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DTSTART;TZID=Europe/Vienna:20261102T170000
DTEND;TZID=Europe/Vienna:20261102T183000
DTSTAMP:20261030T090818Z
CREATED:20261007T155716Z
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UID:8851-1793638800-1793644200@ccieurope.eu
SUMMARY:Advance Your Knowledge: From European Standards to National Change
DESCRIPTION:About the webinar: \nExploring the real-world impact of the European Standards of Care for Children & Adolescents with Cancer  and their potential to shape national policy\, services and patient advocacy! \nThe Standards are there. But what happens next? \nJoin our Gold Webinar to explore how the European Standards of Care are being used – and could be used to drive change at national level. \nGeorgia Kokkinou (CCI Europe) and Maria Otth (SIOP Europe)\, will kick off the discussion with a brief introduction. They will be followed by a panel of CCI Europe members and healthcare professionals\, sharing national experiences of using the Standards for advocacy and implementation. \nHear what has worked\, what challenges remain\, and how we can turn European standards into national action. \nSpeakers: \nGeorgia Kokkinou\nBereaved mother\, CCI Europe Committee Member\, and Vice president of Floga\nGreece\nGeorgia is a bereaved mother and the Vice President of Floga\, the largest parents’ association of children with cancer in Greece. Through Floga\, she has gained significant experience in raising awareness for childhood cancer\, collaborating with healthcare professionals to promote better care and treatment for children with cancer and advocating based on first-hand knowledge of the patients’ actual needs. In October 2023\, she was elected as new European Member to the CCI Board. Within CCI Europe\, Georgia participates in various projects under the Diagnosis\, Treatment and Care Pillar. \nMaria Otth\nPediatric oncologist\, SIOP Europe\nSwitzerland\nMaria Otth is a pediatric oncologists and hematologist from Switzerland. Her main focus of clinical care\, research and expertise is survivorship care. She leads the long-term follow-up clinic in St. Gallen and Zurich. From research perspective\, her projects focus on improving survivorship care and quality of life in survivors. In this context\, also equal access to care\, in all its aspects\, are very important to her. Therefore\, she was one of the leaders and coordinators during the effort to update the European Standards of Care document. \nPanelists: \nLuisa Basset Salom\nVice President and International Representative\, Federación Española de Familias de Cáncer Infantil (FEFCI)\nSpain\nLuisa is the mother of a childhood cancer survivor diagnosed in 1990\, at the age of 4. She is involved on a volunteering basis as patient advocate at local\, national and international level. She serves as Vice-president of Aspanion (Parent Association of Valencia\, Spain). Since 2005 she is the International Representative of “Federación Española de Familias de Cáncer Infantil”\, joining the board in 2023. She is currently Vicechair of CCI Europe Committee. \nLaura Diaco\nFIAGOP Board Member\nItaly\nLaura has been a Board Member of FIAGOP since 2022\, the Italian umbrella organization bringing together over 30 associations supporting children and adolescents with cancer and their families. She is also Vice President of Peter Pan\, a Rome-based association and FIAGOP member. She is the mother of a childhood leukemia survivor\, an experience that has shaped her involvement in childhood cancer advocacy. She is particularly interested in working together with parents and survivors to make sure their experiences and perspectives are heard and taken into account in decisions about childhood cancer care and policies in Italy. \nAna Lacerda\nSenior oncologist\, Portuguese Institute of Oncology\, Chair of SIOPE Pediatric Palliative Care Working Group\nPortugal\nDr Lacerda is a pediatric oncologist working in Lisbon\, Portugal\, with a very special interest in the implementation and development of pediatric palliative care (PPC). \nIn 2005 she founded the first in-hospital PPC team in Portugal\, at the Department of Paediatrics of the Portuguese Institute of Oncology Lisbon Centre / IPOLFG (which she chairs since June 2023). In 2013 she founded the PPC Taskforces at the Portuguese Association of Palliative Care and the Portuguese Pediatric Society. She is also a founding member of the Portuguese Observatory of Palliative Care\, and has been working closely with the Portuguese Ministry of Health. She is also a member of the EAPC Children and Young People Reference Group\, which she co-chaired 2019-21 and chaired 2022-23\, and currently serves on the EAPC Board (2023-27). \nAlina Pătrăhău\nFounder & President\, Dăruiește Aripi Association\nRomania\nAlina Pătrăhău is the Founder and President of Dăruiește Aripi Association\, a Romanian nonprofit dedicated to improving survival and quality of life for children with cancer. Since founding the organization in 2013\, she has brought together healthcare professionals\, technology experts and community partners to improve access to care through home care programmes\, digital health solutions and hospital infrastructure. Her work focuses on building a coordinated care system around the needs of children and their families. \nZhorzheta Simeonova\nClinical Psychologist/Psychotherapist\, Association ‘Children with Oncohematological Deseases’\nBulgaria\nZhorzheta Simeonova is a clinical psychologist and psychotherapist giving psychosocial support for children undergoing cancer treatment\, childhood cancer survivors\, and their families\, including parents and siblings. Working in a hospital-based day care center and a recreational center for children and families after treatment\, she provides individual and group psychotherapy\, both in person and online. Both centers’ activities focus on emotional stabilization\, psychological well-being\, strengthening family resilience\, and supporting psychosocial reintegration after cancer treatment. Through a family-centered approach\, helps children and their loved ones navigate the emotional challenges of cancer\, recovery\, and life beyond treatment. \nHarun Šabić\nPatient/parent support\, Association Heart for kids with cancer\nBosnia & Herzegovina\nHarun Šabić is a cancer survivor from Bosnia and Herzegovina and serves as the Coordinator for Children’s and Youth Rights at the Association Heart for Kids with Cancer in Bosnia and Herzegovina. He is also a committee member of CCI Europe and an active patient advocate\, dedicated to representing the voices\, experiences\, and rights of children and young people affected by cancer. Through his personal experience and advocacy work\, Harun is committed to raising awareness\, strengthening patient representation\, and ensuring that the needs and perspectives of young people affected by cancer are heard in decisions that affect their lives. \nregister here
URL:https://ccieurope.eu/event/from-european-standards-to-national-change/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2026/10/2026-Gold-Webinar-Event-Banners-scaled.png
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BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20261105T180000
DTEND;TZID=Europe/Vienna:20261105T193000
DTSTAMP:20261023T094148Z
CREATED:20261023T094148Z
LAST-MODIFIED:20261023T094148Z
UID:8895-1793901600-1793907000@ccieurope.eu
SUMMARY:Advancing AYA Cancer Care and Support Globally: Charting the Way Forward?
DESCRIPTION:Be part of a global conversation to understand and improve adolescent and young adult (AYA) cancer care\, for which diagnoses are up 79% since the 1990s.\nJoin to explore innovations\, challenges and opportunities to improve AYA cancer care globally. \nOn November 5 at 18:00-19:30 CET\, a global conversation exploring innovations\, challenges and opportunities to improve AYA cancer care globally. \nPresenting partners: Anew Research Collaborative\, Teenage Cancer Trust UK\, University of Leeds\, MNJ Institute of Oncology Hyderabad\, Young Adult Cancer Canada\, the Netherlands Cancer Institute\, and more. \nQuestions? hello@anewresearch.ca
URL:https://ccieurope.eu/event/advancing-aya-cancer-care-and-support-globally-charting-the-way-forward/
LOCATION:Online
CATEGORIES:Survivorship
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2026/10/London-cancer-week_aya-session.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20261118T170000
DTEND;TZID=Europe/Amsterdam:20261118T183000
DTSTAMP:20261020T144139Z
CREATED:20261020T144139Z
LAST-MODIFIED:20261020T144139Z
UID:8881-1795021200-1795026600@ccieurope.eu
SUMMARY:#QualityofLife Webinar Series: Rebuilding Life\, Identity and Energy after Cancer Treatment
DESCRIPTION:About the #QualityofLife Webinar Series\n\nThe YARN #QualityofLife Webinar Series brings together the expertise and activities of Work Package 2 and Work Package 3 of the project to create one shared space for learning\, discussion\, and support around life during and after cancer. Through expert insights and real-life experiences\, the webinars explore topics like late effects\, healthy living\, mental well-being\, and survivorship\, helping young people affected by cancer feel informed\, supported\, and connected.\nREGISTER HERE
URL:https://ccieurope.eu/event/qualityoflife-webinar-series-rebuilding-life-identity-and-energy-after-cancer-treatment/
LOCATION:Online
CATEGORIES:Event,Projects,Survivorship
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2026/02/cci_europe_yarn_qualityoflife_webinars_eu_project.png
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BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20261130T150000
DTEND;TZID=Europe/Amsterdam:20261130T160000
DTSTAMP:20261028T160642Z
CREATED:20261028T160642Z
LAST-MODIFIED:20261028T160642Z
UID:8903-1796050800-1796054400@ccieurope.eu
SUMMARY:Introducing UNIFIED: Measuring What Matters to Patients
DESCRIPTION:About the webinar  \n\nHow do we measure the outcomes that genuinely matter to patients\, and how can digital health technologies help us do it? \nUNIFIED is a five-year public–private partnership\, funded by the Innovative Health Initiative\, developing a unifying framework for patient-centred clinical-study endpoints derived from digital health technologies. The project brings together three fields that have largely developed in parallel: patient preference information (PPI)\, clinical outcome assessments (COAs)\, and digital health technology-derived measures (DHTMs). It then tests the resulting approach across six use cases in five medical domains\, namely paediatric radiation oncology (patients and survivors)\, lung cancer\, Parkinson’s disease\, obesity\, and juvenile idiopathic arthritis. \nThis session opens the UNIFIED webinar series. In one hour\, you will hear: \n\nThe project’s vision\, ambition\, and objectives;\nHow patient preferences\, clinical outcome assessments\, and digital measures fit together in the UNIFIED approach;\nHow the approach is being tested across the six use cases; and\nThe pathways through which the framework is intended to reach adoption\, and how to get involved.\n\nA moderated question-and-answer session follows the presentations. \nWho should attend: patients and patient organisations\, researchers\, clinicians\, regulators\, HTA bodies\, industry\, and policymakers. No prior knowledge of the project is needed. \nThe session will be recorded and published on the UNIFIED website and YouTube channel. Questions may be submitted in advance to info@unified-project.eu. \nLearn more at www.unified-project.eu \nThis project is supported by the Innovative Health Initiative Joint Undertaking and its members and contributing partners under grant agreement No 101218845. \nREGISTER HERE
URL:https://ccieurope.eu/event/introducing-unified-measuring-what-matters-to-patients/
LOCATION:Online
CATEGORIES:Event,Projects
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2026/10/UNIFIED_CCI_Europe_Project.png
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