How Are You Feeling Today? - Gaps and Opportunities in Capturing Patient Reported Outcomes (PROs) in Pediatric Cancer Care The paper was originally published in the EJC Paediatric Oncology on December 1, 2025. Children and young people with cancer often experience many physical and emotional challenges during and
Empowering Young Cancer Survivors: CCI Europe at the YARN General Assembly in Bucharest Youth cancer advocates from across Europe gathered in Bucharest on 12-13 December, for the recent General Assembly of the Youth Cancer Network (YARN). As the follow-up project to EU-CAYAS-NET (European Network of Youth Cancer Survivors), the
IMPACT-EU kicks off to improve psychosocial care for children and adolescents with cancer across Europe Utrecht, 1/10/2025 - The IMPACT-EU project has officially launched, marking the start of a Europe-wide effort to improve psychosocial care for children and adolescents affected by cancer. Co-funded by the European Union, this project
One Day of Giving, a World of Impact: Why #GivingTuesday Matters for Children and Families Affected by Childhood Cancer Every year, on the first Tuesday after Thanksgiving, millions of people around the world take part in Giving Tuesday. This global day of generosity inspires individuals, organisations, and communities
Launch of new ERN PaedCan website with dedicated patient landing page. The European Reference Network for Paediatric Cancer (ERN PaedCan) has launched a new website, developed together with CCI Europe, to make it easier for both healthcare professionals and patients to find key resources in one place. The
UNIFIED Launches to Put Patient Voices at the Heart of Healthcare Decisions Rotterdam, 4 November 2025 – Erasmus University Rotterdam and Pfizer lead UNIFIED (Unifying Framework for Patient-Centred Clinical-study Endpoints Derived from Digital Health Technologies), a five-year, €27 million global public-private partnership funded by the Horizon Europe Innovative
A Win for Transparency: ESCP Guidelines Now Open to Patients, Families, and Advocates After sustained pressure from CCI Europe and other partners, the European Reference Network for Paediatric Cancer (ERN PaedCan), SIOP Europe, and the European Clinical Trial Groups (ECTG) have made all 27 European Standard Clinical Practice
Kick-off Meeting Launches RHYTHM Project to Enhance Radiation Safety and Imaging Quality for Young Patients in Europe Vienna, Austria – October 22, 2025 - The 4-year RHYTHM project (Radiation, Health, Safety and Quality for Youth: A Comprehensive Approach to Justification, Optimisation, and Education) officially launched with a kick-off
About The European Conference on Rare Diseases & Orphan Products (ECRD) 2026 will take place on 3 - 4 June 2026 in Prague, under the title “Rare Diseases in a Changing & Competitive Europe: Shaping policies to address the unmet needs of people living with rare diseases”. The conference will be held in a
About the Course “Cure is not enough” – in 1975 Giulio J. D’Angio had the vision of childhood and adolescent cancer survivors and their long-term follow-up care. With around 80 % survival of childhood and adolescent cancer, around 500,000 survivors live in Europe today and the number is increasing. At least two-thirds experience long-term
