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DTSTART;VALUE=DATE:20260915
DTEND;VALUE=DATE:20260919
DTSTAMP:20260211T160304Z
CREATED:20260211T160044Z
LAST-MODIFIED:20260211T160304Z
UID:7878-1789430400-1789775999@ccieurope.eu
SUMMARY:Childhood Cancer International - Annual Conference 2026
DESCRIPTION:Join us in historic San Antonio for the 32nd CCI Annual International Conference! Hosted in San Antonio\, Texas\, the conference will unite people with lived experience of childhood cancer (including survivors\, parents\, and patient advocates)\, together with civil society organisations\, healthcare professionals\, and multidisciplinary care teams from across the globe. The meeting offers a unique space to connect\, share perspectives\, and foster partnerships that advance advocacy and improve outcomes for children and adolescents with cancer. \n\n\n\n\n\n\n\n\nThe conference will once again be organised in conjunction with SIOP as a part of the SIOP Congress. \n\n\n\n\nConference Dates\nSeptember 15-18\, 2026 \nImportant Dates \n\nMarch 17\, 2026 – Abstract Submission Deadline\nJune 23\, 2026 – Early Registration Deadline\nAugust 18\, 2026 – Late Breaking Abstract Submission Deadline\nSeptember 15-18\, 2026 – CCI Annual Conference 2025\n\nVenue\nHenry B. González Convention Center\nAddress: 900 E Market St\, San Antonio\, TX 78205\, USA\nWebsite: http://www.sahbgcc.com/ \n​Language\nThe official language of the CCI Annual Conference  is English. \nStipends\nEvery year Childhood Cancer International makes available a limited amount of funding to cover the participation of delegates from CCI member organisations. This is both from CCI general funds as well as funding offered by member organisations who have the desire to assist parents or survivors attend a conference by donating to the Parents Helping Parents Fund (PHP Fund) or through their existing twinning relationships. More information and how to apply for a stipend coming soon. \nREGISTER HERE
URL:https://ccieurope.eu/event/childhood-cancer-international-annual-conference-2026/
LOCATION:Henry B. González Convention Center\, 900 E Market St\, San Antonio\, TX\, 78205\, United States
CATEGORIES:Event
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2026/02/CCI-SIOP-2026-08.png
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BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20261102T170000
DTEND;TZID=Europe/Vienna:20261102T183000
DTSTAMP:20261102T135038Z
CREATED:20261007T155716Z
LAST-MODIFIED:20261102T135038Z
UID:8851-1793638800-1793644200@ccieurope.eu
SUMMARY:Advance Your Knowledge: From European Standards to National Change
DESCRIPTION:About the webinar: \nExploring the real-world impact of the European Standards of Care for Children & Adolescents with Cancer  and their potential to shape national policy\, services and patient advocacy! \nThe Standards are there. But what happens next? \nJoin our Gold Webinar to explore how the European Standards of Care are being used – and could be used to drive change at national level. \nGeorgia Kokkinou (CCI Europe) and Maria Otth (SIOP Europe)\, will kick off the discussion with a brief introduction. They will be followed by a panel of CCI Europe members and healthcare professionals\, sharing national experiences of using the Standards for advocacy and implementation. \nHear what has worked\, what challenges remain\, and how we can turn European standards into national action. \nSpeakers: \nGeorgia Kokkinou\nVice president of Floga Parents Association of children with cancer\nGreece\nGeorgia Kokkinou is the current Treasurer of CCI\, Committee Member of CCI-Europe and Vice President of Floga\, Greece’s largest parents’ association supporting children with cancer and their families. Through her leadership with Floga\, she has worked to raise awareness of childhood cancer\, advocate for improved care\, and strengthen collaboration between families and healthcare professionals. As a bereaved mother herself\, she brings a deeply personal understanding to this work\, one that has shaped her dedication to families navigating childhood cancer\nShe is the co-founder of Red Owl PC\, a digital content company\, and holds university degrees in Business\, Finance and Translation. \nMaria Otth\nPediatric oncologist\, SIOP Europe\nSwitzerland\nMaria Otth is a pediatric oncologists and hematologist from Switzerland. Her main focus of clinical care\, research and expertise is survivorship care. She leads the long-term follow-up clinic in St. Gallen and Zurich. From research perspective\, her projects focus on improving survivorship care and quality of life in survivors. In this context\, also equal access to care\, in all its aspects\, are very important to her. Therefore\, she was one of the leaders and coordinators during the effort to update the European Standards of Care document. \nPanelists: \nLaura Diaco\nFIAGOP Board Member\nItaly\nLaura has been a Board Member of FIAGOP since 2022\, the Italian umbrella organization bringing together over 30 associations supporting children and adolescents with cancer and their families. She is also Vice President of Peter Pan\, a Rome-based association and FIAGOP member. She is the mother of a childhood leukemia survivor\, an experience that has shaped her involvement in childhood cancer advocacy. She is particularly interested in working together with parents and survivors to make sure their experiences and perspectives are heard and taken into account in decisions about childhood cancer care and policies in Italy. \nAna Lacerda\nChair of the Pediatric Department\, IPO Lisboa\nPortugal\nDr Lacerda is a Lisbon-based pediatric oncologist devoted to paediatric palliative care in Portugal. A Lisbon University Medical School graduate\, she completed her pediatric residency at NYU Medical Center. Her Palliative Care MSc at King’s College London/Cicely Saunders Institute earned her the 2014 Dame Cicely Saunders Prize for Academic Excellence. She chaired the EAPC Children and Young People Reference Group\, currently sits on its Board (2023-27)\, and in 2022 founded and to date chairs SIOPE’s Palliative Care Working Group. \nAlina Pătrăhău\nFounder & President\, Dăruiește Aripi Association\nRomania\nAlina Pătrăhău is the Founder and President of Dăruiește Aripi Association\, a Romanian nonprofit dedicated to improving survival and quality of life for children with cancer. Since founding the organization in 2013\, she has brought together healthcare professionals\, technology experts and community partners to improve access to care through home care programmes\, digital health solutions and hospital infrastructure. Her work focuses on building a coordinated care system around the needs of children and their families. \nZhorzheta Simeonova\nClinical Psychologist/Psychotherapist\, Association ‘Children with Oncohematological Deseases’\nBulgaria\nZhorzheta Simeonova is a clinical psychologist and psychotherapist giving psychosocial support for children undergoing cancer treatment\, childhood cancer survivors\, and their families\, including parents and siblings. Working in a hospital-based day care center and a recreational center for children and families after treatment\, she provides individual and group psychotherapy\, both in person and online. Both centers’ activities focus on emotional stabilization\, psychological well-being\, strengthening family resilience\, and supporting psychosocial reintegration after cancer treatment. Through a family-centered approach\, helps children and their loved ones navigate the emotional challenges of cancer\, recovery\, and life beyond treatment. \nHarun Šabić\nPatient/parent support\, Association Heart for kids with cancer\nBosnia & Herzegovina\nHarun Šabić is a cancer survivor from Bosnia and Herzegovina and serves as the Coordinator for Children’s and Youth Rights at the Association Heart for Kids with Cancer in Bosnia and Herzegovina. He is also a committee member of CCI Europe and an active patient advocate\, dedicated to representing the voices\, experiences\, and rights of children and young people affected by cancer. Through his personal experience and advocacy work\, Harun is committed to raising awareness\, strengthening patient representation\, and ensuring that the needs and perspectives of young people affected by cancer are heard in decisions that affect their lives. \nregister here
URL:https://ccieurope.eu/event/from-european-standards-to-national-change/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2026/10/2026-Gold-Webinar-Event-Banners-scaled.png
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BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20261105T180000
DTEND;TZID=Europe/Vienna:20261105T193000
DTSTAMP:20261023T094148Z
CREATED:20261023T094148Z
LAST-MODIFIED:20261023T094148Z
UID:8895-1793901600-1793907000@ccieurope.eu
SUMMARY:Advancing AYA Cancer Care and Support Globally: Charting the Way Forward?
DESCRIPTION:Be part of a global conversation to understand and improve adolescent and young adult (AYA) cancer care\, for which diagnoses are up 79% since the 1990s.\nJoin to explore innovations\, challenges and opportunities to improve AYA cancer care globally. \nOn November 5 at 18:00-19:30 CET\, a global conversation exploring innovations\, challenges and opportunities to improve AYA cancer care globally. \nPresenting partners: Anew Research Collaborative\, Teenage Cancer Trust UK\, University of Leeds\, MNJ Institute of Oncology Hyderabad\, Young Adult Cancer Canada\, the Netherlands Cancer Institute\, and more. \nQuestions? hello@anewresearch.ca
URL:https://ccieurope.eu/event/advancing-aya-cancer-care-and-support-globally-charting-the-way-forward/
LOCATION:Online
CATEGORIES:Survivorship
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2026/10/London-cancer-week_aya-session.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20261118T170000
DTEND;TZID=Europe/Amsterdam:20261118T183000
DTSTAMP:20261020T144139Z
CREATED:20261020T144139Z
LAST-MODIFIED:20261020T144139Z
UID:8881-1795021200-1795026600@ccieurope.eu
SUMMARY:#QualityofLife Webinar Series: Rebuilding Life\, Identity and Energy after Cancer Treatment
DESCRIPTION:About the #QualityofLife Webinar Series\n\nThe YARN #QualityofLife Webinar Series brings together the expertise and activities of Work Package 2 and Work Package 3 of the project to create one shared space for learning\, discussion\, and support around life during and after cancer. Through expert insights and real-life experiences\, the webinars explore topics like late effects\, healthy living\, mental well-being\, and survivorship\, helping young people affected by cancer feel informed\, supported\, and connected.\nREGISTER HERE
URL:https://ccieurope.eu/event/qualityoflife-webinar-series-rebuilding-life-identity-and-energy-after-cancer-treatment/
LOCATION:Online
CATEGORIES:Event,Projects,Survivorship
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2026/02/cci_europe_yarn_qualityoflife_webinars_eu_project.png
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BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20261130T150000
DTEND;TZID=Europe/Amsterdam:20261130T160000
DTSTAMP:20261028T160642Z
CREATED:20261028T160642Z
LAST-MODIFIED:20261028T160642Z
UID:8903-1796050800-1796054400@ccieurope.eu
SUMMARY:Introducing UNIFIED: Measuring What Matters to Patients
DESCRIPTION:About the webinar  \n\nHow do we measure the outcomes that genuinely matter to patients\, and how can digital health technologies help us do it? \nUNIFIED is a five-year public–private partnership\, funded by the Innovative Health Initiative\, developing a unifying framework for patient-centred clinical-study endpoints derived from digital health technologies. The project brings together three fields that have largely developed in parallel: patient preference information (PPI)\, clinical outcome assessments (COAs)\, and digital health technology-derived measures (DHTMs). It then tests the resulting approach across six use cases in five medical domains\, namely paediatric radiation oncology (patients and survivors)\, lung cancer\, Parkinson’s disease\, obesity\, and juvenile idiopathic arthritis. \nThis session opens the UNIFIED webinar series. In one hour\, you will hear: \n\nThe project’s vision\, ambition\, and objectives;\nHow patient preferences\, clinical outcome assessments\, and digital measures fit together in the UNIFIED approach;\nHow the approach is being tested across the six use cases; and\nThe pathways through which the framework is intended to reach adoption\, and how to get involved.\n\nA moderated question-and-answer session follows the presentations. \nWho should attend: patients and patient organisations\, researchers\, clinicians\, regulators\, HTA bodies\, industry\, and policymakers. No prior knowledge of the project is needed. \nThe session will be recorded and published on the UNIFIED website and YouTube channel. Questions may be submitted in advance to info@unified-project.eu. \nLearn more at www.unified-project.eu \nThis project is supported by the Innovative Health Initiative Joint Undertaking and its members and contributing partners under grant agreement No 101218845. \nREGISTER HERE
URL:https://ccieurope.eu/event/introducing-unified-measuring-what-matters-to-patients/
LOCATION:Online
CATEGORIES:Event,Projects
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2026/10/UNIFIED_CCI_Europe_Project.png
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20270618
DTEND;VALUE=DATE:20270621
DTSTAMP:20261008T081045Z
CREATED:20260522T082134Z
LAST-MODIFIED:20261008T081045Z
UID:8245-1813276800-1813535999@ccieurope.eu
SUMMARY:17th CCI Europe Conference\, Vienna
DESCRIPTION:SAVE THE DATE! \nJoin us in Vienna\, Austria\, from 18 – 20 June 2027 for the 17th CCI Europe Conference. \nBringing together CCI members from across the globe\, as well as parents\, patients\, survivors\, advocates\, and healthcare professionals\, the conference will be a unique opportunity to connect\, exchange knowledge\, share experiences\, and learn from one another. Together\, we will explore important topics\, inspiring initiatives\, and new ideas that strengthen our community and improve the lives of children and adolescents with cancer and their families. \nMore details coming soon! \nCheck the Conference page for updates.
URL:https://ccieurope.eu/event/17th-cci-europe-conference-vienna/
LOCATION:Vienna\, Austria
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2026/05/cci_europe_conference_vienna_2027-2.png
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