CCI Europe

13th CCI Europe Conference, Valencia
2023-05-10 - 2023-05-12 | Valencia, Spain
CCI Europe will host its 13th CCI Europe Conference completely face to face from 10 to 12th May 2023 in Valencia, Spain. This event is once again organized in partnership with SIOP Europe, and as a part of the SIOPE’s 4th Annual Meeting of the European Society for Paediatric Oncology.
CCI Europe Conference is open to CCI members around the globe, as well as for individual parent and patient advocates, wanting to listen to the interesting sessions we are preparing for you. Your unique registration will allow you to attend open sessions outside of CCI Europe Conference, that are a part of SIOPE’s Annual Meeting.
Find detailed information here: https://ccieurope.eu/cci-europe-conference-2023/

Know the basics: What is ERN PaedCan?
2023-04-03 17:00 - 18:30 (Europe/Vienna) | Online Webinar
In this webinar, participants will learn why ERNs exist, what ERN PaedCan is, how it operates, whom it should serve and which cases are eligible. It will explain the CPMS and how it works. Furthermore, it will explain how patient organisations can in touch with the ERN PaedCan and be the link between ERN and patients/families and support implementation on the national levels.

About the Speakers:
Anne Goeres
Anne is managing director at the Fondatioun Kriibskrank Kanner, national foundation for children with cancer in Luxembourg for 15 years and Committee member of CCI Europe. Anne holds a master’s degree in communications, more specifically in political and financial communications, as is therefore the lead of CCI Europe’s Communication Pillar. Anne is a founding board member of Don en Confiance Luxembourg (transparency donations), of Ile aux clowns (hospital clowns) and of the National Cancer Institute in Luxembourg representing young cancer patients. Together with two other organisations, she created Fight Kids Cancer, an innovative annual call for paediatric cancer research projects.

Prof. Ruth Ladenstein, MD, MBA, cPM
Ruth Ladenstein is Professor in Paediatrics and Senior Consultant for Paediatric Haematology and Oncology at the St. Anna Children´s Hospital . She is Head of the Clinical Trials Unit S2IRP (Studies & Statistics for Integrated Research and Projects) at the Children’s Cancer Research Institute (CCRI) of the St. Kinderkrebsforschung GmbH (http://science.ccri.at/).
Martin Schalling
Martin Schalling is a project manager in the Research Management Office of the Children’s Cancer Research Institute (CCRI). He studied Pharmaceutical and Medical Biotechnology and worked as a Researcher at the Medical University of Vienna. He is mainly responsible for the Clinical Patient Management System CPMS.

register here

Know the basics: What is Cross Border Health Care?
2023-03-06 17:00 - 18:30 (Europe/Vienna) | Online Webinar
In this webinar, participants will learn what cross border health care means, why it is important and necessary in the context of Paediatric Oncology and highlight challenges. Moreover, it will address existing inequalities in access to diagnosis, treatment and care across Europe. It will give an outlook on the follow-up webinar about ERN PaedCan.

About the Speakers:
Anne Goeres

Anne is managing director at the Fondatioun Kriibskrank Kanner, national foundation for children with cancer in Luxembourg for 15 years and Committee member of CCI Europe. Anne holds a master’s degree in communications, more specifically in political and financial communications, as is therefore the lead of CCI Europe’s Communication Pillar. Anne is a founding board member of Don en Confiance Luxembourg (transparency donations), of Ile aux clowns (hospital clowns) and of the National Cancer Institute in Luxembourg representing young cancer patients. Together with two other organisations, she created Fight Kids Cancer, an innovative annual call for paediatric cancer research projects.

Harun Sabic
Harun is a survivor who had osteosarcoma when he was 15. He has finished law school and is currently working in the Association “Heart for kids with cancer” in Bosnia and Herzegovina. Harun is a member of CCI Europe’s Committee and an active participant in the Survivorship and Diagnosis, Treatment & Care Pillars.

Marko Ocokoljić
Marko is a pharmacist with gained experience in healthcare research, specifically the oncology. He is knowledgeable in health policy, which scopes research briefings on childhood cancer, producing high-level oncopolicy briefings, monitoring of scientific research and key paediatric oncology policy developments at the EU level, and engaging with external entities.

Make sure to register on the button and you will automatically be sent a link to join the webinar!register here

Advance your Knowldege: Understanding the EU Paediatric and Orphan Regulations
2022-12-12 17:00 - 18:00 (Europe/Vienna) | Online Webinar
The CCI Europe European Affairs Pillar Committee has hosted this educational webinar to help the European childhood cancer community in better understanding the EU Paediatric and Orphan Regulations – indeed, this is what children with cancer need to get access to better care!
The EU Paediatric and Orphan Regulations are about to be reviewed by the European Parliament. This Education Policy Webinar explained the loopholes of those two regulations that have the potential to improve a timely access to innovative, high-quality and safe medicines for young cancer patients. It also highlighted the proposed measures put forward by the members of the European Pillar to ensure more efficient and kinder treatments for them.
The presentation was followed by an interactive Q&A session with the members of the audience.
Speakers: Delphine Heenen, CCI Europe Committee Member & Lead of European Affairs Pillar and Dr. Teresa de Rojas, MD-PhD, ACCELERATE Scientific Coordinator

European Cancer Summit 2022
2022-11-16 - 2022-11-17 | Brussels, Belgium
European Cancer Summit 2022
16 & 17 November 2022, Brussels & available to join virtually
Delivering Effective and Equitable Care Together
Every year, at the European Cancer Summit, the European Cancer Organisation brings together leading oncology experts, experienced patient advocates, key opinion leaders, policy makers and politicians to discuss key issues in reducing the burden of cancer, saving, and improving the lives of patients and the public.
This year’s European Cancer Summit on 16-17 November will focus on the implementation of Europe’s Beating Cancer Plan and the EU Cancer Mission’s recommendations, including through ECO’s ten Focused Topic Networks.
More information about the European Cancer Summit 2022 programme, confirmed speakers and registration is available at europeancancer.org/summit.

11th European Conference on Rare Diseases & Orphan Products (ECRD) 2022
2022-06-27 - 2022-07-01 | Virtual
.
The ECRD is recognised globally as the largest, patient-led rare disease policy event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape goal-driven rare disease policies and allow for important and innovative discussions on a national and an international level to take place.
Leading, inspiring and engaging all stakeholders to take action, the Conference is an unrivalled opportunity to network and exchange invaluable knowledge with over 1500 stakeholders in the rare disease community – patient advocates, policy makers, researchers, clinicians, healthcare professionals, healthcare industry representatives, academics, payers, regulators and Member State representatives.

The next ECRD will take place fully online from 27 June to 1 July 2022.

This 11th edition follows a pivotal two-year Rare 2030 Foresight Study, supported by the European Parliament and European Commission, that guided a large-scale and multi-stakeholder reflection on rare disease policy in Europe through 2030.
The concluding recommendation of Rare2030 was the need for a new European policy framework on rare diseases with measurable and actionable goals. Current actions at Member State level alone, or legislative changes in specific areas are not enough. We need a new European collective strategy for rare diseases to bring Member States’ commitment to rare diseases under a common umbrella and mark a step forward in the post-COVID world.
This ECRD will be a critical opportunity for all stakeholders to consider how to transform this exhaustive review of the strategy on rare diseases into a proposal of concrete actions ultimately creating the ecosystem required to address the unmet needs and persisting inequalities across Europe.

Why participate in ECRD 2022 online?

Using the virtual event’s platform you can join ECRD from anywhere you wish, with the
possibility to re-watch on-demand session at your convenience.
Direct from your desk – participate in sessions run by industry experts built around three
themes in line with the UN Social Development Goals. Over 100 speakers will lead online,
interactive sessions and be available to answer questions.
Special registration fees for patient representatives and healthcare professionals will make it
easier for all stakeholder groups to take part!

Features of ECRD 2022 online:

A more flexible conference! You will be able to switch between parallel sessions and access
recordings of all sessions until the end of the year.
Access to hundreds of multimedia ECRD posters. Use interactive games, quizzes and badges
to make connecting from your home or office more fun.
The online platform is being built to guarantee online networking opportunities with speakers
and fellow conference participants, as well as with posters authors.

PostersDeadline for the poster abstracts submissions for the ECRD 2022 are now extended to 21st April.

Visit https://www.rare-diseases.eu/ for more details and how to register.

12th CCI Europe Conference | 3-5th June 2022
2022-06-03 - 2022-06-05 | Vienna, Austria
CCI Europe will host its 12th CCI Europe Conference completely face to face from 3rd to 5th June 2022 in the heart of Europe – Vienna, Austria. This event is open to CCI members around the globe, as well as for individual parent and patient advocates, wanting to listen to the interesting sessions we are preparing for you.

Find all information here: https://ccieurope.eu/cci-europe-conference-22/

3rd SIOP Europe Annual Meeting in partnership with CCI Europe
2022-03-23 - 2022-03-25 | Virtual
SIOPE Annual Meeting in collaboration with CCI Europe will be virtual due to the poor pandemic situation. This was not an easy decision for SIOP Europe and everyone involved in the organizing committees, and we fully support our friends at SIOP Europe in this tough decision. Hopefully, next year the situation will be different!
Even though we decided to have the CCI Europe sessions postponed to the face2face conference in June, we are more than happy to be still present at the SIOP Europe Annual Meeting! Just like in the previous years, we are already planning exciting plenary and joint sessions together with our colleagues at SIOP Europe.
Also, since we won’t be having our own conference at this meeting, this year we will have the luxury to also peak into some of the other open sessions about what is going on in research & development, treatments, follow-up care, cross-border health-care and other interesting areas. If you are also interested and can make the time, we’ll be happy to meet you there!
For updates, please follow: https://siopeurope.eu/

SIOPE annual meeting & CCI Europe conference
2021-04-28 - 2021-04-30 | Virtual
Are you a patient, parent, survivor and/or CCI Europe member? Then join us at the 11th CCI Europe Conference from 28 to 30 April 2021 virtually.
Like last time, the CCI Europe Conference is held within the Annual Meeting of the Society for Paediatric Oncology (SIOPE). This provides us with the excellent opportunity to:

Gain information and have impact in the field of research and development
Discuss with medical experts about various topics
Create Joint Sessions and hold plenary sessions with multi-stakeholders

In addition, like every year the CCI Europe Conference gives the voice to parents/patients and survivors to exchange experiences and provides support and information to the community.
Initial information can be found on the general SIOPE Annual meeting website: http://www.siopeurope.eu/registration.htm

9th ACCELERATE Paediatric Oncology Conference
2021-02-04 - 2021-02-05 | Virtual
You are invited to register for the 9th edition of the ACCELERATE Paediatric Oncology Conference, which will take place virtually on 4-5 February 2021.

The time of the conference has been chosen to best accommodate most of the time zones of our participants and the event will start at 3pm CET on each day.
Registration is now open with specially reduced rates available before the early rate deadline of 4 January 2021. Register here.
Discover more about this event here.

CCI Europe´s Introductory Webinar "Pillars Strategic Plan - GET INVOLVED!"
2020-12-09 17:00 - 18:30 (Europe/Berlin) | Virtual
CCI Europe is hosting the Introductory Webinar “CCI Europe Pillars Strategic Plan – get involved!”, where we wish to give you an opportunity to work with CCI Europe on the Strategic Plan.

Our CCI Europe Pillars: Strategic Plan aims to explain the foundation of CCI Europe and further to stir future objectives. In order to do that, CCI Europe is currently developing the Strategic Plan by identifying 5 main areas of focus, called Pillars, which will serve for later policy and new project initiatives:

We are sure that everyone will find themselves in at least one of these topics. We would be delighted to have you in our team of dedicated volunteers, as your commitment and expertise could help us shape the Strategic Plan. Please register for our Webinar that is taking place on the 9th December 2020, from 17 to 18:30 (CET) via Zoom, where we will further explain how you can GET INVOLVED! Please register here as soon as possible, by the latest 5th of December!
Join us regardless of doubts you might have, as we would still be happy to inform you about the made progress in the past few months! It is always nice seeing you even if we can´t meet in person! Please share this call within your organisations. Don´t forget that the Webinar is open for CCI members only!
We are looking forward to your participation! For any questions please revert to: europe@cci.care

European Cancer Organisation (ECO) Summit 2020
2020-11-18 - 2020-11-19 | Virtual
European Cancer Summit 2020
18 & 19 November 2020, Virtual Edition
Working Together Against Cancer: Breaking Down Barriers & Saving Lives
Every year, the European Cancer Organisation brings together leading oncology specialists, patient advocates, politicians and policy-makers to discuss the main issues impacting cancer policy, for the benefit of citizens, cancer patients and healthcare professionals across Europe.
The European Cancer Summit 2020 will include sessions on the EU Cancer Mission, Europe’s Beating Cancer Plan; the Impact of COVID-19 on Cancer; as well as the subjects covered by the European Cancer Organisation’s Focused Topic Networks.
Find out the latest information about the Summit programme and confirmed speakers on europeancancer.org/summit

6th ERN PaedCan General Assembly
2020-11-12 - 2020-11-13 | Virtual
This virtual meeting is open to all members of the European peadiatric oncology community. We encourage you to participate and engage in the discussions!
The European Reference Network on Paediatric Cancer (ERN PaedCan) aims to reduce inequalities in childhood cancer survival and break down barriers to effective cross-border healthcare. Find more information here. This virtual meeting will take place in the afternoon of the 12th and 13th of November, with a General Assembly scheduled for 12th November to report on the objectives of the ERN PaedCan network, and with a dedicated meeting for the ESCP Project on 13th of November.
Please register no later than 30th October via the following link. Only registered participants will receive the link to join the meeting.

CCI Europe´s Committee Meeting
2020-11-11 | Virtual
CCI Europe´s Committee is meeting to further develop CCI Europe Strategic Plan that would serve for later policy and new projects initiatives, assess the future steps for the benefit of CCI Europe and many other important things on the agenda.

World Cancer Series: Europe Virtual Week
2020-11-09 - 2020-11-13 | Virtual
The World Cancer Series: Europe Virtual Week will take place online on 9-13 November 2020.
This event will bring more than 1000 senior policymakers, clinicians, industry leaders, academics and patient advocates to drive forward the conversation on improving the provision of cancer care in Europe.
Kindly note that attendance is exceptionally free this year but you will have to register here to participate (please sign up soon if you would like to join).
For more information, please follow the link: https://events.economist.com/events-conferences/emea/world-cancer-series-europe/#overview

Annual General Assembly of Childhood Cancer International 2020
2020-10-15 | Virtual
Please find all of the relevant information here

CCI Europe´s Committee Meeting
2020-08-28 - 2020-08-30 | Vienna, Austria
CCI Europe´s Committee is meeting, half face to face and half virtual, in order to develop CCI Europe’s Capacity by discussing the ways how to support and develop AYAs, review and write thorough CCI Europe Strategic Plan that would serve for later policy and new projects initiatives, assess the future steps for the benefit of CCI Europe, develop and discuss the content of the CCI Europe Webinars and prepare for the CCI Europe/Siope Conference in Valencia, 2021.

CCI International congress as an integral part of SIOP world congress
2019-10-23 - 2019-10-26 | Lyon,, France
CCI Europe as a part of CCI International organisation actively assist to prepare congress part for parents, advocates and survivors from countries around the world

ERN PaedCan
2019-10-17 - 2019-10-18 | Brussels,, Belgium

10th CCI Europe Regional Conference
2019-05-23 - 2019-05-24 | Prag, Czech Republic
As an integral part of SIOPE conference.
2 day programme for parents – survivors – advocates’ organisation within Europe to share information, experience, to network, to search for potential partners, to improve the knowledge from pediatric oncology field and to get to know ech other better
