Bridging the gap – How to seriously involve patients in research and development

Research without patients is like a puzzle with missing pieces in the middle: The individual pieces can be looked at and analyzed, but without the missing piece, the whole picture remains incomplete.

And this is where PPIE comes in: The acronym stands for Patient and Public Involvement and Engagement and means the involvement of patients in research & development – right from the start.

How does this work?

In the video “Good to know! This is PPIE” we have summarized the most important points for you:

The video is also available in German on YouTube.

Okay, so PPIE is the ideal approach.

But how do I implement it in my project myself? We have developed a workshop guideline to help you put it into practice. It is a step-by-step guide for workshop facilitators and contains a lot of practical information and worksheets.

Moderation made easy, from preparation to implementation to evaluation and documentation:
With this guideline, you have everything you need for successful patient engagement in one document: Download the Material for Facilitation
The guideline is also available in German: Download Material für die Moderation

By the way, the Guideline does not stop with the instructions for the moderators!
The “Lab Book” gives workshop participants all the information and documents they need for a successful workshop.
Get the Lab Book now: Download Material for Participants
You can also get the Lab-Book in German: Download Labbook

For more and detailed information, you can also read the following article:

Weiler-Wichtl LJ, Leiss U, Gojo J, et al. Good to know – This is PPIE! Development of a training tool for public and patient involvement and engagement in pediatric oncological research. Cancer Reports. 2023;6(6): e1835. doi:10.1002/cnr2.1835

“Bridging the Gap – the workshop for a serious involvement of patients in research and development” is a project of the Medical University of Vienna with the COPE Group, in cooperation with CCI Europe. It was developed for and with patients and their families, implemented by Kurvenkratzer GmbH and funded by LBG Open Innovation in Science Center. NF Kinder, EUPATI Austria and Survivors Austria support the project.