebserkrankung im Kindes-\, Jugend- und jungen Erwachsenenalter in Österreich fehlen! 🙌🏻 \nIm Anschluss daran findet am 28. Juni eine interaktive Advocacy-Schulung für deutschsprachige Survivors und deren Familien aus ganz Europa statt! 💪🏻 \nDu bist ein deutschsprachiger Survivor/Familienmitglied\, interessierst dich für gezieltes Advocacy Training und möchtest lernen\, wie unsere Ziele bestmöglich umgesetzt werden können? \nWir freuen uns auf dich! Bei Fragen wende dich gerne an Hannah unter h.gsell@ccieurope.eu. \nregister here
URL:https://ccieurope.eu/event/surviving-survival-symposium-on-mental-health-of-youth-cancer-survivors/
LOCATION:Vienna\, Austria
CATEGORIES:Event,Survivorship
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2024/06/EU-CAYAS-NET_event-visuals_OSymposium_Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20240629T160000
DTEND;TZID=Europe/Vienna:20240629T180000
DTSTAMP:20260419T062311
CREATED:20240617T134233Z
LAST-MODIFIED:20240617T140140Z
UID:6272-1719676800-1719684000@ccieurope.eu
SUMMARY:Survivor's Week Webinar: Childhood Cancer - Stigma and Communication
DESCRIPTION:Childhood cancer survival rates have been improving globally over recent decades. Researchers in this area highlight\, “Ongoing improvements in survival rates across high-income\, middle-income and low-income countries will result in a rapidly expanding population of survivors with unique health-care needs\, emphasizing the increasing relevance of issues relating to childhood cancer survivors globally.” (Ehrhardt et al. 2023). Young people who have survived cancer are a medically vulnerable population at higher risk for health and psychosocial issues throughout their lifetimes including\, for example\, challenges in mental health\, physical health\, education\, work\, or social integration in their communities. However\, many young people who have survived childhood cancer have meaningful and productive lives with support from family\, community\, and peers. CCI and SIOP offer an annual 2-hour webinar on Childhood Cancer Survivorship to bring together professionals and young people who have been treated for cancer to highlight challenges and successes in this global topic. This year’s theme is Childhood Cancer Stigma and Communication (the language and words we use when speaking about childhood cancer). Join us on June 29\, 2024\, to celebrate cancer survival month (June) and all who have completed treatment worldwide. \nAbout the Speakers: \nYamini Krishnan \nPediatric oncologist\, Head of Paediatric Hematology Oncology and BMT unit at MVR Cancer Centre and Research Institute\, Kerala·MVR Cancer Centre and Research Institute\, Calicut\, Kerala\, India \n\nHead\, Paediatric Haematology Oncology and BMT unit at the MVR Cancer Centre and Research Institute\, Calicut\, Kerala\, India . Chair\, Neuroblastoma subcommittee of INPHOG; the research organisation of the Paediatric haematology oncology chapter of the Indian Academy of Paediatrics. Co Chair of the Protocols and Clinical Trials sub committee of the Indian childhood cancer Initiative(ICCi)\, working for the improvement of the care of children with cancer in India. Involved in the advisory committee of various Non governmental organisations. Though my clinical interests lie in the field of paediatric oncology \, I am very much interested in studying the social aspects in the lives of children affected with cancer and mitigating the barriers associated with the reintegration process of our children into the society. \n\n\nMara Ayala \nIMAGINA Pediatric Psycho-Oncology\, Mexico \n\nMara Ayala\, PhD is the founder and director of IMAGINA Pediatric Psycho-Oncology\, a nonprofit in Aguascalientes\, Mexico\, tending to the psychosocial needs of patients and their families. She also created the Integrative Extra- and Intra-Hospital Psycho-Oncological Intervention Model (MIPPEIH)\, now integral to the institution’s operations. \nAnna Sonkin \nPhysician·St. Jude Children’s Research Hospital \n\nAnna Sonkin\, MD\, is a parent of a pediatric cancer survivor and a pediatrician and palliative care physician currently working at St. Jude Children’s Research Hospital. She also specializes in clinical communication skills education. Until 2022\, she lived and worked in Russia and now lives in New York \nCriss Koba Mjumbe \nProfessor·University of Lubumbashi \n\nHe is a public health expert and associate professor at the University of Lubumbashi. Specialized in studies of QALYs (Quality-Adjusted Life Year) and DALYs (Disability-Adjusted Life Year) and Cancer Costs in Africa. Of Congolese origin\, he studied medicine in Lubumbashi. Member of the GFAOP and SIOP international \n\nManar El Mountaqi \n\nMy name is Manar\, and I am a 24-year-old medical student living in Rabat\, Morocco’s capital\, it’s a very beautiful city\, it’s a blend of historic charm and modern elegance\, featuring stunning coastal views . My journey into the field of medicine has been deeply personal. At the age of 10\, I was diagnosed with Hodgkin lymphoma. Inspired by the care and dedication of the medical professionals who treated me\, I decided to pursue a career in medicine. Now\, as a medical student\, I am committed to making a difference in the lives of my future patients\, and to support and heal those in need. \n\nRacha Hajjar \n\nMy name is Racha Hajjar (29 years old) and I work as a volunteer coordinator at the Cedars Cancer Center in Montreal. I have a bachelor’s degree in interior architecture as well as a master’s degree in social work. When I was 9 years old\, I was diagnosed with leukemia. I was treated at the Children’s Cancer Center of Lebanon (CCCL) for four long years. My cancer journey has made me the strong person I am today. \n\n\n\n\n\n\n\nregister here
URL:https://ccieurope.eu/event/survivors-week-webinar-childhood-cancer-stigma-and-communication/
LOCATION:Online Webinar
CATEGORIES:Event,Survivorship
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2024/06/childhood_cancer_survivors_week_stigma_communication.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20240730T170000
DTEND;TZID=Europe/Vienna:20240730T183000
DTSTAMP:20260419T062311
CREATED:20240726T082931Z
LAST-MODIFIED:20240726T082931Z
UID:6374-1722358800-1722364200@ccieurope.eu
SUMMARY:Sexuality & Intimacy and Young Cancer Survivors
DESCRIPTION:We all know that cancer can affect all areas of life and simply changes everything. One topic that is just as much a part of this\, but unfortunately is almost never discussed\, is sexuality and intimacy. \nAnd no\, it’s not just cancers of the reproductive organs that change or affect your sex life. The various cancer therapies can have an impact on the intimate and relationship life of those affected and confront couples with major challenges. Everyday life and intimate life are turned upside down by stressful therapies\, but also by their (long term) consequences. This leads to insecurities among those affected with regard to their sexual attractiveness and sexuality. \nSexuality is generally a taboo subject in society and often neglected in cancer treatment. People often find it difficult to address issues of sexual health\, even though it plays an important role in our emotional relationships and well-being. As a result\, sexuality is still a neglected topic in cancer treatment\, and the impact of the disease on sexuality is pushed to the background in favor of therapeutic efficiency. \nSex life can change temporarily or forever! But that doesn’t mean that childhood\, adolescent and young adult cancer survivors can’t have a fulfilling sex life or a good relationship with their own bodies. \nIn our webinar “Sexuality & Intimacy and Young Cancer Survivors” we want to address all these topics without taboos and exchange ideas with Health Care Professionals\, but also within the survivors community and prove ourselves once again: We are never alone with our topics! \nregister here
URL:https://ccieurope.eu/event/sexuality-intimacy-and-young-cancer-survivors/
LOCATION:Online Webinar
CATEGORIES:Event,Survivorship
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2024/07/image001.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20240923T170000
DTEND;TZID=Europe/Vienna:20240923T183000
DTSTAMP:20260419T062311
CREATED:20240625T122428Z
LAST-MODIFIED:20240625T122428Z
UID:6287-1727110800-1727116200@ccieurope.eu
SUMMARY:Know the basics: How to advance childhood cancer priorities in the aftermath of the EU elections?
DESCRIPTION:In the aftermath of the EU elections\, the CCI Europe policy team will present the composition of the new elected Parliament and discuss the possible implications for our childhood cancer advocacy priorities. \nDuring this webinar\, we will talk about the impact of those elections on the nomination of the new Commission leaders\, namely for health matters. \nJoin us! An easy way to get informed on what to expect from the EU in the next 5 years. \n\nAbout the Speakers: \nTeresa Pais\nTeresa Pais is an EU public affairs specialist; she worked as parliamentary assistant to a member of the European Parliament\, in a trade association and consultancies in the healthcare sector. She graduated in Law and has a Master’s degree in European affairs. \n\nMarine Gouders\nMarine Gouders\, member of the CCI Europe Office\, studied law and specialised in European law. After graduating\, she did an internship at the European Parliament\, where she discovered the workings of the European institutions. For the past year\, she has been working in the European Affairs Pillar. \n\n\n\n\nregister here
URL:https://ccieurope.eu/event/know-the-basics-how-to-advance-childhood-cancer-priorities-in-the-aftermath-of-the-eu-elections/
LOCATION:Online Webinar
CATEGORIES:EU Affairs,Event,Gold Webinars
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2024/06/Gold-webinar-final-banner-8.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20240924T140000
DTEND;TZID=Europe/Vienna:20240924T150000
DTSTAMP:20260419T062311
CREATED:20240801T110149Z
LAST-MODIFIED:20240913T145702Z
UID:6399-1727186400-1727190000@ccieurope.eu
SUMMARY:Gold September - Childhood Cancer Awareness Month Event 2024
DESCRIPTION:CCI-E and SIOPE representing childhood cancer patients\, parents\, survivors and healthcare professionals\, will once again mark the Gold September – Childhood Cancer Awareness Month campaign through the annual flagship policy event on Tuesday\, 24 September 2024 at 2 pm CEST that this year will be held online. \n\nThis year’s event aims at increasing awareness of our policy priorities for the 2024-2029 mandate.  We will seek support from the new elected members of the European Parliament to our joint manifesto: we need to cure more\, cure better and tackle inequalities in childhood cancer across Europe. Whether we talk about research\, care\, psychosocial support or survivorship follow-up care\, we still have many challenges to address and count on policymakers to legislate\, adopt a friendly Multiannual Financial Framework Agreement (2028-2034) for health and research\, and maintain childhood cancer at the spotlight of the EU agenda!\n\nThe event will be kindly hosted by MEP Loucas Fourlas (EPP\, Cyprus). To register\, please complete the online form below.*\nPlease note that a confirmation email will be sent ahead of the event.\n\n*This information is collected solely for registration purposes and all data will be treated as confidential \nRegister Here
URL:https://ccieurope.eu/event/gold-september-childhood-cancer-awareness-month-event-2024/
LOCATION:Online
CATEGORIES:EU Affairs,Event
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2024/08/MAC-Event-Gold-September-banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20241014T170000
DTEND;TZID=Europe/Vienna:20241014T183000
DTSTAMP:20260419T062311
CREATED:20240603T150325Z
LAST-MODIFIED:20241002T133127Z
UID:6199-1728925200-1728930600@ccieurope.eu
SUMMARY:Advance Your Knowledge: What could be the impact of Big Data and AI application in paediatric oncology?
DESCRIPTION:In this webinar\, we will delve into the transformative potential of Big Data and Artificial Intelligence (AI) in paediatric oncology\, exploring how these innovative approaches can help cancer research and reshape diagnostics\, treatment strategies\, and outcomes for children with cancer. Join us to delve into the implications\, opportunities\, and ethical considerations surrounding the integration of Big Data and AI in pediatric oncology. \n\nAbout the Speakers: \nPamela Kearns  \nDirector of Institute of Cancer and Genomic Sciences\, University of Birmingham \nPatrick Kemmeren  \nHead of the Big Data Core and Genomics department\, Princess Maxima Center \nFranck Devaux \nEthicist at the Hôpital Universitaire Des Enfants Reine Fabiola \n\n\n\n\nregister here
URL:https://ccieurope.eu/event/advance-your-knowledge-what-could-be-the-impact-of-big-data-and-ai-application-in-paediatric-oncology/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars,R&I
ATTACH;FMTTYPE=image/jpeg:https://ccieurope.eu/wp-content/uploads/2024/06/Gold-webinar-october-2024-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20241118T170000
DTEND;TZID=Europe/Vienna:20241118T183000
DTSTAMP:20260419T062311
CREATED:20241017T074513Z
LAST-MODIFIED:20241022T123908Z
UID:6694-1731949200-1731954600@ccieurope.eu
SUMMARY:Advance Your Knowledge: How to develop and translate a multidisciplinary Psycho-Oncology Model of Care into real action?
DESCRIPTION:Advance your knowledge! Psychosocial care in paediatric oncology still needs to be advanced in wide parts of Europe. In this webinar we will learn from experts in Ireland that managed to establish a National Model of Care for Psycho-Oncology services for Children\, Adolescents and Young Adults (CAYA) with Cancer and their families in order to provide a framework to support the way that psychosocial care is delivered to this cohort and their families. We are happy to have the experts from Ireland with us that will present the model of care and tell us about the process that they have been conducting from professional but also from patient organization side. \n\nAbout the Speakers: \nDr Helen Greally \nClinical Lead in Psycho-Oncology at the NCCP and Cancer Care West \nDr Chiara Besani \nPaediatric principal clinical psycho-oncologist \nLaura Cullinan \nCEO at Childhood Cancer Ireland and Parent of a Survivor \n\n\n\n\nregister here
URL:https://ccieurope.eu/event/advance-your-knowledge-how-to-develop-and-translate-a-multidisciplinary-psycho-oncology-model-of-care-into-real-action/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars,Survivorship
ATTACH;FMTTYPE=image/jpeg:https://ccieurope.eu/wp-content/uploads/2024/10/Gold-webinar-final-banner-2-1-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20241119T160000
DTEND;TZID=Europe/Vienna:20241119T180000
DTSTAMP:20260419T062311
CREATED:20241015T123410Z
LAST-MODIFIED:20241015T123410Z
UID:6686-1732032000-1732039200@ccieurope.eu
SUMMARY:CCI Europe & SIOPE Children's Rights Day Event
DESCRIPTION:On the occasion of Children’s Rights Day\, SIOP Europe and CCI Europe are pleased to announce the launch of this new policy event\, hosted by MEP Loucas Fourlas (EPP\, Cyprus). \nThe event will bring together key stakeholders to address critical issues in paediatric oncology\, with a particular focus on access to cross-border care and research across Europe. \nWe warmly invite you to register and join us in this important discussion on Tuesday\, 19 November from 16:00 to 18:00 CET at the European Parliament\, Brussels (Room P4B001 – SPAAK). \n\n\n\nRegister Here\nThis is a unique opportunity to explore together how the EU Strategy on the Rights of the Child\, Europe’s Beating Cancer Plan\, and the EU Cancer Mission can help provide equitable\, high-quality care and research for children with cancer across Europe. The event is also a valuable opportunity to engage with policymakers\, healthcare professionals\, and patient advocates committed to advancing paediatric oncology. \nIf you’d like to be part of this important discussion\, register now and secure your spot. Feel free to invite your colleagues and share this opportunity within your networks. \nBackground \nDespite advances in treatment and care\, significant disparities persist across Europe\, affecting access to essential medicines\, care\, and research\, as well as the quality of life for young patients. Ensuring access to high-quality cross-border care and research for children with cancer remains a major challenge across Europe. EU decision-makers\, healthcare professionals\, and patient advocates need to work together to ensure that every child has access to the treatment they need. \nFor queries or further information\, please send an email to: rachele.vedovelli@siope.eu and caroline.queiroz@siope.eu \n\n\n\nCheck the Provisional Programme Here
URL:https://ccieurope.eu/event/cci-europe-siope-childrens-rights-day-event/
LOCATION:European Parliament\, Brussels
CATEGORIES:EU Affairs,Event
ATTACH;FMTTYPE=image/jpeg:https://ccieurope.eu/wp-content/uploads/2024/10/Template-Championing-Childrens-Health-Advancing-Paediatric-Oncology-on-Childrens-Rights-Day-2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20241202T095000
DTEND;TZID=Europe/Vienna:20241202T170000
DTSTAMP:20260419T062311
CREATED:20240830T065158Z
LAST-MODIFIED:20240905T141227Z
UID:6532-1733133000-1733158800@ccieurope.eu
SUMMARY:EU4Health Conference 2024
DESCRIPTION:We are delighted to be a partner of a very special event this year!   \nThe EU4Health Integration and Impact Initiative (EU4H3I) aims to address public health challenges such as health inequalities\, unequal access to treatments and lack of diversity in clinical trials. Together with our partners\, we advocate for interdisciplinary collaboration and the adoption of a holistic\, cross-sectoral approach supported by the One Health perspective to support the development of the European Health Union. \nWe are very pleased to represent the field of childhood cancer alongside key representatives of the One Health approach and brain health in this project. These three areas are closely intertwined and form a complex set of interconnected issues.Childhood cancer not only affects the physical health of young patients during and after treatment\, but also has a profound impact on the cognitive\, emotional\, behavioral and social abilities of affected children and the rest of their lives as well as their families and friends. The One Health approach\, which recognizes the interdependence of human health\, animal health and the environment\, plays a central role in understanding the complexity of this challenge. It recognizes that environmental factors can contribute to the development of childhood cancer\, underlining the need for a comprehensive view. \nThis event will bring together key stakeholders to discuss health inequalities\, access to treatment\, the diversity of clinical trials and urgent needs in the areas of childhood cancer and brain health. The aim is to promote a holistic One Health approach to tackling these challenges.  \nWe think it’s important to look at the issue of childhood\, adolescent and young adult cancer not only in isolation but also in relation to other issues\, such as the environment\, in order to better recognize connections and thus be able to advocate even better!   \nWhy attend?\n• Network with leading experts and decision-makers from across Europe\n• Learn from distinguished experts\n• Explore innovative solutions to pressing public health challenges\n• As a patient\, advocate for your health and empower yourself with knowledge \nJoin us on December 2\, 2024\, at the Palace of the Academies in Brussels!  \nSince the places are limited\, we invite you to secure your participation in this event from now on. Register hereFor more details about the conference\, agenda and speakers\, visit the website.
URL:https://ccieurope.eu/event/eu4health-conference-2024/
LOCATION:Palace of the Academies in Brussels\, Brussels\, Belgium
CATEGORIES:Event
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2024/08/Untitled-design.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20241216T170000
DTEND;TZID=Europe/Vienna:20241216T183000
DTSTAMP:20260419T062311
CREATED:20241114T080944Z
LAST-MODIFIED:20241203T133310Z
UID:6735-1734368400-1734373800@ccieurope.eu
SUMMARY:Advance Your Knowledge: How can patients benefit from ESCPs?
DESCRIPTION:The European Standard of Clinical Practice (ESCP) Project is an on-going collaboration between ERN PaedCan and SIOP Europe’s Clinical Trial Groups (ECTG)\, aiming to develop approved clinical recommendations that reflect current best practices for each common childhood cancer type. The ESCPs are reviewed by CCI-E members. The goal is to improve outcomes and increase childhood cancer survival\, and quality of life by providing these benchmarks for best practice. In this Gold Webinar\, we discuss with responsible clinicians how patient representatives can best use these ESCPs so that patients can benefit directly.\n \nPanelists \nHarun Šabić\, CCI Europe Committee MemberLidiya Vitanova\, CCI Europe DT&C pillar MemberEwa Majewska\, CCI Europe DT&C Pillar MemberRuth Ladenstein\, ERN-PaedCan Coordinator & Head of the Clinical Trials Unit S²IRP at St. Anna CCRIJelena Rascon – Head of the Cancer Coordination Centre at Santaros ClinicsModerator: Barbara Brunmair\, CCI Europe Projects & Pillar Coordinator \n\n\n\n\n\nregister here
URL:https://ccieurope.eu/event/how-can-patients-benefit-from-escps/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars
ATTACH;FMTTYPE=image/jpeg:https://ccieurope.eu/wp-content/uploads/2024/12/Gold-webinar-final-banner-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20250204T160000
DTEND;TZID=Europe/Vienna:20250204T180000
DTSTAMP:20260419T062311
CREATED:20250102T100940Z
LAST-MODIFIED:20250102T100940Z
UID:6811-1738684800-1738692000@ccieurope.eu
SUMMARY:International Childhood Cancer Day (ICCD) 2025 - Policy event
DESCRIPTION:MEP András Kulja (EPP\, Hungary) will host and organize a policy event in anticipation of International Childhood Cancer Day (ICCD) with the participation of SIOP Europe and CCI Europe . \nThe ICCD is commemorated on 15 February each year. The date of the ICCD event at the European Parliament coincides with World Cancer Day (4 February)\, emphasizing the place of childhood cancer at the heart of cancer policies. \nThe meeting will put the spotlight on the current challenges in cross-border care and research in pediatric oncology\, with a focus on advancing multi-stakeholder collaboration to address systemic inequalities. \nJoin this important discussion on Tuesday\, 4 February\, from 16:00 to 18:00 CET\, at the European Parliament in Brussels . The event will be followed by an exclusive networking reception. \n\n\nRegister Here\nThe event will feature two engaging panel discussions: \nCross-Border Access to Care and Training: \nExplore the barriers children face in accessing specialized oncology care under the Cross-Border Healthcare Directive and discuss practical solutions to bridge these gaps. Learn about the role of EU training initiatives and twinning programs in empowering healthcare professionals and building capacity across Member States. \nCross-Border Access to Research: \nUnderstand the regulatory and logistical obstacles to European clinical trials and innovative treatments\, including CAR T-cell therapy. The discussion will highlight how harmonized frameworks can strengthen collaboration\, reduce disparities\, and advance innovation in pediatric oncology research. \nWhy attend?  \nThis is a unique opportunity to engage and network with EU policymakers\, healthcare professionals\, researchers\, and patient advocates and contribute to meaningful dialogue on how EU’s initiatives\, such as the Cross-Border Healthcare Directive and Beating Cancer Plan\, can ensure equitable access to care and research for children with cancer. \nBackground \nDespite all the advancements in the field\, disparities in access to care and research still exist across Europe\, unjustly affecting young patients’ survival and quality of life. Innovative therapies\, such as CAR T-cell therapy\, remain out of reach for many due to logistical and financial barriers. \nThis event will explore how EU policymakers and healthcare professionals can work together to overcome these challenges and build a future where all children with cancer can access the care and research they need\, regardless of where they live. \nFor queries or further information\, please send an email to: andras.kulja@europarl.europa.eu \, danai.spentzou@europarl.europa.eu \,  sonja.ladenstein@siope.eu \, and rachele.vedovelli@siope.eu . \n\nCheck the Provisional Programme Here
URL:https://ccieurope.eu/event/international-childhood-cancer-day-iccd-2025-policy-event/
LOCATION:European Parliament\, Brussels
CATEGORIES:EU Affairs,Event
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2024/12/iccd-2025-banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20250224T170000
DTEND;TZID=Europe/Vienna:20250224T183000
DTSTAMP:20260419T062311
CREATED:20241206T134742Z
LAST-MODIFIED:20250123T124252Z
UID:6791-1740416400-1740421800@ccieurope.eu
SUMMARY:Advance Your Knowledge: Around the ERN-PaedCan Virtual Tumor Board 2.0 in 80 Minutes
DESCRIPTION:What if:\n1) Your oncologist is at a crossroads regarding therapy?\n2) The local tumor board cannot make a definite decision and\n3) You urgently need a second opinion from international experts? \nIn this webinar\, we want to strengthen patient organizations in their role as intermediaries for access to the new ERN-PaedCan Virtual Tumor Board 2.0 (= CPMS\, Clinical Patient Management System): We explain how patients/families can use the CPMS in collaboration with their oncologists and what role national patient representatives play in this cycle. \n\n\n\n\n\n\nregister here
URL:https://ccieurope.eu/event/advance-your-knowledge-around-the-ern-paedcan-virtual-tumor-board-2-0-in-80-minutes/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars
ATTACH;FMTTYPE=image/jpeg:https://ccieurope.eu/wp-content/uploads/2024/12/Gold-webinar-final-banner-1-1-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20250428T170000
DTEND;TZID=Europe/Vienna:20250428T183000
DTSTAMP:20260419T062311
CREATED:20250328T102456Z
LAST-MODIFIED:20250416T063843Z
UID:7081-1745859600-1745865000@ccieurope.eu
SUMMARY:Know the Basics: Peer Support in the spotlight - What can we learn from peer support programmes around Europe?
DESCRIPTION:About the webinar: \nDuring this webinar\, we will explore different models of peer support within our community. We’re not limiting ourselves to just one target group—we want to showcase the many ways peers can support not only patients but also survivors and parents\, guiding them through the various stages of the treatment pathway with their lived experiences. \nOur goal is to inspire anyone who is currently developing a peer support program or considering starting one. Take this opportunity to pick the best ideas for your own approach\, get inspired\, ask questions\, and exchange experiences! \nJoin us and discover how peer support can make a real difference! \n\n\n\n\n\nregister hereOur Speakers: \n\nJelena Češljar\nKrijesnica – Croatia \nSocial worker and volunteer coordinator at Krijesnica\, previously a long-time volunteer at Krijesnica in activities with children undergoing treatment for malignant diseases. Educator of psychotherapy in the field of transactional analysis and student of specialist supervision studies. \n\nMihael Severinac\nKrijesnica – Croatia \nAn ardent patient advocate who uses his childhood cancer experience to advocate and change things around for childhood cancer patients and survivors. Associate in the implementation of projects and activities in Croatia and a leader of the Croatian survivors group. \n\nJohanna Kero\nSYLVA – Finland \nJohanna Kero is a mother of a young cancer survivor and serves on the board of the Finnish children’s cancer organization SYLVA\, as well as the Finnish nursing guidelines working group on Psychosocial support for patients with cancer. She is also a nurse and senior nursing lecturer with expertise in the care of patients with cancer\, palliative care and end-of-life care. \n\nVanessa Karaivanova\nFoundation Gold – Bulgaria \nVanessa Karaivanova is a childhood cancer survivor\, patient advocate\, and a student in Child and Adolescent Psychology. For several years\, she has been volunteering at the paediatric oncology clinic in Sofia\, Bulgaria supporting children throughout their treatment journey. As a member of the Survivorship Pillar of CCI Europe\, she is dedicated to improving the quality of life for young survivors and advocating for comprehensive\, long-term care. \n\nTiago Costa\nAcreditar – Portugal \nregister here
URL:https://ccieurope.eu/event/know-the-basics-peer-support-in-the-spotlight-what-can-we-learn-from-peer-support-programmes-around-europe/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2025/03/Gold-webinar-April-2025.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250606
DTEND;VALUE=DATE:20250608
DTSTAMP:20260419T062311
CREATED:20250328T133834Z
LAST-MODIFIED:20250528T124258Z
UID:7142-1749168000-1749340799@ccieurope.eu
SUMMARY:Final EU-CAYAS-NET Ambassador Event in Vienna
DESCRIPTION:As the EU-CAYAS-NET project comes to a close in June 2025\, CCI Europe is hosting one final Ambassador Event to celebrate the project’s achievements and set the stage for what’s to come. \nWhat to Expect\nThis event will highlight the key outcomes of EU-CAYAS-NET and explore how they can be implemented at the national level. Unlike previous Ambassador events\, this gathering will bring together both young survivors and healthcare professionals from the youth cancer field. The aim: building strong connections and fostering long-term collaboration. \nWhy Involve Healthcare Professionals?\nSuccessfully implementing the outcomes of EU-CAYAS-NET requires strong\, interdisciplinary collaboration. By bringing together people with lived experience and healthcare professionals who are engaged in the field of youth cancer care\, this event aims to foster meaningful connections and build a solid foundation for long-term cooperation — both nationally and across Europe. \nInterested in Joining?\nWe’re excited to welcome a few more healthcare professionals to this unique event. If you’re working in the field of youth cancer care and are interested in connecting with others to help shape the future of survivorship and support\, feel free to reach out to us via email. A few spots are still available! \nGet in contact with Barbara (b.brunmair@ccieurope.eu) and Hannah (h.gsell@ccieurope.eu)!
URL:https://ccieurope.eu/event/final-eu-cayas-net-ambassador-event-in-vienna/
LOCATION:Vienna\, Austria
CATEGORIES:Event,Survivorship
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2025/05/final-ambassador-event-vienna.png-copy.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250607
DTEND;VALUE=DATE:20250608
DTSTAMP:20260419T062311
CREATED:20250228T134457Z
LAST-MODIFIED:20250528T125715Z
UID:7146-1749254400-1749340799@ccieurope.eu
SUMMARY:European Youth OncoOlympics
DESCRIPTION:An event with 17 years of tradition in Lower Silesia\, trusted\, universally beloved by children\, teenagers and parents\, organised through a cooperation between Wrocław University of Health and Sports Sciences and Saving Kids with Cancer Foundation\, now upgrades to a new level – and EUROPEAN one. \nSee you in Wrocław\, Poland on June 7th\, 2025! \n\n\nFind Out More
URL:https://ccieurope.eu/event/european-youth-oncoolympics/
LOCATION:Wrocław\, Poland
CATEGORIES:Event,Survivorship
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2025/05/OncoOlympics.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20250923T170000
DTEND;TZID=Europe/Vienna:20250923T190000
DTSTAMP:20260419T062312
CREATED:20250725T151638Z
LAST-MODIFIED:20250826T074550Z
UID:7207-1758646800-1758654000@ccieurope.eu
SUMMARY:Gold September - Childhood Cancer Awareness Month Event 2025
DESCRIPTION:CCI-E and SIOPE\, representing childhood cancer patients\, parents\, survivors and healthcare professionals\, will once again mark the Gold September – Childhood Cancer Awareness Month campaign through the annual flagship policy event.\n\nThis year’s event\, titled “No Child Left Behind: Prioritising Childhood Cancer in the Next EU Budget”\, will take place on Tuesday\, 23 September 2025\, from 17:00-19:00 CEST at the European Parliament (SPAAK 7C50) in Brussels. Co-hosted by MEPs Vlad Voiculescu (Renew\, Romania) and Romana Jerković (S&D\, Croatia)\, this flagship event will shine a spotlight on paediatric cancers and the urgent need to prioritise them in the next Multiannual Financial Framework (MFF) 2028-2034\, the EU’s long-term budget that sets expenditure priorities for the upcoming seven-year period.\n\n\nThe current MFF (2021 – 2027) has been instrumental in driving progress in care\, research\, and innovation\, through EU4Health and Horizon Europe programmes\, and other initiatives like Europe’s Beating Cancer Plan and the EU Cancer Mission. However\, challenges in implementation remain. As we approach a new budget cycle\, it’s critical to ensure sustained and increased EU investment to close these gaps and support children living with and beyond cancer.\n\nThe event will:\n\nReflect on achievements and shortfalls of EU cancer initiatives\nAdvocate for targeted funding for childhood cancer in the next MFF\nBring together policymakers\, researchers\, advocates\, and survivors\n\nLet’s make sure no child is left behind in the EU’s future fight against cancer.\n  \nJoin us in Brussels to help shape a healthier\, more equitable future for all children across Europe. \n\n\n\n\nRegister HereCheck the agenda
URL:https://ccieurope.eu/event/gold-september-childhood-cancer-awareness-month-event-2025/
LOCATION:European Parliament\, Brussels
CATEGORIES:EU Affairs,Event
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2025/08/Gold-September-Policy-Event.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20250929T170000
DTEND;TZID=Europe/Vienna:20250929T183000
DTSTAMP:20260419T062312
CREATED:20250828T100119Z
LAST-MODIFIED:20250916T145744Z
UID:7356-1759165200-1759170600@ccieurope.eu
SUMMARY:Know the Basics: Building bridges - How does Palliative Care complete paediatric cancer care?
DESCRIPTION:register hereAbout the webinar: \nThis webinar aims to dispel any misconceptions surrounding paediatric palliative care and better clarify its role and how it can better support children with cancer and their families. Through a multi-disciplinary approach and presentation\, and enough time for discussion with the participants\, we aim to raise more awareness on what palliative care is and what benefits it can bring. \nWe will start with a short introduction and presentations on the topic\, from the various experts\, and will close with a panel discussion\, and Q&A from the audience. \nOur Speakers: \n\nGeorgia Kokkinou\nBereaved mother\, CCI Europe Committee Member\, and Vice president of Floga \nGeorgia is a bereaved mother and the Vice President of Floga\, the largest parents’ association of children with cancer in Greece. Through Floga\, she has gained significant experience in raising awareness for childhood cancer\, collaborating with healthcare professionals to promote better care and treatment for children with cancer and advocating based on first-hand knowledge of the patients’ actual needs. In October 2023\, she was elected as new European Member to the CCI Board. Within CCI Europe\, Georgia participates in various projects under the Diagnosis\, Treatment and Care Pillar. \n\nNathalie Hofer\nBereaved mother and founder of Ophelia’s Legacy \nNathalie Hofer is a curious soul who loves asking questions and reflecting deeply. A happy wife to Lukas and mom of three daughters—one of whom they lost to an ATRT brain tumor—she finds joy in baking\, decorating their home\, and embracing growth through self-reflection. For over 11 years\, she has worked as an organizational transformation consultant in the professional services industry. \n\nEva Maria Tinner\nSenior physician Pediatric Palliative Care University Children‘s Hospital Zurich\, member of SIOPE Palliative Care Steering Committee and PanCare Board \nDr. Eva Maria Tinner is a paediatric oncologist and hematologist with extensive expertise in paediatric palliative care. Her commitment began during her fellowship in the UK in 2009 and was strengthened through specialized training in Switzerland. Since 2018 she has focused her clinical work on PPC\, and since 2023 she has dedicated 50% of her time to the PPC team at University Children‘s Hospital Zurich. She is an active member of PPCN CH and serves on the Steering Committee of the SIOPE Palliative Care Working Group\, helping to advance PPC at both national and international levels. \nAna Lacerda\nSenior oncologist\, Portuguese Institute of Oncology\, Chair of SIOPE Pediatric Palliative Care Working Group \nDr Lacerda is a pediatric oncologist working in Lisbon\, Portugal\, with a very special interest in the implementation and development of pediatric palliative care (PPC). \nIn 2005 she founded the first in-hospital PPC team in Portugal\, at the Department of Paediatrics of the Portuguese Institute of Oncology Lisbon Centre / IPOLFG (which she chairs since June 2023). In 2013 she founded the PPC Taskforces at the Portuguese Association of Palliative Care and the Portuguese Pediatric Society. She is also a founding member of the Portuguese Observatory of Palliative Care\, and has been working closely with the Portuguese Ministry of Health. She is also a member of the EAPC Children and Young People Reference Group\, which she co-chaired 2019-21 and chaired 2022-23\, and currently serves on the EAPC Board (2023-27). \n\nUlrike Leiss\nClinical Psychologist at the Medical University of Vienna \nDr. Ulrike Leiss is a Clinical Psychologist\, specialised in the field of paediatric psycho-oncology and paediatric neuropsychology. She has been working at the Pediatric Neuro-Oncology Unit of the Comprehensive Center for Paediatrics of the Medical University of Vienna since 2001\, both in the field of inpatient psychosocial care and in (long-term) follow-up care. She has established an interdisciplinary psychosocial team there\, which is active both clinically and scientifically as COPEgroup. In the context of international collaboration\, she has been increasingly involved in the development and implementation of guidelines in recent years. Moreover\, her research focus is in (long-term) follow-up care\, interdisciplinary communication\, neuropsychological outcome and treatment. \nMaría Avilés\nNurse at Comprehensive Pediatric Palliative Care Unit at Hospital Universitario Niño Jesús Madrid \nMaría Avilés is a nurse from Spain and a member of the SIOPE Nursing Group. Since completing her nursing studies\, she has worked in various units in Spain and England. \nIn 2019\, she joined the Comprehensive Pediatric Palliative Care Unit at Hospital Universitario Niño Jesús in Madrid\, where she currently works as part of the homecare palliative care team. \nShe holds a Master of Science in Perinatal and Childhood Care and a PhD. In addition to her clinical practice\, María is actively involved in research and teaching on pediatric palliative care. She is also an associate lecturer in the Nursing Department at Universidad Autónoma of Madrid. \nregister here
URL:https://ccieurope.eu/event/know-the-basics-building-bridges-how-does-palliative-care-complete-paediatric-cancer-care/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2025/08/Gold-webinar-final-banner-11-scaled.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20251027T170000
DTEND;TZID=Europe/Vienna:20251027T183000
DTSTAMP:20260419T062312
CREATED:20250917T124215Z
LAST-MODIFIED:20251015T141329Z
UID:7492-1761584400-1761589800@ccieurope.eu
SUMMARY:Know the Basics: What Are PROs and PROMs\, and Why Do They Matter?
DESCRIPTION:register hereAbout the webinar: \nThis webinar explores the role of Patient-Reported Outcomes (PROs) and Patient-Reported Outcome Measures (PROMs) in clinical research and healthcare. Participants will gain insights into the scientific foundations of PROs/PROMs\, their impact on clinical trials\, and their relevance for improving patient care and quality of life. The session also highlights the importance of involving patient advocates in shaping meaningful healthcare outcomes. \nSpeakers: \nHannah Gsell\nChildhood Cancer Survivor\, CCI Europe\, Chairwoman of Survivors Austria \nHannah is a psychologist\, ALL-survivor\, and currently the Chairwoman of the Austrian Childhood Cancer Survivors Organisation.Hannah works at CCI Europe as project manager and patient expert and as such is involved in several EU funded projects. She is also part of the psychosocial pillar of CCI Europe. \n \nAnna Zettl\nChildhood Cancer Survivor\, CCI Europe \nAnna is an evolutionary anthropologist by training and currently pursuing a degree in psychology. She is a survivor of Hodgkin’s Lymphoma and serves as a board member of the Austrian Childhood Cancer Survivors Organisation.At CCI-E\, she works as a project coordinator and patient expert\, contributing to various research activities\, particularly in survivorship projects. \n \nMarita Partanen\nPediatric neuropsychologist and research group leader at the Princess Máxima Center \nMarita Partanen is a pediatric neuropsychologist and research group leader at the Princess Máxima Center in the Netherlands. The focus of her research is on the early identification and intervention of neuropsychological problems\, using a combination of behavioral\, therapeutic\, and neuroimaging (MRI) techniques. She also serves as co-chair of the SIOP-Europe Quality of Survival group\, where she leads a working group focused on aligning assessment methods in pediatric brain tumor trials. \nMartha Grootenhuis\, Prof.Dr.\nLead of the Psycho-Oncology Research Program at the Princess Máxima Center \nProf. Dr. Martha Grootenhuis is a leading expert in pediatric psycho-oncology with over three decades of experience. She currently leads the Psycho-Oncology Research Program at the Princess Máxima Center for Pediatric Oncology. She is internationally recognized for her pioneering work in developing and implementing Patient-Reported Outcome Measures (PROMs) in pediatric oncology in care. As the creator of the KLIK PROM portal and director of the PROM Core Facility\, she has advanced the integration of PROMs into daily care and promoted their use in clinical trials to enhance patient-centered outcome assessment. Her methodological research addresses the reliability\, interpretability\, and clinical utility of PROMs. \nregister here
URL:https://ccieurope.eu/event/know-the-basics-what-are-pros-and-proms-and-why-do-they-matter/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2025/09/Gold-webinar-final-banner-14-scaled.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20251124T170000
DTEND;TZID=Europe/Vienna:20251124T183000
DTSTAMP:20260419T062312
CREATED:20251023T114751Z
LAST-MODIFIED:20251023T115622Z
UID:7577-1764003600-1764009000@ccieurope.eu
SUMMARY:Know the Basics: From Brussels to the lab: How will the shift in the EU's policy agenda impact Research & Innovation?
DESCRIPTION:register hereAbout the webinar: \nThis webinar explores how the European Union (EU)’s emerging priorities will be influencing the direction and funding of research and innovation (R&I) policies across the region. As the EU responds to global challenges – from green and digital transitions to geopolitical shifts and economic resilience – its policy focus is also changing. A growing emphasis is being placed on building a robust R&I ecosystem that not only supports scientific advancement but also aims at accelerating the development of new treatments and ensuring that health innovations reach patients faster. \nSpeakers: \nCOMING SOON \nregister here
URL:https://ccieurope.eu/event/know-the-basics-from-brussels-to-the-lab-how-will-the-shift-in-the-eus-policy-agenda-impact-research-innovation/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2025/10/Gold-webinar-Nov-scaled.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20260128T170000
DTEND;TZID=Europe/Amsterdam:20260128T183000
DTSTAMP:20260419T062312
CREATED:20260109T104543Z
LAST-MODIFIED:20260209T104950Z
UID:7874-1769619600-1769625000@ccieurope.eu
SUMMARY:Communication about Late Effects
DESCRIPTION:About \n\n\nWe are excited to invite you to the first webinar of the YARN #QualityofLife webinar series! \nIn this webinar\, we will explore how to communicate effectively about late effects. Our panel – including healthcare professionals\, researchers\, and people with lived experience – will share practical do’s and don’ts\, tips for clear communication\, and ways to advocate for the information and support you need. \nThis webinar is designed for people with lived experience\, healthcare professionals\, families and everyone interested in improving the conversations around late effects. \nSpeakers in this webinar will be Hannah Gsell (Patient Expert & Psychologist\, Childhood Cancer International – Europe)\, Natasha Barbier (Childhood cancer survivor)\, Emma Potter (Nurse practitioner Long Term Follow Up\, The Royal Marsden Hospital\, London)\, Dr. med. PhD Maria Otth (Division of Oncology-Haematology\, Children’s Hospital of Eastern Switzerland\, St Gallen\, Switzerland) and Hanne Lie (Associate Professor in Behavioural Medicine\, Faculty of Medicine\, University of Oslo). \nAgenda:\n\nIntroduction: the YARN project and the YARN #QualityofLife webinar series\nSpotlight presentation: Available resources for communication about late effects\nInteractive panel discussion: Hear from people with lived experience\, healthcare professionals\, and researchers as they share their insights and answer your questions\nWrap up: Key take aways and final Q&A\nWhy Attend?\n\n✅ Gain practical tips for clear and effective communication about late effects\n✅ Discover useful resources to support people with lived experience and healthcare professionals\n✅ Learn directly from people with lived experience and the experts who support them \nSee you at the webinar! \n\nREGISTER HERE
URL:https://ccieurope.eu/event/communication-about-late-effects/
LOCATION:Online
CATEGORIES:Event,Projects,Survivorship
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2026/02/cci_europe_yarn_qualityoflife_webinars_eu_project.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20260226T153000
DTEND;TZID=Europe/Vienna:20260226T170000
DTSTAMP:20260419T062312
CREATED:20260202T163620Z
LAST-MODIFIED:20260226T135723Z
UID:7800-1772119800-1772125200@ccieurope.eu
SUMMARY:International Childhood Cancer Day 2026
DESCRIPTION:The 2026 International Childhood Cancer Day (ICCD) policy event\, “Europe’s Beating Cancer Plan Implementation for Children and Adolescents: Looking Ahead – What remains to be done to improve access to care\, research and sustainable survivorship programmes”\, will take place as an online policy dialogue on Thursday\, 26 February 2026\, from 15:30 to 17:00 CET. \nHosted by MEP Vlad Voiculescu (Renew\, RO)\, this annual event gathers policymakers\, researchers\, healthcare providers\, and patient advocates to assess progress and shape future EU action on childhood and adolescent cancer. SIOP Europe and CCI Europe will share evidence and perspectives from paediatric oncology professionals\, parents\, and survivors. \nThis year’s edition will showcase the progress made under Europe’s Beating Cancer Plan (EBCP)\, especially through its Spotlight on Childhood Cancer\, and will also examine how these achievements can be translated into timely and sustainable delivery for children and adolescents up to and after 2030. \nRegister HereProgrammeThe event will support discussions on the European Parliament’s own-initiative report on the EBCP\, currently under preparation. As the EBCP moves into its next implementation phase and future EU cancer policy initiatives are planned beyond 2025\, the event emphasises that childhood cancer must remain a visible priority. Strong political support and practical measures are essential to ensure that all children and young people with cancer in Europe benefit from equally high standards of care\, research\, and survivorship services. \nThe discussion will focus on two core priority areas across the childhood cancer pathway: \n\nEqual access to high-quality care and research\, including access to specialised expertise\, cross-border collaboration\, and innovation for children\, adolescents\, and young adults with cancer\, regardless of where they live in Europe\nSurvivorship and psychosocial care\, with a focus on long-term follow-up care and the sustainability of survivorship programmes for childhood cancer survivors and their families.\n\nBy bringing together policymakers and key stakeholders from across the childhood cancer community and beyond\, the event aims to foster shared understanding and actionable policy directions. The goal is to ensure that progress achieved at EU level through the EBCP translates into lasting\, equitable impact for all children and young people with cancer across Europe. \nRegister Here
URL:https://ccieurope.eu/event/international-childhood-cancer-day-2026/
LOCATION:Online
CATEGORIES:EU Affairs,Event
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2026/02/iccd_2026_policy_event.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20260330T170000
DTEND;TZID=Europe/Amsterdam:20260330T183000
DTSTAMP:20260419T062312
CREATED:20260209T103752Z
LAST-MODIFIED:20260209T103752Z
UID:7870-1774890000-1774895400@ccieurope.eu
SUMMARY:From Recommendations to Real Life: Mental Health Care in CAYA Cancer Survivorship
DESCRIPTION:About \n\nJoin young survivors\, clinicians\, and psychosocial experts to discover recommendations for mental health care in CAYA cancer survivorship\, and explore how to implement them in everyday practice. \n\n\nREGISTER HERE
URL:https://ccieurope.eu/event/from-recommendations-to-real-life-mental-health-care-in-caya-cancer-survivorship/
LOCATION:Online
CATEGORIES:Event,Projects,Survivorship
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2026/02/cci_europe_yarn_qualityoflife_webinars_eu_project.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260915
DTEND;VALUE=DATE:20260919
DTSTAMP:20260419T062312
CREATED:20260211T160044Z
LAST-MODIFIED:20260211T160304Z
UID:7878-1789430400-1789775999@ccieurope.eu
SUMMARY:Childhood Cancer International - Annual Conference 2026
DESCRIPTION:Join us in historic San Antonio for the 32nd CCI Annual International Conference! Hosted in San Antonio\, Texas\, the conference will unite people with lived experience of childhood cancer (including survivors\, parents\, and patient advocates)\, together with civil society organisations\, healthcare professionals\, and multidisciplinary care teams from across the globe. The meeting offers a unique space to connect\, share perspectives\, and foster partnerships that advance advocacy and improve outcomes for children and adolescents with cancer. \n\n\n\n\n\n\n\n\nThe conference will once again be organised in conjunction with SIOP as a part of the SIOP Congress. \n\n\n\n\nConference Dates\nSeptember 15-18\, 2026 \nImportant Dates \n\nMarch 17\, 2026 – Abstract Submission Deadline\nJune 23\, 2026 – Early Registration Deadline\nAugust 18\, 2026 – Late Breaking Abstract Submission Deadline\nSeptember 15-18\, 2026 – CCI Annual Conference 2025\n\nVenue\nHenry B. González Convention Center\nAddress: 900 E Market St\, San Antonio\, TX 78205\, USA\nWebsite: http://www.sahbgcc.com/ \n​Language\nThe official language of the CCI Annual Conference  is English. \nStipends\nEvery year Childhood Cancer International makes available a limited amount of funding to cover the participation of delegates from CCI member organisations. This is both from CCI general funds as well as funding offered by member organisations who have the desire to assist parents or survivors attend a conference by donating to the Parents Helping Parents Fund (PHP Fund) or through their existing twinning relationships. More information and how to apply for a stipend coming soon. \nREGISTER HERE
URL:https://ccieurope.eu/event/childhood-cancer-international-annual-conference-2026/
LOCATION:Henry B. González Convention Center\, 900 E Market St\, San Antonio\, TX\, 78205\, United States
CATEGORIES:Event
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