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SUMMARY:Neuroblastoma Parent Symposium 2026
DESCRIPTION:About the symposiums\nFollowing a neuroblastoma diagnosis\, children and families face difficult challenges and complex treatment decisions. SKC symposium aims to bring together the neuroblastoma community from across the UK and around the world to share knowledge\, insights\, and support.\nDelivered both in-person and virtually over the years\, the symposium offers an accessible space to learn about current approaches\, emerging research\, and lived experience. \n2026 webinar series\nThe 2026 symposium will take place over six Thursday evenings\, from 26 February to 2 April\, with each session running from 6:00 – 7:00 pm UK local time (19:00 – 20:00 CET). This year’s programme brings together a variety of topics\, including how to find trusted information\, what current frontline treatment looks like in the UK\, Europe and the US\, and the latest developments in clinical trials. You’ll hear from leading neuroblastoma experts and parent advocates\, with opportunities to submit questions during every session. The series concludes with an extended session focused on enhancing quality of life after treatment. You can view the full programme here. \nRegister HereView the programmeWhen you register\, you’ll receive joining links for all six sessions\, giving you the flexibility to join as many sessions as you like\, plus early access to the webinar recordings. We encourage you to join live whenever possible – taking part together as a community creates a more interactive and supportive experience\, and gives you the chance to submit questions and hear answers in real time. When you register\, you’ll receive joining links for all six sessions\, giving you the flexibility to join as many sessions as you like\, plus early access to the webinar recordings. We encourage you to join live whenever possible – taking part together as a community creates a more interactive and supportive experience\, and gives you the chance to submit questions and hear answers in real time. \nWebinar Series\n\nWebinar 1 – Thursday\, 26 February 2026: Finding Trusted Information: Navigating the Neuroblastoma Journey\nWebinar 2 – Thursday\, 5 March 2026: Understanding Current Frontline Treatment: COG and SIOPEN\nWebinar 3 – Thursday\, 12 March 2026: BEACON2: Expanding Treatment Options for Relapsed Neuroblastoma\nWebinar 4 – Thursday\, 19 March 2026: The MINT Study: Addressing Unmet Need in High‑Risk Neuroblastoma\nWebinar 5 – Thursday\, 26 March 2026: CAR‑T Cell Therapy: Bambino Gesù Trial and Broadening Treatment in Europe\nWebinar 6 – Thursday\, 2 April 2026: Life After Treatment: Enhancing Quality of Life for Neuroblastoma Families
URL:https://ccieurope.eu/event/neuroblastoma-parent-symposium/
LOCATION:Online
ATTACH;FMTTYPE=image/jpeg:https://ccieurope.eu/wp-content/uploads/2026/02/neuroblastoma_parent_symposium_childhood_cancer_2026.jpg
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260504
DTEND;VALUE=DATE:20260507
DTSTAMP:20260418T183342
CREATED:20260208T115606Z
LAST-MODIFIED:20260408T110225Z
UID:8068-1777852800-1778111999@ccieurope.eu
SUMMARY:16th CCI Europe Conference\, Glasgow
DESCRIPTION:CCI Europe will host its 16th CCI Europe Conference completely face to face from 4 to 6 May 2026 in Glasgow\, UK. This event is once again organised in partnership with SIOP Europe\, and as a part of the SIOPE’s 6th Annual Meeting of the European Society for Paediatric Oncology. \nCCI Europe Conference is open to CCI members around the globe\, as well as for individual parent\, patient and survivor advocates\, wanting to listen to the interesting sessions we are preparing for you. Your unique registration will allow you to attend open sessions outside of CCI Europe Conference\, that are a part of SIOPE’s Annual Meeting. \nFind detailed information at the conference page.
URL:https://ccieurope.eu/event/16th-cci-europe-conference-glasgow/
LOCATION:Scottish Event Campus Centre\, Exhibition Way\, Glasgow\, G3 8YW\, United Kingdom
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2026/02/CCI-Europe-Conference-2026-Glasgow.png
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DTSTART;VALUE=DATE:20260603
DTEND;VALUE=DATE:20260605
DTSTAMP:20260418T183342
CREATED:20251023T132550Z
LAST-MODIFIED:20260202T142948Z
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SUMMARY:European Conference on Rare Diseases & Orphan Products (ECRD) 2026
DESCRIPTION:About \n\n\n\n\n\n\nThe European Conference on Rare Diseases & Orphan Products (ECRD) 2026 will take place on 3 – 4 June 2026 in Prague\, under the title “Rare Diseases in a Changing & Competitive Europe: Shaping policies to address the unmet needs of people living with rare diseases”. The conference will be held in a hybrid format and will provide a unique platform for connection and collaboration across the rare disease community. It will bring together patients\, advocates\, policymakers\, healthcare industry representatives\, clinicians\, regulators\, and Member State officials to discuss\, shape\, and advance goal-driven policies that improve the lives of people living with rare diseases and their families. CCI Europe is proud to be an associate partner of the conference. \n\n\n\n\n\n\nRegister HereThe European Conference on Rare Diseases & Orphan Products (ECRD) is the largest patient-led policy-shaping event on rare diseases in Europe. By bringing together people living with rare diseases and patient advocates alongside policymakers\, healthcare industry representatives\, clinicians\, regulators\, and Member State officials\, EURORDIS leverages the strength of this unique network to advance goal-driven policies that improve the lives of people living with a rare disease and their families. \n\n\n\n\n\n\nECRD 2026 is expected to unite over 500 participants in Prague\, with an additional 300+ joining online. Thanks to its hybrid format\, the conference will provide an unparalleled platform for connection and collaboration\, enabling participants across the rare disease community to exchange knowledge\, share experiences\, and build partnerships. \n\n\n\n\n\n\n\n\nECRD 2026 will also mark the launch of a multi-stakeholder process to develop a European Action Plan for Rare Diseases. Through open dialogue\, participants will help shape a roadmap that defines shared priorities\, structure\, governance\, funding\, and delivery mechanisms. \nThis collaborative process will ensure collective ownership and lasting impact across Europe\, while strengthening Europe’s role as a key contributor to the WHO Global Action Plan on Rare Diseases. \nThe event will delve into the most pressing discussions on the future of Europe and medicines\, exploring the multifaceted challenges and opportunities for the rare disease ecosystem. The programme will cover a broad range of policy topics\, including therapy development\, timely and accurate diagnosis\, advances in social sciences\, specialised healthcare\, and health technology assessments. \nBy participating in ECRD 2026\, you will play an active role in shaping the future of rare disease policy in Europe and beyond—helping to drive real\, lasting change for millions of people living with a rare disease. \n\n\n\n\n\n\n\n\nECRD 2026 Tracks\nPlease see below for more information about the ECRD 2026 Tracks. Each track will contain two 90-minute\, content-filled sessions\, and sessions will be run in parallel\, with three taking place at a time. \n\n\n\nTherapies\, development\, and access\nDiagnosis\, research\, and prevention\nSocial sciences and holistic care\nSpecialised healthcare\nHTA (Health Technology Assessments)\nMental health\, social and holistic care\n\n\n\n\n\n\n\n\nImportant Dates\n\nPoster abstract submissions: 6 March 2026 – learn more and submit your abstract here.\nEvent Dates: 3-4 June 2026\n\nRegister Here
URL:https://ccieurope.eu/event/european-conference-on-rare-diseases-orphan-products-ecrd-2026/
LOCATION:Prague
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260915
DTEND;VALUE=DATE:20260919
DTSTAMP:20260418T183342
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SUMMARY:Childhood Cancer International - Annual Conference 2026
DESCRIPTION:Join us in historic San Antonio for the 32nd CCI Annual International Conference! Hosted in San Antonio\, Texas\, the conference will unite people with lived experience of childhood cancer (including survivors\, parents\, and patient advocates)\, together with civil society organisations\, healthcare professionals\, and multidisciplinary care teams from across the globe. The meeting offers a unique space to connect\, share perspectives\, and foster partnerships that advance advocacy and improve outcomes for children and adolescents with cancer. \n\n\n\n\n\n\n\n\nThe conference will once again be organised in conjunction with SIOP as a part of the SIOP Congress. \n\n\n\n\nConference Dates\nSeptember 15-18\, 2026 \nImportant Dates \n\nMarch 17\, 2026 – Abstract Submission Deadline\nJune 23\, 2026 – Early Registration Deadline\nAugust 18\, 2026 – Late Breaking Abstract Submission Deadline\nSeptember 15-18\, 2026 – CCI Annual Conference 2025\n\nVenue\nHenry B. González Convention Center\nAddress: 900 E Market St\, San Antonio\, TX 78205\, USA\nWebsite: http://www.sahbgcc.com/ \n​Language\nThe official language of the CCI Annual Conference  is English. \nStipends\nEvery year Childhood Cancer International makes available a limited amount of funding to cover the participation of delegates from CCI member organisations. This is both from CCI general funds as well as funding offered by member organisations who have the desire to assist parents or survivors attend a conference by donating to the Parents Helping Parents Fund (PHP Fund) or through their existing twinning relationships. More information and how to apply for a stipend coming soon. \nREGISTER HERE
URL:https://ccieurope.eu/event/childhood-cancer-international-annual-conference-2026/
LOCATION:Henry B. González Convention Center\, 900 E Market St\, San Antonio\, TX\, 78205\, United States
CATEGORIES:Event
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