Finalised Projects CCI Europe participated in
Here you find all finalised projects in which CCI Europe has been involved.
For the currently running projects, please go back to: RUNNING PROJECTS
The EU-funded project “EU-CAYAS-NET” aimed at developing a “European Youth Cancer Survivors Network” alongside an interactive virtual platform. The network fostered social networking, peer-support, knowledge-exchange, and aimed at improving:
- the quality of life of survivors (including mental health, education & career support, follow-up care and transition),
- the care for adolescents and young adults (AYA) with cancer, and
- Equality, Diversity and Inclusion (EDI) along the whole treatment and survivorship trajectory.
EU-CAYAS-NET was the first EU project that is coordinated by CCI Europe, in a joint effort with Youth Cancer Europe.
Project website: https://beatcancer.eu/
Duration: Sept. 2022 – Aug. 2024
Grant Authority: European Health and Digital Executive Agency (HADEA)
Project Nr.: 101056918
Coordinator: CCI Europe
Co-funded by the European Union. Views and opinions expressed are however those of the author(s) only and do not necessarily reflect those of the European Union or the European Health and Digital Executive Agency (HaDEA). Neither the European Union nor the granting authority can be held responsible for them.
The aim of ALADDIN project was to build an innovative, multi-stakeholder and structured framework with an educational program tailored to the needs of the different actors, that was sustainable in the long-term by taking advantage of the expertise and work already initiated by the ACCELERATE platform.
CCI Europe ensured proper dissemination and promotion of the project and its results among young patients, parents and citizens, as well as contributed to building up material for the Online Educational Platform and identification of patient advocates for educational activities.
Project website: Website
Duration: Jun 2022 – May 2025
Grant Authority: European Education and Culture Executive Agency
Project Nr.: 101056190
Coordinator: Accelerate
Funded by the European Union. Views and opinions expressed are however those of the author (s) only and do not necessarily reflect those of the European Union or EACEA. Neither the European Union nor the granting authority can be held responsible for them.
The European Standards of Care for Children with Cancer should represent the minimum standards of care that should be implemented at the European level, and today after more than 10 years since its release, childhood cancer is under the spotlight on the EU agenda which signifies a moment to evaluate and update the document with the aim to further reduce health inequalities across Europe. Hence, CCI-E and SIOPE conducted a survey among their members to evaluate the current Standards of Care and accordingly revised the document that was published afterwards. Read the revised European Standards of Care for Children and Adolescents with Cancer.
The initiative that tackled pressing public health challenges in Europe.
The EU4Health Integration and Impact Initiative (EU4H3I) aimed to address public health challenges such as healthcare disparities, unequal access to therapies, and lack of diversity in clinical trials.
By advocating for interdisciplinary collaboration and adopting a holistic, multi-sectoral approach through the One Health perspective, the initiative supported the development of the European Health Union.
Website: https://www.eu4healthforum.com/
Duration: 2024 – 2025
Grant Authority: HaDEA
Project Nr.: 101161215
Coordinator:
Co-funded by the European Union. Views and opinions expressed are however those of the author(s) only and do not necessarily reflect those of the European Union or the European Health and Digital Executive Agency (HaDEA). Neither the European Union nor the granting authority can be held responsible for them.
POLARIS was a partnership project to develop a set of communication tools that ALL (Acute Lymphoblastic Leukemia) medical teams can use to explain ALL treatment protocols, medical terminology and investigations, guidance and results to patients/caregivers in an easy to understand visual language.
In this project, CCI Europe contributed the patient and parent view to this patient-centric communication tool.
Project website: Website
Duration:
UNCAN.eu was an initiative started with an alliance of 21 member states that tried to understand cancer and its mechanisms better in order to improve cancer prevention, early diagnosis and treatment. Its deliverable was a blueprint for setting up a European Federated Cancer Research data hub where challenges in cancer research would be addressed.
CCI Europe had a role in representing childhood cancer patients and making sure we were involved in all aspects of the project, from expert committee groups to prioritization of patient needs.
UNICA4EU‘s vision was to pave the foundation of the ecosystem that will facilitate the upscaling and wide-scale application of Artificial Intelligence to Paediatric Cancer in the next ten years, positioning Europe as the worldwide benchmark in the field. The initiative brought together the multi-disciplinary networks of stakeholders required to strengthen the reference knowledge base for the Paediatric Cancer investigation and promotion.
CCI Europe’s main role in the UNICA4EU project was to ensure that patients’, survivors’ and parents’ rights regarding data sharing and data use are being protected, and that their needs regarding patient friendly information and education about the use of AI technologies are met.
smartCARE developed a ‘Cancer Survivor Smart Card’. This digital tool aimed to decrease the communication gap between survivors and health and social-care providers, promote citizen empowerment through patient-centered care and ultimately enhance the quality of life and of cancer survivors.
ECO was coordinating this EU Project under the EU4Health Programme 2021-2027, focused on sustainability and user needs.
PROTECT-EUROPE was an EU4Health Project that championed gender-neutral vaccination programme in EU Member States to provide protection for everyone against cancers caused by HPV e.g. cervical, anal, penile, vaginal, vulval and oropharyngeal.
ECO coordinated this EU Project under the EU4Health Programme 2021-2027 and led the project communication, dissemination and exploitation efforts in consultation with other 33 project partners.
Find the final leaflet, the summary report as well as the full report here.
PanCareFollowUp (PCFU) aimed to improve the quality of life for survivors of childhood cancer by bringing evidence-based, person-centred care to clinical practice in the real world. CCI Europe was responsible for knowledge sharing and dissemination within the PCFU. Furthermore, the survivors’ group of CCI Europe was involved in all tasks and developments throughout the project lifetime.
One of the results of the PanCarefollowup project was the so-called PLAIN brochures.
PLAIN stands for Person-centered, Lay-language, Accessible, International, Navigable and is based on the PanCareFollowUp guidelines for late effects. These guidelines are based on the IGHG guidelines (International Group for Guideline Harmonization for Late Effects of Childhood Cancer) and on the consensus (agreement) of various national guidelines.
Within the project, they were developed by the PanCare PLAIN information group. This group consisted of an interdisciplinary team of health care professionals and patient experts to ensure the accuracy and quality of the content on the one hand and to ensure that these brochures really meet the needs of patients and their families on the other.
The brochures were expanded in 2024 under the EU-CAYAS-NET project.
The brochures are now accessible for free on the PanCare Website under https://www.pancare.eu/plain-language-summaries/.
CCI Europe was responsible for disseminating existing research and the developed guidelines among the European survivors’ community.
The goal of PanCareLife was to improve the quality of life and opportunities for survivors of childhood cancer diagnosed before 25 years of age.
As a public-private network, Harmony uses the benefits of big data to speed up the development of improved treatments for patients and more effective treatment strategies. CCI Europe is actively involved in representing patients’ rights and voicing the interest of the patients across all activities of the network.
The European Expert Paediatric Oncology Reference Network for Diagnostics and Treatment (ExPO-r-Net) set out the basis to build the European Reference Network in Paediatric Oncology. CCI Europe participated in this project as active partner to further develop the Survivorship Passport and to represent the interests of patients/parents and survivors.
The Joint Action on Rare Cancers specifically focus on the implementation of the European Reference Networks in terms of research, innovation, education and state of the art information. CCI Europe is strongly involved in the development of Work Package (WP) 9 – Childhood Cancer- together with SIOP Europe, who took the lead of this WP.
The European Network for Cancer Research in Children and Adolescents (ENCCA) was the first network to integrate all stakeholders involved in the field of paediatric oncology. ENCCA created the basis for collaboration between paediatric oncologists, specialists, researchers and with parents/patients and survivors. Activities and initiatives developed in this project were carried on in further projects like the SURPASS tool, the Expo-r-Net project and the ERN PaedCan, as well as the SIOP Europe strategic plan).
Nothing about us without us! PPIE in paediatric oncology? That’s how it works!
PPIE stands for “Patient and Public in Involvement and Engagement”. Tailoring research to patients’ and survivors’ needs to improve quality of life (QoL) would be of great importance for this growing group of patients whose QoL depends on innovations in treatment and care. Unfortunately, PPIE has not yet fully reached paediatric oncological research. This project aims at finding out about prevailing knowledge and opinions towards PPIE – from both patients and health care professionals – and developing a training tool based on the findings.
„Nothing about us without us“ is a 1 year project which will be conducted starting in May 2021 in cooperation with the Medical University of Vienna, Department for Pediatrics and Adolescent Medicine.
It has been funded by the Ludwig Boltzmann Gesellschaft (LBG) and its implementation is supported by LBG Open Innovation in Science Center which provides consultations and experts workshops by their peer-network.
