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Know the basics: How does policy work at the European level?

Online Webinar

In this webinar, the participants will learn about the role of the different EU institutions, and how policymaking works on the EU level. It will also address how patient organisations can effectively advocate and interact with MEPs in favour of their cause. The webinar will be delivered by Teresa Pais and Marine Gouders.  

Know the basics: ICCD Campaign 2024 – Kick Off!

Online Webinar

In this webinar, CCI Europe will present to the participants the upcoming 3-years global ICCD Campaign “Equal Access To Care” and will focus on how member organisations can actively contribute to year 1 of the campaign with the motto: “Unveiling Challenges”. The Campaign Toolkit will be presented so that member organisations can share

Know the Basics: How can I level up my patient advocacy?

Online Webinar

In this webinar, the participants will learn about existing patient advocate trainings, how they were developed, how they were conducted and what they entail. We will present ongoing and upcoming training opportunities for patient advocates hosted by organisations such as WECAN, EUPATI, KickCancer, EURORDIS and CCI! Participants are invited to use the Q&A

Advance Your Knowledge: Drug Regulations – What is new for the childhood cancer community?

Online Webinar

In this webinar, the participants will learn from our experts about any new developments in the Pharmaceutical Package. The European Parliament is set to adopt its formal position on the revision of the orphan and paediatric regulations this April and the Council has already started its internal discussions. Teresa and Marine will give

Advance Your Knowledge: What could be the impact of Big Data and AI application in paediatric oncology?

Online Webinar

In this webinar, we will delve into the transformative potential of Big Data and Artificial Intelligence (AI) in paediatric oncology, exploring how these innovative approaches can help cancer research and reshape diagnostics, treatment strategies, and outcomes for children with cancer. Join us to delve into the implications, opportunities, and ethical considerations surrounding the

Advance Your Knowledge: How to develop and translate a multidisciplinary Psycho-Oncology Model of Care into real action?

Online Webinar

Advance your knowledge! Psychosocial care in paediatric oncology still needs to be advanced in wide parts of Europe. In this webinar we will learn from experts in Ireland that managed to establish a National Model of Care for Psycho-Oncology services for Children, Adolescents and Young Adults (CAYA) with Cancer and their families in

Advance Your Knowledge: How can patients benefit from ESCPs?

Online Webinar

The European Standard of Clinical Practice (ESCP) Project is an on-going collaboration between ERN PaedCan and SIOP Europe’s Clinical Trial Groups (ECTG), aiming to develop approved clinical recommendations that reflect current best practices for each common childhood cancer type. The ESCPs are reviewed by CCI-E members. The goal is to improve outcomes and increase

Advance Your Knowledge: Around the ERN-PaedCan Virtual Tumor Board 2.0 in 80 Minutes

Online Webinar

What if: 1) Your oncologist is at a crossroads regarding therapy? 2) The local tumor board cannot make a definite decision and 3) You urgently need a second opinion from international experts? In this webinar, we want to strengthen patient organizations in their role as intermediaries for access to the new ERN-PaedCan Virtual