childhood cancer
Events
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Know the Basics: Peer Support in the spotlight – What can we learn from peer support programmes around Europe?
Online WebinarAbout the webinar: During this webinar, we will explore different models of peer support within our community. We’re not limiting ourselves to just one target group—we want to showcase the many ways peers can support not only patients but also survivors and parents, guiding them through the various stages of the treatment pathway
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Know the Basics: Building bridges – How does Palliative Care complete paediatric cancer care?
Online Webinarregister here About the webinar: This webinar aims to dispel any misconceptions surrounding paediatric palliative care and better clarify its role and how it can better support children with cancer and their families. Through a multi-disciplinary approach and presentation, and enough time for discussion with the participants, we aim
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Know the Basics: What Are PROs and PROMs, and Why Do They Matter?
Online Webinarregister here About the webinar: This webinar explores the role of Patient-Reported Outcomes (PROs) and Patient-Reported Outcome Measures (PROMs) in clinical research and healthcare. Participants will gain insights into the scientific foundations of PROs/PROMs, their impact on clinical trials, and their relevance for improving patient care and quality of
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Know the Basics: From Brussels to the lab: How will the shift in the EU’s policy agenda impact Research & Innovation?
Online Webinarregister here About the webinar: This webinar explores how the European Union (EU)'s emerging priorities will be influencing the direction and funding of research and innovation (R&I) policies across the region. As the EU responds to global challenges - from green and digital transitions to geopolitical shifts and economic
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Communication about Late Effects
OnlineAbout We are excited to invite you to the first webinar of the YARN #QualityofLife webinar series! In this webinar, we will explore how to communicate effectively about late effects. Our panel - including healthcare professionals, researchers, and people with lived experience - will share practical do’s and don’ts, tips for clear communication, and
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Living Beyond Cancer: Late effects and Survivorship Care Online Course
OnlineAbout the Course “Cure is not enough” – in 1975 Giulio J. D’Angio had the vision of childhood and adolescent cancer survivors and their long-term follow-up care. With around 80 % survival of childhood and adolescent cancer, around 500,000 survivors live in Europe today and the number is increasing. At least two-thirds experience long-term
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From Recommendations to Real Life: Mental Health Care in CAYA Cancer Survivorship
OnlineAbout Join young survivors, clinicians, and psychosocial experts to discover recommendations for mental health care in CAYA cancer survivorship, and explore how to implement them in everyday practice. REGISTER HERE
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Neuroblastoma Parent Symposium 2026
OnlineAbout the symposiums Following a neuroblastoma diagnosis, children and families face difficult challenges and complex treatment decisions. SKC symposium aims to bring together the neuroblastoma community from across the UK and around the world to share knowledge, insights, and support. Delivered both in-person and virtually over the years, the symposium offers an accessible space
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#QualityofLife Webinar Series: The next chapter – Living a healthy lifestyle after cancer
OnlineAbout this webinar Join us for the next YARN #QualityofLife webinar on 27 May 2026 at 17:00 CEST! We are excited to invite you to the next webinar in the YARN #QualityofLife series on “Living a Healthy Lifestyle After Cancer”. How can young people living with and beyond cancer be supported in adopting and
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European Conference on Rare Diseases & Orphan Products (ECRD) 2026
PragueAbout The European Conference on Rare Diseases & Orphan Products (ECRD) 2026 will take place on 3 - 4 June 2026 in Prague, under the title “Rare Diseases in a Changing & Competitive Europe: Shaping policies to address the unmet needs of people living with rare diseases”. The conference will be held in a