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DTSTART;TZID=Europe/Vienna:20230828T170000
DTEND;TZID=Europe/Vienna:20230828T183000
DTSTAMP:20260421T200614
CREATED:20230418T142258Z
LAST-MODIFIED:20240220T183215Z
UID:4455-1693242000-1693247400@ccieurope.eu
SUMMARY:Know the basics: What are the Models of Care in Paediatric Oncology?
DESCRIPTION:The aim of shared care is to cure every child with cancer\, with optimal quality of life. \nThe principle of shared care is close cooperation between a central paediatric oncology expertise centre and local shared care centres\, so that the young patient can avoid long distance travels for standard clinical examinations and treatments. it is important that the shared care centres meet certain quality criteria and connect closely with the central expertise centre\, so that the best possible care for the child is guaranteed. \nIn this Gold Webinar on the 28th August at 5pm CET\, we will present various shared care models in Europe\, critically examine whether they deliver what they promise and whether they can serve as best practice models for other countries. \n  \nregister here
URL:https://ccieurope.eu/event/what-are-the-models-of-care-in-paediatric-oncology/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars
ATTACH;FMTTYPE=image/jpeg:https://ccieurope.eu/wp-content/uploads/2023/04/Screenshot-2024-02-20-174634.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20230703T170000
DTEND;TZID=Europe/Vienna:20230703T183000
DTSTAMP:20260421T200614
CREATED:20230418T141328Z
LAST-MODIFIED:20240220T171332Z
UID:4448-1688403600-1688409000@ccieurope.eu
SUMMARY:Know the basics: What are essential medicines?
DESCRIPTION:In this webinar\, the participants will learn about essential medicines\, what they are\, why they are important and which challenges Paediatric Oncology faces in this regard. Moreover\, it will address the outcomes of the Essential Medicines Project. \n  \nregister here
URL:https://ccieurope.eu/event/know-the-basics-what-are-essential-medicines/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars
ATTACH;FMTTYPE=image/jpeg:https://ccieurope.eu/wp-content/uploads/2023/04/Screenshot-2024-02-20-174655.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20230515T170000
DTEND;TZID=Europe/Vienna:20230515T183000
DTSTAMP:20260421T200614
CREATED:20230331T085959Z
LAST-MODIFIED:20230331T130035Z
UID:4369-1684170000-1684175400@ccieurope.eu
SUMMARY:Advance your knowledge: What are ESCPs?
DESCRIPTION:In this webinar\, participants will learn what an ESCP is\, which ESCP currently exist\, why they where developed and how they should be used. Moreover\, the webinar will highlight the importance of using standardized treatment protocols\, and of sharing expertise and resources between countries. Also\, ways will be addressed on how patient organisations can effectively lobby for the implementation of ESCPs in their countries. \n  \nregister here
URL:https://ccieurope.eu/event/gold-webinar-advance-your-knowledge-what-are-escps/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2023/03/Screenshot-2023-03-31-at-15.00.13.png
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BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20230403T170000
DTEND;TZID=Europe/Vienna:20230403T183000
DTSTAMP:20260421T200614
CREATED:20230120T140921Z
LAST-MODIFIED:20230403T121416Z
UID:4169-1680541200-1680546600@ccieurope.eu
SUMMARY:Know the basics: What is ERN PaedCan?
DESCRIPTION:In this webinar\, participants will learn why ERNs exist\, what ERN PaedCan is\, how it operates\, whom it should serve and which cases are eligible. It will explain the CPMS and how it works. Furthermore\, it will explain how patient organisations can in touch with the ERN PaedCan and be the link between ERN and patients/families and support implementation on the national levels.\n \n\n\n\n\n\n \n\n\nAbout the Speakers: \nAnne Goeres \nAnne is managing director at the Fondatioun Kriibskrank Kanner\, national foundation for children with cancer in Luxembourg for 15 years and Committee member of CCI Europe. Anne holds a master’s degree in communications\, more specifically in political and financial communications\, as is therefore the lead of CCI Europe’s Communication Pillar. Anne is a founding board member of Don en Confiance Luxembourg (transparency donations)\, of Ile aux clowns (hospital clowns) and of the National Cancer Institute in Luxembourg representing young cancer patients. Together with two other organisations\, she created Fight Kids Cancer\, an innovative annual call for paediatric cancer research projects.  \n \n \nProf. Ruth Ladenstein\, MD\, MBA\, cPM  \nRuth Ladenstein is Professor in Paediatrics and Senior Consultant for Paediatric Haematology and Oncology at the St. Anna Children´s Hospital . She is Head of the Clinical Trials Unit S2IRP (Studies & Statistics for Integrated Research and Projects) at the Children’s Cancer Research Institute (CCRI) of the St. Kinderkrebsforschung GmbH (http://science.ccri.at/).  \nMartin Schalling  \nMartin Schalling is a project manager in the Research Management Office of the Children’s Cancer Research Institute (CCRI). He studied Pharmaceutical and Medical Biotechnology and worked as a Researcher at the Medical University of Vienna. He is mainly responsible for the Clinical Patient Management System CPMS. \n\nregister here
URL:https://ccieurope.eu/event/know-the-basics-what-is-ern-paedcan/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2023/03/Screenshot-2023-03-06-at-17.53.16.png
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BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20230306T170000
DTEND;TZID=Europe/Vienna:20230306T183000
DTSTAMP:20260421T200614
CREATED:20230116T145714Z
LAST-MODIFIED:20230227T110334Z
UID:4054-1678122000-1678127400@ccieurope.eu
SUMMARY:Know the basics: What is Cross Border Health Care?
DESCRIPTION:In this webinar\, participants will learn what cross border health care means\, why it is important and necessary in the context of Paediatric Oncology and highlight challenges. Moreover\, it will address existing inequalities in access to diagnosis\, treatment and care across Europe. It will give an outlook on the follow-up webinar about ERN PaedCan. \n\n\n\n\n\n\n\n\n\n\n\n \nAbout the Speakers: \nAnne Goeres \n\nAnne is managing director at the Fondatioun Kriibskrank Kanner\, national foundation for children with cancer in Luxembourg for 15 years and Committee member of CCI Europe. Anne holds a master’s degree in communications\, more specifically in political and financial communications\, as is therefore the lead of CCI Europe’s Communication Pillar. Anne is a founding board member of Don en Confiance Luxembourg (transparency donations)\, of Ile aux clowns (hospital clowns) and of the National Cancer Institute in Luxembourg representing young cancer patients. Together with two other organisations\, she created Fight Kids Cancer\, an innovative annual call for paediatric cancer research projects.  \n\n \nHarun Sabic \nHarun is a survivor who had osteosarcoma when he was 15. He has finished law school and is currently working in the Association “Heart for kids with cancer” in Bosnia and Herzegovina. Harun is a member of CCI Europe’s Committee and an active participant in the Survivorship and Diagnosis\, Treatment & Care Pillars.  \n \n \nMarko Ocokoljić \nMarko is a pharmacist with gained experience in healthcare research\, specifically the oncology. He is knowledgeable in health policy\, which scopes research briefings on childhood cancer\, producing high-level oncopolicy briefings\, monitoring of scientific research and key paediatric oncology policy developments at the EU level\, and engaging with external entities. \n \n\n\n\nMake sure to register on the button and you will automatically be sent a link to join the webinar!register here
URL:https://ccieurope.eu/event/know-the-basics-what-is-cross-border-health-care/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2023/01/Screenshot-2023-02-22-at-14.34.53.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20221212T170000
DTEND;TZID=Europe/Vienna:20221212T180000
DTSTAMP:20260421T200614
CREATED:20230221T164528Z
LAST-MODIFIED:20230222T131335Z
UID:4266-1670864400-1670868000@ccieurope.eu
SUMMARY:Advance your Knowldege: Understanding the EU Paediatric and Orphan Regulations
DESCRIPTION:The CCI Europe European Affairs Pillar Committee has hosted this educational webinar to help the European childhood cancer community in better understanding the EU Paediatric and Orphan Regulations – indeed\, this is what children with cancer need to get access to better care! \nThe EU Paediatric and Orphan Regulations are about to be reviewed by the European Parliament. This Education Policy Webinar explained the loopholes of those two regulations that have the potential to improve a timely access to innovative\, high-quality and safe medicines for young cancer patients. It also highlighted the proposed measures put forward by the members of the European Pillar to ensure more efficient and kinder treatments for them. \nThe presentation was followed by an interactive Q&A session with the members of the audience. \nSpeakers: Delphine Heenen\, CCI Europe Committee Member & Lead of European Affairs Pillar and Dr. Teresa de Rojas\, MD-PhD\, ACCELERATE Scientific Coordinator
URL:https://ccieurope.eu/event/advance-your-knowldege-understanding-the-eu-paediatric-and-orphan-regulations/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2023/02/delphine-webinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20190523
DTEND;VALUE=DATE:20190525
DTSTAMP:20260421T200614
CREATED:20190511T132259Z
LAST-MODIFIED:20190517T075847Z
UID:987-1558569600-1558742399@ccieurope.eu
SUMMARY:10th CCI Europe Regional Conference
DESCRIPTION:As an integral part of SIOPE conference.\n2 day programme for parents – survivors – advocates’ organisation  within Europe to share information\, experience\, to network\, to search for potential partners\, to improve the knowledge from pediatric oncology field and to get to know ech other better
URL:https://ccieurope.eu/event/cci-europe-regional-conference-as-an-integral-part-of-siope-conference/
LOCATION:Prag\, Czech Republic
CATEGORIES:Event
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