About our pillar:

All over Europe, continuous psychosocial care – providing appropriate financial and personnel resources – is still lacking in numerous countries, which is why supporting hospitals with funding for psychosocial care is a key element of most parent-, patient- and survivors-organizations. CCI Europe brings the lack of psychosocial care (and funding thereof) to the European level, raising awareness for the severeness and thus importance of the psychosocial dimension within paediatric oncology. CCI Europe sees an essential need in helping to manage a balance between the – for quality of life – equally important facilitation of medical and psychosocial care along the whole continuum in paediatric cancer.

To reach the goal, Psychosocial Care Pillar is set through 4 subpillars:

Psychosocial Care during Treatment

Diagnosis and treatment of children, adolescents and young adults with cancer generates considerable psychosocial distress to the patients themselves, their parents and siblings. Moreover, following the right to education, children and adolescents with cancer must be provided schooling. The complexity of stressors experienced require multiprofessional psychosocial and socioeconomic care with intra- and extramural teams providing support.

Main goal of the subpillar is to implement Standards of Psychosocial Care across Europe and support member organizations in sharing best practice projects.

Psychosocial Care after Treatment

While survivors and their families made it through the cancer experience, they experienced change that included living with uncertainty, intensification of the parenting role, a changing social world, a different way of being and the need for psychosocial support. Ensuring psychosocial support for survivors and their families after treatment and reintegration measures to support survivors coming back to school, education and their job are is equally significant as before.

Main goal of the subpillar is to implement Standards of Psychosocial Care across Europe which ensure psychological and social guidance in follow-up care.

Bereavement

The passing of a child causes immense pain and anguish for the loved ones left behind. Family mourning process can be long and the potential for recurring or near-constant trauma is far greater. It affects the whole family in unique ways.

Our goal is to implement Standards of Psychosocial Care which allow adequate and comprehensive psychosocial support for patients in palliative care, their parents and siblings as well as for families whose child/sibling has died of cancer.

Psychosocial Research & Standards of Care

Psychosocial research is necessary in paediatric oncology for further development of acute- as well as survivorship-care concepts and deliveries to patients. The transfer of scientific findings to clinical practice should be better supported. Implementation of Standards of Psychosocial Care across all European countries should be fostered and encouraged (examples of successful establishment can be found in UK and Germany speaking countries).

Our goal is to make sure that on the European level psychosocial research issues are integrated into interdisciplinary research and therapy optimisation studies. Foster exchange of best practice projects among member organizations and support the development of a European psychosocial health care professional network, in order to facilitate development and implementation of Standards of Psychosocial Care across Europe.

Our Team

Something about the team?

Want to know more and get involved?
Get in touch with us: office@ccieurope.eu