BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//CCI Europe - ECPv6.15.18//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-ORIGINAL-URL:https://ccieurope.eu
X-WR-CALDESC:Events for CCI Europe
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:Europe/Amsterdam
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20250330T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20251026T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20260329T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20261025T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20270328T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20271031T010000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:Europe/Vienna
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20250330T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20251026T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20260329T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20261025T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20270328T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20271031T010000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:Europe/Berlin
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20250330T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20251026T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20260329T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20261025T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
DTSTART:20270328T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0200
TZOFFSETTO:+0100
TZNAME:CET
DTSTART:20271031T010000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20260128T170000
DTEND;TZID=Europe/Amsterdam:20260128T183000
DTSTAMP:20260418T213348
CREATED:20260109T104543Z
LAST-MODIFIED:20260209T104950Z
UID:7874-1769619600-1769625000@ccieurope.eu
SUMMARY:Communication about Late Effects
DESCRIPTION:About \n\n\nWe are excited to invite you to the first webinar of the YARN #QualityofLife webinar series! \nIn this webinar\, we will explore how to communicate effectively about late effects. Our panel – including healthcare professionals\, researchers\, and people with lived experience – will share practical do’s and don’ts\, tips for clear communication\, and ways to advocate for the information and support you need. \nThis webinar is designed for people with lived experience\, healthcare professionals\, families and everyone interested in improving the conversations around late effects. \nSpeakers in this webinar will be Hannah Gsell (Patient Expert & Psychologist\, Childhood Cancer International – Europe)\, Natasha Barbier (Childhood cancer survivor)\, Emma Potter (Nurse practitioner Long Term Follow Up\, The Royal Marsden Hospital\, London)\, Dr. med. PhD Maria Otth (Division of Oncology-Haematology\, Children’s Hospital of Eastern Switzerland\, St Gallen\, Switzerland) and Hanne Lie (Associate Professor in Behavioural Medicine\, Faculty of Medicine\, University of Oslo). \nAgenda:\n\nIntroduction: the YARN project and the YARN #QualityofLife webinar series\nSpotlight presentation: Available resources for communication about late effects\nInteractive panel discussion: Hear from people with lived experience\, healthcare professionals\, and researchers as they share their insights and answer your questions\nWrap up: Key take aways and final Q&A\nWhy Attend?\n\n✅ Gain practical tips for clear and effective communication about late effects\n✅ Discover useful resources to support people with lived experience and healthcare professionals\n✅ Learn directly from people with lived experience and the experts who support them \nSee you at the webinar! \n\nREGISTER HERE
URL:https://ccieurope.eu/event/communication-about-late-effects/
LOCATION:Online
CATEGORIES:Event,Projects,Survivorship
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2026/02/cci_europe_yarn_qualityoflife_webinars_eu_project.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20260226T153000
DTEND;TZID=Europe/Vienna:20260226T170000
DTSTAMP:20260418T213348
CREATED:20260202T163620Z
LAST-MODIFIED:20260226T135723Z
UID:7800-1772119800-1772125200@ccieurope.eu
SUMMARY:International Childhood Cancer Day 2026
DESCRIPTION:The 2026 International Childhood Cancer Day (ICCD) policy event\, “Europe’s Beating Cancer Plan Implementation for Children and Adolescents: Looking Ahead – What remains to be done to improve access to care\, research and sustainable survivorship programmes”\, will take place as an online policy dialogue on Thursday\, 26 February 2026\, from 15:30 to 17:00 CET. \nHosted by MEP Vlad Voiculescu (Renew\, RO)\, this annual event gathers policymakers\, researchers\, healthcare providers\, and patient advocates to assess progress and shape future EU action on childhood and adolescent cancer. SIOP Europe and CCI Europe will share evidence and perspectives from paediatric oncology professionals\, parents\, and survivors. \nThis year’s edition will showcase the progress made under Europe’s Beating Cancer Plan (EBCP)\, especially through its Spotlight on Childhood Cancer\, and will also examine how these achievements can be translated into timely and sustainable delivery for children and adolescents up to and after 2030. \nRegister HereProgrammeThe event will support discussions on the European Parliament’s own-initiative report on the EBCP\, currently under preparation. As the EBCP moves into its next implementation phase and future EU cancer policy initiatives are planned beyond 2025\, the event emphasises that childhood cancer must remain a visible priority. Strong political support and practical measures are essential to ensure that all children and young people with cancer in Europe benefit from equally high standards of care\, research\, and survivorship services. \nThe discussion will focus on two core priority areas across the childhood cancer pathway: \n\nEqual access to high-quality care and research\, including access to specialised expertise\, cross-border collaboration\, and innovation for children\, adolescents\, and young adults with cancer\, regardless of where they live in Europe\nSurvivorship and psychosocial care\, with a focus on long-term follow-up care and the sustainability of survivorship programmes for childhood cancer survivors and their families.\n\nBy bringing together policymakers and key stakeholders from across the childhood cancer community and beyond\, the event aims to foster shared understanding and actionable policy directions. The goal is to ensure that progress achieved at EU level through the EBCP translates into lasting\, equitable impact for all children and young people with cancer across Europe. \nRegister Here
URL:https://ccieurope.eu/event/international-childhood-cancer-day-2026/
LOCATION:Online
CATEGORIES:EU Affairs,Event
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2026/02/iccd_2026_policy_event.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260306
DTEND;VALUE=DATE:20260308
DTSTAMP:20260418T213348
CREATED:20251023T123442Z
LAST-MODIFIED:20251023T123651Z
UID:7581-1772755200-1772927999@ccieurope.eu
SUMMARY:Living Beyond Cancer: Late effects and Survivorship Care Online Course
DESCRIPTION:About the Course\n“Cure is not enough” – in 1975 Giulio J. D’Angio had the vision of childhood and adolescent cancer survivors and their long-term follow-up care. \nWith around 80 % survival of childhood and adolescent cancer\, around 500\,000 survivors live in Europe today and the number is increasing. At least two-thirds experience long-term health-related challenges. \n\nWhat are the late physical and psychosocial effects?\nWhat are their risks and contributing factors?\nWhen and how to talk about them?\n\nThese are the questions we will address together during the meeting by implementing different perspectives from an inter- and multidisciplinary team of late effects specialists and patient advocates across Europe. \n\nEligibility criteria\nThis course is open to European healthcare professionals and patient advocates with an interest and at the beginning of their professional career in Late Effects and Survivorship Care after childhood and adolescent cancer. \nTo be eligible for the course\, applicants should either be members of PanCare\, CCI Europe\, or SIOPE\, or have a keen interest in becoming a member. They should also have a strong commitment to promoting Survivorship Care. While the course primarily targets trainees\, exceptions can be made in special cases for applicants over 40 years of age. Proficiency in English is essential\, as the course heavily emphasizes personal interaction and active participation in medical discussions. \n\n\nCourse fee\nThe course fees are as follows: \n\n\n\n\n\nCategory\nFee\n\n\n\n\nHeathcare professionals\n€ 75\,-\n\n\nPatient advocates\n€ 50\,-\n\n\n\n\n\nA fee waiver can be requested by sending a personal email to tessa.fuchs@pancare.eu explaining the reason you are applying for a fee waiver. \n\n\n\nApplication process\nYou can apply here or via the button above. All applicants must provide the following documents: \n\nA concise CV summary (maximum 200 words)\nAn essay discussing the state of Survivorship Care in their respective country and outlining their plans to apply the knowledge gained from this course to advance Survivorship Care (maximum 1 DIN A4 page/ 1750 words)\n\nAdditionally\, applicants have the option to submit a clinical case that highlights the unique challenges of Survivorship Care in their practice. Selected cases will be presented and discussed within the group. \nThe application deadline is 30 November 2025 at 23:59 CEST. \n\n\n\nOrganising Committee\nPanCare: Emma Potter\, Maria Otth\, Lorna Zaletel Zadravec\, Charlotte Demoor\, Jelena Roganovic\, Christine Dahl\, Andrica de Vries\, Ana Izurieta\, Anna Eichinger\, Edit Bardi\, Hanne Lie\, Katrin Scheinemann\nYoung SIOPe: Anne van Kuijk\, Miguel Martins\nCCI Europe: Patrica McColgan\, Ian Murphy\, Carlos Hernandez \n\nREGISTER HERE
URL:https://ccieurope.eu/event/living-beyond-cancer-late-effects-and-survivorship-care-online-course-2/
LOCATION:Online
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2025/10/PanCare-Course.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20260330T170000
DTEND;TZID=Europe/Amsterdam:20260330T183000
DTSTAMP:20260418T213348
CREATED:20260209T103752Z
LAST-MODIFIED:20260209T103752Z
UID:7870-1774890000-1774895400@ccieurope.eu
SUMMARY:From Recommendations to Real Life: Mental Health Care in CAYA Cancer Survivorship
DESCRIPTION:About \n\nJoin young survivors\, clinicians\, and psychosocial experts to discover recommendations for mental health care in CAYA cancer survivorship\, and explore how to implement them in everyday practice. \n\n\nREGISTER HERE
URL:https://ccieurope.eu/event/from-recommendations-to-real-life-mental-health-care-in-caya-cancer-survivorship/
LOCATION:Online
CATEGORIES:Event,Projects,Survivorship
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2026/02/cci_europe_yarn_qualityoflife_webinars_eu_project.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20260402T190000
DTEND;TZID=Europe/Amsterdam:20260402T200000
DTSTAMP:20260418T213348
CREATED:20260224T140421Z
LAST-MODIFIED:20260408T110425Z
UID:7903-1775156400-1775160000@ccieurope.eu
SUMMARY:Neuroblastoma Parent Symposium 2026
DESCRIPTION:About the symposiums\nFollowing a neuroblastoma diagnosis\, children and families face difficult challenges and complex treatment decisions. SKC symposium aims to bring together the neuroblastoma community from across the UK and around the world to share knowledge\, insights\, and support.\nDelivered both in-person and virtually over the years\, the symposium offers an accessible space to learn about current approaches\, emerging research\, and lived experience. \n2026 webinar series\nThe 2026 symposium will take place over six Thursday evenings\, from 26 February to 2 April\, with each session running from 6:00 – 7:00 pm UK local time (19:00 – 20:00 CET). This year’s programme brings together a variety of topics\, including how to find trusted information\, what current frontline treatment looks like in the UK\, Europe and the US\, and the latest developments in clinical trials. You’ll hear from leading neuroblastoma experts and parent advocates\, with opportunities to submit questions during every session. The series concludes with an extended session focused on enhancing quality of life after treatment. You can view the full programme here. \nRegister HereView the programmeWhen you register\, you’ll receive joining links for all six sessions\, giving you the flexibility to join as many sessions as you like\, plus early access to the webinar recordings. We encourage you to join live whenever possible – taking part together as a community creates a more interactive and supportive experience\, and gives you the chance to submit questions and hear answers in real time. When you register\, you’ll receive joining links for all six sessions\, giving you the flexibility to join as many sessions as you like\, plus early access to the webinar recordings. We encourage you to join live whenever possible – taking part together as a community creates a more interactive and supportive experience\, and gives you the chance to submit questions and hear answers in real time. \nWebinar Series\n\nWebinar 1 – Thursday\, 26 February 2026: Finding Trusted Information: Navigating the Neuroblastoma Journey\nWebinar 2 – Thursday\, 5 March 2026: Understanding Current Frontline Treatment: COG and SIOPEN\nWebinar 3 – Thursday\, 12 March 2026: BEACON2: Expanding Treatment Options for Relapsed Neuroblastoma\nWebinar 4 – Thursday\, 19 March 2026: The MINT Study: Addressing Unmet Need in High‑Risk Neuroblastoma\nWebinar 5 – Thursday\, 26 March 2026: CAR‑T Cell Therapy: Bambino Gesù Trial and Broadening Treatment in Europe\nWebinar 6 – Thursday\, 2 April 2026: Life After Treatment: Enhancing Quality of Life for Neuroblastoma Families
URL:https://ccieurope.eu/event/neuroblastoma-parent-symposium/
LOCATION:Online
ATTACH;FMTTYPE=image/jpeg:https://ccieurope.eu/wp-content/uploads/2026/02/neuroblastoma_parent_symposium_childhood_cancer_2026.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260504
DTEND;VALUE=DATE:20260507
DTSTAMP:20260418T213348
CREATED:20260208T115606Z
LAST-MODIFIED:20260408T110225Z
UID:8068-1777852800-1778111999@ccieurope.eu
SUMMARY:16th CCI Europe Conference\, Glasgow
DESCRIPTION:CCI Europe will host its 16th CCI Europe Conference completely face to face from 4 to 6 May 2026 in Glasgow\, UK. This event is once again organised in partnership with SIOP Europe\, and as a part of the SIOPE’s 6th Annual Meeting of the European Society for Paediatric Oncology. \nCCI Europe Conference is open to CCI members around the globe\, as well as for individual parent\, patient and survivor advocates\, wanting to listen to the interesting sessions we are preparing for you. Your unique registration will allow you to attend open sessions outside of CCI Europe Conference\, that are a part of SIOPE’s Annual Meeting. \nFind detailed information at the conference page.
URL:https://ccieurope.eu/event/16th-cci-europe-conference-glasgow/
LOCATION:Scottish Event Campus Centre\, Exhibition Way\, Glasgow\, G3 8YW\, United Kingdom
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2026/02/CCI-Europe-Conference-2026-Glasgow.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260603
DTEND;VALUE=DATE:20260605
DTSTAMP:20260418T213348
CREATED:20251023T132550Z
LAST-MODIFIED:20260202T142948Z
UID:7587-1780444800-1780617599@ccieurope.eu
SUMMARY:European Conference on Rare Diseases & Orphan Products (ECRD) 2026
DESCRIPTION:About \n\n\n\n\n\n\nThe European Conference on Rare Diseases & Orphan Products (ECRD) 2026 will take place on 3 – 4 June 2026 in Prague\, under the title “Rare Diseases in a Changing & Competitive Europe: Shaping policies to address the unmet needs of people living with rare diseases”. The conference will be held in a hybrid format and will provide a unique platform for connection and collaboration across the rare disease community. It will bring together patients\, advocates\, policymakers\, healthcare industry representatives\, clinicians\, regulators\, and Member State officials to discuss\, shape\, and advance goal-driven policies that improve the lives of people living with rare diseases and their families. CCI Europe is proud to be an associate partner of the conference. \n\n\n\n\n\n\nRegister HereThe European Conference on Rare Diseases & Orphan Products (ECRD) is the largest patient-led policy-shaping event on rare diseases in Europe. By bringing together people living with rare diseases and patient advocates alongside policymakers\, healthcare industry representatives\, clinicians\, regulators\, and Member State officials\, EURORDIS leverages the strength of this unique network to advance goal-driven policies that improve the lives of people living with a rare disease and their families. \n\n\n\n\n\n\nECRD 2026 is expected to unite over 500 participants in Prague\, with an additional 300+ joining online. Thanks to its hybrid format\, the conference will provide an unparalleled platform for connection and collaboration\, enabling participants across the rare disease community to exchange knowledge\, share experiences\, and build partnerships. \n\n\n\n\n\n\n\n\nECRD 2026 will also mark the launch of a multi-stakeholder process to develop a European Action Plan for Rare Diseases. Through open dialogue\, participants will help shape a roadmap that defines shared priorities\, structure\, governance\, funding\, and delivery mechanisms. \nThis collaborative process will ensure collective ownership and lasting impact across Europe\, while strengthening Europe’s role as a key contributor to the WHO Global Action Plan on Rare Diseases. \nThe event will delve into the most pressing discussions on the future of Europe and medicines\, exploring the multifaceted challenges and opportunities for the rare disease ecosystem. The programme will cover a broad range of policy topics\, including therapy development\, timely and accurate diagnosis\, advances in social sciences\, specialised healthcare\, and health technology assessments. \nBy participating in ECRD 2026\, you will play an active role in shaping the future of rare disease policy in Europe and beyond—helping to drive real\, lasting change for millions of people living with a rare disease. \n\n\n\n\n\n\n\n\nECRD 2026 Tracks\nPlease see below for more information about the ECRD 2026 Tracks. Each track will contain two 90-minute\, content-filled sessions\, and sessions will be run in parallel\, with three taking place at a time. \n\n\n\nTherapies\, development\, and access\nDiagnosis\, research\, and prevention\nSocial sciences and holistic care\nSpecialised healthcare\nHTA (Health Technology Assessments)\nMental health\, social and holistic care\n\n\n\n\n\n\n\n\nImportant Dates\n\nPoster abstract submissions: 6 March 2026 – learn more and submit your abstract here.\nEvent Dates: 3-4 June 2026\n\nRegister Here
URL:https://ccieurope.eu/event/european-conference-on-rare-diseases-orphan-products-ecrd-2026/
LOCATION:Prague
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2025/10/ECRD-2026.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260915
DTEND;VALUE=DATE:20260919
DTSTAMP:20260418T213348
CREATED:20260211T160044Z
LAST-MODIFIED:20260211T160304Z
UID:7878-1789430400-1789775999@ccieurope.eu
SUMMARY:Childhood Cancer International - Annual Conference 2026
DESCRIPTION:Join us in historic San Antonio for the 32nd CCI Annual International Conference! Hosted in San Antonio\, Texas\, the conference will unite people with lived experience of childhood cancer (including survivors\, parents\, and patient advocates)\, together with civil society organisations\, healthcare professionals\, and multidisciplinary care teams from across the globe. The meeting offers a unique space to connect\, share perspectives\, and foster partnerships that advance advocacy and improve outcomes for children and adolescents with cancer. \n\n\n\n\n\n\n\n\nThe conference will once again be organised in conjunction with SIOP as a part of the SIOP Congress. \n\n\n\n\nConference Dates\nSeptember 15-18\, 2026 \nImportant Dates \n\nMarch 17\, 2026 – Abstract Submission Deadline\nJune 23\, 2026 – Early Registration Deadline\nAugust 18\, 2026 – Late Breaking Abstract Submission Deadline\nSeptember 15-18\, 2026 – CCI Annual Conference 2025\n\nVenue\nHenry B. González Convention Center\nAddress: 900 E Market St\, San Antonio\, TX 78205\, USA\nWebsite: http://www.sahbgcc.com/ \n​Language\nThe official language of the CCI Annual Conference  is English. \nStipends\nEvery year Childhood Cancer International makes available a limited amount of funding to cover the participation of delegates from CCI member organisations. This is both from CCI general funds as well as funding offered by member organisations who have the desire to assist parents or survivors attend a conference by donating to the Parents Helping Parents Fund (PHP Fund) or through their existing twinning relationships. More information and how to apply for a stipend coming soon. \nREGISTER HERE
URL:https://ccieurope.eu/event/childhood-cancer-international-annual-conference-2026/
LOCATION:Henry B. González Convention Center\, 900 E Market St\, San Antonio\, TX\, 78205\, United States
CATEGORIES:Event
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2026/02/CCI-SIOP-2026-08.png
END:VEVENT
END:VCALENDAR