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DTSTART;TZID=Europe/Amsterdam:20260330T170000
DTEND;TZID=Europe/Amsterdam:20260330T183000
DTSTAMP:20260418T164010
CREATED:20260209T103752Z
LAST-MODIFIED:20260209T103752Z
UID:7870-1774890000-1774895400@ccieurope.eu
SUMMARY:From Recommendations to Real Life: Mental Health Care in CAYA Cancer Survivorship
DESCRIPTION:About \n\nJoin young survivors\, clinicians\, and psychosocial experts to discover recommendations for mental health care in CAYA cancer survivorship\, and explore how to implement them in everyday practice. \n\n\nREGISTER HERE
URL:https://ccieurope.eu/event/from-recommendations-to-real-life-mental-health-care-in-caya-cancer-survivorship/
LOCATION:Online
CATEGORIES:Event,Projects,Survivorship
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2026/02/cci_europe_yarn_qualityoflife_webinars_eu_project.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20260128T170000
DTEND;TZID=Europe/Amsterdam:20260128T183000
DTSTAMP:20260418T164010
CREATED:20260109T104543Z
LAST-MODIFIED:20260209T104950Z
UID:7874-1769619600-1769625000@ccieurope.eu
SUMMARY:Communication about Late Effects
DESCRIPTION:About \n\n\nWe are excited to invite you to the first webinar of the YARN #QualityofLife webinar series! \nIn this webinar\, we will explore how to communicate effectively about late effects. Our panel – including healthcare professionals\, researchers\, and people with lived experience – will share practical do’s and don’ts\, tips for clear communication\, and ways to advocate for the information and support you need. \nThis webinar is designed for people with lived experience\, healthcare professionals\, families and everyone interested in improving the conversations around late effects. \nSpeakers in this webinar will be Hannah Gsell (Patient Expert & Psychologist\, Childhood Cancer International – Europe)\, Natasha Barbier (Childhood cancer survivor)\, Emma Potter (Nurse practitioner Long Term Follow Up\, The Royal Marsden Hospital\, London)\, Dr. med. PhD Maria Otth (Division of Oncology-Haematology\, Children’s Hospital of Eastern Switzerland\, St Gallen\, Switzerland) and Hanne Lie (Associate Professor in Behavioural Medicine\, Faculty of Medicine\, University of Oslo). \nAgenda:\n\nIntroduction: the YARN project and the YARN #QualityofLife webinar series\nSpotlight presentation: Available resources for communication about late effects\nInteractive panel discussion: Hear from people with lived experience\, healthcare professionals\, and researchers as they share their insights and answer your questions\nWrap up: Key take aways and final Q&A\nWhy Attend?\n\n✅ Gain practical tips for clear and effective communication about late effects\n✅ Discover useful resources to support people with lived experience and healthcare professionals\n✅ Learn directly from people with lived experience and the experts who support them \nSee you at the webinar! \n\nREGISTER HERE
URL:https://ccieurope.eu/event/communication-about-late-effects/
LOCATION:Online
CATEGORIES:Event,Projects,Survivorship
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2026/02/cci_europe_yarn_qualityoflife_webinars_eu_project.png
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BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20240603T090000
DTEND;TZID=Europe/Vienna:20240612T170000
DTSTAMP:20260418T164010
CREATED:20240503T115511Z
LAST-MODIFIED:20240503T115511Z
UID:6003-1717405200-1718211600@ccieurope.eu
SUMMARY:Equity\, Diversity and Inclusion (EDI) principles in Cancer Care: Training event for researchers\, healthcare providers and patient communities
DESCRIPTION:What is “Equity\, Diversity and Inclusion in Cancer Care” training about?  \nDiscover and develop key skills in our engaging training program: \n\nCultural awareness\nRecognizing inequality\nInclusive communication\nCreating a safe environment\nSupporting families and empowering patients\nAddressing discrimination\nComprehensive needs assessment\nInclusive research techniques\nEffective advocacy\, and more!\n\nThe training event and toolkit launch for equitable\, inclusive\, and diverse cancer care\, organized by Youth Cancer Europe and Inclusive Employers Ltd. as part of the EU co-funded EU-CAYAS-NET project\, will take place in Cluj-Napoca\, Romania from June 3 to June 12\, 2024. Successful applicants will enjoy full expense coverage of travel\, accommodation\, and on-site meals. \nThe face-to-face training targets three distinct audiences and will feature the following sessions: \n\n3 – 6 June \n6 – 9 June \n9 – 12 June \n\nInterested participants are invited to complete the Expression of Interest form below. If the form doesn’t work please use this link: https://forms.gle/emSjoeeVn1hbDn9EA \nFor more information please contact Victor Gîrbu at victor@youthcancereurope.org \n\n\nInterested participants are invited to complete the Expression of Interest form below by May 5\, 2024.\n\n\n\nregister here
URL:https://ccieurope.eu/event/equity-diversity-and-inclusion-edi-principles-in-cancer-care-training-event-for-researchers-healthcare-providers-and-patient-communities/
LOCATION:Cluj Napoca\, Romania
CATEGORIES:Event,Projects
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2024/05/eucayasnet-dei-training-ccieurope.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20240521T170000
DTEND;TZID=Europe/Vienna:20240521T183000
DTSTAMP:20260418T164010
CREATED:20231229T090400Z
LAST-MODIFIED:20240419T095443Z
UID:5241-1716310800-1716316200@ccieurope.eu
SUMMARY:Webinar: Navigating Transitions in Cancer Care - Treatment and Survivorship
DESCRIPTION:Join us for an insightful webinar hosted by the European Network of Youth Cancer Survivors\, dedicated to guiding youth cancer survivors through critical transitions in their healthcare journey. Transitioning from treatment to follow-up care and from pediatric to adult healthcare systems can present unique challenges for young survivors. \nThis webinar aims to share essential knowledge\, tools\, and strategies to navigate these transitions successfully. Experts in pediatric oncology\, survivorship care\, and transitional healthcare will provide valuable insights into the complexities of transitioning from active treatment to survivorship\, emphasizing the importance of holistic care\, long-term follow-up\, and psychosocial support. \nAdditionally\, participants will gain a comprehensive understanding of the differences between pediatric and adult healthcare systems\, along with practical tips for advocating for their healthcare needs as they transition into adulthood. Whether you’re a young cancer survivor\, a parent\, caregiver\, healthcare professional\, or advocate\, this webinar offers invaluable resources and support to empower individuals in their transition journey towards a thriving survivorship. Don’t miss this opportunity to connect and learn\, and strengthen the European Network of Youth Cancer Survivors across Europe. \n\nregister here
URL:https://ccieurope.eu/event/webinar-navigating-transitions-in-cancer-care-treatment-and-survivorship/
LOCATION:Online Webinar
CATEGORIES:Event,Projects
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2023/12/Transition-of-care-for-childhood-adolescent-and-young-adult-cancer-survivors-care-transition-768x768-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20240430T170000
DTEND;TZID=Europe/Vienna:20240430T183000
DTSTAMP:20260418T164010
CREATED:20240419T115246Z
LAST-MODIFIED:20240419T115459Z
UID:5898-1714496400-1714501800@ccieurope.eu
SUMMARY:Webinar: Equity\, Diversity and Inclusion in Cancer Care
DESCRIPTION:What is “Equity\, Diversity and Inclusion in Cancer Care” webinar about?  \nImagine a world where every young person battling cancer has access to the best possible care\, regardless of background. This webinar will explore how the EU-CAYAS-NET project is trying to make this a reality. We’re talking about Equity\, Diversity\, and Inclusion (EDI) in cancer care! \nHere’s what you’ll learn: \n\nUnequal care – discover how our research is uncovering challenges faced by young cancer patients from different backgrounds.\nBuilding a better future – learn about key findings and recommendations to make cancer care more equitable.\nInsights from the experts – get highlights from a major policy event “Recommendations for Equitable\, Diverse and Inclusive Cancer Care in Europe” held at the European Parliament in Brussels where these issues were discussed.\n\nPlus\, there’s more! We’ll unveil our upcoming EDI Training sessions. The training program equips healthcare providers\, patient advocates\, and researchers with the tools they need to drive positive change. Through the Train-the-Trainer Toolkit\, participants will gain the knowledge\, skills\, and tools to become champions of EDI in their own fields. Imagine equipping others to create real\, positive change in cancer care! The webinar will wrap up with information on how to register for these exciting training sessions. \nWhether you’re a doctor\, advocate\, researcher\, or simply someone who cares\, this webinar is for you! Don’t miss this chance to learn\, connect\, and become part of the solution in creating a more equitable\, diverse and inclusive future for all those impacted by cancer. \n\nregister here
URL:https://ccieurope.eu/event/webinar-equity-diversity-and-inclusion-in-cancer-care/
LOCATION:Online Webinar
CATEGORIES:Event,Projects
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2024/04/edi.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20240326T170000
DTEND;TZID=Europe/Vienna:20240326T183000
DTSTAMP:20260418T164010
CREATED:20240312T142856Z
LAST-MODIFIED:20240312T142856Z
UID:5735-1711472400-1711477800@ccieurope.eu
SUMMARY:Webinar: Long-Term Survivorship Care: Navigating Fertility and Intimacy Challenges
DESCRIPTION:Many childhood\, adolescent or young-adult cancer survivors are facing fertility and intimacy problems due to cancer treatment. How can long-term survivorship care be of help to navigate these challenges? Join the webinar organized by PanCare and hosted by the EU-CAYAS-NET on the 26th of March. Various speakers will share their knowledge and lived experience with these topics. \nThis webinar will give an in-depth overview of the impact which CAYA cancer treatment could potentially have on fertility and intimacy issues for survivors. How can survivors cope with these challenges? What issues arise when it comes to self love\, body image and (intimate) relationships? And how can we as a community of survivors and health care professionals be of support to those who go through feelings of uncertainty\, loss\, hope and resilience? \nSpeakers who will contribute during this webinar are long-term survivorship care specialist Dr. Helena van der Pal\, gynecologist Simone Broer\, nurse practitioner and oncofertility specialist Irene IJgosse  and  Iris Wilmink and Lon van Keulen\, who are both survivors and each other’s life partner. The webinar will be hosted by hematologist/oncologist Prof. Dr. Med. Katrin Scheinneman who is also the chair of the PanCare board. \nWe would like to hear your experiences and perspectives on these topics. We invite survivors and their close ones\, healthcare professionals\, researchers\, and anyone interested in these topics to attend this webinar. \n\nregister here
URL:https://ccieurope.eu/event/webinar-long-term-survivorship-care-navigating-fertility-and-intimacy-challenges/
LOCATION:Online Webinar
CATEGORIES:Event,Projects
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2024/03/long-term-survivorship-care-navigating-fertility-and-intimacy-after-cancer-2048x2048-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20240130T170000
DTEND;TZID=Europe/Vienna:20240130T183000
DTSTAMP:20260418T164010
CREATED:20231229T085608Z
LAST-MODIFIED:20231229T085829Z
UID:5237-1706634000-1706639400@ccieurope.eu
SUMMARY:Webinar: Surviving CAYA Cancer - Addressing Late Effects on Long-Term Follow-Up Care
DESCRIPTION:Once the cancer treatment has been completed\, on the one hand\, it feels like a big burden is taken off – but on the other hand\, CAYA Cancer Survivors often still have to deal with numerous late effects. The broad topic of long-term follow-up care will be addressed in the 6th Webinar. \nImportant topics in long-term follow-up care such as fatigue\, fertility\, and neuropsychological therapy will be discussed\, as well as the initial results of a corresponding survey\, a focus group\, and peer visits within the EU-CAYAS-NET project\, which aimed to identify the current situation\, gaps and visions for the future. \nregister here
URL:https://ccieurope.eu/event/webinar-surviving-caya-cancer-addressing-late-effects-on-long-term-follow-up-care/
LOCATION:Online Webinar
CATEGORIES:Event,Projects
ATTACH;FMTTYPE=image/webp:https://ccieurope.eu/wp-content/uploads/2023/12/Long-term-follow-up-care-for-cancer-patients-and-survivors-webinar-2048x2048-1.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20231128T170000
DTEND;TZID=Europe/Vienna:20231128T183000
DTSTAMP:20260418T164010
CREATED:20231113T085749Z
LAST-MODIFIED:20231113T090205Z
UID:4881-1701190800-1701196200@ccieurope.eu
SUMMARY:Webinar: The Social Challenges in Follow-Up Care
DESCRIPTION:Cancer in childhood or adolescence affects not only the patient but the whole family. To make this drastic phase in life as bearable as possible\, multidisciplinary cooperation is a precondition. In addition to optimal medical and psychological care\, social support is also a very important pillar during the treatment period. \nPhysical\, psychological and social problems can occur not only during intensive treatment\, but also years later. The number of late effects increases the longer the oncological disease and treatment occurred. These can vary depending on the type of tumor and treatment. Besides the medical late effects\, a wide range of psychosocial problems can also arise and make everyday life even more difficult for patients and their relatives.  Looking at the social dimension\, it has been documented that AYAs have a significant risk of becoming unemployed in adulthood and having to claim social benefits. Similarly\, Survivors have to fight with an increased risk of living a dependent life\, difficulty establishing/maintaining social relationships\, less likely to be married/partnered and in a worse economic situation compared to peers. Many reasons to give this important topic a stage. \nJoin us for an exciting webinar on “Social challenges in Follow-Up care“. Great speakers from different countries will talk about the most important aspects regarding social challenges\, like „The right to be forgotten“ and „Social isolation“.  A social work expert and a Patient Advocate will tell us what benefits families are entitled to and how this is related to the residence permit. \nTherefore\, the webinar is intended for anyone involved with the topic: survivors\, their families and friends\, health care professionals\, and anyone interested. \nregister here
URL:https://ccieurope.eu/event/webinar-the-social-challenges-in-follow-up-care/
LOCATION:Online Webinar
CATEGORIES:Event,Projects
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2023/11/Webinarbanner_Social-challenges-1.653770733f7504.89351607.png
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