Vision of CCI Europe
A world where everyone
affected by childhood cancer
is supported and able to
thrive, free from lasting
impact.
Mission of CCI Europe:
We unite and represent the European childhood cancer patient community to drive change that improves lives.
We empower our members to amplify their individual and collective impact.
We mobilise our community and coordinate joint actions to tackle our common challenges together.
Strategic Objectives:
Strengthen the capacity, cohesion and influence of CCI Europe’s member organisations.
Increase and improve access to early diagnosis, and high-quality treatment and care for everyone affected by childhood cancer in Europe.
Advance equitable access to long-term care, information and support for all childhood cancer survivors across Europe.
Influence research so it reflects the needs of everyone affected by childhood cancer, is effective, impactful and delivers at a faster pace.
CCI Europe is steered by 9 Committee Members, equally distributed Parents and Survivors’ representatives.
They are a group of patient advocates, who, besides their daytime jobs, volunteer for CCI Europe.
AUSTRIA
Anita Kienesberger
Chair of CCI Europe Committee
E-mail: a.kienesberger@ccieurope.eu
“I became a patient advocate because I wanted to work with those who survived this disease and my mission in CCI Europe is to see how the childhood cancer survivors become a strong group as patient experts.”
SPAIN
Luisa Basset-Salom
Vice-Chair of CCI Europe Committee
E-mail: L.basset@ccieurope.eu
“After my son, who is now a long-term survivor, was diagnosed with cancer in 1990, I decided to become a patient advocate to improve the access to a better diagnosis, treatment, care and quality of life of children, adolescents and survivors all over the world.”
AUSTRIA
Michaela Willi
CCI Europe Committee Member
E-mail: m.willi@ccieurope.eu
“I am a Childhood Cancer Survivor. As patient advocate and scientist, I am striving to bridge these two disciplines I am passionate for.”
BELGIUM
Delphine Heenen
CCI Europe Committee Member
E-mail: d.heenen@ccieurope.eu
“When my son relapsed from cancer, I realised that children did not have access to the newest treatments developed for adults. I want children to come first, and not last when it comes to innovation and for that, we need better regulations to facilitate research and more money to fund the best projects.”
BOSNIA & HERZEGOVINA
Harun Šabić
CCI Europe Committee Member
E-mail: h.sabic@ccieurope.eu
“After my recovery from cancer after my teenage years, I decided to volunteer in the field of childhood cancer. I decided to become active in order to help children who came for treatment. With my involvement in CCI Europe, I got the opportunity to become a patient representative and help children and young people who are being treated so they could receive the best care and their rights during and after treatment.”
GREECE
Georgia Kokkinou
CCI Europe Committee Member
E-mail: g.kokkinou@ccieurope.eu
“Having lost a child to cancer, I know first-hand what it means to deal with cancer and loss. I am here to make sure that all children have access to the latest treatments and all families receive proper support, regardless of the country they live in.”
PORTUGAL
Tiago Costa
CCI Europe Committee Member
E-mail: t.costa@ccieurope.eu
“I became a patient advocate to be able to represent the voice of European childhood cancer survivors and raise awareness about their different realities and challenges they have to overcome in their daily life after the disease.”
LUXEMBOURG
Anne Goeres
CCI Europe Committee Member
E-mail: a.goeres@ccieurope.eu
“My long commitment to childhood cancer through national involvment highlighted how essential it is to be active on the international level to learn, share and exchange for a greater understanding of the different childhood cancer aspects and foster for improvements on all levels for the young patients and their families”
SWITZERLAND
Zuzana Tomášiková
CCI Europe Committee Member
E-mail: z.tomasikova@ccieurope.eu
“As a patient advocate and a childhood cancer survivor myself, I feel urge to point out the challenges survivors face and seek to work within the community to improve the situation for future patients, survivors and their families. Simply because it is not just over, once your treatment is over.”
The Office is responsible for CCI Europe’s daily operations and for supporting the work of all committee members wherever needed.
AUSTRIA
Carina Schneider
Managing Director
E-mail: c.schneider@ccieurope.eu
AUSTRIA
Serena Giacomin
Operations Coordinator
E-mail: s.giacomin@ccieurope.eu
AUSTRIA
Despina Freri
Communication & Marketing Manager
E-mail: d.freri@ccieurope.eu
AUSTRIA
Barbara Brunmair
Projects Coordinator
E-mail: b.brunmair@ccieurope.eu
AUSTRIA
Hannah Gsell
Projects Coordinator
E-mail: h.gsell@ccieurope.eu
AUSTRIA
Albina Hyseni-Bocolli
Projects Coordinator
E-mail: a.bocolli@ccieurope.eu
AUSTRIA
Ian Murphy
Projects Coordinator
E-mail: i.murphy@ccieurope.eu
BELGIUM
Teresa Pais
Senior Policy Officer
E-mail: t.pais@ccieurope.eu
BELGIUM
Marine Gouders
Junior Policy Officer
E-mail: m.gouders@ccieurope.eu
BELGIUM
Puck Slaats
Junior Policy Officer
E-mail: p.slaats@ccieurope.eu
CCI Europe is the largest childhood cancer parents, patients, and survivors umbrella organisation in Europe, with currently 64 member organisations in 35 European countries. Our international team is based on our offices in Vienna and in Brussels.
What are we currently looking for?
There are no open positions at the moment.