Launch of new ERN PaedCan website with dedicated patient landing page The European Reference Network for Paediatric Cancer (ERN PaedCan) has launched a new website, developed together with CCI Europe, to make it easier for both healthcare professionals and patients to find key resources in one place. The platform
UNIFIED Launches to Put Patient Voices at the Heart of Healthcare Decisions Rotterdam, 4 November 2025 – Erasmus University Rotterdam and Pfizer lead UNIFIED (Unifying Framework for Patient-Centred Clinical-study Endpoints Derived from Digital Health Technologies), a five-year, €27 million global public-private partnership funded by the Horizon Europe Innovative Health
A Win for Transparency: ESCP Guidelines Now Open to Patients, Families, and Advocates After sustained pressure from CCI Europe and other partners, the European Reference Network for Paediatric Cancer (ERN PaedCan), SIOP Europe, and the European Clinical Trial Groups (ECTG) have made all 27 European Standard Clinical Practice (ESCP)
Kick-off Meeting Launches RHYTHM Project to Enhance Radiation Safety and Imaging Quality for Young Patients in Europe Vienna, Austria – October 22, 2025 - The 4-year RHYTHM project (Radiation, Health, Safety and Quality for Youth: A Comprehensive Approach to Justification, Optimisation, and Education) officially launched with a kick-off meeting
About The European Conference on Rare Diseases & Orphan Products (ECRD) 2026 will take place on 3 - 4 June 2026 in Prague, under the title “Rare Diseases in a Changing & Competitive Europe: Shaping policies to address the unmet needs of people living with rare diseases”. The conference will be held in a
About the Course “Cure is not enough” – in 1975 Giulio J. D’Angio had the vision of childhood and adolescent cancer survivors and their long-term follow-up care. With around 80 % survival of childhood and adolescent cancer, around 500,000 survivors live in Europe today and the number is increasing. At least two-thirds experience long-term
register here About the webinar: This webinar explores how the European Union (EU)'s emerging priorities will be influencing the direction and funding of research and innovation (R&I) policies across the region. As the EU responds to global challenges - from green and digital transitions to geopolitical shifts and economic
No Child Left Behind: Prioritising Childhood Cancer in the Next EU Budget Childhood cancer took centre stage at the European Parliament this September, as policymakers, researchers, advocates, and survivors gathered for the annual CCI Europe & SIOPE Gold September Policy Event, titled “No Child Left Behind: Prioritising Childhood Cancer
Childhood Cancer Research in Focus: CCI Europe and SIOP Europe Meet EU Research Commissioner On 19 September 2025, CCI Europe and SIOP Europe had the privilege of meeting with EU Research Commissioner Ekaterina Zaharieva to discuss the future of childhood cancer research. Research and innovation (R&I) is a
register here About the webinar: This webinar explores the role of Patient-Reported Outcomes (PROs) and Patient-Reported Outcome Measures (PROMs) in clinical research and healthcare. Participants will gain insights into the scientific foundations of PROs/PROMs, their impact on clinical trials, and their relevance for improving patient care and quality of
