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DTSTART;TZID=Europe/Vienna:20250929T170000
DTEND;TZID=Europe/Vienna:20250929T183000
DTSTAMP:20260418T151247
CREATED:20250828T100119Z
LAST-MODIFIED:20250916T145744Z
UID:7356-1759165200-1759170600@ccieurope.eu
SUMMARY:Know the Basics: Building bridges - How does Palliative Care complete paediatric cancer care?
DESCRIPTION:register hereAbout the webinar: \nThis webinar aims to dispel any misconceptions surrounding paediatric palliative care and better clarify its role and how it can better support children with cancer and their families. Through a multi-disciplinary approach and presentation\, and enough time for discussion with the participants\, we aim to raise more awareness on what palliative care is and what benefits it can bring. \nWe will start with a short introduction and presentations on the topic\, from the various experts\, and will close with a panel discussion\, and Q&A from the audience. \nOur Speakers: \n\nGeorgia Kokkinou\nBereaved mother\, CCI Europe Committee Member\, and Vice president of Floga \nGeorgia is a bereaved mother and the Vice President of Floga\, the largest parents’ association of children with cancer in Greece. Through Floga\, she has gained significant experience in raising awareness for childhood cancer\, collaborating with healthcare professionals to promote better care and treatment for children with cancer and advocating based on first-hand knowledge of the patients’ actual needs. In October 2023\, she was elected as new European Member to the CCI Board. Within CCI Europe\, Georgia participates in various projects under the Diagnosis\, Treatment and Care Pillar. \n\nNathalie Hofer\nBereaved mother and founder of Ophelia’s Legacy \nNathalie Hofer is a curious soul who loves asking questions and reflecting deeply. A happy wife to Lukas and mom of three daughters—one of whom they lost to an ATRT brain tumor—she finds joy in baking\, decorating their home\, and embracing growth through self-reflection. For over 11 years\, she has worked as an organizational transformation consultant in the professional services industry. \n\nEva Maria Tinner\nSenior physician Pediatric Palliative Care University Children‘s Hospital Zurich\, member of SIOPE Palliative Care Steering Committee and PanCare Board \nDr. Eva Maria Tinner is a paediatric oncologist and hematologist with extensive expertise in paediatric palliative care. Her commitment began during her fellowship in the UK in 2009 and was strengthened through specialized training in Switzerland. Since 2018 she has focused her clinical work on PPC\, and since 2023 she has dedicated 50% of her time to the PPC team at University Children‘s Hospital Zurich. She is an active member of PPCN CH and serves on the Steering Committee of the SIOPE Palliative Care Working Group\, helping to advance PPC at both national and international levels. \nAna Lacerda\nSenior oncologist\, Portuguese Institute of Oncology\, Chair of SIOPE Pediatric Palliative Care Working Group \nDr Lacerda is a pediatric oncologist working in Lisbon\, Portugal\, with a very special interest in the implementation and development of pediatric palliative care (PPC). \nIn 2005 she founded the first in-hospital PPC team in Portugal\, at the Department of Paediatrics of the Portuguese Institute of Oncology Lisbon Centre / IPOLFG (which she chairs since June 2023). In 2013 she founded the PPC Taskforces at the Portuguese Association of Palliative Care and the Portuguese Pediatric Society. She is also a founding member of the Portuguese Observatory of Palliative Care\, and has been working closely with the Portuguese Ministry of Health. She is also a member of the EAPC Children and Young People Reference Group\, which she co-chaired 2019-21 and chaired 2022-23\, and currently serves on the EAPC Board (2023-27). \n\nUlrike Leiss\nClinical Psychologist at the Medical University of Vienna \nDr. Ulrike Leiss is a Clinical Psychologist\, specialised in the field of paediatric psycho-oncology and paediatric neuropsychology. She has been working at the Pediatric Neuro-Oncology Unit of the Comprehensive Center for Paediatrics of the Medical University of Vienna since 2001\, both in the field of inpatient psychosocial care and in (long-term) follow-up care. She has established an interdisciplinary psychosocial team there\, which is active both clinically and scientifically as COPEgroup. In the context of international collaboration\, she has been increasingly involved in the development and implementation of guidelines in recent years. Moreover\, her research focus is in (long-term) follow-up care\, interdisciplinary communication\, neuropsychological outcome and treatment. \nMaría Avilés\nNurse at Comprehensive Pediatric Palliative Care Unit at Hospital Universitario Niño Jesús Madrid \nMaría Avilés is a nurse from Spain and a member of the SIOPE Nursing Group. Since completing her nursing studies\, she has worked in various units in Spain and England. \nIn 2019\, she joined the Comprehensive Pediatric Palliative Care Unit at Hospital Universitario Niño Jesús in Madrid\, where she currently works as part of the homecare palliative care team. \nShe holds a Master of Science in Perinatal and Childhood Care and a PhD. In addition to her clinical practice\, María is actively involved in research and teaching on pediatric palliative care. She is also an associate lecturer in the Nursing Department at Universidad Autónoma of Madrid. \nregister here
URL:https://ccieurope.eu/event/know-the-basics-building-bridges-how-does-palliative-care-complete-paediatric-cancer-care/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20251027T170000
DTEND;TZID=Europe/Vienna:20251027T183000
DTSTAMP:20260418T151247
CREATED:20250917T124215Z
LAST-MODIFIED:20251015T141329Z
UID:7492-1761584400-1761589800@ccieurope.eu
SUMMARY:Know the Basics: What Are PROs and PROMs\, and Why Do They Matter?
DESCRIPTION:register hereAbout the webinar: \nThis webinar explores the role of Patient-Reported Outcomes (PROs) and Patient-Reported Outcome Measures (PROMs) in clinical research and healthcare. Participants will gain insights into the scientific foundations of PROs/PROMs\, their impact on clinical trials\, and their relevance for improving patient care and quality of life. The session also highlights the importance of involving patient advocates in shaping meaningful healthcare outcomes. \nSpeakers: \nHannah Gsell\nChildhood Cancer Survivor\, CCI Europe\, Chairwoman of Survivors Austria \nHannah is a psychologist\, ALL-survivor\, and currently the Chairwoman of the Austrian Childhood Cancer Survivors Organisation.Hannah works at CCI Europe as project manager and patient expert and as such is involved in several EU funded projects. She is also part of the psychosocial pillar of CCI Europe. \n \nAnna Zettl\nChildhood Cancer Survivor\, CCI Europe \nAnna is an evolutionary anthropologist by training and currently pursuing a degree in psychology. She is a survivor of Hodgkin’s Lymphoma and serves as a board member of the Austrian Childhood Cancer Survivors Organisation.At CCI-E\, she works as a project coordinator and patient expert\, contributing to various research activities\, particularly in survivorship projects. \n \nMarita Partanen\nPediatric neuropsychologist and research group leader at the Princess Máxima Center \nMarita Partanen is a pediatric neuropsychologist and research group leader at the Princess Máxima Center in the Netherlands. The focus of her research is on the early identification and intervention of neuropsychological problems\, using a combination of behavioral\, therapeutic\, and neuroimaging (MRI) techniques. She also serves as co-chair of the SIOP-Europe Quality of Survival group\, where she leads a working group focused on aligning assessment methods in pediatric brain tumor trials. \nMartha Grootenhuis\, Prof.Dr.\nLead of the Psycho-Oncology Research Program at the Princess Máxima Center \nProf. Dr. Martha Grootenhuis is a leading expert in pediatric psycho-oncology with over three decades of experience. She currently leads the Psycho-Oncology Research Program at the Princess Máxima Center for Pediatric Oncology. She is internationally recognized for her pioneering work in developing and implementing Patient-Reported Outcome Measures (PROMs) in pediatric oncology in care. As the creator of the KLIK PROM portal and director of the PROM Core Facility\, she has advanced the integration of PROMs into daily care and promoted their use in clinical trials to enhance patient-centered outcome assessment. Her methodological research addresses the reliability\, interpretability\, and clinical utility of PROMs. \nregister here
URL:https://ccieurope.eu/event/know-the-basics-what-are-pros-and-proms-and-why-do-they-matter/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars
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BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20251124T170000
DTEND;TZID=Europe/Vienna:20251124T183000
DTSTAMP:20260418T151247
CREATED:20251023T114751Z
LAST-MODIFIED:20251023T115622Z
UID:7577-1764003600-1764009000@ccieurope.eu
SUMMARY:Know the Basics: From Brussels to the lab: How will the shift in the EU's policy agenda impact Research & Innovation?
DESCRIPTION:register hereAbout the webinar: \nThis webinar explores how the European Union (EU)’s emerging priorities will be influencing the direction and funding of research and innovation (R&I) policies across the region. As the EU responds to global challenges – from green and digital transitions to geopolitical shifts and economic resilience – its policy focus is also changing. A growing emphasis is being placed on building a robust R&I ecosystem that not only supports scientific advancement but also aims at accelerating the development of new treatments and ensuring that health innovations reach patients faster. \nSpeakers: \nCOMING SOON \nregister here
URL:https://ccieurope.eu/event/know-the-basics-from-brussels-to-the-lab-how-will-the-shift-in-the-eus-policy-agenda-impact-research-innovation/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20260128T170000
DTEND;TZID=Europe/Amsterdam:20260128T183000
DTSTAMP:20260418T151247
CREATED:20260109T104543Z
LAST-MODIFIED:20260209T104950Z
UID:7874-1769619600-1769625000@ccieurope.eu
SUMMARY:Communication about Late Effects
DESCRIPTION:About \n\n\nWe are excited to invite you to the first webinar of the YARN #QualityofLife webinar series! \nIn this webinar\, we will explore how to communicate effectively about late effects. Our panel – including healthcare professionals\, researchers\, and people with lived experience – will share practical do’s and don’ts\, tips for clear communication\, and ways to advocate for the information and support you need. \nThis webinar is designed for people with lived experience\, healthcare professionals\, families and everyone interested in improving the conversations around late effects. \nSpeakers in this webinar will be Hannah Gsell (Patient Expert & Psychologist\, Childhood Cancer International – Europe)\, Natasha Barbier (Childhood cancer survivor)\, Emma Potter (Nurse practitioner Long Term Follow Up\, The Royal Marsden Hospital\, London)\, Dr. med. PhD Maria Otth (Division of Oncology-Haematology\, Children’s Hospital of Eastern Switzerland\, St Gallen\, Switzerland) and Hanne Lie (Associate Professor in Behavioural Medicine\, Faculty of Medicine\, University of Oslo). \nAgenda:\n\nIntroduction: the YARN project and the YARN #QualityofLife webinar series\nSpotlight presentation: Available resources for communication about late effects\nInteractive panel discussion: Hear from people with lived experience\, healthcare professionals\, and researchers as they share their insights and answer your questions\nWrap up: Key take aways and final Q&A\nWhy Attend?\n\n✅ Gain practical tips for clear and effective communication about late effects\n✅ Discover useful resources to support people with lived experience and healthcare professionals\n✅ Learn directly from people with lived experience and the experts who support them \nSee you at the webinar! \n\nREGISTER HERE
URL:https://ccieurope.eu/event/communication-about-late-effects/
LOCATION:Online
CATEGORIES:Event,Projects,Survivorship
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20260226T153000
DTEND;TZID=Europe/Vienna:20260226T170000
DTSTAMP:20260418T151247
CREATED:20260202T163620Z
LAST-MODIFIED:20260226T135723Z
UID:7800-1772119800-1772125200@ccieurope.eu
SUMMARY:International Childhood Cancer Day 2026
DESCRIPTION:The 2026 International Childhood Cancer Day (ICCD) policy event\, “Europe’s Beating Cancer Plan Implementation for Children and Adolescents: Looking Ahead – What remains to be done to improve access to care\, research and sustainable survivorship programmes”\, will take place as an online policy dialogue on Thursday\, 26 February 2026\, from 15:30 to 17:00 CET. \nHosted by MEP Vlad Voiculescu (Renew\, RO)\, this annual event gathers policymakers\, researchers\, healthcare providers\, and patient advocates to assess progress and shape future EU action on childhood and adolescent cancer. SIOP Europe and CCI Europe will share evidence and perspectives from paediatric oncology professionals\, parents\, and survivors. \nThis year’s edition will showcase the progress made under Europe’s Beating Cancer Plan (EBCP)\, especially through its Spotlight on Childhood Cancer\, and will also examine how these achievements can be translated into timely and sustainable delivery for children and adolescents up to and after 2030. \nRegister HereProgrammeThe event will support discussions on the European Parliament’s own-initiative report on the EBCP\, currently under preparation. As the EBCP moves into its next implementation phase and future EU cancer policy initiatives are planned beyond 2025\, the event emphasises that childhood cancer must remain a visible priority. Strong political support and practical measures are essential to ensure that all children and young people with cancer in Europe benefit from equally high standards of care\, research\, and survivorship services. \nThe discussion will focus on two core priority areas across the childhood cancer pathway: \n\nEqual access to high-quality care and research\, including access to specialised expertise\, cross-border collaboration\, and innovation for children\, adolescents\, and young adults with cancer\, regardless of where they live in Europe\nSurvivorship and psychosocial care\, with a focus on long-term follow-up care and the sustainability of survivorship programmes for childhood cancer survivors and their families.\n\nBy bringing together policymakers and key stakeholders from across the childhood cancer community and beyond\, the event aims to foster shared understanding and actionable policy directions. The goal is to ensure that progress achieved at EU level through the EBCP translates into lasting\, equitable impact for all children and young people with cancer across Europe. \nRegister Here
URL:https://ccieurope.eu/event/international-childhood-cancer-day-2026/
LOCATION:Online
CATEGORIES:EU Affairs,Event
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BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20260330T170000
DTEND;TZID=Europe/Amsterdam:20260330T183000
DTSTAMP:20260418T151247
CREATED:20260209T103752Z
LAST-MODIFIED:20260209T103752Z
UID:7870-1774890000-1774895400@ccieurope.eu
SUMMARY:From Recommendations to Real Life: Mental Health Care in CAYA Cancer Survivorship
DESCRIPTION:About \n\nJoin young survivors\, clinicians\, and psychosocial experts to discover recommendations for mental health care in CAYA cancer survivorship\, and explore how to implement them in everyday practice. \n\n\nREGISTER HERE
URL:https://ccieurope.eu/event/from-recommendations-to-real-life-mental-health-care-in-caya-cancer-survivorship/
LOCATION:Online
CATEGORIES:Event,Projects,Survivorship
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END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260915
DTEND;VALUE=DATE:20260919
DTSTAMP:20260418T151247
CREATED:20260211T160044Z
LAST-MODIFIED:20260211T160304Z
UID:7878-1789430400-1789775999@ccieurope.eu
SUMMARY:Childhood Cancer International - Annual Conference 2026
DESCRIPTION:Join us in historic San Antonio for the 32nd CCI Annual International Conference! Hosted in San Antonio\, Texas\, the conference will unite people with lived experience of childhood cancer (including survivors\, parents\, and patient advocates)\, together with civil society organisations\, healthcare professionals\, and multidisciplinary care teams from across the globe. The meeting offers a unique space to connect\, share perspectives\, and foster partnerships that advance advocacy and improve outcomes for children and adolescents with cancer. \n\n\n\n\n\n\n\n\nThe conference will once again be organised in conjunction with SIOP as a part of the SIOP Congress. \n\n\n\n\nConference Dates\nSeptember 15-18\, 2026 \nImportant Dates \n\nMarch 17\, 2026 – Abstract Submission Deadline\nJune 23\, 2026 – Early Registration Deadline\nAugust 18\, 2026 – Late Breaking Abstract Submission Deadline\nSeptember 15-18\, 2026 – CCI Annual Conference 2025\n\nVenue\nHenry B. González Convention Center\nAddress: 900 E Market St\, San Antonio\, TX 78205\, USA\nWebsite: http://www.sahbgcc.com/ \n​Language\nThe official language of the CCI Annual Conference  is English. \nStipends\nEvery year Childhood Cancer International makes available a limited amount of funding to cover the participation of delegates from CCI member organisations. This is both from CCI general funds as well as funding offered by member organisations who have the desire to assist parents or survivors attend a conference by donating to the Parents Helping Parents Fund (PHP Fund) or through their existing twinning relationships. More information and how to apply for a stipend coming soon. \nREGISTER HERE
URL:https://ccieurope.eu/event/childhood-cancer-international-annual-conference-2026/
LOCATION:Henry B. González Convention Center\, 900 E Market St\, San Antonio\, TX\, 78205\, United States
CATEGORIES:Event
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