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DTSTART;TZID=Europe/Vienna:20251027T170000
DTEND;TZID=Europe/Vienna:20251027T183000
DTSTAMP:20260824T001459
CREATED:20250917T124215Z
LAST-MODIFIED:20251015T141329Z
UID:7492-1761584400-1761589800@ccieurope.eu
SUMMARY:Know the Basics: What Are PROs and PROMs\, and Why Do They Matter?
DESCRIPTION:register hereAbout the webinar: \nThis webinar explores the role of Patient-Reported Outcomes (PROs) and Patient-Reported Outcome Measures (PROMs) in clinical research and healthcare. Participants will gain insights into the scientific foundations of PROs/PROMs\, their impact on clinical trials\, and their relevance for improving patient care and quality of life. The session also highlights the importance of involving patient advocates in shaping meaningful healthcare outcomes. \nSpeakers: \nHannah Gsell\nChildhood Cancer Survivor\, CCI Europe\, Chairwoman of Survivors Austria \nHannah is a psychologist\, ALL-survivor\, and currently the Chairwoman of the Austrian Childhood Cancer Survivors Organisation.Hannah works at CCI Europe as project manager and patient expert and as such is involved in several EU funded projects. She is also part of the psychosocial pillar of CCI Europe. \n \nAnna Zettl\nChildhood Cancer Survivor\, CCI Europe \nAnna is an evolutionary anthropologist by training and currently pursuing a degree in psychology. She is a survivor of Hodgkin’s Lymphoma and serves as a board member of the Austrian Childhood Cancer Survivors Organisation.At CCI-E\, she works as a project coordinator and patient expert\, contributing to various research activities\, particularly in survivorship projects. \n \nMarita Partanen\nPediatric neuropsychologist and research group leader at the Princess Máxima Center \nMarita Partanen is a pediatric neuropsychologist and research group leader at the Princess Máxima Center in the Netherlands. The focus of her research is on the early identification and intervention of neuropsychological problems\, using a combination of behavioral\, therapeutic\, and neuroimaging (MRI) techniques. She also serves as co-chair of the SIOP-Europe Quality of Survival group\, where she leads a working group focused on aligning assessment methods in pediatric brain tumor trials. \nMartha Grootenhuis\, Prof.Dr.\nLead of the Psycho-Oncology Research Program at the Princess Máxima Center \nProf. Dr. Martha Grootenhuis is a leading expert in pediatric psycho-oncology with over three decades of experience. She currently leads the Psycho-Oncology Research Program at the Princess Máxima Center for Pediatric Oncology. She is internationally recognized for her pioneering work in developing and implementing Patient-Reported Outcome Measures (PROMs) in pediatric oncology in care. As the creator of the KLIK PROM portal and director of the PROM Core Facility\, she has advanced the integration of PROMs into daily care and promoted their use in clinical trials to enhance patient-centered outcome assessment. Her methodological research addresses the reliability\, interpretability\, and clinical utility of PROMs. \nregister here
URL:https://ccieurope.eu/event/know-the-basics-what-are-pros-and-proms-and-why-do-they-matter/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2025/09/Gold-webinar-final-banner-14-scaled.png
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BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20251124T170000
DTEND;TZID=Europe/Vienna:20251124T183000
DTSTAMP:20260824T001459
CREATED:20251023T114751Z
LAST-MODIFIED:20251023T115622Z
UID:7577-1764003600-1764009000@ccieurope.eu
SUMMARY:Know the Basics: From Brussels to the lab: How will the shift in the EU's policy agenda impact Research & Innovation?
DESCRIPTION:register hereAbout the webinar: \nThis webinar explores how the European Union (EU)’s emerging priorities will be influencing the direction and funding of research and innovation (R&I) policies across the region. As the EU responds to global challenges – from green and digital transitions to geopolitical shifts and economic resilience – its policy focus is also changing. A growing emphasis is being placed on building a robust R&I ecosystem that not only supports scientific advancement but also aims at accelerating the development of new treatments and ensuring that health innovations reach patients faster. \nSpeakers: \nCOMING SOON \nregister here
URL:https://ccieurope.eu/event/know-the-basics-from-brussels-to-the-lab-how-will-the-shift-in-the-eus-policy-agenda-impact-research-innovation/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars
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BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20260128T170000
DTEND;TZID=Europe/Amsterdam:20260128T183000
DTSTAMP:20260824T001459
CREATED:20260109T104543Z
LAST-MODIFIED:20260209T104950Z
UID:7874-1769619600-1769625000@ccieurope.eu
SUMMARY:Communication about Late Effects
DESCRIPTION:About \n\n\nWe are excited to invite you to the first webinar of the YARN #QualityofLife webinar series! \nIn this webinar\, we will explore how to communicate effectively about late effects. Our panel – including healthcare professionals\, researchers\, and people with lived experience – will share practical do’s and don’ts\, tips for clear communication\, and ways to advocate for the information and support you need. \nThis webinar is designed for people with lived experience\, healthcare professionals\, families and everyone interested in improving the conversations around late effects. \nSpeakers in this webinar will be Hannah Gsell (Patient Expert & Psychologist\, Childhood Cancer International – Europe)\, Natasha Barbier (Childhood cancer survivor)\, Emma Potter (Nurse practitioner Long Term Follow Up\, The Royal Marsden Hospital\, London)\, Dr. med. PhD Maria Otth (Division of Oncology-Haematology\, Children’s Hospital of Eastern Switzerland\, St Gallen\, Switzerland) and Hanne Lie (Associate Professor in Behavioural Medicine\, Faculty of Medicine\, University of Oslo). \nAgenda:\n\nIntroduction: the YARN project and the YARN #QualityofLife webinar series\nSpotlight presentation: Available resources for communication about late effects\nInteractive panel discussion: Hear from people with lived experience\, healthcare professionals\, and researchers as they share their insights and answer your questions\nWrap up: Key take aways and final Q&A\nWhy Attend?\n\n✅ Gain practical tips for clear and effective communication about late effects\n✅ Discover useful resources to support people with lived experience and healthcare professionals\n✅ Learn directly from people with lived experience and the experts who support them \nSee you at the webinar! \n\nREGISTER HERE
URL:https://ccieurope.eu/event/communication-about-late-effects/
LOCATION:Online
CATEGORIES:Event,Projects,Survivorship
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2026/02/cci_europe_yarn_qualityoflife_webinars_eu_project.png
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BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20260226T153000
DTEND;TZID=Europe/Vienna:20260226T170000
DTSTAMP:20260824T001459
CREATED:20260202T163620Z
LAST-MODIFIED:20260226T135723Z
UID:7800-1772119800-1772125200@ccieurope.eu
SUMMARY:International Childhood Cancer Day 2026
DESCRIPTION:The 2026 International Childhood Cancer Day (ICCD) policy event\, “Europe’s Beating Cancer Plan Implementation for Children and Adolescents: Looking Ahead – What remains to be done to improve access to care\, research and sustainable survivorship programmes”\, will take place as an online policy dialogue on Thursday\, 26 February 2026\, from 15:30 to 17:00 CET. \nHosted by MEP Vlad Voiculescu (Renew\, RO)\, this annual event gathers policymakers\, researchers\, healthcare providers\, and patient advocates to assess progress and shape future EU action on childhood and adolescent cancer. SIOP Europe and CCI Europe will share evidence and perspectives from paediatric oncology professionals\, parents\, and survivors. \nThis year’s edition will showcase the progress made under Europe’s Beating Cancer Plan (EBCP)\, especially through its Spotlight on Childhood Cancer\, and will also examine how these achievements can be translated into timely and sustainable delivery for children and adolescents up to and after 2030. \nRegister HereProgrammeThe event will support discussions on the European Parliament’s own-initiative report on the EBCP\, currently under preparation. As the EBCP moves into its next implementation phase and future EU cancer policy initiatives are planned beyond 2025\, the event emphasises that childhood cancer must remain a visible priority. Strong political support and practical measures are essential to ensure that all children and young people with cancer in Europe benefit from equally high standards of care\, research\, and survivorship services. \nThe discussion will focus on two core priority areas across the childhood cancer pathway: \n\nEqual access to high-quality care and research\, including access to specialised expertise\, cross-border collaboration\, and innovation for children\, adolescents\, and young adults with cancer\, regardless of where they live in Europe\nSurvivorship and psychosocial care\, with a focus on long-term follow-up care and the sustainability of survivorship programmes for childhood cancer survivors and their families.\n\nBy bringing together policymakers and key stakeholders from across the childhood cancer community and beyond\, the event aims to foster shared understanding and actionable policy directions. The goal is to ensure that progress achieved at EU level through the EBCP translates into lasting\, equitable impact for all children and young people with cancer across Europe. \nRegister Here
URL:https://ccieurope.eu/event/international-childhood-cancer-day-2026/
LOCATION:Online
CATEGORIES:EU Affairs,Event
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2026/02/iccd_2026_policy_event.png
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BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20260330T170000
DTEND;TZID=Europe/Amsterdam:20260330T183000
DTSTAMP:20260824T001459
CREATED:20260209T103752Z
LAST-MODIFIED:20260209T103752Z
UID:7870-1774890000-1774895400@ccieurope.eu
SUMMARY:From Recommendations to Real Life: Mental Health Care in CAYA Cancer Survivorship
DESCRIPTION:About \n\nJoin young survivors\, clinicians\, and psychosocial experts to discover recommendations for mental health care in CAYA cancer survivorship\, and explore how to implement them in everyday practice. \n\n\nREGISTER HERE
URL:https://ccieurope.eu/event/from-recommendations-to-real-life-mental-health-care-in-caya-cancer-survivorship/
LOCATION:Online
CATEGORIES:Event,Projects,Survivorship
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BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20260527T170000
DTEND;TZID=Europe/Amsterdam:20260527T183000
DTSTAMP:20260824T001459
CREATED:20260522T084018Z
LAST-MODIFIED:20260522T124214Z
UID:8253-1779901200-1779906600@ccieurope.eu
SUMMARY:#QualityofLife Webinar Series: The next chapter - Living a healthy lifestyle after cancer
DESCRIPTION:About this webinar\n\nJoin us for the next YARN #QualityofLife webinar on 27 May 2026 at 17:00 CEST! \nWe are excited to invite you to the next webinar in the YARN #QualityofLife series on “Living a Healthy Lifestyle After Cancer”. \nHow can young people living with and beyond cancer be supported in adopting and maintaining a healthy lifestyle? How can the unique challenges they face be addressed and overcome? \nTogether\, we will discuss: \n\nTestimonies from young people with lived experience\nBest practices for healthcare professionals\nPractical strategies to support sustainable lifestyle changes\n\nWe look forward to welcoming people with lived experience\, healthcare professionals\, families and everyone interested in learning more about healthy lifestyle for people affected by cancer. \nAbout the #QualityofLife Webinar Series\n\nThe YARN #QualityofLife Webinar Series brings together the expertise and activities of Work Package 2 and Work Package 3 of the project to create one shared space for learning\, discussion\, and support around life during and after cancer. Through expert insights and real-life experiences\, the webinars explore topics like late effects\, healthy living\, mental well-being\, and survivorship\, helping young people affected by cancer feel informed\, supported\, and connected.\nREGISTER HERE
URL:https://ccieurope.eu/event/qualityoflife-webinar-series-the-next-chapter-living-a-healthy-lifestyle-after-cancer/
LOCATION:Online
CATEGORIES:Event,Projects,Survivorship
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2026/02/cci_europe_yarn_qualityoflife_webinars_eu_project.png
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BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20260627T160000
DTEND;TZID=Europe/Amsterdam:20260627T173000
DTSTAMP:20260824T001459
CREATED:20260608T160535Z
LAST-MODIFIED:20260608T160641Z
UID:8329-1782576000-1782581400@ccieurope.eu
SUMMARY:Survivors' Week Webinar 2026
DESCRIPTION:Join us for a global Survivors’ Week webinar bringing together childhood cancer survivors\, healthcare professionals\, advocates and support networks to explore life beyond treatment. \nThis interactive session will focus on the realities of survivorship\, including navigating education and employment\, building independence\, managing wellbeing\, and advocating for long-term support and care. Through lived experience stories\, expert perspectives and audience participation\, the webinar will create space for honest discussion\, shared learning and community connection. \nParticipants will hear from survivors and professionals from different regions of the world\, take part in live polls and Q&A sessions\, and explore practical strategies to support survivors in leading fulfilling and empowered lives after childhood cancer. \nThe webinar is co-organised by the SIOP Survivorship Network and Childhood Cancer International SurNet as part of Survivors Week 2026. \nSimultaneous caption translation features will be available to support global participation. \nREGISTER HERE
URL:https://ccieurope.eu/event/survivors-week-webinar-2026/
LOCATION:Online
CATEGORIES:Event,Survivorship
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20260902T150000
DTEND;TZID=Europe/Vienna:20260902T163000
DTSTAMP:20260824T001459
CREATED:20260724T113732Z
LAST-MODIFIED:20260820T092118Z
UID:8505-1788361200-1788366600@ccieurope.eu
SUMMARY:Gold September 2026: Exchange of Views on Childhood Cancer at the European Parliament
DESCRIPTION:About\nSeptember is the Childhood Cancer Awareness Month\, an important opportunity to raise awareness of the challenges faced by children and adolescents with cancer\, survivors\, families\, healthcare professionals\, researchers\, and policymakers. As part of Gold September 2026\, CCI Europe and SIOP Europe will participate in an Exchange of Views hosted by the European Parliament‘s Committee on Public Health (SANT). \nThe Committee on Public Health (SANT) is responsible for shaping the European Parliament’s work on public health policy\, including disease prevention\, healthcare systems\, access to medicines\, and health research. An exchange of views within the Committee brings together Members of the European Parliament\, experts\, patient representatives\, and key stakeholders to discuss policy priorities and inform future EU action. \nThis year’s discussion will focus on improving outcomes for children and adolescents with cancer by examining the full patient pathway – from diagnosis and treatment to survivorship – as well as the financial and policy frameworks needed to ensure equitable access to care and innovation across Europe. \nAccess the Live Stream PLEASE NOTE:  \nAfter clicking the link\, you will see a list of available sessions. \nPlease select the SANT / Public Health Committee session to join the event. \nProgrammeThe European Parliament has created a dedicated page for this event. You can find more information below: \nEuropean Parliament Event PageGot questions? We’ve got answers! \nWhere can I find the link to follow the session?\nThe broadcasting link is not yet available on the website of the European Parliament. As soon as it is confirmed\, we will update this webpage and share it with the community so you can follow the session live. No registration is needed. \nWill the session be recorded if I can't watch it live?\nYes. The Exchange of Views will be recorded\, so if you are unable to join at 15:00 CEST on 2 September\, you will be able to watch it afterwards. \nWhat language will the session be in? Will translation be available?\nSpeakers will present in English. Members of the European Parliament (MEPs) may speak in English or their native language\, depending on who is present. Interpretation is expected to be available in Danish\, Czech\, Hungarian\, Slovak\, Romanian\, French\, and Dutch\, though this is still to be confirmed closer to the date. \nWhat is an 'exchange of views' at the European Parliament?\nAn “exchange of views” at the European Parliament is a formal parliamentary procedure where Members of the European Parliament (MEPs) hold structured discussions with invited officials\, such as European Commissioners\, national ministers\, or external experts\, to debate policies\, share perspectives\, and gather information. While no decisions or votes are taken during the meeting\, these discussions help inform future parliamentary work. This Exchange of Views will focus on key priorities for improving outcomes for children and adolescents with cancer. It will bring together policymakers and representatives from the childhood cancer community\, including CCI Europe\, SIOP Europe\, survivors\, and families. \nWhat makes this session more impactful than the usual policy events?\nThis Exchange of Views gives the community the full attention of the members of the Parliament (MEPs) responsible for health dossiers in a formal Parliament setting. It is a rare opportunity to bring the voices and asks of the childhood cancer community\, which we have been advocating for over many years\, directly into the political conversation. The event also carries the support of the President of the European Parliament\, Roberta Metsola\, which gives it particular weight and visibility for our community. \nWhy could this be interesting for non-EU members?\nChildhood cancer knows no borders\, and many of the policy gaps discussed – market failures in paediatric drug development\, unequal access to care\, survivorship support – are shared challenges beyond the EU. The recommendations and frameworks discussed can inform advocacy and policy conversations in other countries too\, and the session offers a model for how patient and family voices can engage directly with legislators. \nWho can watch the session?\nAnyone can watch. The session is open to the public online\, with no registration required.
URL:https://ccieurope.eu/event/gold-september-2026-exchange-of-views-on-childhood-cancer-at-the-european-parliament/
LOCATION:European Parliament & Online
CATEGORIES:EU Affairs,Event
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2026/07/Gold-September-2026-Policy-Event-Header-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260915
DTEND;VALUE=DATE:20260919
DTSTAMP:20260824T001459
CREATED:20260211T160044Z
LAST-MODIFIED:20260211T160304Z
UID:7878-1789430400-1789775999@ccieurope.eu
SUMMARY:Childhood Cancer International - Annual Conference 2026
DESCRIPTION:Join us in historic San Antonio for the 32nd CCI Annual International Conference! Hosted in San Antonio\, Texas\, the conference will unite people with lived experience of childhood cancer (including survivors\, parents\, and patient advocates)\, together with civil society organisations\, healthcare professionals\, and multidisciplinary care teams from across the globe. The meeting offers a unique space to connect\, share perspectives\, and foster partnerships that advance advocacy and improve outcomes for children and adolescents with cancer. \n\n\n\n\n\n\n\n\nThe conference will once again be organised in conjunction with SIOP as a part of the SIOP Congress. \n\n\n\n\nConference Dates\nSeptember 15-18\, 2026 \nImportant Dates \n\nMarch 17\, 2026 – Abstract Submission Deadline\nJune 23\, 2026 – Early Registration Deadline\nAugust 18\, 2026 – Late Breaking Abstract Submission Deadline\nSeptember 15-18\, 2026 – CCI Annual Conference 2025\n\nVenue\nHenry B. González Convention Center\nAddress: 900 E Market St\, San Antonio\, TX 78205\, USA\nWebsite: http://www.sahbgcc.com/ \n​Language\nThe official language of the CCI Annual Conference  is English. \nStipends\nEvery year Childhood Cancer International makes available a limited amount of funding to cover the participation of delegates from CCI member organisations. This is both from CCI general funds as well as funding offered by member organisations who have the desire to assist parents or survivors attend a conference by donating to the Parents Helping Parents Fund (PHP Fund) or through their existing twinning relationships. More information and how to apply for a stipend coming soon. \nREGISTER HERE
URL:https://ccieurope.eu/event/childhood-cancer-international-annual-conference-2026/
LOCATION:Henry B. González Convention Center\, 900 E Market St\, San Antonio\, TX\, 78205\, United States
CATEGORIES:Event
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2026/02/CCI-SIOP-2026-08.png
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