Policy

[CCI Europe Gold Webinar] How to develop and translate a multidisciplinary Psycho-Oncology Model of Care into real action?

This webinar is a part of the CCI Europe’s Gold Webinar Series. Title:How to develop and translate a multidisciplinary Psycho-Oncology Model of Care into real action? Speakers: Laura Cullinan, Dr Chiara Besani, Dr Helen Greally  Download the presentation here This webinar focused on advancing psychosocial care in paediatric oncology, highlighting the need for improvement in many

[CCI Europe Gold Webinar] Know the basics: How to advance childhood cancer priorities in the aftermath of the EU elections? – Members Only

This webinar is a part of the CCI Europe’s Gold Webinar Series. Title: Know the basics: How to advance childhood cancer priorities in the aftermath of the EU elections? Speakers: Teresa Pais, CCI Europe Senion Policy Officer and Marine Gouders, CCI Europe Junior Policy Officer Download the presentation here In the aftermath of the EU elections,

[CCI Europe Gold Webinar] Know the basics: How does policy work at the European level?

This webinar is a part of the CCI Europe’s Gold Webinar Series. Title: Know the basics: How does policy work at the European level? Speakers: Teresa Pais, CCI Europe Senion Policy Officer and Marine Gouders, CCI Europe Junior Policy Officer Download the presentation here In this webinar you will learn about the role of the different

Ending discrimination against survivors through the Right to be Forgotten

The growing number of cancer survivors in the EU is a tribute to the success of advances in diagnosis and treatment. The latest scientific research and data account for over 20 million cancer survivors in Europe and, for many, it then becomes necessary to overcome the psychological impact of their treatments, workplace marginalization and access to financial services such as mortgages and loans. Thanks to

[CCI Europe Gold Webinar] Advance your knowledge: Understanding the EU Paediatric and Orphan Regulations

This webinar is a part of the CCI Europe’s Gold Webinar Series. Title: Advance your knowledge: Understanding the EU Paediatric and Orphan Regulations Speakers: Delphine Heenen, CCI Europe Committee Member & Lead of European Affairs Pillar and Dr. Teresa de Rojas, MD-PhD, ACCELERATE Scientific Coordinator Download the presentation here The CCI Europe European Affairs Pillar Committee

2019 Beating Cancer Manifesto SIOPE and CCI-E

Paediatric cancer remains a major public health and societal issue in Europe: • Each year more than 35,0001 children and young people are diagnosed with cancer; • More than 6,0002 young patients die of cancer each year, and cancer remains the first cause of death by disease in Europe in children older than 1 year; • There will be nearly half a million childhood cancer survivors by 2020 – 2025 • Over two-thirds of childhood cancer survivors experience long-term health and psychosocial problems due to their disease and treatment which may be severe and affect their daily life and participation as EU citizens; • While improvements have been achieved for some childhood cancers over the past years, there has been little progress in patient survival for difficult-to-treat paediatric malignancies, and too many young lives are still lost to the disease; • There are substantial inequalities in access to the best available care and expertise across Europe causing up to 20%4 differences in survival rates among European countries.

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