The European Childhood Cancer Community Urgently Calls for the Release of the Proposal of the Revised EU Pharmaceutical legislation

. The European Childhood Cancer Community Urgently Calls for the Release of the Proposal of the Revised EU Pharmaceutical legislation The European Society for Paediatric Oncology (SIOP Europe), the single united European organisation representing healthcare professionals and researchers in paediatric oncology, and Childhood Cancer International – Europe (CCI Europe), the largest European

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Psychosocial Care in Paediatric Oncology in Europe: Outcomes of survey among childhood cancer organisations

. Psychosocial Care in Paediatric Oncology in Europe: Outcomes of survey among childhood cancer organisations Youth with cancer and their family members should routinely receive systematic assessments of their psychosocial health care needs and have access to it throughout the cancer trajectory as needed. As a Europe-wide umbrella organisation, CCI Europe observed

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WECAN statement concerning recent reports about the European Cancer Patient Coalition (ECPC) and the potential impact on EU research projects

. WECAN statement concerning recent reports about the European Cancer Patient Coalition (ECPC) and the potential impact on EU research projects CCI Europe supports the WECAN Advocate statement and highlights the fact that what is happening in ECPC is not representative of the European patient community as a whole: "For the past

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Understanding the EU Paediatric & Orphan Regulations – RECORDING AVAILABLE

Understanding the EU Paediatric & Orphan Regulations RECORDING AVAILABLE!On December 12, CCI Europe hosted the first of a series of educational webinars for its members and the paediatric oncology community. The challenging topic of understanding the EU Paediatric and Orphan Regulations was successfully presented by CCI Europe Committee Member & Lead

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Revision of the EU paediatric and orphan Regulations: 6 key recommendations for Paediatric Cancers

Revision of the EU Paediatric and Orphan Regulations: 6 key recommendations for Paediatric Cancers  In the context of the EU’s Pharmaceutical Strategy, the EU Paediatric and Orphan Regulations are about to be reviewed and address shortcomings identified in a recent evaluation of the European Commission. Together with SIOP Europe, CCI

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European Care Strategy

The European Childhood Cancer Community calls for bold implementation of the European Care Strategy On September 7th, 2022, the European Commission presented the European Care Strategy. This ambitious initiative aims at ensuring quality, affordable and accessible care services across Europe and improving the situation of care receivers and the

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Ukraine Emergency Update 31.8.22

Ukraine Emergency Update 31.8.2022 Last week two important moments occurred in the history of Ukraine: one of great joy and another of immense sadness. August 24, our Ukrainian friends celebrate their largest State holiday in commemoration of the Declaration of Independence of 1991. Unfortunately, it also marks 6 months

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Ukraine Emergency Update 14.4.

Ukraine Emergency Update 14.4. CCI Europe, in collaboration with St. Jude, SAFER Ukraine and SIOPE, has helped more than 800 childhood cancer patients by translating medical records and/or providing transport in convoys through the Polish border to the Unicorn Marian Wilemski Clinic. To date, approximately 10 convoys arrived at Unicorn

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Part of CCI Europe activities are co-funded by an operating grant from the European Union’s Health Programme (2021-2027). Views and opinions expressed are however those of the author(s) only and do not necessarily reflect those of the European Union or the HADEA. Neither the European Union nor the granting authority can be held responsible for them.

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