As an integral part of SIOPE conference. 2 day programme for parents – survivors – advocates’ organisation within Europe to share information, experience, to network, to search for potential partners, to improve the knowledge from pediatric oncology field and to get to know ech other better
The CCI Europe European Affairs Pillar Committee has hosted this educational webinar to help the European childhood cancer community in better understanding the EU Paediatric and Orphan Regulations – indeed, this is what children with cancer need to get access to better care! The EU Paediatric and Orphan Regulations are about to be reviewed
In this webinar, participants will learn what an ESCP is, which ESCP currently exist, why they where developed and how they should be used. Moreover, the webinar will highlight the importance of using standardized treatment protocols, and of sharing expertise and resources between countries. Also, ways will be addressed on how patient organisations can
The aim of shared care is to cure every child with cancer, with optimal quality of life. The principle of shared care is close cooperation between a central paediatric oncology expertise centre and local shared care centres, so that the young patient can avoid long distance travels for standard clinical examinations and treatments.