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DTSTART;TZID=Europe/Vienna:20240603T170000
DTEND;TZID=Europe/Vienna:20240603T183000
DTSTAMP:20260421T201343
CREATED:20240412T083437Z
LAST-MODIFIED:20241211T004822Z
UID:5875-1717434000-1717439400@ccieurope.eu
SUMMARY:Advance Your Knowledge: Drug Regulations - What is new for the childhood cancer community?
DESCRIPTION:In this webinar\, the participants will learn from our experts about any new developments in the Pharmaceutical Package. The European Parliament is set to adopt its formal position on the revision of the orphan and paediatric regulations this April and the Council has already started its internal discussions. Teresa and Marine will give us an update and let us know about any new developments on the file\, as well as our priorities and achievements in our continuous advocacy efforts to meet with members of the European Parliament and Council representatives. \n\nAbout the Speakers: \nTeresa Pais\nTeresa Pais is an EU public affairs specialist; she worked as parliamentary assistant to a member of the European Parliament\, in a trade association and consultancies in the healthcare sector. She graduated in Law and has a Master’s degree in European affairs. \n\nMarine Gouders\nMarine Gouders\, member of the CCI Europe Office\, studied law and specialised in European law. After graduating\, she did an internship at the European Parliament\, where she discovered the workings of the European institutions. For the past year\, she has been working in the European Affairs Pillar. \n\n\n\nDelphine Heenen\nDelphine Heenen is a CCI Europe board member and the founder\, director and day-to-day manager of KickCancer in Belgium. Delphine was successively a lawyer\, a strategy consultant and active in the investment world of renewable energy. Currently\, she is the leader of the EU affairs pillar and a member of the R&I Pillar. \n\n\n\nregister here
URL:https://ccieurope.eu/event/drug-regulations-childhood-whats-new-for-the-cancer-community/
LOCATION:Online Webinar
CATEGORIES:Event,Gold Webinars
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2024/04/Gold_Webinar_EU_Affairs.png
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DTSTART;TZID=Europe/Vienna:20240629T160000
DTEND;TZID=Europe/Vienna:20240629T180000
DTSTAMP:20260421T201343
CREATED:20240617T134233Z
LAST-MODIFIED:20240617T140140Z
UID:6272-1719676800-1719684000@ccieurope.eu
SUMMARY:Survivor's Week Webinar: Childhood Cancer - Stigma and Communication
DESCRIPTION:Childhood cancer survival rates have been improving globally over recent decades. Researchers in this area highlight\, “Ongoing improvements in survival rates across high-income\, middle-income and low-income countries will result in a rapidly expanding population of survivors with unique health-care needs\, emphasizing the increasing relevance of issues relating to childhood cancer survivors globally.” (Ehrhardt et al. 2023). Young people who have survived cancer are a medically vulnerable population at higher risk for health and psychosocial issues throughout their lifetimes including\, for example\, challenges in mental health\, physical health\, education\, work\, or social integration in their communities. However\, many young people who have survived childhood cancer have meaningful and productive lives with support from family\, community\, and peers. CCI and SIOP offer an annual 2-hour webinar on Childhood Cancer Survivorship to bring together professionals and young people who have been treated for cancer to highlight challenges and successes in this global topic. This year’s theme is Childhood Cancer Stigma and Communication (the language and words we use when speaking about childhood cancer). Join us on June 29\, 2024\, to celebrate cancer survival month (June) and all who have completed treatment worldwide. \nAbout the Speakers: \nYamini Krishnan \nPediatric oncologist\, Head of Paediatric Hematology Oncology and BMT unit at MVR Cancer Centre and Research Institute\, Kerala·MVR Cancer Centre and Research Institute\, Calicut\, Kerala\, India \n\nHead\, Paediatric Haematology Oncology and BMT unit at the MVR Cancer Centre and Research Institute\, Calicut\, Kerala\, India . Chair\, Neuroblastoma subcommittee of INPHOG; the research organisation of the Paediatric haematology oncology chapter of the Indian Academy of Paediatrics. Co Chair of the Protocols and Clinical Trials sub committee of the Indian childhood cancer Initiative(ICCi)\, working for the improvement of the care of children with cancer in India. Involved in the advisory committee of various Non governmental organisations. Though my clinical interests lie in the field of paediatric oncology \, I am very much interested in studying the social aspects in the lives of children affected with cancer and mitigating the barriers associated with the reintegration process of our children into the society. \n\n\nMara Ayala \nIMAGINA Pediatric Psycho-Oncology\, Mexico \n\nMara Ayala\, PhD is the founder and director of IMAGINA Pediatric Psycho-Oncology\, a nonprofit in Aguascalientes\, Mexico\, tending to the psychosocial needs of patients and their families. She also created the Integrative Extra- and Intra-Hospital Psycho-Oncological Intervention Model (MIPPEIH)\, now integral to the institution’s operations. \nAnna Sonkin \nPhysician·St. Jude Children’s Research Hospital \n\nAnna Sonkin\, MD\, is a parent of a pediatric cancer survivor and a pediatrician and palliative care physician currently working at St. Jude Children’s Research Hospital. She also specializes in clinical communication skills education. Until 2022\, she lived and worked in Russia and now lives in New York \nCriss Koba Mjumbe \nProfessor·University of Lubumbashi \n\nHe is a public health expert and associate professor at the University of Lubumbashi. Specialized in studies of QALYs (Quality-Adjusted Life Year) and DALYs (Disability-Adjusted Life Year) and Cancer Costs in Africa. Of Congolese origin\, he studied medicine in Lubumbashi. Member of the GFAOP and SIOP international \n\nManar El Mountaqi \n\nMy name is Manar\, and I am a 24-year-old medical student living in Rabat\, Morocco’s capital\, it’s a very beautiful city\, it’s a blend of historic charm and modern elegance\, featuring stunning coastal views . My journey into the field of medicine has been deeply personal. At the age of 10\, I was diagnosed with Hodgkin lymphoma. Inspired by the care and dedication of the medical professionals who treated me\, I decided to pursue a career in medicine. Now\, as a medical student\, I am committed to making a difference in the lives of my future patients\, and to support and heal those in need. \n\nRacha Hajjar \n\nMy name is Racha Hajjar (29 years old) and I work as a volunteer coordinator at the Cedars Cancer Center in Montreal. I have a bachelor’s degree in interior architecture as well as a master’s degree in social work. When I was 9 years old\, I was diagnosed with leukemia. I was treated at the Children’s Cancer Center of Lebanon (CCCL) for four long years. My cancer journey has made me the strong person I am today. \n\n\n\n\n\n\n\nregister here
URL:https://ccieurope.eu/event/survivors-week-webinar-childhood-cancer-stigma-and-communication/
LOCATION:Online Webinar
CATEGORIES:Event,Survivorship
ATTACH;FMTTYPE=image/png:https://ccieurope.eu/wp-content/uploads/2024/06/childhood_cancer_survivors_week_stigma_communication.png
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