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Advancing cancer care for adolescents and young adults: the role of the European Network of Expertise

Summary Adolescents and young adults (AYAs, aged 15-39 years at cancer diagnosis) are recognized as a distinct patient group with specific clinical and psychosocial needs requiring tailored care. This article presents the Network of Expertise (NoE) on AYAs with cancer developed through the Joint Action on Network of Expertise to strengthen AYA research and

[CCI Europe Meeting] Health Technology Assessment: The new EU HTA regulation

In this session, we explore what the updated EU Health Technology Assessment (HTA) process means for our community and why patient perspectives are more important than ever. Our recent online event brought together experts and community members to break down the changes, discuss how upcoming assessments of new treatments will be shaped, and highlight

White Paper: Optimizing Quality of Life after Youth Cancer

There are over 500,000 young cancer survivors, aged 14-39 living in Europe. Thanks to advancements in medical treatments, the survival rate stands at an encouraging 85% in developed European countries (Challenges for children and adolescents with cancer in Europe: the SIOP-Europe agenda – PubMed (nih.gov)). However, compared to their peers, survivors of childhood, adolescent

The Healthcare Professionals’ and Patient Advocates’ Perspectives on the Care for Children with Cancer in Europe – A Report from the ESCALIER Project

Authors Maria Otth 1,2,3,4,*, Marko Ocokoljic 4,5, Theodora Armenkova 5,6, Irina Ban 5,7, Samira Essiaf 4, Maximilian Hopfgartner 5, Lejla Kameric 5,8, Pamela R Kearns 4,9,10, Georgia Kokkinou 5,11, Carmelo Rizzari 4,12,13, Carina Schneider 5, Katrin Scheinemann 1,3,4 Abstract Cancer in children and adolescents is rare. Therefore, experienced multidisciplinary teams of health care professionals

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