capacity development
Know the Basics: How can I level up my patient advocacy?
Online WebinarIn this webinar, the participants will learn about existing patient advocate trainings, how they were developed, how they were conducted and what they entail. We will present ongoing and upcoming training opportunities for patient advocates hosted by organisations such as WECAN, EUPATI, KickCancer, EURORDIS and CCI! Participants are invited to use the Q&A
Advance Your Knowledge: Drug Regulations – What is new for the childhood cancer community?
Online WebinarIn this webinar, the participants will learn from our experts about any new developments in the Pharmaceutical Package. The European Parliament is set to adopt its formal position on the revision of the orphan and paediatric regulations this April and the Council has already started its internal discussions. Teresa and Marine will give
Survivor’s Week Webinar: Childhood Cancer – Stigma and Communication
Online WebinarChildhood cancer survival rates have been improving globally over recent decades. Researchers in this area highlight, “Ongoing improvements in survival rates across high-income, middle-income and low-income countries will result in a rapidly expanding population of survivors with unique health-care needs, emphasizing the increasing relevance of issues relating to childhood cancer survivors globally.” (Ehrhardt