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DTSTART;TZID=Europe/Vienna:20250428T170000
DTEND;TZID=Europe/Vienna:20250428T183000
DTSTAMP:20260418T215354
CREATED:20250328T102456Z
LAST-MODIFIED:20250416T063843Z
UID:7081-1745859600-1745865000@ccieurope.eu
SUMMARY:Know the Basics: Peer Support in the spotlight - What can we learn from peer support programmes around Europe?
DESCRIPTION:About the webinar: \nDuring this webinar\, we will explore different models of peer support within our community. We’re not limiting ourselves to just one target group—we want to showcase the many ways peers can support not only patients but also survivors and parents\, guiding them through the various stages of the treatment pathway with their lived experiences. \nOur goal is to inspire anyone who is currently developing a peer support program or considering starting one. Take this opportunity to pick the best ideas for your own approach\, get inspired\, ask questions\, and exchange experiences! \nJoin us and discover how peer support can make a real difference! \n\n\n\n\n\nregister hereOur Speakers: \n\nJelena Češljar\nKrijesnica – Croatia \nSocial worker and volunteer coordinator at Krijesnica\, previously a long-time volunteer at Krijesnica in activities with children undergoing treatment for malignant diseases. Educator of psychotherapy in the field of transactional analysis and student of specialist supervision studies. \n\nMihael Severinac\nKrijesnica – Croatia \nAn ardent patient advocate who uses his childhood cancer experience to advocate and change things around for childhood cancer patients and survivors. Associate in the implementation of projects and activities in Croatia and a leader of the Croatian survivors group. \n\nJohanna Kero\nSYLVA – Finland \nJohanna Kero is a mother of a young cancer survivor and serves on the board of the Finnish children’s cancer organization SYLVA\, as well as the Finnish nursing guidelines working group on Psychosocial support for patients with cancer. She is also a nurse and senior nursing lecturer with expertise in the care of patients with cancer\, palliative care and end-of-life care. \n\nVanessa Karaivanova\nFoundation Gold – Bulgaria \nVanessa Karaivanova is a childhood cancer survivor\, patient advocate\, and a student in Child and Adolescent Psychology. For several years\, she has been volunteering at the paediatric oncology clinic in Sofia\, Bulgaria supporting children throughout their treatment journey. As a member of the Survivorship Pillar of CCI Europe\, she is dedicated to improving the quality of life for young survivors and advocating for comprehensive\, long-term care. \n\nTiago Costa\nAcreditar – Portugal \nregister here
URL:https://ccieurope.eu/event/know-the-basics-peer-support-in-the-spotlight-what-can-we-learn-from-peer-support-programmes-around-europe/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2025/03/Gold-webinar-April-2025.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20250224T170000
DTEND;TZID=Europe/Vienna:20250224T183000
DTSTAMP:20260418T215354
CREATED:20241206T134742Z
LAST-MODIFIED:20250123T124252Z
UID:6791-1740416400-1740421800@ccieurope.eu
SUMMARY:Advance Your Knowledge: Around the ERN-PaedCan Virtual Tumor Board 2.0 in 80 Minutes
DESCRIPTION:What if:\n1) Your oncologist is at a crossroads regarding therapy?\n2) The local tumor board cannot make a definite decision and\n3) You urgently need a second opinion from international experts? \nIn this webinar\, we want to strengthen patient organizations in their role as intermediaries for access to the new ERN-PaedCan Virtual Tumor Board 2.0 (= CPMS\, Clinical Patient Management System): We explain how patients/families can use the CPMS in collaboration with their oncologists and what role national patient representatives play in this cycle. \n\n\n\n\n\n\nregister here
URL:https://ccieurope.eu/event/advance-your-knowledge-around-the-ern-paedcan-virtual-tumor-board-2-0-in-80-minutes/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars
ATTACH;FMTTYPE=image/jpeg:https://ccieurope.eu/wp-content/uploads/2024/12/Gold-webinar-final-banner-1-1-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20250204T160000
DTEND;TZID=Europe/Vienna:20250204T180000
DTSTAMP:20260418T215354
CREATED:20250102T100940Z
LAST-MODIFIED:20250102T100940Z
UID:6811-1738684800-1738692000@ccieurope.eu
SUMMARY:International Childhood Cancer Day (ICCD) 2025 - Policy event
DESCRIPTION:MEP András Kulja (EPP\, Hungary) will host and organize a policy event in anticipation of International Childhood Cancer Day (ICCD) with the participation of SIOP Europe and CCI Europe . \nThe ICCD is commemorated on 15 February each year. The date of the ICCD event at the European Parliament coincides with World Cancer Day (4 February)\, emphasizing the place of childhood cancer at the heart of cancer policies. \nThe meeting will put the spotlight on the current challenges in cross-border care and research in pediatric oncology\, with a focus on advancing multi-stakeholder collaboration to address systemic inequalities. \nJoin this important discussion on Tuesday\, 4 February\, from 16:00 to 18:00 CET\, at the European Parliament in Brussels . The event will be followed by an exclusive networking reception. \n\n\nRegister Here\nThe event will feature two engaging panel discussions: \nCross-Border Access to Care and Training: \nExplore the barriers children face in accessing specialized oncology care under the Cross-Border Healthcare Directive and discuss practical solutions to bridge these gaps. Learn about the role of EU training initiatives and twinning programs in empowering healthcare professionals and building capacity across Member States. \nCross-Border Access to Research: \nUnderstand the regulatory and logistical obstacles to European clinical trials and innovative treatments\, including CAR T-cell therapy. The discussion will highlight how harmonized frameworks can strengthen collaboration\, reduce disparities\, and advance innovation in pediatric oncology research. \nWhy attend?  \nThis is a unique opportunity to engage and network with EU policymakers\, healthcare professionals\, researchers\, and patient advocates and contribute to meaningful dialogue on how EU’s initiatives\, such as the Cross-Border Healthcare Directive and Beating Cancer Plan\, can ensure equitable access to care and research for children with cancer. \nBackground \nDespite all the advancements in the field\, disparities in access to care and research still exist across Europe\, unjustly affecting young patients’ survival and quality of life. Innovative therapies\, such as CAR T-cell therapy\, remain out of reach for many due to logistical and financial barriers. \nThis event will explore how EU policymakers and healthcare professionals can work together to overcome these challenges and build a future where all children with cancer can access the care and research they need\, regardless of where they live. \nFor queries or further information\, please send an email to: andras.kulja@europarl.europa.eu \, danai.spentzou@europarl.europa.eu \,  sonja.ladenstein@siope.eu \, and rachele.vedovelli@siope.eu . \n\nCheck the Provisional Programme Here
URL:https://ccieurope.eu/event/international-childhood-cancer-day-iccd-2025-policy-event/
LOCATION:European Parliament\, Brussels
CATEGORIES:EU Affairs,Event
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2024/12/iccd-2025-banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20241216T170000
DTEND;TZID=Europe/Vienna:20241216T183000
DTSTAMP:20260418T215354
CREATED:20241114T080944Z
LAST-MODIFIED:20241203T133310Z
UID:6735-1734368400-1734373800@ccieurope.eu
SUMMARY:Advance Your Knowledge: How can patients benefit from ESCPs?
DESCRIPTION:The European Standard of Clinical Practice (ESCP) Project is an on-going collaboration between ERN PaedCan and SIOP Europe’s Clinical Trial Groups (ECTG)\, aiming to develop approved clinical recommendations that reflect current best practices for each common childhood cancer type. The ESCPs are reviewed by CCI-E members. The goal is to improve outcomes and increase childhood cancer survival\, and quality of life by providing these benchmarks for best practice. In this Gold Webinar\, we discuss with responsible clinicians how patient representatives can best use these ESCPs so that patients can benefit directly.\n \nPanelists \nHarun Šabić\, CCI Europe Committee MemberLidiya Vitanova\, CCI Europe DT&C pillar MemberEwa Majewska\, CCI Europe DT&C Pillar MemberRuth Ladenstein\, ERN-PaedCan Coordinator & Head of the Clinical Trials Unit S²IRP at St. Anna CCRIJelena Rascon – Head of the Cancer Coordination Centre at Santaros ClinicsModerator: Barbara Brunmair\, CCI Europe Projects & Pillar Coordinator \n\n\n\n\n\nregister here
URL:https://ccieurope.eu/event/how-can-patients-benefit-from-escps/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars
ATTACH;FMTTYPE=image/jpeg:https://ccieurope.eu/wp-content/uploads/2024/12/Gold-webinar-final-banner-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20241202T095000
DTEND;TZID=Europe/Vienna:20241202T170000
DTSTAMP:20260418T215354
CREATED:20240830T065158Z
LAST-MODIFIED:20240905T141227Z
UID:6532-1733133000-1733158800@ccieurope.eu
SUMMARY:EU4Health Conference 2024
DESCRIPTION:We are delighted to be a partner of a very special event this year!   \nThe EU4Health Integration and Impact Initiative (EU4H3I) aims to address public health challenges such as health inequalities\, unequal access to treatments and lack of diversity in clinical trials. Together with our partners\, we advocate for interdisciplinary collaboration and the adoption of a holistic\, cross-sectoral approach supported by the One Health perspective to support the development of the European Health Union. \nWe are very pleased to represent the field of childhood cancer alongside key representatives of the One Health approach and brain health in this project. These three areas are closely intertwined and form a complex set of interconnected issues.Childhood cancer not only affects the physical health of young patients during and after treatment\, but also has a profound impact on the cognitive\, emotional\, behavioral and social abilities of affected children and the rest of their lives as well as their families and friends. The One Health approach\, which recognizes the interdependence of human health\, animal health and the environment\, plays a central role in understanding the complexity of this challenge. It recognizes that environmental factors can contribute to the development of childhood cancer\, underlining the need for a comprehensive view. \nThis event will bring together key stakeholders to discuss health inequalities\, access to treatment\, the diversity of clinical trials and urgent needs in the areas of childhood cancer and brain health. The aim is to promote a holistic One Health approach to tackling these challenges.  \nWe think it’s important to look at the issue of childhood\, adolescent and young adult cancer not only in isolation but also in relation to other issues\, such as the environment\, in order to better recognize connections and thus be able to advocate even better!   \nWhy attend?\n• Network with leading experts and decision-makers from across Europe\n• Learn from distinguished experts\n• Explore innovative solutions to pressing public health challenges\n• As a patient\, advocate for your health and empower yourself with knowledge \nJoin us on December 2\, 2024\, at the Palace of the Academies in Brussels!  \nSince the places are limited\, we invite you to secure your participation in this event from now on. Register hereFor more details about the conference\, agenda and speakers\, visit the website.
URL:https://ccieurope.eu/event/eu4health-conference-2024/
LOCATION:Palace of the Academies in Brussels\, Brussels\, Belgium
CATEGORIES:Event
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2024/08/Untitled-design.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20241119T160000
DTEND;TZID=Europe/Vienna:20241119T180000
DTSTAMP:20260418T215354
CREATED:20241015T123410Z
LAST-MODIFIED:20241015T123410Z
UID:6686-1732032000-1732039200@ccieurope.eu
SUMMARY:CCI Europe & SIOPE Children's Rights Day Event
DESCRIPTION:On the occasion of Children’s Rights Day\, SIOP Europe and CCI Europe are pleased to announce the launch of this new policy event\, hosted by MEP Loucas Fourlas (EPP\, Cyprus). \nThe event will bring together key stakeholders to address critical issues in paediatric oncology\, with a particular focus on access to cross-border care and research across Europe. \nWe warmly invite you to register and join us in this important discussion on Tuesday\, 19 November from 16:00 to 18:00 CET at the European Parliament\, Brussels (Room P4B001 – SPAAK). \n\n\n\nRegister Here\nThis is a unique opportunity to explore together how the EU Strategy on the Rights of the Child\, Europe’s Beating Cancer Plan\, and the EU Cancer Mission can help provide equitable\, high-quality care and research for children with cancer across Europe. The event is also a valuable opportunity to engage with policymakers\, healthcare professionals\, and patient advocates committed to advancing paediatric oncology. \nIf you’d like to be part of this important discussion\, register now and secure your spot. Feel free to invite your colleagues and share this opportunity within your networks. \nBackground \nDespite advances in treatment and care\, significant disparities persist across Europe\, affecting access to essential medicines\, care\, and research\, as well as the quality of life for young patients. Ensuring access to high-quality cross-border care and research for children with cancer remains a major challenge across Europe. EU decision-makers\, healthcare professionals\, and patient advocates need to work together to ensure that every child has access to the treatment they need. \nFor queries or further information\, please send an email to: rachele.vedovelli@siope.eu and caroline.queiroz@siope.eu \n\n\n\nCheck the Provisional Programme Here
URL:https://ccieurope.eu/event/cci-europe-siope-childrens-rights-day-event/
LOCATION:European Parliament\, Brussels
CATEGORIES:EU Affairs,Event
ATTACH;FMTTYPE=image/jpeg:https://ccieurope.eu/wp-content/uploads/2024/10/Template-Championing-Childrens-Health-Advancing-Paediatric-Oncology-on-Childrens-Rights-Day-2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20241118T170000
DTEND;TZID=Europe/Vienna:20241118T183000
DTSTAMP:20260418T215354
CREATED:20241017T074513Z
LAST-MODIFIED:20241022T123908Z
UID:6694-1731949200-1731954600@ccieurope.eu
SUMMARY:Advance Your Knowledge: How to develop and translate a multidisciplinary Psycho-Oncology Model of Care into real action?
DESCRIPTION:Advance your knowledge! Psychosocial care in paediatric oncology still needs to be advanced in wide parts of Europe. In this webinar we will learn from experts in Ireland that managed to establish a National Model of Care for Psycho-Oncology services for Children\, Adolescents and Young Adults (CAYA) with Cancer and their families in order to provide a framework to support the way that psychosocial care is delivered to this cohort and their families. We are happy to have the experts from Ireland with us that will present the model of care and tell us about the process that they have been conducting from professional but also from patient organization side. \n\nAbout the Speakers: \nDr Helen Greally \nClinical Lead in Psycho-Oncology at the NCCP and Cancer Care West \nDr Chiara Besani \nPaediatric principal clinical psycho-oncologist \nLaura Cullinan \nCEO at Childhood Cancer Ireland and Parent of a Survivor \n\n\n\n\nregister here
URL:https://ccieurope.eu/event/advance-your-knowledge-how-to-develop-and-translate-a-multidisciplinary-psycho-oncology-model-of-care-into-real-action/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars,Survivorship
ATTACH;FMTTYPE=image/jpeg:https://ccieurope.eu/wp-content/uploads/2024/10/Gold-webinar-final-banner-2-1-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20241014T170000
DTEND;TZID=Europe/Vienna:20241014T183000
DTSTAMP:20260418T215354
CREATED:20240603T150325Z
LAST-MODIFIED:20241002T133127Z
UID:6199-1728925200-1728930600@ccieurope.eu
SUMMARY:Advance Your Knowledge: What could be the impact of Big Data and AI application in paediatric oncology?
DESCRIPTION:In this webinar\, we will delve into the transformative potential of Big Data and Artificial Intelligence (AI) in paediatric oncology\, exploring how these innovative approaches can help cancer research and reshape diagnostics\, treatment strategies\, and outcomes for children with cancer. Join us to delve into the implications\, opportunities\, and ethical considerations surrounding the integration of Big Data and AI in pediatric oncology. \n\nAbout the Speakers: \nPamela Kearns  \nDirector of Institute of Cancer and Genomic Sciences\, University of Birmingham \nPatrick Kemmeren  \nHead of the Big Data Core and Genomics department\, Princess Maxima Center \nFranck Devaux \nEthicist at the Hôpital Universitaire Des Enfants Reine Fabiola \n\n\n\n\nregister here
URL:https://ccieurope.eu/event/advance-your-knowledge-what-could-be-the-impact-of-big-data-and-ai-application-in-paediatric-oncology/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars,R&I
ATTACH;FMTTYPE=image/jpeg:https://ccieurope.eu/wp-content/uploads/2024/06/Gold-webinar-october-2024-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20240924T140000
DTEND;TZID=Europe/Vienna:20240924T150000
DTSTAMP:20260418T215354
CREATED:20240801T110149Z
LAST-MODIFIED:20240913T145702Z
UID:6399-1727186400-1727190000@ccieurope.eu
SUMMARY:Gold September - Childhood Cancer Awareness Month Event 2024
DESCRIPTION:CCI-E and SIOPE representing childhood cancer patients\, parents\, survivors and healthcare professionals\, will once again mark the Gold September – Childhood Cancer Awareness Month campaign through the annual flagship policy event on Tuesday\, 24 September 2024 at 2 pm CEST that this year will be held online. \n\nThis year’s event aims at increasing awareness of our policy priorities for the 2024-2029 mandate.  We will seek support from the new elected members of the European Parliament to our joint manifesto: we need to cure more\, cure better and tackle inequalities in childhood cancer across Europe. Whether we talk about research\, care\, psychosocial support or survivorship follow-up care\, we still have many challenges to address and count on policymakers to legislate\, adopt a friendly Multiannual Financial Framework Agreement (2028-2034) for health and research\, and maintain childhood cancer at the spotlight of the EU agenda!\n\nThe event will be kindly hosted by MEP Loucas Fourlas (EPP\, Cyprus). To register\, please complete the online form below.*\nPlease note that a confirmation email will be sent ahead of the event.\n\n*This information is collected solely for registration purposes and all data will be treated as confidential \nRegister Here
URL:https://ccieurope.eu/event/gold-september-childhood-cancer-awareness-month-event-2024/
LOCATION:Online
CATEGORIES:EU Affairs,Event
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2024/08/MAC-Event-Gold-September-banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20240923T170000
DTEND;TZID=Europe/Vienna:20240923T183000
DTSTAMP:20260418T215354
CREATED:20240625T122428Z
LAST-MODIFIED:20240625T122428Z
UID:6287-1727110800-1727116200@ccieurope.eu
SUMMARY:Know the basics: How to advance childhood cancer priorities in the aftermath of the EU elections?
DESCRIPTION:In the aftermath of the EU elections\, the CCI Europe policy team will present the composition of the new elected Parliament and discuss the possible implications for our childhood cancer advocacy priorities. \nDuring this webinar\, we will talk about the impact of those elections on the nomination of the new Commission leaders\, namely for health matters. \nJoin us! An easy way to get informed on what to expect from the EU in the next 5 years. \n\nAbout the Speakers: \nTeresa Pais\nTeresa Pais is an EU public affairs specialist; she worked as parliamentary assistant to a member of the European Parliament\, in a trade association and consultancies in the healthcare sector. She graduated in Law and has a Master’s degree in European affairs. \n\nMarine Gouders\nMarine Gouders\, member of the CCI Europe Office\, studied law and specialised in European law. After graduating\, she did an internship at the European Parliament\, where she discovered the workings of the European institutions. For the past year\, she has been working in the European Affairs Pillar. \n\n\n\n\nregister here
URL:https://ccieurope.eu/event/know-the-basics-how-to-advance-childhood-cancer-priorities-in-the-aftermath-of-the-eu-elections/
LOCATION:Online Webinar
CATEGORIES:EU Affairs,Event,Gold Webinars
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2024/06/Gold-webinar-final-banner-8.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20240730T170000
DTEND;TZID=Europe/Vienna:20240730T183000
DTSTAMP:20260418T215354
CREATED:20240726T082931Z
LAST-MODIFIED:20240726T082931Z
UID:6374-1722358800-1722364200@ccieurope.eu
SUMMARY:Sexuality & Intimacy and Young Cancer Survivors
DESCRIPTION:We all know that cancer can affect all areas of life and simply changes everything. One topic that is just as much a part of this\, but unfortunately is almost never discussed\, is sexuality and intimacy. \nAnd no\, it’s not just cancers of the reproductive organs that change or affect your sex life. The various cancer therapies can have an impact on the intimate and relationship life of those affected and confront couples with major challenges. Everyday life and intimate life are turned upside down by stressful therapies\, but also by their (long term) consequences. This leads to insecurities among those affected with regard to their sexual attractiveness and sexuality. \nSexuality is generally a taboo subject in society and often neglected in cancer treatment. People often find it difficult to address issues of sexual health\, even though it plays an important role in our emotional relationships and well-being. As a result\, sexuality is still a neglected topic in cancer treatment\, and the impact of the disease on sexuality is pushed to the background in favor of therapeutic efficiency. \nSex life can change temporarily or forever! But that doesn’t mean that childhood\, adolescent and young adult cancer survivors can’t have a fulfilling sex life or a good relationship with their own bodies. \nIn our webinar “Sexuality & Intimacy and Young Cancer Survivors” we want to address all these topics without taboos and exchange ideas with Health Care Professionals\, but also within the survivors community and prove ourselves once again: We are never alone with our topics! \nregister here
URL:https://ccieurope.eu/event/sexuality-intimacy-and-young-cancer-survivors/
LOCATION:Online Webinar
CATEGORIES:Event,Survivorship
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2024/07/image001.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20240629T160000
DTEND;TZID=Europe/Vienna:20240629T180000
DTSTAMP:20260418T215354
CREATED:20240617T134233Z
LAST-MODIFIED:20240617T140140Z
UID:6272-1719676800-1719684000@ccieurope.eu
SUMMARY:Survivor's Week Webinar: Childhood Cancer - Stigma and Communication
DESCRIPTION:Childhood cancer survival rates have been improving globally over recent decades. Researchers in this area highlight\, “Ongoing improvements in survival rates across high-income\, middle-income and low-income countries will result in a rapidly expanding population of survivors with unique health-care needs\, emphasizing the increasing relevance of issues relating to childhood cancer survivors globally.” (Ehrhardt et al. 2023). Young people who have survived cancer are a medically vulnerable population at higher risk for health and psychosocial issues throughout their lifetimes including\, for example\, challenges in mental health\, physical health\, education\, work\, or social integration in their communities. However\, many young people who have survived childhood cancer have meaningful and productive lives with support from family\, community\, and peers. CCI and SIOP offer an annual 2-hour webinar on Childhood Cancer Survivorship to bring together professionals and young people who have been treated for cancer to highlight challenges and successes in this global topic. This year’s theme is Childhood Cancer Stigma and Communication (the language and words we use when speaking about childhood cancer). Join us on June 29\, 2024\, to celebrate cancer survival month (June) and all who have completed treatment worldwide. \nAbout the Speakers: \nYamini Krishnan \nPediatric oncologist\, Head of Paediatric Hematology Oncology and BMT unit at MVR Cancer Centre and Research Institute\, Kerala·MVR Cancer Centre and Research Institute\, Calicut\, Kerala\, India \n\nHead\, Paediatric Haematology Oncology and BMT unit at the MVR Cancer Centre and Research Institute\, Calicut\, Kerala\, India . Chair\, Neuroblastoma subcommittee of INPHOG; the research organisation of the Paediatric haematology oncology chapter of the Indian Academy of Paediatrics. Co Chair of the Protocols and Clinical Trials sub committee of the Indian childhood cancer Initiative(ICCi)\, working for the improvement of the care of children with cancer in India. Involved in the advisory committee of various Non governmental organisations. Though my clinical interests lie in the field of paediatric oncology \, I am very much interested in studying the social aspects in the lives of children affected with cancer and mitigating the barriers associated with the reintegration process of our children into the society. \n\n\nMara Ayala \nIMAGINA Pediatric Psycho-Oncology\, Mexico \n\nMara Ayala\, PhD is the founder and director of IMAGINA Pediatric Psycho-Oncology\, a nonprofit in Aguascalientes\, Mexico\, tending to the psychosocial needs of patients and their families. She also created the Integrative Extra- and Intra-Hospital Psycho-Oncological Intervention Model (MIPPEIH)\, now integral to the institution’s operations. \nAnna Sonkin \nPhysician·St. Jude Children’s Research Hospital \n\nAnna Sonkin\, MD\, is a parent of a pediatric cancer survivor and a pediatrician and palliative care physician currently working at St. Jude Children’s Research Hospital. She also specializes in clinical communication skills education. Until 2022\, she lived and worked in Russia and now lives in New York \nCriss Koba Mjumbe \nProfessor·University of Lubumbashi \n\nHe is a public health expert and associate professor at the University of Lubumbashi. Specialized in studies of QALYs (Quality-Adjusted Life Year) and DALYs (Disability-Adjusted Life Year) and Cancer Costs in Africa. Of Congolese origin\, he studied medicine in Lubumbashi. Member of the GFAOP and SIOP international \n\nManar El Mountaqi \n\nMy name is Manar\, and I am a 24-year-old medical student living in Rabat\, Morocco’s capital\, it’s a very beautiful city\, it’s a blend of historic charm and modern elegance\, featuring stunning coastal views . My journey into the field of medicine has been deeply personal. At the age of 10\, I was diagnosed with Hodgkin lymphoma. Inspired by the care and dedication of the medical professionals who treated me\, I decided to pursue a career in medicine. Now\, as a medical student\, I am committed to making a difference in the lives of my future patients\, and to support and heal those in need. \n\nRacha Hajjar \n\nMy name is Racha Hajjar (29 years old) and I work as a volunteer coordinator at the Cedars Cancer Center in Montreal. I have a bachelor’s degree in interior architecture as well as a master’s degree in social work. When I was 9 years old\, I was diagnosed with leukemia. I was treated at the Children’s Cancer Center of Lebanon (CCCL) for four long years. My cancer journey has made me the strong person I am today. \n\n\n\n\n\n\n\nregister here
URL:https://ccieurope.eu/event/survivors-week-webinar-childhood-cancer-stigma-and-communication/
LOCATION:Online Webinar
CATEGORIES:Event,Survivorship
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2024/06/childhood_cancer_survivors_week_stigma_communication.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20240627T123000
DTEND;TZID=Europe/Vienna:20240628T170000
DTSTAMP:20260418T215354
CREATED:20240625T150100Z
LAST-MODIFIED:20240625T150100Z
UID:6297-1719491400-1719594000@ccieurope.eu
SUMMARY:Surviving Survival – Symposium on mental health of Youth Cancer Survivors
DESCRIPTION:EN 📣 Surviving Survival – Symposium on mental health of Youth Cancer Survivors \nOn 27 June\, a health policy symposium (in German) on “Surviving Survival: How can we improve psychosocial health after childhood\, adolescent and young adult cancer?” will take place in Vienna\, organized by CCI Europe as part of the EU-CAYAS-NET project. \n🗨️ For the first time in German speaking countries\, we will present relevant EU-CAYAS-NET project results to health policy makers\, stakeholders and media representatives\, draw attention to the needs of young survivors 🎗️ and discuss what types of psychological\, social and educational support are missing after cancer in childhood\, adolescence and young adulthood in Austria! 🙌🏻 \nThis will be followed by an interactive patient advocacy training for German-speaking survivors and/or their family members from all over Europe on June 28th! 💪🏻 \nAre you a German speaking survivor/family member\, interested in targeted patient advocacy training and want to learn how to best implement our goals? \nThen register with the button below\, we look forward to seeing you! If you have any questions\, please contact Hannah at h.gsell@ccieurope.eu. \n—– \n🇩🇪 📣 Surviving Survival – Symposium zur mentalen Gesundheit nach Kindekrebs \nAm 27. Juni findet in Wien ein deutschsprachiges gesundheitspolitisches Symposium statt zum Thema “Surviving Survival: Wie können wir die psychosoziale Gesundheit nach Krebs im Kindes-\, Jugend- und jungen Erwachsenenalter verbessern?”\, veranstaltet von CCI Europe im Rahmen des EU-CAYAS-NET Projekts. \n🗨️ Wir präsentieren erstmals im Deutschsprachigen Raum gesundheitspolitischen Entscheidungsträger:innen\, Interessensvertreter:innen und Medienvertreter:innen relevante EU-CAYAS-NET Projektergebnisse\, machen auf die Bedürfnisse junger Survivors 🎗️aufmerksam und diskutieren\, welche Arten von dringend notwendiger psychologischer\, sozialer und edukativer Unterstützung nach einer Krebserkrankung im Kindes-\, Jugend- und jungen Erwachsenenalter in Österreich fehlen! 🙌🏻 \nIm Anschluss daran findet am 28. Juni eine interaktive Advocacy-Schulung für deutschsprachige Survivors und deren Familien aus ganz Europa statt! 💪🏻 \nDu bist ein deutschsprachiger Survivor/Familienmitglied\, interessierst dich für gezieltes Advocacy Training und möchtest lernen\, wie unsere Ziele bestmöglich umgesetzt werden können? \nWir freuen uns auf dich! Bei Fragen wende dich gerne an Hannah unter h.gsell@ccieurope.eu. \nregister here
URL:https://ccieurope.eu/event/surviving-survival-symposium-on-mental-health-of-youth-cancer-survivors/
LOCATION:Vienna\, Austria
CATEGORIES:Event,Survivorship
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2024/06/EU-CAYAS-NET_event-visuals_OSymposium_Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20240620T160000
DTEND;TZID=Europe/Vienna:20240620T173000
DTSTAMP:20260418T215354
CREATED:20240606T090213Z
LAST-MODIFIED:20240606T090536Z
UID:6211-1718899200-1718904600@ccieurope.eu
SUMMARY:Specialist Adolescent and Young Adults Units Minimum Standards
DESCRIPTION:What to Expect: \n\nExpert Speakers: Hear from leading experts in the field who will share their knowledge and experiences.\nPanel discussion: Hear diverse perspectives from healthcare professionals\, patient representatives\, and young cancer survivors.\nResources and Support: Gain access to the position paper and implementation guidelines that support adolescents and young adults.\n\n  \nAgenda: \n\nOverview of the Project’s Work Package 4 AYA Care: Learn more about the EU-CAYAS-NET cofounded project\nPatient perspective: Patient talking about what practices already exist and what still needs to be changed.\nFocus on Recommendations: Discuss the “Specialist AYA Units Minimum Standards” position paper.\nImplementation: Healthcare professionals talking about what standards already exist and what still needs to be implemented.\n\n  \nWhy Attend? \n\nLatest Research and Trends: Learn about the latest research and trends affecting young adults.\nCommunity Connection: Connect with a community of individuals who share your interests and concerns.\n\nWhether you are a young adult\, a caregiver\, or a professional working with this age group\, this webinar will provide valuable insights and resources. \n  \n\nregister here
URL:https://ccieurope.eu/event/equity-diversity-and-inclusion-edi-principles-in-cancer-care-training-event-for-researchers-healthcare-providers-and-patient-communities-2/
LOCATION:Online Webinar
CATEGORIES:Event,Survivorship
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2024/06/eucayasnet_cci_europe_childhood_cancer_survivors.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20240603T170000
DTEND;TZID=Europe/Vienna:20240603T183000
DTSTAMP:20260418T215354
CREATED:20240412T083437Z
LAST-MODIFIED:20241211T004822Z
UID:5875-1717434000-1717439400@ccieurope.eu
SUMMARY:Advance Your Knowledge: Drug Regulations - What is new for the childhood cancer community?
DESCRIPTION:In this webinar\, the participants will learn from our experts about any new developments in the Pharmaceutical Package. The European Parliament is set to adopt its formal position on the revision of the orphan and paediatric regulations this April and the Council has already started its internal discussions. Teresa and Marine will give us an update and let us know about any new developments on the file\, as well as our priorities and achievements in our continuous advocacy efforts to meet with members of the European Parliament and Council representatives. \n\nAbout the Speakers: \nTeresa Pais\nTeresa Pais is an EU public affairs specialist; she worked as parliamentary assistant to a member of the European Parliament\, in a trade association and consultancies in the healthcare sector. She graduated in Law and has a Master’s degree in European affairs. \n\nMarine Gouders\nMarine Gouders\, member of the CCI Europe Office\, studied law and specialised in European law. After graduating\, she did an internship at the European Parliament\, where she discovered the workings of the European institutions. For the past year\, she has been working in the European Affairs Pillar. \n\n\n\nDelphine Heenen\nDelphine Heenen is a CCI Europe board member and the founder\, director and day-to-day manager of KickCancer in Belgium. Delphine was successively a lawyer\, a strategy consultant and active in the investment world of renewable energy. Currently\, she is the leader of the EU affairs pillar and a member of the R&I Pillar. \n\n\n\nregister here
URL:https://ccieurope.eu/event/drug-regulations-childhood-whats-new-for-the-cancer-community/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2024/04/Gold_Webinar_EU_Affairs.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20240603T090000
DTEND;TZID=Europe/Vienna:20240612T170000
DTSTAMP:20260418T215354
CREATED:20240503T115511Z
LAST-MODIFIED:20240503T115511Z
UID:6003-1717405200-1718211600@ccieurope.eu
SUMMARY:Equity\, Diversity and Inclusion (EDI) principles in Cancer Care: Training event for researchers\, healthcare providers and patient communities
DESCRIPTION:What is “Equity\, Diversity and Inclusion in Cancer Care” training about?  \nDiscover and develop key skills in our engaging training program: \n\nCultural awareness\nRecognizing inequality\nInclusive communication\nCreating a safe environment\nSupporting families and empowering patients\nAddressing discrimination\nComprehensive needs assessment\nInclusive research techniques\nEffective advocacy\, and more!\n\nThe training event and toolkit launch for equitable\, inclusive\, and diverse cancer care\, organized by Youth Cancer Europe and Inclusive Employers Ltd. as part of the EU co-funded EU-CAYAS-NET project\, will take place in Cluj-Napoca\, Romania from June 3 to June 12\, 2024. Successful applicants will enjoy full expense coverage of travel\, accommodation\, and on-site meals. \nThe face-to-face training targets three distinct audiences and will feature the following sessions: \n\n3 – 6 June \n6 – 9 June \n9 – 12 June \n\nInterested participants are invited to complete the Expression of Interest form below. If the form doesn’t work please use this link: https://forms.gle/emSjoeeVn1hbDn9EA \nFor more information please contact Victor Gîrbu at victor@youthcancereurope.org \n\n\nInterested participants are invited to complete the Expression of Interest form below by May 5\, 2024.\n\n\n\nregister here
URL:https://ccieurope.eu/event/equity-diversity-and-inclusion-edi-principles-in-cancer-care-training-event-for-researchers-healthcare-providers-and-patient-communities/
LOCATION:Cluj Napoca\, Romania
CATEGORIES:Event,Projects
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2024/05/eucayasnet-dei-training-ccieurope.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20240521T170000
DTEND;TZID=Europe/Vienna:20240521T183000
DTSTAMP:20260418T215354
CREATED:20231229T090400Z
LAST-MODIFIED:20240419T095443Z
UID:5241-1716310800-1716316200@ccieurope.eu
SUMMARY:Webinar: Navigating Transitions in Cancer Care - Treatment and Survivorship
DESCRIPTION:Join us for an insightful webinar hosted by the European Network of Youth Cancer Survivors\, dedicated to guiding youth cancer survivors through critical transitions in their healthcare journey. Transitioning from treatment to follow-up care and from pediatric to adult healthcare systems can present unique challenges for young survivors. \nThis webinar aims to share essential knowledge\, tools\, and strategies to navigate these transitions successfully. Experts in pediatric oncology\, survivorship care\, and transitional healthcare will provide valuable insights into the complexities of transitioning from active treatment to survivorship\, emphasizing the importance of holistic care\, long-term follow-up\, and psychosocial support. \nAdditionally\, participants will gain a comprehensive understanding of the differences between pediatric and adult healthcare systems\, along with practical tips for advocating for their healthcare needs as they transition into adulthood. Whether you’re a young cancer survivor\, a parent\, caregiver\, healthcare professional\, or advocate\, this webinar offers invaluable resources and support to empower individuals in their transition journey towards a thriving survivorship. Don’t miss this opportunity to connect and learn\, and strengthen the European Network of Youth Cancer Survivors across Europe. \n\nregister here
URL:https://ccieurope.eu/event/webinar-navigating-transitions-in-cancer-care-treatment-and-survivorship/
LOCATION:Online Webinar
CATEGORIES:Event,Projects
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2023/12/Transition-of-care-for-childhood-adolescent-and-young-adult-cancer-survivors-care-transition-768x768-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240515
DTEND;VALUE=DATE:20240519
DTSTAMP:20260418T215354
CREATED:20231220T161814Z
LAST-MODIFIED:20231229T081525Z
UID:5218-1715731200-1716076799@ccieurope.eu
SUMMARY:14th CCI Europe Conference\, Milan
DESCRIPTION:CCI Europe will host its 14th CCI Europe Conference completely face to face from 15 to 18 May 2024 in Milan\, Italy. This event is once again organised in partnership with SIOP Europe\, and as a part of the SIOPE’s 5th Annual Meeting of the European Society for Paediatric Oncology. \nBased on the feedback from last year’s conference\, we decided to extend the 2024 CCI Europe Conference until Saturday\, May 18th in order to have additional time among the CCI Europe’s community. \nCCI Europe Conference is open to CCI members around the globe\, as well as for individual parent\, patient and survivor advocates\, wanting to listen to the interesting sessions we are preparing for you. Your unique registration will allow you to attend open sessions outside of CCI Europe Conference\, that are a part of SIOPE’s Annual Meeting. \nFind detailed information here: https://ccieurope.eu/cci-europe-conference-2024/
URL:https://ccieurope.eu/event/14th-cci-europe-conference-milan/
LOCATION:Milano Convention Centre Allianz Mico (North Wing)\, Via Gattamelata\, Entrance GATE 14\, Milan\, Italy
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2023/12/CCI-Europe-Conference-2024-banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20240430T170000
DTEND;TZID=Europe/Vienna:20240430T183000
DTSTAMP:20260418T215354
CREATED:20240419T115246Z
LAST-MODIFIED:20240419T115459Z
UID:5898-1714496400-1714501800@ccieurope.eu
SUMMARY:Webinar: Equity\, Diversity and Inclusion in Cancer Care
DESCRIPTION:What is “Equity\, Diversity and Inclusion in Cancer Care” webinar about?  \nImagine a world where every young person battling cancer has access to the best possible care\, regardless of background. This webinar will explore how the EU-CAYAS-NET project is trying to make this a reality. We’re talking about Equity\, Diversity\, and Inclusion (EDI) in cancer care! \nHere’s what you’ll learn: \n\nUnequal care – discover how our research is uncovering challenges faced by young cancer patients from different backgrounds.\nBuilding a better future – learn about key findings and recommendations to make cancer care more equitable.\nInsights from the experts – get highlights from a major policy event “Recommendations for Equitable\, Diverse and Inclusive Cancer Care in Europe” held at the European Parliament in Brussels where these issues were discussed.\n\nPlus\, there’s more! We’ll unveil our upcoming EDI Training sessions. The training program equips healthcare providers\, patient advocates\, and researchers with the tools they need to drive positive change. Through the Train-the-Trainer Toolkit\, participants will gain the knowledge\, skills\, and tools to become champions of EDI in their own fields. Imagine equipping others to create real\, positive change in cancer care! The webinar will wrap up with information on how to register for these exciting training sessions. \nWhether you’re a doctor\, advocate\, researcher\, or simply someone who cares\, this webinar is for you! Don’t miss this chance to learn\, connect\, and become part of the solution in creating a more equitable\, diverse and inclusive future for all those impacted by cancer. \n\nregister here
URL:https://ccieurope.eu/event/webinar-equity-diversity-and-inclusion-in-cancer-care/
LOCATION:Online Webinar
CATEGORIES:Event,Projects
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2024/04/edi.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20240422T170000
DTEND;TZID=Europe/Vienna:20240422T183000
DTSTAMP:20260418T215354
CREATED:20240411T113308Z
LAST-MODIFIED:20240422T124516Z
UID:5837-1713805200-1713810600@ccieurope.eu
SUMMARY:Know the Basics: How can I level up my patient advocacy?
DESCRIPTION:In this webinar\, the participants will learn about existing patient advocate trainings\, how they were developed\, how they were conducted and what they entail. \nWe will present ongoing and upcoming training opportunities for patient advocates hosted by organisations such as WECAN\, EUPATI\, KickCancer\, EURORDIS and CCI! \nParticipants are invited to use the Q&A session to present efforts from their countries or organisations. \n\nAbout the Speakers: \nLaia Bisbal Arnal\nLaia is the Open Classroom Coordinator of The European Patients’ Academy (EUPATI). EUPATI is a public-private and multi-stakeholder partnership that provides education and training to increase the capacity and capability of patients and patient representatives to understand and meaningfully contribute to medicines research and development (R&D). Laia has been working at EUPATI since 2022 in the coordination and development of the EUPATI Open Classroom\, the online training platform. She is also part of the Training Committee of the Patient Expert Training Programme\, a training programme that covers the entire life cycle of medicines R&D. Laia has a degree in Economics and a master’s degree in international cooperation\, human rights\, and social inclusion. Her professional background includes training design and facilitation\, consulting\, and project coordination in partnership with governmental and non-profit organizations.  \n\nRachel Butcher\nRachel rejoined EURORDIS in September 2022 as the Training Manager for the Open Academy programme\, which empowers patient advocates with knowledge and skills to take part in patient engagement roles side-by-side with all stakeholders and to advocate for rare diseases on a European and national level. She is responsible for the end-to-end organisation of training activities\, ensuring high-quality organisation and delivery of the various programmes proposed by the Open Academy. She has previously worked with EURORDIS in both the Events team\, mainly helping to organise ECRD 2018\, as well as with the Open Academy team as an assistant. Prior to rejoining EURORDIS as the Open Academy Training Manager\, she coordinated grassroot organisations helping refugees in Northern France. Rachel has an undergraduate degree in French and Psychology from Newcastle University in the UK and completed a Master in European Studies\, studying at King’s College London and Sciences Po Paris. She speaks English and French (and is learning Spanish!).  \nSara Dederichs\nSara draws from over 25 years of rich experience in leading\, training as well as mentoring diverse and multicultural teams towards defined joint goals. With a background in social psychology and new leadership methodologies\, Sara brings a unique perspective to her role as coordinator of the EPAI team and navigator of the EPAI project portfolio. Beyond her project management responsibilities\, Sara serves as the driving force behind the WECAN Secretariat and is a member of the WECAN Coordination team. She leverages her expertise in leadership and understanding of team dynamics to ensure the optimal use of team resources and foster collaboration\, leading to innovation and succesfull team outcomes. Sara is based in Germany\, was raised in Spain and is fluent in German\, English\, Spanish and has a basic level of understanding Catalan\, Portuguese and Italian. She has two adolescent daughters. \n\nAlice Gerbaux\nAlice has a diploma in economics. She started her career in sales for BIC and Nestlé and later became in charge of marketing and communication for a NGO active in the field of sustainable forests. In her day-to-day life at  KickCancer Alice is in charge of the defence of young patients with cancer\, and more specifically so by supervising a training that will help them become expert patient and by coordinating their participation in international and KickCancer’s internal projects. The final aim of Alice’s role at KickCancer is to ensure that research and the legal framework meet the needs of sick children and lead to more efficacious and less toxic treatments. \n\nRaluca Popa\nRaluca is the Global Programme Manager\, joining Childhood Cancer International at the beginning of this year. Prior to this\, Raluca was in charge of the programme coordination of the emergency response for Ukraine on behalf of the World Organisation of the Scout Movement. She has experience in coordinating international volunteering projects and capacity building programmes for NGOs. With a strong interest for education and lifelong learning\, she is a certified trainer focused on experiential learning and human rights. Raluca is a passionate person with a special heart for children.  \nregister here
URL:https://ccieurope.eu/event/know-the-basics-how-can-i-level-up-my-patient-advocacy/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2024/04/Gold_webinar_cci_europe_patient_advocacy_banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20240326T170000
DTEND;TZID=Europe/Vienna:20240326T183000
DTSTAMP:20260418T215354
CREATED:20240312T142856Z
LAST-MODIFIED:20240312T142856Z
UID:5735-1711472400-1711477800@ccieurope.eu
SUMMARY:Webinar: Long-Term Survivorship Care: Navigating Fertility and Intimacy Challenges
DESCRIPTION:Many childhood\, adolescent or young-adult cancer survivors are facing fertility and intimacy problems due to cancer treatment. How can long-term survivorship care be of help to navigate these challenges? Join the webinar organized by PanCare and hosted by the EU-CAYAS-NET on the 26th of March. Various speakers will share their knowledge and lived experience with these topics. \nThis webinar will give an in-depth overview of the impact which CAYA cancer treatment could potentially have on fertility and intimacy issues for survivors. How can survivors cope with these challenges? What issues arise when it comes to self love\, body image and (intimate) relationships? And how can we as a community of survivors and health care professionals be of support to those who go through feelings of uncertainty\, loss\, hope and resilience? \nSpeakers who will contribute during this webinar are long-term survivorship care specialist Dr. Helena van der Pal\, gynecologist Simone Broer\, nurse practitioner and oncofertility specialist Irene IJgosse  and  Iris Wilmink and Lon van Keulen\, who are both survivors and each other’s life partner. The webinar will be hosted by hematologist/oncologist Prof. Dr. Med. Katrin Scheinneman who is also the chair of the PanCare board. \nWe would like to hear your experiences and perspectives on these topics. We invite survivors and their close ones\, healthcare professionals\, researchers\, and anyone interested in these topics to attend this webinar. \n\nregister here
URL:https://ccieurope.eu/event/webinar-long-term-survivorship-care-navigating-fertility-and-intimacy-challenges/
LOCATION:Online Webinar
CATEGORIES:Event,Projects
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2024/03/long-term-survivorship-care-navigating-fertility-and-intimacy-after-cancer-2048x2048-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240308
DTEND;VALUE=DATE:20240310
DTSTAMP:20260418T215354
CREATED:20231206T155854Z
LAST-MODIFIED:20231206T155910Z
UID:5106-1709856000-1710028799@ccieurope.eu
SUMMARY:Living Beyond Cancer: Late Effects and Survivorship Care Online Course
DESCRIPTION:“Cure is not enough” – in 1975 Giulio J. D’Angio had the vision of childhood and adolescent cancer survivors and their long-term follow-up care. \nWith around 80 % survival of childhood and adolescent cancer\, around 500\,000 survivors live in Europe today and the number is increasing. At least two-thirds experience long-term health-related challenges. What are the late physical and psychosocial effects? What are their risks and contributing factors? When and how to talk about them? \nThese are the questions we will address together during the meeting by implementing different perspectives from an inter- and multidisciplinary team of late effects specialists and patient advocates across Europe. \nELIGIBILITY CRITERIA \nThis course is open to European healthcare professionals and patient advocates with an interest and at the beginning of their professional career in Late Effects and Survivorship Care after childhood and adolescent cancer. Please see the course eligibility criteria here. \nACCREDITATION \nCME we will apply. \nApply here
URL:https://ccieurope.eu/event/living-beyond-cancer-late-effects-and-survivorship-care-online-course/
LOCATION:Online
CATEGORIES:Event
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2023/12/Course-2023-BANNER-1200x675-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20240213T170000
DTEND;TZID=Europe/Vienna:20240213T190000
DTSTAMP:20260418T215354
CREATED:20240123T124717Z
LAST-MODIFIED:20240201T142540Z
UID:5346-1707843600-1707850800@ccieurope.eu
SUMMARY:International Childhood Cancer Day 2024
DESCRIPTION:This 13 February Childhood Cancer International – Europe in partnership with SIOP Europe \, has the pleasure to invite you to the International Childhood Cancer Day 2024 Event in the EU Parliament with the title: “Launching the European Paediatric Cancer Community Manifesto: Cure More\, Cure Better and Tackle Inequalities”. The event will be hosted by MEP Stelios Kympouropoulos (EL\, EPP). \nThis edition of the annual ICCD meeting will officially launch the European Elections 2024 Manifesto of the paediatric haematology-oncology community and foster a multi-stakeholder discussion on how to Cure More\, Cure Better and Tackle Inequalities. \nFind the preliminary programme here: \nDraft ProgrammeThe panel discussion will focus on inequalities in childhood cancer across Europe\, breaking down the topic in three sections on equal access to high quality care\, equal access to research and innovation and equal access to data. Furthermore\, outcomes of the OCEAN project\, which mapped the organisation of care and research in Europe to provide an overview of the paediatric cancer centres that deliver care and research for children and adolescents with cancer across Europe\, will be highlighted. \nThis year’s edition of the International Childhood Cancer Day event is particularly exciting as CCI-E and SIOPE will be presenting their manifesto for the 2024 European elections (happening in June 2024) at the European Parliament. The aim is to increase the visibility of the childhood cancer community’s priorities and policy asks for the next mandate (2024-2029)\, to current and potentially incoming Members of the European Parliament and other policymakers\, such as the European Commission and Council.” \nThe Event will bring together experts from academia\, patient advocates\, policymakers\, and other stakeholders to drive conversations and actionable strategies toward curing paediatric cancer in Europe. The call to action directed towards MEPs will urge their support in policy changes\, resource allocation\, and collaborative efforts necessary to address the multifaceted challenges of paediatric cancer. The launch of the manifesto will mark a pivotal moment to catalyse change\, emphasizing the urgency of uniting efforts and resources to combat paediatric cancer and improve the lives of affected children and their families throughout Europe. \nWe are looking forward to your seeing you in the European Parliament for the ICCD 2024 Event on the 13th of February to launch the European Childhood Cancer Community Manifesto for the upcoming EU Elections! \nFor more information and to stay updated visit our ICCD 2024 Event website \nRegistration for in-person participation in BrusselsRegistration for participation online will come soon.
URL:https://ccieurope.eu/event/international-childhood-cancer-day-2024/
LOCATION:Hybrid
CATEGORIES:EU Affairs,Event
ATTACH;FMTTYPE=image/jpeg:https://ccieurope.eu/wp-content/uploads/2024/01/Speaker-Invitation_ICCD_2024_MEP-Tudor-Ciuhodaru.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240208
DTEND;VALUE=DATE:20240210
DTSTAMP:20260418T215354
CREATED:20231229T091619Z
LAST-MODIFIED:20231229T091619Z
UID:5244-1707350400-1707523199@ccieurope.eu
SUMMARY:ACCELERATE 2024 Paediatric Oncology Conference
DESCRIPTION:The ACCELERATE Annual Conference offers the perfect opportunity for discussion\, knowledge-sharing\, networking and engagement with our international\, multi-stakeholder community! \nSpeakers present and discuss clinical/preclinical pediatric oncology research\, evolutions in the regulatory landscape worldwide\, and other key challenges in the path toward accelerating the development of new and more innovative therapies for children and adolescents with cancer. ACCELERATE work progress is monitored\, proposals are agreed and launched (new working groups\, scientific publications\, etc.)\, and new challenges are identified. \nDuring the previous editions\, new features have been introduced to make the event even more interactive and engaging for our participants! Breakout sessions on emerging\, hot topics are addressed in focused groups to define concrete actions stemming from the discussion. \n\n\n\n\n\n\n\n\n\n\n\n\n\n\nThe event is hybrid: participants can join in Brussels or online. \n\n\n\n\n\n\n\nregister here
URL:https://ccieurope.eu/event/accelerate-2024-paediatric-oncology-conference/
LOCATION:Brussels\, Belgium
CATEGORIES:Event,R&I
ATTACH;FMTTYPE=image/webp:https://ccieurope.eu/wp-content/uploads/2023/12/12thACBanner-e360d4d8-1920w.webp
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BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20240205T170000
DTEND;TZID=Europe/Vienna:20240205T183000
DTSTAMP:20260418T215354
CREATED:20240123T152214Z
LAST-MODIFIED:20240123T152517Z
UID:5357-1707152400-1707157800@ccieurope.eu
SUMMARY:Know the basics: ICCD Campaign 2024 - Kick Off!
DESCRIPTION:In this webinar\, CCI Europe will present to the participants the upcoming 3-years global ICCD Campaign “Equal Access To Care” and will focus on how member organisations can actively contribute to year 1 of the campaign with the motto: “Unveiling Challenges”. \nThe Campaign Toolkit will be presented so that member organisations can share and promote the campaign in their countries. In year 1\, everyone affected by childhood cancer is invited to go to the ICCD-platform and submit a digital postcard with the challenges and inequalities they face in their country related to childhood cancer. The postcard will then show up on an interactive\, virtual world map. The objective for year 1 is to raise awareness about the global challenges and inequalities. \nThe aim of this Gold Webinar is to mobilize CCI Europe member organisations for broad and active participation in the campaign. \n\n\nAbout the Speakers: \n\nAnne Goeres\nAnne is managing director at the Fondatioun Kriibskrank Kanner\, national foundation for children with cancer in Luxembourg for 15 years and Committee member of CCI Europe. Anne holds a master’s degree in communications\, more specifically in political and financial communications\, as is therefore the lead of CCI Europe’s Communication Pillar. Anne is a founding board member of Don en Confiance Luxembourg (transparency donations)\, of Ile aux clowns (hospital clowns) and of the National Cancer Institute in Luxembourg representing young cancer patients. Together with two other organisations\, she created Fight Kids Cancer\, an innovative annual call for paediatric cancer research projects. \n\nCarina Schneider\nCarina was diagnosed with Ewing’s Sarcoma at the age of 17 and she’s today a passionate patient advocate\, . Experiencing the lack of adequate long-term follow-up care\, she became active in patient advocacy in 2009. In 2017\, she was part of the group of survivor-representatives from across Europe who launched the survivors-network within CCI Europe. Later that year\, she joined the CCI Europe Committee.\nCarina is a psychology graduate and has worked in paediatric oncology since 2013\, first in the Austrian Childhood Cancer Organisation as project manager and later at the Medical University of Vienna as research coordinator in the psychosocial team of the Paediatric Neurooncology Department. In January 2022\, she became CCI Europe’s Managing Director and works\, together with a committed team\, dedicated Committee Members and patient advocates from all over Europe for a better future for children\, adolescents and young adults\, as well as their families\, who are affected by cancer. \n\nregister here
URL:https://ccieurope.eu/event/know-the-basics-iccd-campaign-kick-off/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars
ATTACH;FMTTYPE=image/jpeg:https://ccieurope.eu/wp-content/uploads/2024/01/goldWebinarICCD2024.jpg
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BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20240131T140000
DTEND;TZID=Europe/Vienna:20240131T171500
DTSTAMP:20260418T215354
CREATED:20231229T083617Z
LAST-MODIFIED:20240201T142707Z
UID:5229-1706709600-1706721300@ccieurope.eu
SUMMARY:Europe’s Beating Cancer Plan: Joining Forces
DESCRIPTION:Changing the realities of cancer is one of the main priorities of the European Commission in the health domain. Three years after the adoption of Europe’s Beating Cancer Plan\, Stella Kyriakides\, European Commissioner for Health and Food Safety\, will host a high-level event to take stock of Europe’s efforts to improve the lives of everyone touched by cancer and to take the lead in the fight against this disease. \nDuring this meeting\, CCI Europe Managing Director\, Carina Schneider\, will present the EU-CAYAS-NET project. \nThis is an hybrid event: participants can join in Brussels\, at the European Commission building (Charlemagne building\, European Commission\, 170 Rue de la Loi\, 1040 Brussels\, Belgium) or online. \nRegistration deadline: January 24\, 2024 \nREGISTER HEREREAD THE draft agenda
URL:https://ccieurope.eu/event/europes-beating-cancer-plan-joining-forces/
LOCATION:Brussels\, Belgium
CATEGORIES:EU Affairs,Event
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2023/12/event_banner_b07d9cc5bb22f8089814ff0ca337c636.png
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BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20240130T170000
DTEND;TZID=Europe/Vienna:20240130T183000
DTSTAMP:20260418T215354
CREATED:20231229T085608Z
LAST-MODIFIED:20231229T085829Z
UID:5237-1706634000-1706639400@ccieurope.eu
SUMMARY:Webinar: Surviving CAYA Cancer - Addressing Late Effects on Long-Term Follow-Up Care
DESCRIPTION:Once the cancer treatment has been completed\, on the one hand\, it feels like a big burden is taken off – but on the other hand\, CAYA Cancer Survivors often still have to deal with numerous late effects. The broad topic of long-term follow-up care will be addressed in the 6th Webinar. \nImportant topics in long-term follow-up care such as fatigue\, fertility\, and neuropsychological therapy will be discussed\, as well as the initial results of a corresponding survey\, a focus group\, and peer visits within the EU-CAYAS-NET project\, which aimed to identify the current situation\, gaps and visions for the future. \nregister here
URL:https://ccieurope.eu/event/webinar-surviving-caya-cancer-addressing-late-effects-on-long-term-follow-up-care/
LOCATION:Online Webinar
CATEGORIES:Event,Projects
ATTACH;FMTTYPE=image/webp:https://ccieurope.eu/wp-content/uploads/2023/12/Long-term-follow-up-care-for-cancer-patients-and-survivors-webinar-2048x2048-1.webp
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BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20231207T170000
DTEND;TZID=Europe/Vienna:20231207T183000
DTSTAMP:20260418T215354
CREATED:20231107T135836Z
LAST-MODIFIED:20231107T140855Z
UID:4876-1701968400-1701973800@ccieurope.eu
SUMMARY:CCI Europe's Peer to Peer Knowledge Exchange Workshop
DESCRIPTION:In this workshop\, Research & Innovation patient advocates will share their knowledge with other patient advocates in Europe\, but also offer them advices during the journey of learning. \nIt is a unique opportunity to learn about the importance of patient involvement in research and innovation on a national and European level. Furthermore\, there will be room for discussion\, where you are invited to share your experience on patient involvement in Research and Innovation and your opinion on what is needed to successfully participate as a patient advocate in research initiatives. \nThis workshop is organised by the CCI Europe’s Research and Innovation Pillar. \nregister here
URL:https://ccieurope.eu/event/cci-europes-peer-to-peer-knowledge-exchange-workshop/
LOCATION:Online
CATEGORIES:Event,R&I
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2023/11/Research-Innovation-Workshop-with-the-funding-logo.png
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BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20231128T170000
DTEND;TZID=Europe/Vienna:20231128T183000
DTSTAMP:20260418T215354
CREATED:20231113T085749Z
LAST-MODIFIED:20231113T090205Z
UID:4881-1701190800-1701196200@ccieurope.eu
SUMMARY:Webinar: The Social Challenges in Follow-Up Care
DESCRIPTION:Cancer in childhood or adolescence affects not only the patient but the whole family. To make this drastic phase in life as bearable as possible\, multidisciplinary cooperation is a precondition. In addition to optimal medical and psychological care\, social support is also a very important pillar during the treatment period. \nPhysical\, psychological and social problems can occur not only during intensive treatment\, but also years later. The number of late effects increases the longer the oncological disease and treatment occurred. These can vary depending on the type of tumor and treatment. Besides the medical late effects\, a wide range of psychosocial problems can also arise and make everyday life even more difficult for patients and their relatives.  Looking at the social dimension\, it has been documented that AYAs have a significant risk of becoming unemployed in adulthood and having to claim social benefits. Similarly\, Survivors have to fight with an increased risk of living a dependent life\, difficulty establishing/maintaining social relationships\, less likely to be married/partnered and in a worse economic situation compared to peers. Many reasons to give this important topic a stage. \nJoin us for an exciting webinar on “Social challenges in Follow-Up care“. Great speakers from different countries will talk about the most important aspects regarding social challenges\, like „The right to be forgotten“ and „Social isolation“.  A social work expert and a Patient Advocate will tell us what benefits families are entitled to and how this is related to the residence permit. \nTherefore\, the webinar is intended for anyone involved with the topic: survivors\, their families and friends\, health care professionals\, and anyone interested. \nregister here
URL:https://ccieurope.eu/event/webinar-the-social-challenges-in-follow-up-care/
LOCATION:Online Webinar
CATEGORIES:Event,Projects
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2023/11/Webinarbanner_Social-challenges-1.653770733f7504.89351607.png
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20231115
DTEND;VALUE=DATE:20231117
DTSTAMP:20260418T215354
CREATED:20231017T113619Z
LAST-MODIFIED:20231017T113619Z
UID:4845-1700006400-1700179199@ccieurope.eu
SUMMARY:European Cancer Summit 2023 - Accelerating Momentum: A manifesto to 2030
DESCRIPTION:This Summit is special\, and it’s reflected in the slogan. \n‘Accelerating Momentum’ highlights our impatience. The EU’s Beating Cancer Plan is the opportunity of a lifetime. We’re already implementing a variety of new projects to better care for cancer patients and survivors.  But\, together\, we need to do much more – and much more quickly. The current EU Parliament comes to an end next year. \n‘A manifesto… ‘ refers to a detailed list of cancer care priorities and proposals compiled by the European Cancer Organisation from input received from its member societies and patient groups. The manifesto will be unveiled at the Summit\, and we need to ensure every candidate standing in next year’s European Parliamentary elections subscribes to this roadmap. \n‘…to 2030’… We cannot afford to wait. Cancer doesn’t. We need to set clear deadlines for tangible progress. \nIf ever there was a time and a place to rally the European cancer community – this is it! \nregister here
URL:https://ccieurope.eu/event/eco-summit-2023/
LOCATION:Brussels\, Belgium
CATEGORIES:Event
ATTACH;FMTTYPE=image/jpeg:https://ccieurope.eu/wp-content/uploads/2023/10/ECO-summit2023.jpg
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END:VCALENDAR