Know the Basics: What Are PROs and PROMs, and Why Do They Matter?

About the webinar: 

This webinar explores the role of Patient-Reported Outcomes (PROs) and Patient-Reported Outcome Measures (PROMs) in clinical research and healthcare. Participants will gain insights into the scientific foundations of PROs/PROMs, their impact on clinical trials, and their relevance for improving patient care and quality of life. The session also highlights the importance of involving patient advocates in shaping meaningful healthcare outcomes.

Our Speakers: 

Hannah Gsell

Childhood Cancer Survivor, CCI Europe, Chairwoman of Survivors Austria

Hannah is a psychologist, ALL-survivor, and currently the Chairwoman of the Austrian Childhood Cancer Survivors Organisation.
Hannah works at CCI Europe as project manager and patient expert and as such is involved in several EU funded projects. She is also part of the psychosocial pillar of CCI Europe.

Anna Zettl

Childhood Cancer Survivor, CCI Europe

Anna is an evolutionary anthropologist by training and currently pursuing a degree in psychology. She is a survivor of Hodgkin’s Lymphoma and serves as a board member of the Austrian Childhood Cancer Survivors Organisation.
At CCI-E, she works as a project coordinator and patient expert, contributing to various research activities, particularly in survivorship projects.

Marita partanen

Pediatric neuropsychologist and research group leader at the Princess Máxima Center

Marita Partanen is a pediatric neuropsychologist and research group leader at the Princess Máxima Center in the Netherlands. The focus of her research is on the early identification and intervention of neuropsychological problems, using a combination of behavioral, therapeutic, and neuroimaging (MRI) techniques. She also serves as co-chair of the SIOP-Europe Quality of Survival group, where she leads a working group focused on aligning assessment methods in pediatric brain tumor trials.