Summary Adolescents and young adults (AYAs, aged 15-39 years at cancer diagnosis) are recognized as a distinct patient group with specific clinical and psychosocial needs requiring tailored care. This article presents the Network of Expertise (NoE) on AYAs with cancer developed through the Joint Action on Network of Expertise to strengthen AYA research and
A comprehensive glossary which defines key terms to enable communication and collaboration in paediatric palliative care (PPC). Original developed by three Italian Associations (Paediatric Hematology Oncology, Paediatrics Society, and Palliative Care Society), this glossary is its European adaptation suggested by the SIOPE Palliative Care Working Group, to make the glossary applicable across diverse cultures
The growing number of cancer survivors in the EU is a tribute to the success of advances in diagnosis and treatment. The latest scientific research and data account for over 20 million cancer survivors in Europe and, for many, it then becomes necessary to overcome the psychological impact of their treatments, workplace marginalization and access to financial services such as mortgages and loans. Thanks to
Patients and the wider public are beneficiaries of scientific research that leads to new drugs and medical technologies, but they can and should be able to contribute to these advances through participation in clinical studies, co-design of research and input into regulatory processes. The key elements of PPIE, proposed by Kathy Oliver, patient advocate
