Patient Advocacy

White Paper: Optimizing Quality of Life after Youth Cancer

There are over 500,000 young cancer survivors, aged 14-39 living in Europe. Thanks to advancements in medical treatments, the survival rate stands at an encouraging 85% in developed European countries (Challenges for children and adolescents with cancer in Europe: the SIOP-Europe agenda – PubMed (nih.gov)). However, compared to their peers, survivors of childhood, adolescent

The Healthcare Professionals’ and Patient Advocates’ Perspectives on the Care for Children with Cancer in Europe – A Report from the ESCALIER Project

Authors Maria Otth 1,2,3,4,*, Marko Ocokoljic 4,5, Theodora Armenkova 5,6, Irina Ban 5,7, Samira Essiaf 4, Maximilian Hopfgartner 5, Lejla Kameric 5,8, Pamela R Kearns 4,9,10, Georgia Kokkinou 5,11, Carmelo Rizzari 4,12,13, Carina Schneider 5, Katrin Scheinemann 1,3,4 Abstract Cancer in children and adolescents is rare. Therefore, experienced multidisciplinary teams of health care professionals

[CCI Europe Gold Webinar] Know the basics: How can I level up my Patient Advocacy?

This webinar is a part of the CCI Europe’s Gold Webinar Series. Title: Know the basics: How can I level up my patient advocacy? Speakers: Laia Bisbal Arnal, Rachel Butcher, Sara Dederichs, Alice Gerbaux, Raluca Popa. Download the presentation here In this webinar, the participants will learn about existing patient advocate trainings, how they were developed,

[CCI Europe Gold Webinar] Know the basics: How does policy work at the European level?

This webinar is a part of the CCI Europe’s Gold Webinar Series. Title: Know the basics: How does policy work at the European level? Speakers: Teresa Pais, CCI Europe Senion Policy Officer and Marine Gouders, CCI Europe Junior Policy Officer Download the presentation here In this webinar you will learn about the role of the different

[CCI Europe Gold Webinar] Advance your knowledge: Understanding the EU Paediatric and Orphan Regulations

This webinar is a part of the CCI Europe’s Gold Webinar Series. Title: Advance your knowledge: Understanding the EU Paediatric and Orphan Regulations Speakers: Delphine Heenen, CCI Europe Committee Member & Lead of European Affairs Pillar and Dr. Teresa de Rojas, MD-PhD, ACCELERATE Scientific Coordinator Download the presentation here The CCI Europe European Affairs Pillar Committee

Go to Top