Summary Adolescents and young adults (AYAs, aged 15-39 years at cancer diagnosis) are recognized as a distinct patient group with specific clinical and psychosocial needs requiring tailored care. This article presents the Network of Expertise (NoE) on AYAs with cancer developed through the Joint Action on Network of Expertise to strengthen AYA research and
A comprehensive glossary which defines key terms to enable communication and collaboration in paediatric palliative care (PPC). Original developed by three Italian Associations (Paediatric Hematology Oncology, Paediatrics Society, and Palliative Care Society), this glossary is its European adaptation suggested by the SIOPE Palliative Care Working Group, to make the glossary applicable across diverse cultures
There are over 500,000 young cancer survivors, aged 14-39 living in Europe. Thanks to advancements in medical treatments, the survival rate stands at an encouraging 85% in developed European countries (Challenges for children and adolescents with cancer in Europe: the SIOP-Europe agenda – PubMed (nih.gov)). However, compared to their peers, survivors of childhood, adolescent
Authors Maria Otth 1,2,3,4,*, Marko Ocokoljic 4,5, Theodora Armenkova 5,6, Irina Ban 5,7, Samira Essiaf 4, Maximilian Hopfgartner 5, Lejla Kameric 5,8, Pamela R Kearns 4,9,10, Georgia Kokkinou 5,11, Carmelo Rizzari 4,12,13, Carina Schneider 5, Katrin Scheinemann 1,3,4 Abstract Cancer in children and adolescents is rare. Therefore, experienced multidisciplinary teams of health care professionals
Patients and the wider public are beneficiaries of scientific research that leads to new drugs and medical technologies, but they can and should be able to contribute to these advances through participation in clinical studies, co-design of research and input into regulatory processes. The key elements of PPIE, proposed by Kathy Oliver, patient advocate
