About The European Conference on Rare Diseases & Orphan Products (ECRD) 2026 will take place on 3 - 4 June 2026 in Prague, under the title “Rare Diseases in a Changing & Competitive Europe: Shaping policies to address the unmet needs of people living with rare diseases”. The conference will be held in a
About the Course “Cure is not enough” – in 1975 Giulio J. D’Angio had the vision of childhood and adolescent cancer survivors and their long-term follow-up care. With around 80 % survival of childhood and adolescent cancer, around 500,000 survivors live in Europe today and the number is increasing. At least two-thirds experience long-term
register here About the webinar: This webinar explores how the European Union (EU)'s emerging priorities will be influencing the direction and funding of research and innovation (R&I) policies across the region. As the EU responds to global challenges - from green and digital transitions to geopolitical shifts and economic
register here About the webinar: This webinar explores the role of Patient-Reported Outcomes (PROs) and Patient-Reported Outcome Measures (PROMs) in clinical research and healthcare. Participants will gain insights into the scientific foundations of PROs/PROMs, their impact on clinical trials, and their relevance for improving patient care and quality of
register here About the webinar: This webinar aims to dispel any misconceptions surrounding paediatric palliative care and better clarify its role and how it can better support children with cancer and their families. Through a multi-disciplinary approach and presentation, and enough time for discussion with the participants, we aim
Expo Osaka 2025: Why Patient Advocacy Matters On 26 June 2025, the EU Pavilion at Expo 2025 Osaka hosted the session “Fighting Cancer: How the EU Cancer Mission and Japan’s National Cancer Centre Address the Challenge.” Leaders from Europe and Japan came together to explore how international collaboration, shared
Empowering Patient Advocates: How WECAN Academy Is Shaping the Future of Advocacy in Europe One more WECAN Academy training was completed, this year in Rome, Italy. Held from June 26 to 29, 2025 the 10th edition of the WECAN Academy brought together both aspiring and experienced advocates
About the webinar: During this webinar, we will explore different models of peer support within our community. We’re not limiting ourselves to just one target group—we want to showcase the many ways peers can support not only patients but also survivors and parents, guiding them through the various stages of the treatment pathway
R&I Pillar: Mentorship Programme This year R&I pillar initiate a mentorship programme marking a significant step towards fostering meaningful patient involvement in research and advocacy. By pairing experienced advocates with talented ones, the initiative builds a pipeline of educated and empowered patient advocates ready to contribute to paediatric oncology
What if: 1) Your oncologist is at a crossroads regarding therapy? 2) The local tumor board cannot make a definite decision and 3) You urgently need a second opinion from international experts? In this webinar, we want to strengthen patient organizations in their role as intermediaries for access to the new ERN-PaedCan Virtual
