The visibility of long-term follow-up care as well as survivorship issues have increased continually in the field of the paediatric oncology within the last years. The contribution from patients’ and parents’ representatives meanwhile has become an essential part in several Europe-wide projects on the topic of survivorship.
Since the kick-off of our network in 2016, we have been involved continually in several EU-wide projects and initiatives, as part of CCI Europe and through the PanCareFollowUp project. Prior to that, we have provided feedback on JARC documents and have been involved in the Survivorship Passport project in the past two years.
Our opinions and experiences provide valuable contributions to research, projects and awareness campaigns on survivorship issues and we are ready to share our expertise.
In preparation for the first SIOP Europe Annual Meeting, in partnership with CCI Europe, we are responsible for the survivors’ input and organisational aspects of the programme planning.