Gold September – Childhood Cancer Awareness Month Event 2025

European Parliament, Brussels

CCI-E and SIOPE, representing childhood cancer patients, parents, survivors and healthcare professionals, will once again mark the Gold September - Childhood Cancer Awareness Month campaign through the annual flagship policy event. This year’s event, titled "No Child Left Behind: Prioritising Childhood Cancer in the Next EU Budget", will take place on Tuesday,

31st Childhood Cancer International Conference – Amsterdam

RAI Amsterdam , Netherlands

Join us in the tulip capital for the 31st CCI Annual International Conference. This year's conference will be held from 20 to 23 October 2025 in Amsterdam, The Netherlands.  This global gathering brings together the childhood cancer community to connect, learn, and inspire. It offers a unique opportunity to share experiences, strengthen collaboration, and

Know the Basics: What Are PROs and PROMs, and Why Do They Matter?

Online Webinar

register here About the webinar:  This webinar explores the role of Patient-Reported Outcomes (PROs) and Patient-Reported Outcome Measures (PROMs) in clinical research and healthcare. Participants will gain insights into the scientific foundations of PROs/PROMs, their impact on clinical trials, and their relevance for improving patient care and quality of

Communication about Late Effects

Online

About  We are excited to invite you to the first webinar of the YARN #QualityofLife webinar series! In this webinar, we will explore how to communicate effectively about late effects. Our panel - including healthcare professionals, researchers, and people with lived experience - will share practical do’s and don’ts, tips for clear communication, and

International Childhood Cancer Day 2026

Online

The 2026 International Childhood Cancer Day (ICCD) policy event, “Europe’s Beating Cancer Plan Implementation for Children and Adolescents: Looking Ahead - What remains to be done to improve access to care, research and sustainable survivorship programmes”, will take place as an online policy dialogue on Thursday, 26 February 2026, from 15:30 to 17:00

Living Beyond Cancer: Late effects and Survivorship Care Online Course

Online

About the Course “Cure is not enough” – in 1975 Giulio J. D’Angio had the vision of childhood and adolescent cancer survivors and their long-term follow-up care. With around 80 % survival of childhood and adolescent cancer, around 500,000 survivors live in Europe today and the number is increasing. At least two-thirds experience long-term

European Conference on Rare Diseases & Orphan Products (ECRD) 2026

Prague

About  The European Conference on Rare Diseases & Orphan Products (ECRD) 2026 will take place on 3 - 4 June 2026 in Prague, under the title “Rare Diseases in a Changing & Competitive Europe: Shaping policies to address the unmet needs of people living with rare diseases”. The conference will be held in a