UNCAN.eu: an initiative to federate Member States against cancer The UNCAN.eu final event took place on November 14th where the strategic roadmap of how the implementation of a European Federated Cancer Research Data Hub should be developed was presented to the European Commission. UNCAN.eu is one of the European
Bridging the gap - How to seriously involve patients in research and development Research without patients is like a puzzle with missing pieces in the middle: The individual pieces can be looked at and analyzed, but without the missing piece, the whole picture remains incomplete. And this is where
In Memoriam: Honoring Frédéric Arnold It is with deep sadness and a heavy heart that we announce the sudden passing of Frédéric Arnold, a distinguished member of the CCI Europe Committee. Frédéric left a void that cannot be easily filled, and our organization is mourning the loss of a
European Paediatric Cancer Community Proposal for Improvement of the EU Revised Pharmaceutical Legislation On April 26th 2023, the European Commission released a proposal for revision of the Pharmaceutical legislation, which includes provisions on medicines for paediatric and rare diseases. Over the summer, CCI-E's and SIOPE's policy teams carried out an
European Week Against Cancer 2023: CCI Europe and SIOPE talk about the EU Pharmaceutical Legislation European Week Against Cancer (EWAC) takes place each year from 25 to 31 May with the aim to raise awareness about cancer control, access to treatment, and support for cancer survivors.
Statement on the EU Pharmaceutical Proposal . The European Society for Paediatric Oncology (SIOP Europe), the single united European organisation representing healthcare professionals and researchers in paediatric oncology, and Childhood Cancer International – Europe (CCI Europe), the largest European patient organisation representing childhood cancer patients, parents and survivors, have been involved
Shadow Kids: When a Sibling's World Turns Upside Down International Siblings Day, 10th April 2023Childhood cancer is a devastating diagnosis that affects not only the child with cancer but also their siblings. These brothers and sisters often face unique challenges that can have a significant impact on their emotional well-being and
. The European Childhood Cancer Community Urgently Calls for the Release of the Proposal of the Revised EU Pharmaceutical legislation The European Society for Paediatric Oncology (SIOP Europe), the single united European organisation representing healthcare professionals and researchers in paediatric oncology, and Childhood Cancer International – Europe (CCI Europe), the largest European
. Psychosocial Care in Paediatric Oncology in Europe: Outcomes of survey among childhood cancer organisations Youth with cancer and their family members should routinely receive systematic assessments of their psychosocial health care needs and have access to it throughout the cancer trajectory as needed. As a Europe-wide umbrella organisation, CCI Europe observed
. WECAN statement concerning recent reports about the European Cancer Patient Coalition (ECPC) and the potential impact on EU research projects CCI Europe supports the WECAN Advocate statement and highlights the fact that what is happening in ECPC is not representative of the European patient community as a whole: "For the past
