capacity development
Know the Basics: How can I level up my patient advocacy?
Online WebinarIn this webinar, the participants will learn about existing patient advocate trainings, how they were developed, how they were conducted and what they entail. We will present ongoing and upcoming training opportunities for patient advocates hosted by organisations such as WECAN, EUPATI, KickCancer, EURORDIS and CCI! Participants are invited to use the Q&A
Advance Your Knowledge: Drug Regulations – What is new for the childhood cancer community?
Online WebinarIn this webinar, the participants will learn from our experts about any new developments in the Pharmaceutical Package. The European Parliament is set to adopt its formal position on the revision of the orphan and paediatric regulations this April and the Council has already started its internal discussions. Teresa and Marine will give
Survivor’s Week Webinar: Childhood Cancer – Stigma and Communication
Online WebinarChildhood cancer survival rates have been improving globally over recent decades. Researchers in this area highlight, “Ongoing improvements in survival rates across high-income, middle-income and low-income countries will result in a rapidly expanding population of survivors with unique health-care needs, emphasizing the increasing relevance of issues relating to childhood cancer survivors globally.” (Ehrhardt
Know the basics: How to advance childhood cancer priorities in the aftermath of the EU elections?
Online WebinarIn the aftermath of the EU elections, the CCI Europe policy team will present the composition of the new elected Parliament and discuss the possible implications for our childhood cancer advocacy priorities. During this webinar, we will talk about the impact of those elections on the nomination of the new Commission leaders, namely
Advance Your Knowledge: What could be the impact of Big Data and AI application in paediatric oncology?
Online WebinarIn this webinar, we will delve into the transformative potential of Big Data and Artificial Intelligence (AI) in paediatric oncology, exploring how these innovative approaches can help cancer research and reshape diagnostics, treatment strategies, and outcomes for children with cancer. Join us to delve into the implications, opportunities, and ethical considerations surrounding the
Advance Your Knowledge: How to develop and translate a multidisciplinary Psycho-Oncology Model of Care into real action?
Online WebinarAdvance your knowledge! Psychosocial care in paediatric oncology still needs to be advanced in wide parts of Europe. In this webinar we will learn from experts in Ireland that managed to establish a National Model of Care for Psycho-Oncology services for Children, Adolescents and Young Adults (CAYA) with Cancer and their families in
Advance Your Knowledge: How can patients benefit from ESCPs?
Online WebinarThe European Standard of Clinical Practice (ESCP) Project is an on-going collaboration between ERN PaedCan and SIOP Europe’s Clinical Trial Groups (ECTG), aiming to develop approved clinical recommendations that reflect current best practices for each common childhood cancer type. The ESCPs are reviewed by CCI-E members. The goal is to improve outcomes and increase
Advance Your Knowledge: Around the ERN-PaedCan Virtual Tumor Board 2.0 in 80 Minutes
Online WebinarWhat if: 1) Your oncologist is at a crossroads regarding therapy? 2) The local tumor board cannot make a definite decision and 3) You urgently need a second opinion from international experts? In this webinar, we want to strengthen patient organizations in their role as intermediaries for access to the new ERN-PaedCan Virtual