In Memoriam: Honoring Frédéric Arnold It is with deep sadness and a heavy heart that we announce the sudden passing of Frédéric Arnold, a distinguished member of the CCI Europe Committee. Frédéric left a void that cannot be easily filled, and our organization is mourning the loss of a
Statement on the EU Pharmaceutical Proposal . The European Society for Paediatric Oncology (SIOP Europe), the single united European organisation representing healthcare professionals and researchers in paediatric oncology, and Childhood Cancer International – Europe (CCI Europe), the largest European patient organisation representing childhood cancer patients, parents and survivors, have been involved
Shadow Kids: When a Sibling's World Turns Upside Down International Siblings Day, 10th April 2023Childhood cancer is a devastating diagnosis that affects not only the child with cancer but also their siblings. These brothers and sisters often face unique challenges that can have a significant impact on their emotional well-being and
. The European Childhood Cancer Community Urgently Calls for the Release of the Proposal of the Revised EU Pharmaceutical legislation The European Society for Paediatric Oncology (SIOP Europe), the single united European organisation representing healthcare professionals and researchers in paediatric oncology, and Childhood Cancer International – Europe (CCI Europe), the largest European
. Psychosocial Care in Paediatric Oncology in Europe: Outcomes of survey among childhood cancer organisations Youth with cancer and their family members should routinely receive systematic assessments of their psychosocial health care needs and have access to it throughout the cancer trajectory as needed. As a Europe-wide umbrella organisation, CCI Europe observed
. WECAN statement concerning recent reports about the European Cancer Patient Coalition (ECPC) and the potential impact on EU research projects CCI Europe supports the WECAN Advocate statement and highlights the fact that what is happening in ECPC is not representative of the European patient community as a whole: "For the past
Understanding the EU Paediatric & Orphan Regulations RECORDING AVAILABLE!On December 12, CCI Europe hosted the first of a series of educational webinars for its members and the paediatric oncology community. The challenging topic of understanding the EU Paediatric and Orphan Regulations was successfully presented by CCI Europe Committee Member & Lead
Revision of the EU Paediatric and Orphan Regulations: 6 key recommendations for Paediatric Cancers In the context of the EU’s Pharmaceutical Strategy, the EU Paediatric and Orphan Regulations are about to be reviewed and address shortcomings identified in a recent evaluation of the European Commission. Together with SIOP Europe, CCI
The European Childhood Cancer Community calls for bold implementation of the European Care Strategy On September 7th, 2022, the European Commission presented the European Care Strategy. This ambitious initiative aims at ensuring quality, affordable and accessible care services across Europe and improving the situation of care receivers and the
4UNCAN.eu: a European initiative to better understand cancer The Coordination and Support Action “4.UNCAN.eu” had its official kick-off on September 8-9 2022 with a public event hosted by Inserm at les Cordeliers, Paris, France. 4.UNCAN.eu CSA: Pave the way for UNCAN.eu initiative An initiative to better UNderstand CANcer (UNCAN.eu)
