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GLOSSARY OF TERMS – PAEDIATRIC ONCOLOGY & PAEDIATRIC PALLIATIVE CARE: A Shared Language to Promote Integration

A comprehensive glossary which defines key terms to enable communication and collaboration in paediatric palliative care (PPC). Original developed by three Italian Associations (Paediatric Hematology Oncology, Paediatrics Society, and Palliative Care Society), this glossary is its European adaptation suggested by the SIOPE Palliative Care Working Group, to make the glossary applicable across diverse cultures

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White Paper: Optimizing Quality of Life after Youth Cancer

There are over 500,000 young cancer survivors, aged 14-39 living in Europe. Thanks to advancements in medical treatments, the survival rate stands at an encouraging 85% in developed European countries (Challenges for children and adolescents with cancer in Europe: the SIOP-Europe agenda – PubMed (nih.gov)). However, compared to their peers, survivors of childhood, adolescent

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The Healthcare Professionals’ and Patient Advocates’ Perspectives on the Care for Children with Cancer in Europe – A Report from the ESCALIER Project

Authors Maria Otth 1,2,3,4,*, Marko Ocokoljic 4,5, Theodora Armenkova 5,6, Irina Ban 5,7, Samira Essiaf 4, Maximilian Hopfgartner 5, Lejla Kameric 5,8, Pamela R Kearns 4,9,10, Georgia Kokkinou 5,11, Carmelo Rizzari 4,12,13, Carina Schneider 5, Katrin Scheinemann 1,3,4 Abstract Cancer in children and adolescents is rare. Therefore, experienced multidisciplinary teams of health care professionals

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The opportunity for greater patient and public involvement and engagement in drug development and regulation – Members Only

Patients and the wider public are beneficiaries of scientific research that leads to new drugs and medical technologies, but they can and should be able to contribute to these advances through participation in clinical studies, co-design of research and input into regulatory processes. The key elements of PPIE, proposed by Kathy Oliver, patient advocate

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