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BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20240627T123000
DTEND;TZID=Europe/Vienna:20240628T170000
DTSTAMP:20260419T011539
CREATED:20240625T150100Z
LAST-MODIFIED:20240625T150100Z
UID:6297-1719491400-1719594000@ccieurope.eu
SUMMARY:Surviving Survival – Symposium on mental health of Youth Cancer Survivors
DESCRIPTION:EN 📣 Surviving Survival – Symposium on mental health of Youth Cancer Survivors \nOn 27 June\, a health policy symposium (in German) on “Surviving Survival: How can we improve psychosocial health after childhood\, adolescent and young adult cancer?” will take place in Vienna\, organized by CCI Europe as part of the EU-CAYAS-NET project. \n🗨️ For the first time in German speaking countries\, we will present relevant EU-CAYAS-NET project results to health policy makers\, stakeholders and media representatives\, draw attention to the needs of young survivors 🎗️ and discuss what types of psychological\, social and educational support are missing after cancer in childhood\, adolescence and young adulthood in Austria! 🙌🏻 \nThis will be followed by an interactive patient advocacy training for German-speaking survivors and/or their family members from all over Europe on June 28th! 💪🏻 \nAre you a German speaking survivor/family member\, interested in targeted patient advocacy training and want to learn how to best implement our goals? \nThen register with the button below\, we look forward to seeing you! If you have any questions\, please contact Hannah at h.gsell@ccieurope.eu. \n—– \n🇩🇪 📣 Surviving Survival – Symposium zur mentalen Gesundheit nach Kindekrebs \nAm 27. Juni findet in Wien ein deutschsprachiges gesundheitspolitisches Symposium statt zum Thema “Surviving Survival: Wie können wir die psychosoziale Gesundheit nach Krebs im Kindes-\, Jugend- und jungen Erwachsenenalter verbessern?”\, veranstaltet von CCI Europe im Rahmen des EU-CAYAS-NET Projekts. \n🗨️ Wir präsentieren erstmals im Deutschsprachigen Raum gesundheitspolitischen Entscheidungsträger:innen\, Interessensvertreter:innen und Medienvertreter:innen relevante EU-CAYAS-NET Projektergebnisse\, machen auf die Bedürfnisse junger Survivors 🎗️aufmerksam und diskutieren\, welche Arten von dringend notwendiger psychologischer\, sozialer und edukativer Unterstützung nach einer Krebserkrankung im Kindes-\, Jugend- und jungen Erwachsenenalter in Österreich fehlen! 🙌🏻 \nIm Anschluss daran findet am 28. Juni eine interaktive Advocacy-Schulung für deutschsprachige Survivors und deren Familien aus ganz Europa statt! 💪🏻 \nDu bist ein deutschsprachiger Survivor/Familienmitglied\, interessierst dich für gezieltes Advocacy Training und möchtest lernen\, wie unsere Ziele bestmöglich umgesetzt werden können? \nWir freuen uns auf dich! Bei Fragen wende dich gerne an Hannah unter h.gsell@ccieurope.eu. \nregister here
URL:https://ccieurope.eu/event/surviving-survival-symposium-on-mental-health-of-youth-cancer-survivors/
LOCATION:Vienna\, Austria
CATEGORIES:Event,Survivorship
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2024/06/EU-CAYAS-NET_event-visuals_OSymposium_Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20240620T160000
DTEND;TZID=Europe/Vienna:20240620T173000
DTSTAMP:20260419T011539
CREATED:20240606T090213Z
LAST-MODIFIED:20240606T090536Z
UID:6211-1718899200-1718904600@ccieurope.eu
SUMMARY:Specialist Adolescent and Young Adults Units Minimum Standards
DESCRIPTION:What to Expect: \n\nExpert Speakers: Hear from leading experts in the field who will share their knowledge and experiences.\nPanel discussion: Hear diverse perspectives from healthcare professionals\, patient representatives\, and young cancer survivors.\nResources and Support: Gain access to the position paper and implementation guidelines that support adolescents and young adults.\n\n  \nAgenda: \n\nOverview of the Project’s Work Package 4 AYA Care: Learn more about the EU-CAYAS-NET cofounded project\nPatient perspective: Patient talking about what practices already exist and what still needs to be changed.\nFocus on Recommendations: Discuss the “Specialist AYA Units Minimum Standards” position paper.\nImplementation: Healthcare professionals talking about what standards already exist and what still needs to be implemented.\n\n  \nWhy Attend? \n\nLatest Research and Trends: Learn about the latest research and trends affecting young adults.\nCommunity Connection: Connect with a community of individuals who share your interests and concerns.\n\nWhether you are a young adult\, a caregiver\, or a professional working with this age group\, this webinar will provide valuable insights and resources. \n  \n\nregister here
URL:https://ccieurope.eu/event/equity-diversity-and-inclusion-edi-principles-in-cancer-care-training-event-for-researchers-healthcare-providers-and-patient-communities-2/
LOCATION:Online Webinar
CATEGORIES:Event,Survivorship
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2024/06/eucayasnet_cci_europe_childhood_cancer_survivors.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20240603T170000
DTEND;TZID=Europe/Vienna:20240603T183000
DTSTAMP:20260419T011539
CREATED:20240412T083437Z
LAST-MODIFIED:20241211T004822Z
UID:5875-1717434000-1717439400@ccieurope.eu
SUMMARY:Advance Your Knowledge: Drug Regulations - What is new for the childhood cancer community?
DESCRIPTION:In this webinar\, the participants will learn from our experts about any new developments in the Pharmaceutical Package. The European Parliament is set to adopt its formal position on the revision of the orphan and paediatric regulations this April and the Council has already started its internal discussions. Teresa and Marine will give us an update and let us know about any new developments on the file\, as well as our priorities and achievements in our continuous advocacy efforts to meet with members of the European Parliament and Council representatives. \n\nAbout the Speakers: \nTeresa Pais\nTeresa Pais is an EU public affairs specialist; she worked as parliamentary assistant to a member of the European Parliament\, in a trade association and consultancies in the healthcare sector. She graduated in Law and has a Master’s degree in European affairs. \n\nMarine Gouders\nMarine Gouders\, member of the CCI Europe Office\, studied law and specialised in European law. After graduating\, she did an internship at the European Parliament\, where she discovered the workings of the European institutions. For the past year\, she has been working in the European Affairs Pillar. \n\n\n\nDelphine Heenen\nDelphine Heenen is a CCI Europe board member and the founder\, director and day-to-day manager of KickCancer in Belgium. Delphine was successively a lawyer\, a strategy consultant and active in the investment world of renewable energy. Currently\, she is the leader of the EU affairs pillar and a member of the R&I Pillar. \n\n\n\nregister here
URL:https://ccieurope.eu/event/drug-regulations-childhood-whats-new-for-the-cancer-community/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2024/04/Gold_Webinar_EU_Affairs.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20240603T090000
DTEND;TZID=Europe/Vienna:20240612T170000
DTSTAMP:20260419T011539
CREATED:20240503T115511Z
LAST-MODIFIED:20240503T115511Z
UID:6003-1717405200-1718211600@ccieurope.eu
SUMMARY:Equity\, Diversity and Inclusion (EDI) principles in Cancer Care: Training event for researchers\, healthcare providers and patient communities
DESCRIPTION:What is “Equity\, Diversity and Inclusion in Cancer Care” training about?  \nDiscover and develop key skills in our engaging training program: \n\nCultural awareness\nRecognizing inequality\nInclusive communication\nCreating a safe environment\nSupporting families and empowering patients\nAddressing discrimination\nComprehensive needs assessment\nInclusive research techniques\nEffective advocacy\, and more!\n\nThe training event and toolkit launch for equitable\, inclusive\, and diverse cancer care\, organized by Youth Cancer Europe and Inclusive Employers Ltd. as part of the EU co-funded EU-CAYAS-NET project\, will take place in Cluj-Napoca\, Romania from June 3 to June 12\, 2024. Successful applicants will enjoy full expense coverage of travel\, accommodation\, and on-site meals. \nThe face-to-face training targets three distinct audiences and will feature the following sessions: \n\n3 – 6 June \n6 – 9 June \n9 – 12 June \n\nInterested participants are invited to complete the Expression of Interest form below. If the form doesn’t work please use this link: https://forms.gle/emSjoeeVn1hbDn9EA \nFor more information please contact Victor Gîrbu at victor@youthcancereurope.org \n\n\nInterested participants are invited to complete the Expression of Interest form below by May 5\, 2024.\n\n\n\nregister here
URL:https://ccieurope.eu/event/equity-diversity-and-inclusion-edi-principles-in-cancer-care-training-event-for-researchers-healthcare-providers-and-patient-communities/
LOCATION:Cluj Napoca\, Romania
CATEGORIES:Event,Projects
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2024/05/eucayasnet-dei-training-ccieurope.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20240521T170000
DTEND;TZID=Europe/Vienna:20240521T183000
DTSTAMP:20260419T011539
CREATED:20231229T090400Z
LAST-MODIFIED:20240419T095443Z
UID:5241-1716310800-1716316200@ccieurope.eu
SUMMARY:Webinar: Navigating Transitions in Cancer Care - Treatment and Survivorship
DESCRIPTION:Join us for an insightful webinar hosted by the European Network of Youth Cancer Survivors\, dedicated to guiding youth cancer survivors through critical transitions in their healthcare journey. Transitioning from treatment to follow-up care and from pediatric to adult healthcare systems can present unique challenges for young survivors. \nThis webinar aims to share essential knowledge\, tools\, and strategies to navigate these transitions successfully. Experts in pediatric oncology\, survivorship care\, and transitional healthcare will provide valuable insights into the complexities of transitioning from active treatment to survivorship\, emphasizing the importance of holistic care\, long-term follow-up\, and psychosocial support. \nAdditionally\, participants will gain a comprehensive understanding of the differences between pediatric and adult healthcare systems\, along with practical tips for advocating for their healthcare needs as they transition into adulthood. Whether you’re a young cancer survivor\, a parent\, caregiver\, healthcare professional\, or advocate\, this webinar offers invaluable resources and support to empower individuals in their transition journey towards a thriving survivorship. Don’t miss this opportunity to connect and learn\, and strengthen the European Network of Youth Cancer Survivors across Europe. \n\nregister here
URL:https://ccieurope.eu/event/webinar-navigating-transitions-in-cancer-care-treatment-and-survivorship/
LOCATION:Online Webinar
CATEGORIES:Event,Projects
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2023/12/Transition-of-care-for-childhood-adolescent-and-young-adult-cancer-survivors-care-transition-768x768-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240515
DTEND;VALUE=DATE:20240519
DTSTAMP:20260419T011539
CREATED:20231220T161814Z
LAST-MODIFIED:20231229T081525Z
UID:5218-1715731200-1716076799@ccieurope.eu
SUMMARY:14th CCI Europe Conference\, Milan
DESCRIPTION:CCI Europe will host its 14th CCI Europe Conference completely face to face from 15 to 18 May 2024 in Milan\, Italy. This event is once again organised in partnership with SIOP Europe\, and as a part of the SIOPE’s 5th Annual Meeting of the European Society for Paediatric Oncology. \nBased on the feedback from last year’s conference\, we decided to extend the 2024 CCI Europe Conference until Saturday\, May 18th in order to have additional time among the CCI Europe’s community. \nCCI Europe Conference is open to CCI members around the globe\, as well as for individual parent\, patient and survivor advocates\, wanting to listen to the interesting sessions we are preparing for you. Your unique registration will allow you to attend open sessions outside of CCI Europe Conference\, that are a part of SIOPE’s Annual Meeting. \nFind detailed information here: https://ccieurope.eu/cci-europe-conference-2024/
URL:https://ccieurope.eu/event/14th-cci-europe-conference-milan/
LOCATION:Milano Convention Centre Allianz Mico (North Wing)\, Via Gattamelata\, Entrance GATE 14\, Milan\, Italy
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2023/12/CCI-Europe-Conference-2024-banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20240430T170000
DTEND;TZID=Europe/Vienna:20240430T183000
DTSTAMP:20260419T011539
CREATED:20240419T115246Z
LAST-MODIFIED:20240419T115459Z
UID:5898-1714496400-1714501800@ccieurope.eu
SUMMARY:Webinar: Equity\, Diversity and Inclusion in Cancer Care
DESCRIPTION:What is “Equity\, Diversity and Inclusion in Cancer Care” webinar about?  \nImagine a world where every young person battling cancer has access to the best possible care\, regardless of background. This webinar will explore how the EU-CAYAS-NET project is trying to make this a reality. We’re talking about Equity\, Diversity\, and Inclusion (EDI) in cancer care! \nHere’s what you’ll learn: \n\nUnequal care – discover how our research is uncovering challenges faced by young cancer patients from different backgrounds.\nBuilding a better future – learn about key findings and recommendations to make cancer care more equitable.\nInsights from the experts – get highlights from a major policy event “Recommendations for Equitable\, Diverse and Inclusive Cancer Care in Europe” held at the European Parliament in Brussels where these issues were discussed.\n\nPlus\, there’s more! We’ll unveil our upcoming EDI Training sessions. The training program equips healthcare providers\, patient advocates\, and researchers with the tools they need to drive positive change. Through the Train-the-Trainer Toolkit\, participants will gain the knowledge\, skills\, and tools to become champions of EDI in their own fields. Imagine equipping others to create real\, positive change in cancer care! The webinar will wrap up with information on how to register for these exciting training sessions. \nWhether you’re a doctor\, advocate\, researcher\, or simply someone who cares\, this webinar is for you! Don’t miss this chance to learn\, connect\, and become part of the solution in creating a more equitable\, diverse and inclusive future for all those impacted by cancer. \n\nregister here
URL:https://ccieurope.eu/event/webinar-equity-diversity-and-inclusion-in-cancer-care/
LOCATION:Online Webinar
CATEGORIES:Event,Projects
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2024/04/edi.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20240422T170000
DTEND;TZID=Europe/Vienna:20240422T183000
DTSTAMP:20260419T011539
CREATED:20240411T113308Z
LAST-MODIFIED:20240422T124516Z
UID:5837-1713805200-1713810600@ccieurope.eu
SUMMARY:Know the Basics: How can I level up my patient advocacy?
DESCRIPTION:In this webinar\, the participants will learn about existing patient advocate trainings\, how they were developed\, how they were conducted and what they entail. \nWe will present ongoing and upcoming training opportunities for patient advocates hosted by organisations such as WECAN\, EUPATI\, KickCancer\, EURORDIS and CCI! \nParticipants are invited to use the Q&A session to present efforts from their countries or organisations. \n\nAbout the Speakers: \nLaia Bisbal Arnal\nLaia is the Open Classroom Coordinator of The European Patients’ Academy (EUPATI). EUPATI is a public-private and multi-stakeholder partnership that provides education and training to increase the capacity and capability of patients and patient representatives to understand and meaningfully contribute to medicines research and development (R&D). Laia has been working at EUPATI since 2022 in the coordination and development of the EUPATI Open Classroom\, the online training platform. She is also part of the Training Committee of the Patient Expert Training Programme\, a training programme that covers the entire life cycle of medicines R&D. Laia has a degree in Economics and a master’s degree in international cooperation\, human rights\, and social inclusion. Her professional background includes training design and facilitation\, consulting\, and project coordination in partnership with governmental and non-profit organizations.  \n\nRachel Butcher\nRachel rejoined EURORDIS in September 2022 as the Training Manager for the Open Academy programme\, which empowers patient advocates with knowledge and skills to take part in patient engagement roles side-by-side with all stakeholders and to advocate for rare diseases on a European and national level. She is responsible for the end-to-end organisation of training activities\, ensuring high-quality organisation and delivery of the various programmes proposed by the Open Academy. She has previously worked with EURORDIS in both the Events team\, mainly helping to organise ECRD 2018\, as well as with the Open Academy team as an assistant. Prior to rejoining EURORDIS as the Open Academy Training Manager\, she coordinated grassroot organisations helping refugees in Northern France. Rachel has an undergraduate degree in French and Psychology from Newcastle University in the UK and completed a Master in European Studies\, studying at King’s College London and Sciences Po Paris. She speaks English and French (and is learning Spanish!).  \nSara Dederichs\nSara draws from over 25 years of rich experience in leading\, training as well as mentoring diverse and multicultural teams towards defined joint goals. With a background in social psychology and new leadership methodologies\, Sara brings a unique perspective to her role as coordinator of the EPAI team and navigator of the EPAI project portfolio. Beyond her project management responsibilities\, Sara serves as the driving force behind the WECAN Secretariat and is a member of the WECAN Coordination team. She leverages her expertise in leadership and understanding of team dynamics to ensure the optimal use of team resources and foster collaboration\, leading to innovation and succesfull team outcomes. Sara is based in Germany\, was raised in Spain and is fluent in German\, English\, Spanish and has a basic level of understanding Catalan\, Portuguese and Italian. She has two adolescent daughters. \n\nAlice Gerbaux\nAlice has a diploma in economics. She started her career in sales for BIC and Nestlé and later became in charge of marketing and communication for a NGO active in the field of sustainable forests. In her day-to-day life at  KickCancer Alice is in charge of the defence of young patients with cancer\, and more specifically so by supervising a training that will help them become expert patient and by coordinating their participation in international and KickCancer’s internal projects. The final aim of Alice’s role at KickCancer is to ensure that research and the legal framework meet the needs of sick children and lead to more efficacious and less toxic treatments. \n\nRaluca Popa\nRaluca is the Global Programme Manager\, joining Childhood Cancer International at the beginning of this year. Prior to this\, Raluca was in charge of the programme coordination of the emergency response for Ukraine on behalf of the World Organisation of the Scout Movement. She has experience in coordinating international volunteering projects and capacity building programmes for NGOs. With a strong interest for education and lifelong learning\, she is a certified trainer focused on experiential learning and human rights. Raluca is a passionate person with a special heart for children.  \nregister here
URL:https://ccieurope.eu/event/know-the-basics-how-can-i-level-up-my-patient-advocacy/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2024/04/Gold_webinar_cci_europe_patient_advocacy_banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20240326T170000
DTEND;TZID=Europe/Vienna:20240326T183000
DTSTAMP:20260419T011539
CREATED:20240312T142856Z
LAST-MODIFIED:20240312T142856Z
UID:5735-1711472400-1711477800@ccieurope.eu
SUMMARY:Webinar: Long-Term Survivorship Care: Navigating Fertility and Intimacy Challenges
DESCRIPTION:Many childhood\, adolescent or young-adult cancer survivors are facing fertility and intimacy problems due to cancer treatment. How can long-term survivorship care be of help to navigate these challenges? Join the webinar organized by PanCare and hosted by the EU-CAYAS-NET on the 26th of March. Various speakers will share their knowledge and lived experience with these topics. \nThis webinar will give an in-depth overview of the impact which CAYA cancer treatment could potentially have on fertility and intimacy issues for survivors. How can survivors cope with these challenges? What issues arise when it comes to self love\, body image and (intimate) relationships? And how can we as a community of survivors and health care professionals be of support to those who go through feelings of uncertainty\, loss\, hope and resilience? \nSpeakers who will contribute during this webinar are long-term survivorship care specialist Dr. Helena van der Pal\, gynecologist Simone Broer\, nurse practitioner and oncofertility specialist Irene IJgosse  and  Iris Wilmink and Lon van Keulen\, who are both survivors and each other’s life partner. The webinar will be hosted by hematologist/oncologist Prof. Dr. Med. Katrin Scheinneman who is also the chair of the PanCare board. \nWe would like to hear your experiences and perspectives on these topics. We invite survivors and their close ones\, healthcare professionals\, researchers\, and anyone interested in these topics to attend this webinar. \n\nregister here
URL:https://ccieurope.eu/event/webinar-long-term-survivorship-care-navigating-fertility-and-intimacy-challenges/
LOCATION:Online Webinar
CATEGORIES:Event,Projects
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2024/03/long-term-survivorship-care-navigating-fertility-and-intimacy-after-cancer-2048x2048-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240308
DTEND;VALUE=DATE:20240310
DTSTAMP:20260419T011539
CREATED:20231206T155854Z
LAST-MODIFIED:20231206T155910Z
UID:5106-1709856000-1710028799@ccieurope.eu
SUMMARY:Living Beyond Cancer: Late Effects and Survivorship Care Online Course
DESCRIPTION:“Cure is not enough” – in 1975 Giulio J. D’Angio had the vision of childhood and adolescent cancer survivors and their long-term follow-up care. \nWith around 80 % survival of childhood and adolescent cancer\, around 500\,000 survivors live in Europe today and the number is increasing. At least two-thirds experience long-term health-related challenges. What are the late physical and psychosocial effects? What are their risks and contributing factors? When and how to talk about them? \nThese are the questions we will address together during the meeting by implementing different perspectives from an inter- and multidisciplinary team of late effects specialists and patient advocates across Europe. \nELIGIBILITY CRITERIA \nThis course is open to European healthcare professionals and patient advocates with an interest and at the beginning of their professional career in Late Effects and Survivorship Care after childhood and adolescent cancer. Please see the course eligibility criteria here. \nACCREDITATION \nCME we will apply. \nApply here
URL:https://ccieurope.eu/event/living-beyond-cancer-late-effects-and-survivorship-care-online-course/
LOCATION:Online
CATEGORIES:Event
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2023/12/Course-2023-BANNER-1200x675-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20240213T170000
DTEND;TZID=Europe/Vienna:20240213T190000
DTSTAMP:20260419T011539
CREATED:20240123T124717Z
LAST-MODIFIED:20240201T142540Z
UID:5346-1707843600-1707850800@ccieurope.eu
SUMMARY:International Childhood Cancer Day 2024
DESCRIPTION:This 13 February Childhood Cancer International – Europe in partnership with SIOP Europe \, has the pleasure to invite you to the International Childhood Cancer Day 2024 Event in the EU Parliament with the title: “Launching the European Paediatric Cancer Community Manifesto: Cure More\, Cure Better and Tackle Inequalities”. The event will be hosted by MEP Stelios Kympouropoulos (EL\, EPP). \nThis edition of the annual ICCD meeting will officially launch the European Elections 2024 Manifesto of the paediatric haematology-oncology community and foster a multi-stakeholder discussion on how to Cure More\, Cure Better and Tackle Inequalities. \nFind the preliminary programme here: \nDraft ProgrammeThe panel discussion will focus on inequalities in childhood cancer across Europe\, breaking down the topic in three sections on equal access to high quality care\, equal access to research and innovation and equal access to data. Furthermore\, outcomes of the OCEAN project\, which mapped the organisation of care and research in Europe to provide an overview of the paediatric cancer centres that deliver care and research for children and adolescents with cancer across Europe\, will be highlighted. \nThis year’s edition of the International Childhood Cancer Day event is particularly exciting as CCI-E and SIOPE will be presenting their manifesto for the 2024 European elections (happening in June 2024) at the European Parliament. The aim is to increase the visibility of the childhood cancer community’s priorities and policy asks for the next mandate (2024-2029)\, to current and potentially incoming Members of the European Parliament and other policymakers\, such as the European Commission and Council.” \nThe Event will bring together experts from academia\, patient advocates\, policymakers\, and other stakeholders to drive conversations and actionable strategies toward curing paediatric cancer in Europe. The call to action directed towards MEPs will urge their support in policy changes\, resource allocation\, and collaborative efforts necessary to address the multifaceted challenges of paediatric cancer. The launch of the manifesto will mark a pivotal moment to catalyse change\, emphasizing the urgency of uniting efforts and resources to combat paediatric cancer and improve the lives of affected children and their families throughout Europe. \nWe are looking forward to your seeing you in the European Parliament for the ICCD 2024 Event on the 13th of February to launch the European Childhood Cancer Community Manifesto for the upcoming EU Elections! \nFor more information and to stay updated visit our ICCD 2024 Event website \nRegistration for in-person participation in BrusselsRegistration for participation online will come soon.
URL:https://ccieurope.eu/event/international-childhood-cancer-day-2024/
LOCATION:Hybrid
CATEGORIES:EU Affairs,Event
ATTACH;FMTTYPE=image/jpeg:https://ccieurope.eu/wp-content/uploads/2024/01/Speaker-Invitation_ICCD_2024_MEP-Tudor-Ciuhodaru.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240208
DTEND;VALUE=DATE:20240210
DTSTAMP:20260419T011539
CREATED:20231229T091619Z
LAST-MODIFIED:20231229T091619Z
UID:5244-1707350400-1707523199@ccieurope.eu
SUMMARY:ACCELERATE 2024 Paediatric Oncology Conference
DESCRIPTION:The ACCELERATE Annual Conference offers the perfect opportunity for discussion\, knowledge-sharing\, networking and engagement with our international\, multi-stakeholder community! \nSpeakers present and discuss clinical/preclinical pediatric oncology research\, evolutions in the regulatory landscape worldwide\, and other key challenges in the path toward accelerating the development of new and more innovative therapies for children and adolescents with cancer. ACCELERATE work progress is monitored\, proposals are agreed and launched (new working groups\, scientific publications\, etc.)\, and new challenges are identified. \nDuring the previous editions\, new features have been introduced to make the event even more interactive and engaging for our participants! Breakout sessions on emerging\, hot topics are addressed in focused groups to define concrete actions stemming from the discussion. \n\n\n\n\n\n\n\n\n\n\n\n\n\n\nThe event is hybrid: participants can join in Brussels or online. \n\n\n\n\n\n\n\nregister here
URL:https://ccieurope.eu/event/accelerate-2024-paediatric-oncology-conference/
LOCATION:Brussels\, Belgium
CATEGORIES:Event,R&I
ATTACH;FMTTYPE=image/webp:https://ccieurope.eu/wp-content/uploads/2023/12/12thACBanner-e360d4d8-1920w.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20240205T170000
DTEND;TZID=Europe/Vienna:20240205T183000
DTSTAMP:20260419T011540
CREATED:20240123T152214Z
LAST-MODIFIED:20240123T152517Z
UID:5357-1707152400-1707157800@ccieurope.eu
SUMMARY:Know the basics: ICCD Campaign 2024 - Kick Off!
DESCRIPTION:In this webinar\, CCI Europe will present to the participants the upcoming 3-years global ICCD Campaign “Equal Access To Care” and will focus on how member organisations can actively contribute to year 1 of the campaign with the motto: “Unveiling Challenges”. \nThe Campaign Toolkit will be presented so that member organisations can share and promote the campaign in their countries. In year 1\, everyone affected by childhood cancer is invited to go to the ICCD-platform and submit a digital postcard with the challenges and inequalities they face in their country related to childhood cancer. The postcard will then show up on an interactive\, virtual world map. The objective for year 1 is to raise awareness about the global challenges and inequalities. \nThe aim of this Gold Webinar is to mobilize CCI Europe member organisations for broad and active participation in the campaign. \n\n\nAbout the Speakers: \n\nAnne Goeres\nAnne is managing director at the Fondatioun Kriibskrank Kanner\, national foundation for children with cancer in Luxembourg for 15 years and Committee member of CCI Europe. Anne holds a master’s degree in communications\, more specifically in political and financial communications\, as is therefore the lead of CCI Europe’s Communication Pillar. Anne is a founding board member of Don en Confiance Luxembourg (transparency donations)\, of Ile aux clowns (hospital clowns) and of the National Cancer Institute in Luxembourg representing young cancer patients. Together with two other organisations\, she created Fight Kids Cancer\, an innovative annual call for paediatric cancer research projects. \n\nCarina Schneider\nCarina was diagnosed with Ewing’s Sarcoma at the age of 17 and she’s today a passionate patient advocate\, . Experiencing the lack of adequate long-term follow-up care\, she became active in patient advocacy in 2009. In 2017\, she was part of the group of survivor-representatives from across Europe who launched the survivors-network within CCI Europe. Later that year\, she joined the CCI Europe Committee.\nCarina is a psychology graduate and has worked in paediatric oncology since 2013\, first in the Austrian Childhood Cancer Organisation as project manager and later at the Medical University of Vienna as research coordinator in the psychosocial team of the Paediatric Neurooncology Department. In January 2022\, she became CCI Europe’s Managing Director and works\, together with a committed team\, dedicated Committee Members and patient advocates from all over Europe for a better future for children\, adolescents and young adults\, as well as their families\, who are affected by cancer. \n\nregister here
URL:https://ccieurope.eu/event/know-the-basics-iccd-campaign-kick-off/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars
ATTACH;FMTTYPE=image/jpeg:https://ccieurope.eu/wp-content/uploads/2024/01/goldWebinarICCD2024.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20240131T140000
DTEND;TZID=Europe/Vienna:20240131T171500
DTSTAMP:20260419T011540
CREATED:20231229T083617Z
LAST-MODIFIED:20240201T142707Z
UID:5229-1706709600-1706721300@ccieurope.eu
SUMMARY:Europe’s Beating Cancer Plan: Joining Forces
DESCRIPTION:Changing the realities of cancer is one of the main priorities of the European Commission in the health domain. Three years after the adoption of Europe’s Beating Cancer Plan\, Stella Kyriakides\, European Commissioner for Health and Food Safety\, will host a high-level event to take stock of Europe’s efforts to improve the lives of everyone touched by cancer and to take the lead in the fight against this disease. \nDuring this meeting\, CCI Europe Managing Director\, Carina Schneider\, will present the EU-CAYAS-NET project. \nThis is an hybrid event: participants can join in Brussels\, at the European Commission building (Charlemagne building\, European Commission\, 170 Rue de la Loi\, 1040 Brussels\, Belgium) or online. \nRegistration deadline: January 24\, 2024 \nREGISTER HEREREAD THE draft agenda
URL:https://ccieurope.eu/event/europes-beating-cancer-plan-joining-forces/
LOCATION:Brussels\, Belgium
CATEGORIES:EU Affairs,Event
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2023/12/event_banner_b07d9cc5bb22f8089814ff0ca337c636.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20240130T170000
DTEND;TZID=Europe/Vienna:20240130T183000
DTSTAMP:20260419T011540
CREATED:20231229T085608Z
LAST-MODIFIED:20231229T085829Z
UID:5237-1706634000-1706639400@ccieurope.eu
SUMMARY:Webinar: Surviving CAYA Cancer - Addressing Late Effects on Long-Term Follow-Up Care
DESCRIPTION:Once the cancer treatment has been completed\, on the one hand\, it feels like a big burden is taken off – but on the other hand\, CAYA Cancer Survivors often still have to deal with numerous late effects. The broad topic of long-term follow-up care will be addressed in the 6th Webinar. \nImportant topics in long-term follow-up care such as fatigue\, fertility\, and neuropsychological therapy will be discussed\, as well as the initial results of a corresponding survey\, a focus group\, and peer visits within the EU-CAYAS-NET project\, which aimed to identify the current situation\, gaps and visions for the future. \nregister here
URL:https://ccieurope.eu/event/webinar-surviving-caya-cancer-addressing-late-effects-on-long-term-follow-up-care/
LOCATION:Online Webinar
CATEGORIES:Event,Projects
ATTACH;FMTTYPE=image/webp:https://ccieurope.eu/wp-content/uploads/2023/12/Long-term-follow-up-care-for-cancer-patients-and-survivors-webinar-2048x2048-1.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20231207T170000
DTEND;TZID=Europe/Vienna:20231207T183000
DTSTAMP:20260419T011540
CREATED:20231107T135836Z
LAST-MODIFIED:20231107T140855Z
UID:4876-1701968400-1701973800@ccieurope.eu
SUMMARY:CCI Europe's Peer to Peer Knowledge Exchange Workshop
DESCRIPTION:In this workshop\, Research & Innovation patient advocates will share their knowledge with other patient advocates in Europe\, but also offer them advices during the journey of learning. \nIt is a unique opportunity to learn about the importance of patient involvement in research and innovation on a national and European level. Furthermore\, there will be room for discussion\, where you are invited to share your experience on patient involvement in Research and Innovation and your opinion on what is needed to successfully participate as a patient advocate in research initiatives. \nThis workshop is organised by the CCI Europe’s Research and Innovation Pillar. \nregister here
URL:https://ccieurope.eu/event/cci-europes-peer-to-peer-knowledge-exchange-workshop/
LOCATION:Online
CATEGORIES:Event,R&I
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2023/11/Research-Innovation-Workshop-with-the-funding-logo.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20231128T170000
DTEND;TZID=Europe/Vienna:20231128T183000
DTSTAMP:20260419T011540
CREATED:20231113T085749Z
LAST-MODIFIED:20231113T090205Z
UID:4881-1701190800-1701196200@ccieurope.eu
SUMMARY:Webinar: The Social Challenges in Follow-Up Care
DESCRIPTION:Cancer in childhood or adolescence affects not only the patient but the whole family. To make this drastic phase in life as bearable as possible\, multidisciplinary cooperation is a precondition. In addition to optimal medical and psychological care\, social support is also a very important pillar during the treatment period. \nPhysical\, psychological and social problems can occur not only during intensive treatment\, but also years later. The number of late effects increases the longer the oncological disease and treatment occurred. These can vary depending on the type of tumor and treatment. Besides the medical late effects\, a wide range of psychosocial problems can also arise and make everyday life even more difficult for patients and their relatives.  Looking at the social dimension\, it has been documented that AYAs have a significant risk of becoming unemployed in adulthood and having to claim social benefits. Similarly\, Survivors have to fight with an increased risk of living a dependent life\, difficulty establishing/maintaining social relationships\, less likely to be married/partnered and in a worse economic situation compared to peers. Many reasons to give this important topic a stage. \nJoin us for an exciting webinar on “Social challenges in Follow-Up care“. Great speakers from different countries will talk about the most important aspects regarding social challenges\, like „The right to be forgotten“ and „Social isolation“.  A social work expert and a Patient Advocate will tell us what benefits families are entitled to and how this is related to the residence permit. \nTherefore\, the webinar is intended for anyone involved with the topic: survivors\, their families and friends\, health care professionals\, and anyone interested. \nregister here
URL:https://ccieurope.eu/event/webinar-the-social-challenges-in-follow-up-care/
LOCATION:Online Webinar
CATEGORIES:Event,Projects
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2023/11/Webinarbanner_Social-challenges-1.653770733f7504.89351607.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20231115
DTEND;VALUE=DATE:20231117
DTSTAMP:20260419T011540
CREATED:20231017T113619Z
LAST-MODIFIED:20231017T113619Z
UID:4845-1700006400-1700179199@ccieurope.eu
SUMMARY:European Cancer Summit 2023 - Accelerating Momentum: A manifesto to 2030
DESCRIPTION:This Summit is special\, and it’s reflected in the slogan. \n‘Accelerating Momentum’ highlights our impatience. The EU’s Beating Cancer Plan is the opportunity of a lifetime. We’re already implementing a variety of new projects to better care for cancer patients and survivors.  But\, together\, we need to do much more – and much more quickly. The current EU Parliament comes to an end next year. \n‘A manifesto… ‘ refers to a detailed list of cancer care priorities and proposals compiled by the European Cancer Organisation from input received from its member societies and patient groups. The manifesto will be unveiled at the Summit\, and we need to ensure every candidate standing in next year’s European Parliamentary elections subscribes to this roadmap. \n‘…to 2030’… We cannot afford to wait. Cancer doesn’t. We need to set clear deadlines for tangible progress. \nIf ever there was a time and a place to rally the European cancer community – this is it! \nregister here
URL:https://ccieurope.eu/event/eco-summit-2023/
LOCATION:Brussels\, Belgium
CATEGORIES:Event
ATTACH;FMTTYPE=image/jpeg:https://ccieurope.eu/wp-content/uploads/2023/10/ECO-summit2023.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20231113T170000
DTEND;TZID=Europe/Vienna:20231113T183000
DTSTAMP:20260419T011540
CREATED:20230925T114717Z
LAST-MODIFIED:20230925T144917Z
UID:4803-1699894800-1699900200@ccieurope.eu
SUMMARY:Know the basics: How does policy work at the European level?
DESCRIPTION:In this webinar\, the participants will learn about the role of the different EU institutions\, and how policymaking works on the EU level. It will also address how patient organisations can effectively advocate and interact with MEPs in favour of their cause. \nThe webinar will be delivered by Teresa Pais and Marine Gouders. \n\n  \n\nAbout the Speakers:  \n\nTeresa Pais \nTeresa Pais is an EU public affairs specialist; she worked as parliamentary assistant to a member of the European Parliament\, in a trade association and consultancies in the healthcare sector. She graduated in Law and has a Master’s degree in European affairs.  \n\nMarine Gouders \nMarine Gouders\, member of the CCI Europe Office\, studied law and specialised in European law. After graduating\, she did an internship at the European Parliament\, where she discovered the workings of the European institutions. For the past year\, she has been working in the European Affairs Pillar.\n\nregister here
URL:https://ccieurope.eu/event/know-the-basics-know-the-basics-how-does-policy-work-at-the-european-level/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars
ATTACH;FMTTYPE=image/jpeg:https://ccieurope.eu/wp-content/uploads/2023/09/goldWeb1311.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20231024T170000
DTEND;TZID=Europe/Vienna:20231024T183000
DTSTAMP:20260419T011540
CREATED:20231017T112615Z
LAST-MODIFIED:20231017T113804Z
UID:4842-1698166800-1698172200@ccieurope.eu
SUMMARY:Webinar: Education and Career Support
DESCRIPTION:The 4th Webinar of the EU-CAYAS-NET project\, will be all about Education and Career. \nAs CAYA Cancer Survivors often face barriers to receiving education that matches their skills\, personality\, and future plans\, and subsequently to finding an appropriate job\, specific support tailored to each Survivor is highly needed. \nExisting barriers\, but especially supporting materials and best practice examples for both\, Education and Career support\, will be highlighted from different perspectives and discussed together with Survivors and Health Care Professionals. In addition\, the first results of two insightful focus groups\, held in Vienna (in June) and Utrecht (in October)\, are to be presented in the Webinar\, which should lead to new\, improved concepts in the field of career support. \nregister here
URL:https://ccieurope.eu/event/education-and-career-support/
LOCATION:Online Webinar
CATEGORIES:Event
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2023/10/EUCAYAS_EducationCareerSupport.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20230828T170000
DTEND;TZID=Europe/Vienna:20230828T183000
DTSTAMP:20260419T011540
CREATED:20230418T142258Z
LAST-MODIFIED:20240220T183215Z
UID:4455-1693242000-1693247400@ccieurope.eu
SUMMARY:Know the basics: What are the Models of Care in Paediatric Oncology?
DESCRIPTION:The aim of shared care is to cure every child with cancer\, with optimal quality of life. \nThe principle of shared care is close cooperation between a central paediatric oncology expertise centre and local shared care centres\, so that the young patient can avoid long distance travels for standard clinical examinations and treatments. it is important that the shared care centres meet certain quality criteria and connect closely with the central expertise centre\, so that the best possible care for the child is guaranteed. \nIn this Gold Webinar on the 28th August at 5pm CET\, we will present various shared care models in Europe\, critically examine whether they deliver what they promise and whether they can serve as best practice models for other countries. \n  \nregister here
URL:https://ccieurope.eu/event/what-are-the-models-of-care-in-paediatric-oncology/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars
ATTACH;FMTTYPE=image/jpeg:https://ccieurope.eu/wp-content/uploads/2023/04/Screenshot-2024-02-20-174634.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20230703T170000
DTEND;TZID=Europe/Vienna:20230703T183000
DTSTAMP:20260419T011540
CREATED:20230418T141328Z
LAST-MODIFIED:20240220T171332Z
UID:4448-1688403600-1688409000@ccieurope.eu
SUMMARY:Know the basics: What are essential medicines?
DESCRIPTION:In this webinar\, the participants will learn about essential medicines\, what they are\, why they are important and which challenges Paediatric Oncology faces in this regard. Moreover\, it will address the outcomes of the Essential Medicines Project. \n  \nregister here
URL:https://ccieurope.eu/event/know-the-basics-what-are-essential-medicines/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars
ATTACH;FMTTYPE=image/jpeg:https://ccieurope.eu/wp-content/uploads/2023/04/Screenshot-2024-02-20-174655.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20230530T170000
DTEND;TZID=Europe/Vienna:20230530T180000
DTSTAMP:20260419T011540
CREATED:20230517T111207Z
LAST-MODIFIED:20230517T111416Z
UID:4577-1685466000-1685469600@ccieurope.eu
SUMMARY:Webinar: The European Network of Youth Cancer Survivors
DESCRIPTION:EU-CAYAS-NET is a patient advocate-led\, EU-funded project under one of the flagship initiatives of Europe‘s Beating Cancer Plan to establish the European Network of Youth Cancer Survivors and to create an interactive virtual Platform for peer support and knowledge exchange. \nWhat can you expect from the webinar?\n\nAn overview of what our project has in store for you\nLively exchange with many of our Youth Cancer Survivors Network Ambassadors from all over Europe\nLearn how YOU can also get involved and benefit from our Network.\n\nCurious? Then register TODAY and secure your spot – super comfy\, first row and with a lot of leg space from your screen at home! \nWe look forward to seeing you there!\nWHEN: 30 May 2023\, 17:00 CET\nWHERE: Zoom
URL:https://ccieurope.eu/event/webinar-the-european-network-of-youth-cancer-survivors/
LOCATION:Online
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2023/05/Screenshot_2023-05-05_at_13.46.34.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20230515T170000
DTEND;TZID=Europe/Vienna:20230515T183000
DTSTAMP:20260419T011540
CREATED:20230331T085959Z
LAST-MODIFIED:20230331T130035Z
UID:4369-1684170000-1684175400@ccieurope.eu
SUMMARY:Advance your knowledge: What are ESCPs?
DESCRIPTION:In this webinar\, participants will learn what an ESCP is\, which ESCP currently exist\, why they where developed and how they should be used. Moreover\, the webinar will highlight the importance of using standardized treatment protocols\, and of sharing expertise and resources between countries. Also\, ways will be addressed on how patient organisations can effectively lobby for the implementation of ESCPs in their countries. \n  \nregister here
URL:https://ccieurope.eu/event/gold-webinar-advance-your-knowledge-what-are-escps/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2023/03/Screenshot-2023-03-31-at-15.00.13.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20230510
DTEND;VALUE=DATE:20230513
DTSTAMP:20260419T011540
CREATED:20221215T150108Z
LAST-MODIFIED:20221215T150502Z
UID:3986-1683676800-1683935999@ccieurope.eu
SUMMARY:13th CCI Europe Conference\, Valencia
DESCRIPTION:CCI Europe will host its 13th CCI Europe Conference completely face to face from 10 to 12th May 2023 in Valencia\, Spain. This event is once again organized in partnership with SIOP Europe\, and as a part of the SIOPE’s 4th Annual Meeting of the European Society for Paediatric Oncology. \nCCI Europe Conference is open to CCI members around the globe\, as well as for individual parent and patient advocates\, wanting to listen to the interesting sessions we are preparing for you. Your unique registration will allow you to attend open sessions outside of CCI Europe Conference\, that are a part of SIOPE’s Annual Meeting. \nFind detailed information here: https://ccieurope.eu/cci-europe-conference-2023/
URL:https://ccieurope.eu/event/13th-cci-europe-conference/
LOCATION:Valencia\, Spain
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2022/12/2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20230403T170000
DTEND;TZID=Europe/Vienna:20230403T183000
DTSTAMP:20260419T011540
CREATED:20230120T140921Z
LAST-MODIFIED:20230403T121416Z
UID:4169-1680541200-1680546600@ccieurope.eu
SUMMARY:Know the basics: What is ERN PaedCan?
DESCRIPTION:In this webinar\, participants will learn why ERNs exist\, what ERN PaedCan is\, how it operates\, whom it should serve and which cases are eligible. It will explain the CPMS and how it works. Furthermore\, it will explain how patient organisations can in touch with the ERN PaedCan and be the link between ERN and patients/families and support implementation on the national levels.\n \n\n\n\n\n\n \n\n\nAbout the Speakers: \nAnne Goeres \nAnne is managing director at the Fondatioun Kriibskrank Kanner\, national foundation for children with cancer in Luxembourg for 15 years and Committee member of CCI Europe. Anne holds a master’s degree in communications\, more specifically in political and financial communications\, as is therefore the lead of CCI Europe’s Communication Pillar. Anne is a founding board member of Don en Confiance Luxembourg (transparency donations)\, of Ile aux clowns (hospital clowns) and of the National Cancer Institute in Luxembourg representing young cancer patients. Together with two other organisations\, she created Fight Kids Cancer\, an innovative annual call for paediatric cancer research projects.  \n \n \nProf. Ruth Ladenstein\, MD\, MBA\, cPM  \nRuth Ladenstein is Professor in Paediatrics and Senior Consultant for Paediatric Haematology and Oncology at the St. Anna Children´s Hospital . She is Head of the Clinical Trials Unit S2IRP (Studies & Statistics for Integrated Research and Projects) at the Children’s Cancer Research Institute (CCRI) of the St. Kinderkrebsforschung GmbH (http://science.ccri.at/).  \nMartin Schalling  \nMartin Schalling is a project manager in the Research Management Office of the Children’s Cancer Research Institute (CCRI). He studied Pharmaceutical and Medical Biotechnology and worked as a Researcher at the Medical University of Vienna. He is mainly responsible for the Clinical Patient Management System CPMS. \n\nregister here
URL:https://ccieurope.eu/event/know-the-basics-what-is-ern-paedcan/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2023/03/Screenshot-2023-03-06-at-17.53.16.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20230306T170000
DTEND;TZID=Europe/Vienna:20230306T183000
DTSTAMP:20260419T011540
CREATED:20230116T145714Z
LAST-MODIFIED:20230227T110334Z
UID:4054-1678122000-1678127400@ccieurope.eu
SUMMARY:Know the basics: What is Cross Border Health Care?
DESCRIPTION:In this webinar\, participants will learn what cross border health care means\, why it is important and necessary in the context of Paediatric Oncology and highlight challenges. Moreover\, it will address existing inequalities in access to diagnosis\, treatment and care across Europe. It will give an outlook on the follow-up webinar about ERN PaedCan. \n\n\n\n\n\n\n\n\n\n\n\n \nAbout the Speakers: \nAnne Goeres \n\nAnne is managing director at the Fondatioun Kriibskrank Kanner\, national foundation for children with cancer in Luxembourg for 15 years and Committee member of CCI Europe. Anne holds a master’s degree in communications\, more specifically in political and financial communications\, as is therefore the lead of CCI Europe’s Communication Pillar. Anne is a founding board member of Don en Confiance Luxembourg (transparency donations)\, of Ile aux clowns (hospital clowns) and of the National Cancer Institute in Luxembourg representing young cancer patients. Together with two other organisations\, she created Fight Kids Cancer\, an innovative annual call for paediatric cancer research projects.  \n\n \nHarun Sabic \nHarun is a survivor who had osteosarcoma when he was 15. He has finished law school and is currently working in the Association “Heart for kids with cancer” in Bosnia and Herzegovina. Harun is a member of CCI Europe’s Committee and an active participant in the Survivorship and Diagnosis\, Treatment & Care Pillars.  \n \n \nMarko Ocokoljić \nMarko is a pharmacist with gained experience in healthcare research\, specifically the oncology. He is knowledgeable in health policy\, which scopes research briefings on childhood cancer\, producing high-level oncopolicy briefings\, monitoring of scientific research and key paediatric oncology policy developments at the EU level\, and engaging with external entities. \n \n\n\n\nMake sure to register on the button and you will automatically be sent a link to join the webinar!register here
URL:https://ccieurope.eu/event/know-the-basics-what-is-cross-border-health-care/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2023/01/Screenshot-2023-02-22-at-14.34.53.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20221212T170000
DTEND;TZID=Europe/Vienna:20221212T180000
DTSTAMP:20260419T011540
CREATED:20230221T164528Z
LAST-MODIFIED:20230222T131335Z
UID:4266-1670864400-1670868000@ccieurope.eu
SUMMARY:Advance your Knowldege: Understanding the EU Paediatric and Orphan Regulations
DESCRIPTION:The CCI Europe European Affairs Pillar Committee has hosted this educational webinar to help the European childhood cancer community in better understanding the EU Paediatric and Orphan Regulations – indeed\, this is what children with cancer need to get access to better care! \nThe EU Paediatric and Orphan Regulations are about to be reviewed by the European Parliament. This Education Policy Webinar explained the loopholes of those two regulations that have the potential to improve a timely access to innovative\, high-quality and safe medicines for young cancer patients. It also highlighted the proposed measures put forward by the members of the European Pillar to ensure more efficient and kinder treatments for them. \nThe presentation was followed by an interactive Q&A session with the members of the audience. \nSpeakers: Delphine Heenen\, CCI Europe Committee Member & Lead of European Affairs Pillar and Dr. Teresa de Rojas\, MD-PhD\, ACCELERATE Scientific Coordinator
URL:https://ccieurope.eu/event/advance-your-knowldege-understanding-the-eu-paediatric-and-orphan-regulations/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2023/02/delphine-webinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20221116
DTEND;VALUE=DATE:20221118
DTSTAMP:20260419T011540
CREATED:20220628T120911Z
LAST-MODIFIED:20220628T121015Z
UID:3376-1668556800-1668729599@ccieurope.eu
SUMMARY:European Cancer Summit 2022
DESCRIPTION:European Cancer Summit 2022 \n16 & 17 November 2022\, Brussels & available to join virtually \nDelivering Effective and Equitable Care Together  \nEvery year\, at the European Cancer Summit\, the European Cancer Organisation brings together leading oncology experts\, experienced patient advocates\, key opinion leaders\, policy makers and politicians to discuss key issues in reducing the burden of cancer\, saving\, and improving the lives of patients and the public. \nThis year’s European Cancer Summit on 16-17 November will focus on the implementation of Europe’s Beating Cancer Plan and the EU Cancer Mission’s recommendations\, including through ECO’s ten Focused Topic Networks. \nMore information about the European Cancer Summit 2022 programme\, confirmed speakers and registration is available at europeancancer.org/summit.
URL:https://ccieurope.eu/event/european-cancer-summit-2022/
LOCATION:Brussels\, Belgium
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2022/06/European-Cancer-Summit-2022-Official-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220627
DTEND;VALUE=DATE:20220702
DTSTAMP:20260419T011540
CREATED:20220328T085057Z
LAST-MODIFIED:20220331T153603Z
UID:3221-1656288000-1656719999@ccieurope.eu
SUMMARY:11th European Conference on Rare Diseases & Orphan Products (ECRD) 2022
DESCRIPTION:. \nThe ECRD is recognised globally as the largest\, patient-led rare disease policy event in which collaborative dialogue\, learning and conversation takes place\, forming the groundwork to shape goal-driven rare disease policies and allow for important and innovative discussions on a national and an international level to take place. \nLeading\, inspiring and engaging all stakeholders to take action\, the Conference is an unrivalled opportunity to network and exchange invaluable knowledge with over 1500 stakeholders in the rare disease community – patient advocates\, policy makers\, researchers\, clinicians\, healthcare professionals\, healthcare industry representatives\, academics\, payers\, regulators and Member State representatives. \n \n \nThe next ECRD will take place fully online from 27 June to 1 July 2022. \n \n \nThis 11th edition follows a pivotal two-year Rare 2030 Foresight Study\, supported by the European Parliament and European Commission\, that guided a large-scale and multi-stakeholder reflection on rare disease policy in Europe through 2030. \nThe concluding recommendation of Rare2030 was the need for a new European policy framework on rare diseases with measurable and actionable goals. Current actions at Member State level alone\, or legislative changes in specific areas are not enough. We need a new European collective strategy for rare diseases to bring Member States’ commitment to rare diseases under a common umbrella and mark a step forward in the post-COVID world. \nThis ECRD will be a critical opportunity for all stakeholders to consider how to transform this exhaustive review of the strategy on rare diseases into a proposal of concrete actions ultimately creating the ecosystem required to address the unmet needs and persisting inequalities across Europe. \n\nWhy participate in ECRD 2022 online? \n\nUsing the virtual event’s platform you can join ECRD from anywhere you wish\, with the\npossibility to re-watch on-demand session at your convenience.\nDirect from your desk – participate in sessions run by industry experts built around three\nthemes in line with the UN Social Development Goals. Over 100 speakers will lead online\,\ninteractive sessions and be available to answer questions.\nSpecial registration fees for patient representatives and healthcare professionals will make it\neasier for all stakeholder groups to take part!\n\n\nFeatures of ECRD 2022 online: \n\nA more flexible conference! You will be able to switch between parallel sessions and access\nrecordings of all sessions until the end of the year.\nAccess to hundreds of multimedia ECRD posters. Use interactive games\, quizzes and badges\nto make connecting from your home or office more fun.\nThe online platform is being built to guarantee online networking opportunities with speakers\nand fellow conference participants\, as well as with posters authors.\n\nPostersDeadline for the poster abstracts submissions for the ECRD 2022 are now extended to 21st April. \n \nVisit https://www.rare-diseases.eu/ for more details and how to register.
URL:https://ccieurope.eu/event/ecrd-2022/
LOCATION:Virtual
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END:VCALENDAR