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DTSTART;TZID=Europe/Amsterdam:20260128T170000
DTEND;TZID=Europe/Amsterdam:20260128T183000
DTSTAMP:20260209T104950Z
CREATED:20260109T104543Z
LAST-MODIFIED:20260209T104950Z
UID:7874-1769619600-1769625000@ccieurope.eu
SUMMARY:Communication about Late Effects
DESCRIPTION:About \n\n\nWe are excited to invite you to the first webinar of the YARN #QualityofLife webinar series! \nIn this webinar\, we will explore how to communicate effectively about late effects. Our panel – including healthcare professionals\, researchers\, and people with lived experience – will share practical do’s and don’ts\, tips for clear communication\, and ways to advocate for the information and support you need. \nThis webinar is designed for people with lived experience\, healthcare professionals\, families and everyone interested in improving the conversations around late effects. \nSpeakers in this webinar will be Hannah Gsell (Patient Expert & Psychologist\, Childhood Cancer International – Europe)\, Natasha Barbier (Childhood cancer survivor)\, Emma Potter (Nurse practitioner Long Term Follow Up\, The Royal Marsden Hospital\, London)\, Dr. med. PhD Maria Otth (Division of Oncology-Haematology\, Children’s Hospital of Eastern Switzerland\, St Gallen\, Switzerland) and Hanne Lie (Associate Professor in Behavioural Medicine\, Faculty of Medicine\, University of Oslo). \nAgenda:\n\nIntroduction: the YARN project and the YARN #QualityofLife webinar series\nSpotlight presentation: Available resources for communication about late effects\nInteractive panel discussion: Hear from people with lived experience\, healthcare professionals\, and researchers as they share their insights and answer your questions\nWrap up: Key take aways and final Q&A\nWhy Attend?\n\n✅ Gain practical tips for clear and effective communication about late effects\n✅ Discover useful resources to support people with lived experience and healthcare professionals\n✅ Learn directly from people with lived experience and the experts who support them \nSee you at the webinar! \n\nREGISTER HERE
URL:https://ccieurope.eu/event/communication-about-late-effects/
LOCATION:Online
CATEGORIES:Event,Projects,Survivorship
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BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20260226T153000
DTEND;TZID=Europe/Vienna:20260226T170000
DTSTAMP:20260226T135723Z
CREATED:20260202T163620Z
LAST-MODIFIED:20260226T135723Z
UID:7800-1772119800-1772125200@ccieurope.eu
SUMMARY:International Childhood Cancer Day 2026
DESCRIPTION:The 2026 International Childhood Cancer Day (ICCD) policy event\, “Europe’s Beating Cancer Plan Implementation for Children and Adolescents: Looking Ahead – What remains to be done to improve access to care\, research and sustainable survivorship programmes”\, will take place as an online policy dialogue on Thursday\, 26 February 2026\, from 15:30 to 17:00 CET. \nHosted by MEP Vlad Voiculescu (Renew\, RO)\, this annual event gathers policymakers\, researchers\, healthcare providers\, and patient advocates to assess progress and shape future EU action on childhood and adolescent cancer. SIOP Europe and CCI Europe will share evidence and perspectives from paediatric oncology professionals\, parents\, and survivors. \nThis year’s edition will showcase the progress made under Europe’s Beating Cancer Plan (EBCP)\, especially through its Spotlight on Childhood Cancer\, and will also examine how these achievements can be translated into timely and sustainable delivery for children and adolescents up to and after 2030. \nRegister HereProgrammeThe event will support discussions on the European Parliament’s own-initiative report on the EBCP\, currently under preparation. As the EBCP moves into its next implementation phase and future EU cancer policy initiatives are planned beyond 2025\, the event emphasises that childhood cancer must remain a visible priority. Strong political support and practical measures are essential to ensure that all children and young people with cancer in Europe benefit from equally high standards of care\, research\, and survivorship services. \nThe discussion will focus on two core priority areas across the childhood cancer pathway: \n\nEqual access to high-quality care and research\, including access to specialised expertise\, cross-border collaboration\, and innovation for children\, adolescents\, and young adults with cancer\, regardless of where they live in Europe\nSurvivorship and psychosocial care\, with a focus on long-term follow-up care and the sustainability of survivorship programmes for childhood cancer survivors and their families.\n\nBy bringing together policymakers and key stakeholders from across the childhood cancer community and beyond\, the event aims to foster shared understanding and actionable policy directions. The goal is to ensure that progress achieved at EU level through the EBCP translates into lasting\, equitable impact for all children and young people with cancer across Europe. \nRegister Here
URL:https://ccieurope.eu/event/international-childhood-cancer-day-2026/
LOCATION:Online
CATEGORIES:EU Affairs,Event
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2026/02/iccd_2026_policy_event.png
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BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20260330T170000
DTEND;TZID=Europe/Amsterdam:20260330T183000
DTSTAMP:20260209T103752Z
CREATED:20260209T103752Z
LAST-MODIFIED:20260209T103752Z
UID:7870-1774890000-1774895400@ccieurope.eu
SUMMARY:From Recommendations to Real Life: Mental Health Care in CAYA Cancer Survivorship
DESCRIPTION:About \n\nJoin young survivors\, clinicians\, and psychosocial experts to discover recommendations for mental health care in CAYA cancer survivorship\, and explore how to implement them in everyday practice. \n\n\nREGISTER HERE
URL:https://ccieurope.eu/event/from-recommendations-to-real-life-mental-health-care-in-caya-cancer-survivorship/
LOCATION:Online
CATEGORIES:Event,Projects,Survivorship
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BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20260527T170000
DTEND;TZID=Europe/Amsterdam:20260527T183000
DTSTAMP:20260522T124214Z
CREATED:20260522T084018Z
LAST-MODIFIED:20260522T124214Z
UID:8253-1779901200-1779906600@ccieurope.eu
SUMMARY:#QualityofLife Webinar Series: The next chapter - Living a healthy lifestyle after cancer
DESCRIPTION:About this webinar\n\nJoin us for the next YARN #QualityofLife webinar on 27 May 2026 at 17:00 CEST! \nWe are excited to invite you to the next webinar in the YARN #QualityofLife series on “Living a Healthy Lifestyle After Cancer”. \nHow can young people living with and beyond cancer be supported in adopting and maintaining a healthy lifestyle? How can the unique challenges they face be addressed and overcome? \nTogether\, we will discuss: \n\nTestimonies from young people with lived experience\nBest practices for healthcare professionals\nPractical strategies to support sustainable lifestyle changes\n\nWe look forward to welcoming people with lived experience\, healthcare professionals\, families and everyone interested in learning more about healthy lifestyle for people affected by cancer. \nAbout the #QualityofLife Webinar Series\n\nThe YARN #QualityofLife Webinar Series brings together the expertise and activities of Work Package 2 and Work Package 3 of the project to create one shared space for learning\, discussion\, and support around life during and after cancer. Through expert insights and real-life experiences\, the webinars explore topics like late effects\, healthy living\, mental well-being\, and survivorship\, helping young people affected by cancer feel informed\, supported\, and connected.\nREGISTER HERE
URL:https://ccieurope.eu/event/qualityoflife-webinar-series-the-next-chapter-living-a-healthy-lifestyle-after-cancer/
LOCATION:Online
CATEGORIES:Event,Projects,Survivorship
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2026/02/cci_europe_yarn_qualityoflife_webinars_eu_project.png
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BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20260627T160000
DTEND;TZID=Europe/Amsterdam:20260627T173000
DTSTAMP:20260608T160641Z
CREATED:20260608T160535Z
LAST-MODIFIED:20260608T160641Z
UID:8329-1782576000-1782581400@ccieurope.eu
SUMMARY:Survivors' Week Webinar 2026
DESCRIPTION:Join us for a global Survivors’ Week webinar bringing together childhood cancer survivors\, healthcare professionals\, advocates and support networks to explore life beyond treatment. \nThis interactive session will focus on the realities of survivorship\, including navigating education and employment\, building independence\, managing wellbeing\, and advocating for long-term support and care. Through lived experience stories\, expert perspectives and audience participation\, the webinar will create space for honest discussion\, shared learning and community connection. \nParticipants will hear from survivors and professionals from different regions of the world\, take part in live polls and Q&A sessions\, and explore practical strategies to support survivors in leading fulfilling and empowered lives after childhood cancer. \nThe webinar is co-organised by the SIOP Survivorship Network and Childhood Cancer International SurNet as part of Survivors Week 2026. \nSimultaneous caption translation features will be available to support global participation. \nREGISTER HERE
URL:https://ccieurope.eu/event/survivors-week-webinar-2026/
LOCATION:Online
CATEGORIES:Event,Survivorship
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20260902T150000
DTEND;TZID=Europe/Vienna:20260902T163000
DTSTAMP:20260820T092118Z
CREATED:20260724T113732Z
LAST-MODIFIED:20260820T092118Z
UID:8505-1788361200-1788366600@ccieurope.eu
SUMMARY:Gold September 2026: Exchange of Views on Childhood Cancer at the European Parliament
DESCRIPTION:About\nSeptember is the Childhood Cancer Awareness Month\, an important opportunity to raise awareness of the challenges faced by children and adolescents with cancer\, survivors\, families\, healthcare professionals\, researchers\, and policymakers. As part of Gold September 2026\, CCI Europe and SIOP Europe will participate in an Exchange of Views hosted by the European Parliament‘s Committee on Public Health (SANT). \nThe Committee on Public Health (SANT) is responsible for shaping the European Parliament’s work on public health policy\, including disease prevention\, healthcare systems\, access to medicines\, and health research. An exchange of views within the Committee brings together Members of the European Parliament\, experts\, patient representatives\, and key stakeholders to discuss policy priorities and inform future EU action. \nThis year’s discussion will focus on improving outcomes for children and adolescents with cancer by examining the full patient pathway – from diagnosis and treatment to survivorship – as well as the financial and policy frameworks needed to ensure equitable access to care and innovation across Europe. \nAccess the Live Stream PLEASE NOTE:  \nAfter clicking the link\, you will see a list of available sessions. \nPlease select the SANT / Public Health Committee session to join the event. \nProgrammeThe European Parliament has created a dedicated page for this event. You can find more information below: \nEuropean Parliament Event PageGot questions? We’ve got answers! \nWhere can I find the link to follow the session?\nThe broadcasting link is not yet available on the website of the European Parliament. As soon as it is confirmed\, we will update this webpage and share it with the community so you can follow the session live. No registration is needed. \nWill the session be recorded if I can't watch it live?\nYes. The Exchange of Views will be recorded\, so if you are unable to join at 15:00 CEST on 2 September\, you will be able to watch it afterwards. \nWhat language will the session be in? Will translation be available?\nSpeakers will present in English. Members of the European Parliament (MEPs) may speak in English or their native language\, depending on who is present. Interpretation is expected to be available in Danish\, Czech\, Hungarian\, Slovak\, Romanian\, French\, and Dutch\, though this is still to be confirmed closer to the date. \nWhat is an 'exchange of views' at the European Parliament?\nAn “exchange of views” at the European Parliament is a formal parliamentary procedure where Members of the European Parliament (MEPs) hold structured discussions with invited officials\, such as European Commissioners\, national ministers\, or external experts\, to debate policies\, share perspectives\, and gather information. While no decisions or votes are taken during the meeting\, these discussions help inform future parliamentary work. This Exchange of Views will focus on key priorities for improving outcomes for children and adolescents with cancer. It will bring together policymakers and representatives from the childhood cancer community\, including CCI Europe\, SIOP Europe\, survivors\, and families. \nWhat makes this session more impactful than the usual policy events?\nThis Exchange of Views gives the community the full attention of the members of the Parliament (MEPs) responsible for health dossiers in a formal Parliament setting. It is a rare opportunity to bring the voices and asks of the childhood cancer community\, which we have been advocating for over many years\, directly into the political conversation. The event also carries the support of the President of the European Parliament\, Roberta Metsola\, which gives it particular weight and visibility for our community. \nWhy could this be interesting for non-EU members?\nChildhood cancer knows no borders\, and many of the policy gaps discussed – market failures in paediatric drug development\, unequal access to care\, survivorship support – are shared challenges beyond the EU. The recommendations and frameworks discussed can inform advocacy and policy conversations in other countries too\, and the session offers a model for how patient and family voices can engage directly with legislators. \nWho can watch the session?\nAnyone can watch. The session is open to the public online\, with no registration required.
URL:https://ccieurope.eu/event/gold-september-2026-exchange-of-views-on-childhood-cancer-at-the-european-parliament/
LOCATION:European Parliament & Online
CATEGORIES:EU Affairs,Event
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END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260915
DTEND;VALUE=DATE:20260919
DTSTAMP:20260211T160304Z
CREATED:20260211T160044Z
LAST-MODIFIED:20260211T160304Z
UID:7878-1789430400-1789775999@ccieurope.eu
SUMMARY:Childhood Cancer International - Annual Conference 2026
DESCRIPTION:Join us in historic San Antonio for the 32nd CCI Annual International Conference! Hosted in San Antonio\, Texas\, the conference will unite people with lived experience of childhood cancer (including survivors\, parents\, and patient advocates)\, together with civil society organisations\, healthcare professionals\, and multidisciplinary care teams from across the globe. The meeting offers a unique space to connect\, share perspectives\, and foster partnerships that advance advocacy and improve outcomes for children and adolescents with cancer. \n\n\n\n\n\n\n\n\nThe conference will once again be organised in conjunction with SIOP as a part of the SIOP Congress. \n\n\n\n\nConference Dates\nSeptember 15-18\, 2026 \nImportant Dates \n\nMarch 17\, 2026 – Abstract Submission Deadline\nJune 23\, 2026 – Early Registration Deadline\nAugust 18\, 2026 – Late Breaking Abstract Submission Deadline\nSeptember 15-18\, 2026 – CCI Annual Conference 2025\n\nVenue\nHenry B. González Convention Center\nAddress: 900 E Market St\, San Antonio\, TX 78205\, USA\nWebsite: http://www.sahbgcc.com/ \n​Language\nThe official language of the CCI Annual Conference  is English. \nStipends\nEvery year Childhood Cancer International makes available a limited amount of funding to cover the participation of delegates from CCI member organisations. This is both from CCI general funds as well as funding offered by member organisations who have the desire to assist parents or survivors attend a conference by donating to the Parents Helping Parents Fund (PHP Fund) or through their existing twinning relationships. More information and how to apply for a stipend coming soon. \nREGISTER HERE
URL:https://ccieurope.eu/event/childhood-cancer-international-annual-conference-2026/
LOCATION:Henry B. González Convention Center\, 900 E Market St\, San Antonio\, TX\, 78205\, United States
CATEGORIES:Event
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BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20261102T170000
DTEND;TZID=Europe/Vienna:20261102T183000
DTSTAMP:20261030T090818Z
CREATED:20261007T155716Z
LAST-MODIFIED:20261030T090818Z
UID:8851-1793638800-1793644200@ccieurope.eu
SUMMARY:Advance Your Knowledge: From European Standards to National Change
DESCRIPTION:About the webinar: \nExploring the real-world impact of the European Standards of Care for Children & Adolescents with Cancer  and their potential to shape national policy\, services and patient advocacy! \nThe Standards are there. But what happens next? \nJoin our Gold Webinar to explore how the European Standards of Care are being used – and could be used to drive change at national level. \nGeorgia Kokkinou (CCI Europe) and Maria Otth (SIOP Europe)\, will kick off the discussion with a brief introduction. They will be followed by a panel of CCI Europe members and healthcare professionals\, sharing national experiences of using the Standards for advocacy and implementation. \nHear what has worked\, what challenges remain\, and how we can turn European standards into national action. \nSpeakers: \nGeorgia Kokkinou\nBereaved mother\, CCI Europe Committee Member\, and Vice president of Floga\nGreece\nGeorgia is a bereaved mother and the Vice President of Floga\, the largest parents’ association of children with cancer in Greece. Through Floga\, she has gained significant experience in raising awareness for childhood cancer\, collaborating with healthcare professionals to promote better care and treatment for children with cancer and advocating based on first-hand knowledge of the patients’ actual needs. In October 2023\, she was elected as new European Member to the CCI Board. Within CCI Europe\, Georgia participates in various projects under the Diagnosis\, Treatment and Care Pillar. \nMaria Otth\nPediatric oncologist\, SIOP Europe\nSwitzerland\nMaria Otth is a pediatric oncologists and hematologist from Switzerland. Her main focus of clinical care\, research and expertise is survivorship care. She leads the long-term follow-up clinic in St. Gallen and Zurich. From research perspective\, her projects focus on improving survivorship care and quality of life in survivors. In this context\, also equal access to care\, in all its aspects\, are very important to her. Therefore\, she was one of the leaders and coordinators during the effort to update the European Standards of Care document. \nPanelists: \nLuisa Basset Salom\nVice President and International Representative\, Federación Española de Familias de Cáncer Infantil (FEFCI)\nSpain\nLuisa is the mother of a childhood cancer survivor diagnosed in 1990\, at the age of 4. She is involved on a volunteering basis as patient advocate at local\, national and international level. She serves as Vice-president of Aspanion (Parent Association of Valencia\, Spain). Since 2005 she is the International Representative of “Federación Española de Familias de Cáncer Infantil”\, joining the board in 2023. She is currently Vicechair of CCI Europe Committee. \nLaura Diaco\nFIAGOP Board Member\nItaly\nLaura has been a Board Member of FIAGOP since 2022\, the Italian umbrella organization bringing together over 30 associations supporting children and adolescents with cancer and their families. She is also Vice President of Peter Pan\, a Rome-based association and FIAGOP member. She is the mother of a childhood leukemia survivor\, an experience that has shaped her involvement in childhood cancer advocacy. She is particularly interested in working together with parents and survivors to make sure their experiences and perspectives are heard and taken into account in decisions about childhood cancer care and policies in Italy. \nAna Lacerda\nSenior oncologist\, Portuguese Institute of Oncology\, Chair of SIOPE Pediatric Palliative Care Working Group\nPortugal\nDr Lacerda is a pediatric oncologist working in Lisbon\, Portugal\, with a very special interest in the implementation and development of pediatric palliative care (PPC). \nIn 2005 she founded the first in-hospital PPC team in Portugal\, at the Department of Paediatrics of the Portuguese Institute of Oncology Lisbon Centre / IPOLFG (which she chairs since June 2023). In 2013 she founded the PPC Taskforces at the Portuguese Association of Palliative Care and the Portuguese Pediatric Society. She is also a founding member of the Portuguese Observatory of Palliative Care\, and has been working closely with the Portuguese Ministry of Health. She is also a member of the EAPC Children and Young People Reference Group\, which she co-chaired 2019-21 and chaired 2022-23\, and currently serves on the EAPC Board (2023-27). \nAlina Pătrăhău\nFounder & President\, Dăruiește Aripi Association\nRomania\nAlina Pătrăhău is the Founder and President of Dăruiește Aripi Association\, a Romanian nonprofit dedicated to improving survival and quality of life for children with cancer. Since founding the organization in 2013\, she has brought together healthcare professionals\, technology experts and community partners to improve access to care through home care programmes\, digital health solutions and hospital infrastructure. Her work focuses on building a coordinated care system around the needs of children and their families. \nZhorzheta Simeonova\nClinical Psychologist/Psychotherapist\, Association ‘Children with Oncohematological Deseases’\nBulgaria\nZhorzheta Simeonova is a clinical psychologist and psychotherapist giving psychosocial support for children undergoing cancer treatment\, childhood cancer survivors\, and their families\, including parents and siblings. Working in a hospital-based day care center and a recreational center for children and families after treatment\, she provides individual and group psychotherapy\, both in person and online. Both centers’ activities focus on emotional stabilization\, psychological well-being\, strengthening family resilience\, and supporting psychosocial reintegration after cancer treatment. Through a family-centered approach\, helps children and their loved ones navigate the emotional challenges of cancer\, recovery\, and life beyond treatment. \nHarun Šabić\nPatient/parent support\, Association Heart for kids with cancer\nBosnia & Herzegovina\nHarun Šabić is a cancer survivor from Bosnia and Herzegovina and serves as the Coordinator for Children’s and Youth Rights at the Association Heart for Kids with Cancer in Bosnia and Herzegovina. He is also a committee member of CCI Europe and an active patient advocate\, dedicated to representing the voices\, experiences\, and rights of children and young people affected by cancer. Through his personal experience and advocacy work\, Harun is committed to raising awareness\, strengthening patient representation\, and ensuring that the needs and perspectives of young people affected by cancer are heard in decisions that affect their lives. \nregister here
URL:https://ccieurope.eu/event/from-european-standards-to-national-change/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars
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BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20261105T180000
DTEND;TZID=Europe/Vienna:20261105T193000
DTSTAMP:20261023T094148Z
CREATED:20261023T094148Z
LAST-MODIFIED:20261023T094148Z
UID:8895-1793901600-1793907000@ccieurope.eu
SUMMARY:Advancing AYA Cancer Care and Support Globally: Charting the Way Forward?
DESCRIPTION:Be part of a global conversation to understand and improve adolescent and young adult (AYA) cancer care\, for which diagnoses are up 79% since the 1990s.\nJoin to explore innovations\, challenges and opportunities to improve AYA cancer care globally. \nOn November 5 at 18:00-19:30 CET\, a global conversation exploring innovations\, challenges and opportunities to improve AYA cancer care globally. \nPresenting partners: Anew Research Collaborative\, Teenage Cancer Trust UK\, University of Leeds\, MNJ Institute of Oncology Hyderabad\, Young Adult Cancer Canada\, the Netherlands Cancer Institute\, and more. \nQuestions? hello@anewresearch.ca
URL:https://ccieurope.eu/event/advancing-aya-cancer-care-and-support-globally-charting-the-way-forward/
LOCATION:Online
CATEGORIES:Survivorship
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2026/10/London-cancer-week_aya-session.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20261118T170000
DTEND;TZID=Europe/Amsterdam:20261118T183000
DTSTAMP:20261020T144139Z
CREATED:20261020T144139Z
LAST-MODIFIED:20261020T144139Z
UID:8881-1795021200-1795026600@ccieurope.eu
SUMMARY:#QualityofLife Webinar Series: Rebuilding Life\, Identity and Energy after Cancer Treatment
DESCRIPTION:About the #QualityofLife Webinar Series\n\nThe YARN #QualityofLife Webinar Series brings together the expertise and activities of Work Package 2 and Work Package 3 of the project to create one shared space for learning\, discussion\, and support around life during and after cancer. Through expert insights and real-life experiences\, the webinars explore topics like late effects\, healthy living\, mental well-being\, and survivorship\, helping young people affected by cancer feel informed\, supported\, and connected.\nREGISTER HERE
URL:https://ccieurope.eu/event/qualityoflife-webinar-series-rebuilding-life-identity-and-energy-after-cancer-treatment/
LOCATION:Online
CATEGORIES:Event,Projects,Survivorship
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2026/02/cci_europe_yarn_qualityoflife_webinars_eu_project.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20261130T150000
DTEND;TZID=Europe/Amsterdam:20261130T160000
DTSTAMP:20261028T160642Z
CREATED:20261028T160642Z
LAST-MODIFIED:20261028T160642Z
UID:8903-1796050800-1796054400@ccieurope.eu
SUMMARY:Introducing UNIFIED: Measuring What Matters to Patients
DESCRIPTION:About the webinar  \n\nHow do we measure the outcomes that genuinely matter to patients\, and how can digital health technologies help us do it? \nUNIFIED is a five-year public–private partnership\, funded by the Innovative Health Initiative\, developing a unifying framework for patient-centred clinical-study endpoints derived from digital health technologies. The project brings together three fields that have largely developed in parallel: patient preference information (PPI)\, clinical outcome assessments (COAs)\, and digital health technology-derived measures (DHTMs). It then tests the resulting approach across six use cases in five medical domains\, namely paediatric radiation oncology (patients and survivors)\, lung cancer\, Parkinson’s disease\, obesity\, and juvenile idiopathic arthritis. \nThis session opens the UNIFIED webinar series. In one hour\, you will hear: \n\nThe project’s vision\, ambition\, and objectives;\nHow patient preferences\, clinical outcome assessments\, and digital measures fit together in the UNIFIED approach;\nHow the approach is being tested across the six use cases; and\nThe pathways through which the framework is intended to reach adoption\, and how to get involved.\n\nA moderated question-and-answer session follows the presentations. \nWho should attend: patients and patient organisations\, researchers\, clinicians\, regulators\, HTA bodies\, industry\, and policymakers. No prior knowledge of the project is needed. \nThe session will be recorded and published on the UNIFIED website and YouTube channel. Questions may be submitted in advance to info@unified-project.eu. \nLearn more at www.unified-project.eu \nThis project is supported by the Innovative Health Initiative Joint Undertaking and its members and contributing partners under grant agreement No 101218845. \nREGISTER HERE
URL:https://ccieurope.eu/event/introducing-unified-measuring-what-matters-to-patients/
LOCATION:Online
CATEGORIES:Event,Projects
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2026/10/UNIFIED_CCI_Europe_Project.png
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