About CCI Europe Pillars

The CCI Europe Pillars were set up in order to shape CCI Europe’s strategic plan and build the basis for a roadmap on CCI Europe’s present and future work. The pillars are organized as 5 main pillars, representing 5 topics CCI Europe is working on, and 4 transversal pillars.

Main pillars:

Research & Innovation Pillar

Urgent actions for efficacious, less toxic and innovative medication and treatments to improve the cure rate and reduce the long-term side effects are needed. A multidisciplinary approach between all stakeholders is a way to achieve progress and ensure proper care with an adjusted regulatory environment.

Patients, parents and survivors voice in the field of research and innovation aims to contribute in the development of novel and better diagnostic and treatment tools in the childhood cancer area.

Read more about the Research & Innovation Pillar here.

Diagnosis, Treatment & Care Pillar

There is a huge disparity in survival rates (20% less in Southern and Eastern Europe when compared to Northern and Western Europe) and significant long-term side-effects in many survivors across Europe. Most of these imbalances are due to the different treatment approaches, the organisation of care and availability of resources.

The aim of this pillar is to establish the same standards of care across Europe by providing all children and adolescents with cancer with the same access to diagnosis and treatment regimens, adequate monitoring of late effects, adequate facilities during treatment, continuous education of healthcare staff, access to psychosocial care and continuous involvement of parents in the treatment process.

Read more about the Diagnosis, Treatment & Care Pillar here.

Psychosocial Care Pillar

All over Europe, continuous psychosocial care – providing appropriate financial and personnel resources – is still lacking in numerous countries, which is why supporting hospitals with funding for psychosocial care is a key element of most parent-, patient- and survivors-organizations. CCI Europe brings the lack of psychosocial care (and funding thereof) to the European level, raising awareness for the severeness and thus importance of the psychosocial dimension within paediatric oncology. CCI Europe sees an essential need in helping to manage a balance between the – for quality of life – equally important facilitation of medical and psychosocial care along the whole continuum in paediatric cancer.

Read more about the Psychosocial Care Pillar here.

Survivorship Pillar

Up to ⅔ to ¾ of childhood and adolescent cancer survivors are confronted with late-effects of their cancer and its treatment. These late-effects can affect the whole organism and psychosocial wellbeing. In addition, many survivors face socioeconomic discrimination due to their prior illness.

Mission of the Survivorship Pillar is to raise awareness about these pressing survivorship issues, to improve quality of survivorship by advocating for better and comprehensive education about late-effects, by supporting the development and implementation of follow-up care and by advocating against socioeconomic discrimination.

Read more about the Survivorship Pillar here.

Capacity Development

Aim of this pillar is to maximise human resources within CCI Europe and engage all parent- and survivor-organisations at European level, as well as to ignite fruitful intercountry collaboration as an essential way of exchanging good practices and uniting patient representatives under a common umbrella. CCI Europe strives to continuously educate patient representatives and expand their voice through high-qualified projects, activities and decision-making processes, as well as through policy incentives in close collaboration with healthcare professionals and other stakeholders. In such a manner, creating a wide network of allies brings forward the strength and cements further the expertise of CCI Europe in the childhood cancer field.

Read more about the Capacity Development Pillar here.

Transversal pillars:

European Affairs

European Affairs Committee is monitoring and influencing policy initiatives of relevance to childhood cancer at the European level through systematic engagement with the EU officials (European Parliament, European Commission, Council of the EU), joint policy initiatives with strategic partners (e.g. SIOP Europe), and by mobilising its membership to participate in relevant EU policy activities to childhood cancer.

Download our poster here.

Communication

The Communication Committee of CCI Europe is set up to harmonize the communication about CCI Europe. It functions as an advisory group for supporting, developing, and sharing information about CCI Europe, along with the Communication Officer of CCI Europe.

What do we do:

– Plan and run campaigns
– Engage with our social media content (information, events and much more)
– Continuously work on improving CCI Europe visual identity

Download our poster here.

Long-Term Sustainability

Long-Term Sustainability Committee is investigating funding possibilities and financial partnerships, ensuring sufficient human resources in the head office, but also evaluating and further developing CCI Europe’s governance structure in collaboration with the CCI Europe Committee.

Download our poster here.

Ethics

The Ethics Committee of CCI Europe is set up to providing ethical advice regarding and monitoring of CCI Europe’s activities, collaborations and participation in projects.

Download our poster here.