One of the results of the PanCarefollowup project was the so-called PLAIN brochures.
PLAIN stands for Person-centered, Lay-language, Accessible, International, Navigable and is based on the PanCareFollowUp guidelines for late effects. These guidelines are based on the IGHG guidelines (International Group for Guideline Harmonization for Late Effects of Childhood Cancer) and on the consensus (agreement) of various national guidelines.
Within the project, they were developed by the PanCare PLAIN information group. This group consisted of an interdisciplinary team of health care professionals and patient experts to ensure the accuracy and quality of the content on the one hand and to ensure that these brochures really meet the needs of patients and their families on the other.
The brochures will be expanded in 2024 under the EU-CAYAS-NET project.
The brochures are now accessible for free on the PanCare Website under https://www.pancare.eu/plain-language-summaries/.