VISION OF CCI Europe

The Vision of CCI Europe is to cure children and adolescents with childhood cancer with no- or as few as possible long-term health problems and late-effects.

To reach its vision, CCI Europe is working in close collaboration with the medical and psychosocial professionals, academia, scientists, the civil society and private organisations all over Europe.

CHILD 4 CHILD

International Childhood Cancer Day (ICCD) is a global collaborative campaign to raise awareness about childhood cancer and to express support for children and adolescents with cancer, survivors and their families. The day is celebrated around the world each year on February 15th and promotes increased appreciation and a deeper understanding of issues and challenges relevant to childhood cancer. It also spotlights the need for more equitable and better access to treatment and care for all children with cancer, everywhere.

What is the message we’d like to pass on 15th February? Childhood cancer is the leading cause of death by disease in children above the age of one year in the European Union. Every day, there are almost 700 new cases of childhood cancer around the world. We aim to increase awareness about Childhood Cancer in general and give the Gold Ribbon its well-deserved visibility.

Unfortunately, the 5-year survival rate for children in eastern European countries is 10% – 20% less compared to Central and Western Europe. The chance for a cure, the chance to live, should not be an accident of geography. Children’s rights cannot be fulfilled and protected unless preventing and treating cancers is included as a priority within national cancer control programs.
Make your voices heard on International Childhood Cancer Day and demand from world leaders to ACT and HELP SAVE ALL CHILDREN regardless of where they live!

Mission of CCI Europe:

The Mission of CCI Europe is to unite parents, patients and survivors and advocate for their rights to:

Improve the medical and psychosocial care for children and adolescents with cancer all over Europe

Implement European Standards of Care to eliminate still existing inequalities

Improve the quality of survivorship

CCI Europe is steered by 10 Committee Members, equally distributed Parents and Survivors’ representatives.
They are a group of patient advocates, who, besides their daytime jobs, volunteer for CCI Europe.

Anita Kienesberger, MA
Chair of CCI Europe Committee

E-mail: a.kienesberger@ccieurope.eu

Luisa Basset-Salom
Vice-Chair of CCI Europe Committee

E-mail: L.basset@ccieurope.eu

AUSTRIA

Mag.a Carina Schneider
CCI Europe Committee Member

E-mail: c.schneider@ccieurope.eu

BELGIUM

Delphine Heenen
CCI Europe Committee Member

E-mail: d.heenen@ccieurope.eu

BOSNIA & HERZEGOVINA

Lejla Kamerić
CCI Europe Committee Member

E-mail: l.kameric@ccieurope.eu

BOSNIA & HERZEGOVINA

Harun Šabić
CCI Europe Committee Member

E-mail: h.sabic@ccieurope.eu

FRANCE

Frédéric Arnold
CCI Europe Committee Member

E-mail: f.arnold@ccieurope.eu

LUXEMBOURG

Anne Goeres
CCI Europe Committee Member

E-mail: a.goeres@ccieurope.eu

SWITZERLAND

Zuzana Tomasikova
CCI Europe Committee Member

E-mail: z.tomasikova@ccieurope.eu

SWITZERLAND

Nicole Scobie
CCI Europe Committee Member

E-mail: n.scobie@ccieurope.eu

HISTORY

In 2011, the Parents and Patients Advocacy Committee (PPAC) was created within the European project ENCCA, including parents and survivors’ representatives of Childhood Cancer International (CCI) European members

CCI Europe Regional Committee was officially formed in 2015 representing in Europe the interests of all the CCI European members

In 2016 the CCI Europe Survivors Network was formed within that group, representing the interests of European Survivors.

Since the beginning of 2019 CCI Europe became officially the European branch of CCI. CCI Europe is working very closely with SIOP Europe and formed a formal partnership with PanCare regarding Survivorship.