Despoina Freri

About Despoina Freri

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So far Despoina Freri has created 32 blog entries.

How Are You Feeling Today? Gaps and Opportunities in Capturing Patient Reported Outcomes (PROs) in Pediatric Cancer Care

How Are You Feeling Today? - Gaps and Opportunities in Capturing Patient Reported Outcomes (PROs) in Pediatric Cancer Care The paper was originally published in the EJC Paediatric Oncology on December 1, 2025. Children and young people with cancer often experience many physical and emotional challenges during and

Empowering Young Cancer Survivors: CCI Europe at the YARN General Assembly in Bucharest

Empowering Young Cancer Survivors: CCI Europe at the YARN General Assembly in Bucharest Youth cancer advocates from across Europe gathered in Bucharest on 12-13 December, for the recent General Assembly of the Youth Cancer Network (YARN). As the follow-up project to EU-CAYAS-NET (European Network of Youth Cancer Survivors), the

IMPACT-EU kicks off to improve psychosocial care for children and adolescents with cancer across Europe

 IMPACT-EU kicks off to improve psychosocial care for children and adolescents with cancer across Europe  Utrecht, 1/10/2025 - The IMPACT-EU project has officially launched, marking the start of a Europe-wide effort to improve psychosocial care for children and adolescents affected by cancer. Co-funded by the European Union, this project

UNIFIED Launches to Put Patient Voices at the Heart of Healthcare Decisions

UNIFIED Launches to Put Patient Voices at the Heart of Healthcare Decisions Rotterdam, 4 November 2025 – Erasmus University Rotterdam and Pfizer lead UNIFIED (Unifying Framework for Patient-Centred Clinical-study Endpoints Derived from Digital Health Technologies), a five-year, €27 million global public-private partnership funded by the Horizon Europe Innovative

A Win for Transparency: ESCP Guidelines Now Open to Patients, Families, and Advocates

A Win for Transparency: ESCP Guidelines Now Open to Patients, Families, and Advocates After sustained pressure from CCI Europe and other partners, the European Reference Network for Paediatric Cancer (ERN PaedCan), SIOP Europe, and the European Clinical Trial Groups (ECTG) have made all 27 European Standard Clinical Practice

Kick-off Meeting Launches RHYTHM Project to Enhance Radiation Safety and Imaging Quality for Young Patients in Europe

Kick-off Meeting Launches RHYTHM Project to Enhance Radiation Safety and Imaging Quality for Young Patients in Europe  Vienna, Austria – October 22, 2025 - The 4-year RHYTHM project (Radiation, Health, Safety and Quality for Youth: A Comprehensive Approach to Justification, Optimisation, and Education) officially launched with a kick-off

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