Research without patients is like a puzzle with missing pieces in the middle: The individual pieces can be looked at and analyzed, but without the missing piece, the whole picture remains incomplete.
And this is where PPIE comes in: The acronym stands for Patient and Public Involvement and Engagement and means the involvement of patients in research & development – right from the start.
How does this work?
In the video “Good to know! This is PPIE” we have summarized the most important points for you:
The video is also available in German on YouTube.
Okay, so PPIE is the ideal approach.
But how do I implement it in my project myself? We have developed a workshop guideline to help you put it into practice. It is a step-by-step guide for workshop facilitators and contains a lot of practical information and worksheets.
For more and detailed information, you can also read the following article:
Weiler-Wichtl LJ, Leiss U, Gojo J, et al. Good to know – This is PPIE! Development of a training tool for public and patient involvement and engagement in pediatric oncological research. Cancer Reports. 2023;6(6): e1835. doi:10.1002/cnr2.1835