KNOWLEDGE HUB

Knowledge Hub

Title	Tags	Categories	Update Date	Download
White Paper: Optimizing Quality of Life after Youth Cancer 1 17 downloads	Cross border health care, European Standards of CAre, Patient Advocacy, Policy, Psychosocial Care, Research & Innovation, Standards of Care, Survivorship	Download, Publication	14. October 2025	Download
The Healthcare Professionals’ and Patient Advocates’ Perspectives on the Care for Children with Cancer in Europe – A Report from the ESCALIER Project 1 15 downloads	Cross border health care, European Standards of CAre, Patient Advocacy, Policy, Psychosocial Care, Research & Innovation, Standards of Care, Survivorship	Download, Publication	10. October 2025	Download
Patients’, parents’, and survivors’ perspective about AI applications in pediatric oncology – Abstract 1 15 downloads	AI, Big Data, Ethics, Patient Advocacy, Research & Innovation, Survivorship	Download, Publication	23. January 2025	Download
Stakeholder Perspectives on Randomized Clinical Trials for Children With Poor-Prognosis Cancers 1 3 downloads	Clinical Trials, Ethics, HTA, Research & Innovation, Survivorship	Download, Publication	23. January 2025	Download
Essentials of Translational Pediatric Drug Development: Chapter 3 – Parents’ and children’s needs in the drug development process		External link, Publication	21. January 2025
Scaling up and implementing the digital Survivorship Passport tool in routine clinical care – The European multidisciplinary PanCareSurPass project 1 2 downloads	Digital Survivorship Passport, PanCareSurPass	Download, Publication	21. January 2025	Download
The opportunity for greater patient and public involvement and engagement in drug development and regulation – Members Only	PPIE	External link, Members Only Access, Publication	22. January 2025
Joint Action on Rare Cancers (JARC) Book 1 22 downloads	Book, JARC, Rare Cancers	Download, Publication	21. January 2025	Download
Declaration of Dublin 1 30 downloads		Download, Publication	21. January 2025	Download