About The European Conference on Rare Diseases & Orphan Products (ECRD) 2026 will take place on 3 - 4 June 2026 in Prague, under the title “Rare Diseases in a Changing & Competitive Europe: Shaping policies to address the unmet needs of people living with rare diseases”. The conference will be held in a
About the Course “Cure is not enough” – in 1975 Giulio J. D’Angio had the vision of childhood and adolescent cancer survivors and their long-term follow-up care. With around 80 % survival of childhood and adolescent cancer, around 500,000 survivors live in Europe today and the number is increasing. At least two-thirds experience long-term
register here About the webinar: This webinar explores how the European Union (EU)'s emerging priorities will be influencing the direction and funding of research and innovation (R&I) policies across the region. As the EU responds to global challenges - from green and digital transitions to geopolitical shifts and economic
No Child Left Behind: Prioritising Childhood Cancer in the Next EU Budget Childhood cancer took centre stage at the European Parliament this September, as policymakers, researchers, advocates, and survivors gathered for the annual CCI Europe & SIOPE Gold September Policy Event, titled “No Child Left Behind: Prioritising Childhood Cancer
Childhood Cancer Research in Focus: CCI Europe and SIOP Europe Meet EU Research Commissioner On 19 September 2025, CCI Europe and SIOP Europe had the privilege of meeting with EU Research Commissioner Ekaterina Zaharieva to discuss the future of childhood cancer research. Research and innovation (R&I) is a
register here About the webinar: This webinar explores the role of Patient-Reported Outcomes (PROs) and Patient-Reported Outcome Measures (PROMs) in clinical research and healthcare. Participants will gain insights into the scientific foundations of PROs/PROMs, their impact on clinical trials, and their relevance for improving patient care and quality of
PanCare4AYA Kicks Off, A New Chapter in AYA Cancer Survivorship Care Begins On April 1st 2025, the new EU funded project PanCare4AYA kicked off! Thanks to better treatments, survival rates for Adolescent and Young adult (AYA) cancer have improved largely in the past years. However, there is a long
Launch of the revised European Standards of Care for Children and Adolescents with Cancer: Driving change across Europe Childhood Cancer International - Europe (CCI Europe) and the European Society for Paediatric Oncology (SIOPE) are proud to announce the release of the revised European Standards of Care for Children and
register here About the webinar: This webinar aims to dispel any misconceptions surrounding paediatric palliative care and better clarify its role and how it can better support children with cancer and their families. Through a multi-disciplinary approach and presentation, and enough time for discussion with the participants, we aim
Perceptions of physicians caring for paediatric patients with cancer in Europe: insights into the use of palliative care, its timing, and barriers to early integration The paper was originally published in the Frontiers in Oncology Journal on October 23, 2024. The SIOPE Palliative Care Working Group, together with CCI Europe
